Changes in intimate relationships following treatment for head and neck cancer—A qualitative study

References

• Aasbo, G., Solbraekke, K. N., Kristvik, E., & Werner, A. (2016). Between disruption and continuity: challenges in maintaining the ‘biographical we’ when caring for a partner with a severe, chronic illness. Sociology of Health & Illness, 38(5), 782–796. doi:10.1111/1467-9566.12396
   PubMed Web of Science ®Google Scholar
• Badr, H., Herbert, K., Reckson, B., Rainey, H., Sallam, A., & Gupta, V. (2016). Unmet needs and relationship challenges of head and neck cancer patients and their spouses. Journal of Psychosocial Oncology, 34(4), 336–346. doi:10.1080/07347332.2016.1195901
   PubMed Web of Science ®Google Scholar
• Badr, H., Milbury, K., Majeed, N., Carmack, C. L., Ahmad, Z., & Gritz, E. R. (2016). Natural language use and couples' adjustment to head and neck cancer. Health Psychology, 35(10), 1069–1080. doi: 10.1037/hea0000377.supp
   PubMed Web of Science ®Google Scholar
• Baker, P., Beesley, H., Fletcher, I., Ablett, J., Holcombe, C., & Salmon, P. (2016). ‘Getting back to normal’ or ‘a new type of normal’? A qualitative study of patients' responses to the existential threat of cancer. European Journal of Cancer, 25(1), 180–189. doi:10.1111/ecc.12274
   Web of Science ®Google Scholar
• Bowers, B. (2008). Providing effective support for patients facing disfiguring surgery. British Journal of Nursing, 17(2), 94–98. Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/18414280
   PubMedGoogle Scholar
• Bryant, A., & Charmaz, K. (2007). The Sage Handbook of Grounded Theory. London, UK: SAGE Publications.
   Google Scholar
• Bury, M. (1982). Chronic illness as biographical disruption. Sociology of Health & Illness, 4(2), 167–182.
   PubMedGoogle Scholar
• Callahan, C. (2004). Facial disfigurement and sense of self in head and neck cancer. Social Work in Health Care, 40(2), 73–87.
   PubMed Web of Science ®Google Scholar
• Cavell, S., Broadbent, E., Donkin, L., Gear, K., & Morton, R. P. (2016). Observations of benefit finding in head and neck cancer patients. European Archives of Oto-Rhino-Laryngology, 273(2), 479–485. doi:10.1007/s00405-015-3527-7
   PubMed Web of Science ®Google Scholar
• Charmaz, K. (1983). Loss of self: a fundamental form of suffering in the chronically ill. Sociology of Health & Illness, 5(2), 168–195.
   PubMedGoogle Scholar
• Charmaz, K. (2006). Constructing Grounded Theory. A Practical Guide Through Qualitative Analysis. Thousand Oaks, CA: SAGE Publications.
   Google Scholar
• Corry, J., Poon, W., McPhee, N., Milner, A. D., Cruickshank, D., Porceddu, S. V., … Peters, L. J. (2009). Prospective study of percutaneous endoscopic gastrostomy tubes versus nasogastric tubes for enteral feeding in patients with head and neck cancer undergoing (chemo)radiation. Head Neck, 31(7), 867–876. doi:10.1002/hed.21044
   PubMed Web of Science ®Google Scholar
• de Leeuw, J., van den Berg, M. G., van Achterberg, T., & Merkx, M. A. (2013). Supportive care in early rehabilitation for advanced-stage radiated head and neck cancer patients. Otolaryngology-Head and Neck Surgery, 148(4), 625–632. doi:10.1177/0194599812474797
   PubMed Web of Science ®Google Scholar
• Drabe, N., Wittmann, L., Zwahlen, D., Buchi, S., & Jenewein, J. (2013). Changes in close relationships between cancer patients and their partners. Psychooncology, 22(6), 1344–1352. doi:10.1002/pon.3144
   PubMed Web of Science ®Google Scholar
• Drabe, N., Zwahlen, D., Buchi, S., Moergeli, H., Zwahlen, R. A., & Jenewein, J. (2008). Psychiatric morbidity and quality of life in wives of men with long-term head and neck cancer. Psychooncology, 17(2), 199–204. doi:10.1002/pon.1199
   PubMed Web of Science ®Google Scholar
• Eades, M., Chasen, M., & Bhargava, R. (2009). Rehabilitation: long-term physical and functional changes following treatment. Seminars in Oncology Nursing, 25(3), 222–230. doi:10.1016/j.soncn.2009.05.006
   PubMedGoogle Scholar
• Ehrsson, Y. T., Langius-Eklöf, A., & Laurell, G. (2012). Nutritional surveillance and weight loss in head and neck cancer patients. Support Care Cancer, 20(4), 757–765. doi:10.1007/s00520-011-1146-4
   PubMed Web of Science ®Google Scholar
• Ehrsson, Y. T., Sundberg, K., Laurell, G., & Langius-Eklof, A. (2015). Head and neck cancer patients' perceptions of quality of life and how it is affected by the disease and enteral tube feeding during treatment. Upsala Journal of Medical Sciences, 120(4), 280–289. doi:10.3109/03009734.2015.1075630
   PubMed Web of Science ®Google Scholar
• Glaser, B. G. (1978). Theoretical Sensitivity. Mill Valley, California: Sociology Press.
   Google Scholar
• Howren, M. B., Christensen, A. J., Hynds Karnell, L., Van Liew, J. R., & Funk, G. F. (2013). Influence of pretreatment social support on health-related quality of life in head and neck cancer survivors: results from a prospective study. Head Neck, 35(6), 779–787. doi:10.1002/hed.23029
   PubMed Web of Science ®Google Scholar
• Humphris, G. M., & Ozakinci, G. (2006). Psychological responses and support needs of patients following head and neck cancer. International Journal of Surgery, 4(1), 37–44. doi:10.1016/j.ijsu.2005.12.004
   PubMedGoogle Scholar
• Isaksson, J., Salander, P., Granstrom, B., & Laurell, G. (2014). Critical incidents reveal how patients with head and neck cancer construct their “secure base” as a “helping system.” Journal of Psychosocial Oncology, 32(3), 322–341. doi:10.1080/07347332.2014.897289
   PubMed Web of Science ®Google Scholar
• Isaksson, J., Wilms, T., Laurell, G., Fransson, P., & Ehrsson, Y. T. (2016). Meaning of work and the process of returning after head and neck cancer. Support Care Cancer, 24(1), 205–213. doi:10.1007/s00520-015-2769-7
   PubMed Web of Science ®Google Scholar
• Karnell, L. H., Christensen, A. J., Rosenthal, E. L., Magnuson, J. S., & Funk, G. F. (2007). Influence of social support on health-related quality of life outcomes in head and neck cancer. Head Neck, 29(2), 143–146. doi:10.1002/hed.20501
   PubMed Web of Science ®Google Scholar
• Katz, M. R., Irish, J. C., Devins, G. M., Rodin, G. M., & Gullane, P. J. (2003). Psychosocial adjustment in head and neck cancer: the impact of disfigurement, gender and social support. Head Neck, 25(2), 103–112. doi:10.1002/hed.10174
   PubMed Web of Science ®Google Scholar
• Kvale, S. (1996). InterViews: An Introduction to Qualitative Research Interviewing. Thousand Oaks, CA: SAGE Publications.
   Google Scholar
• Kvåle, K. (2007). Do cancer patients always want to talk about difficult emotions? A qualitative study of cancer inpatients communication needs. European Journal of Oncology Nursing, 11(4), 320–327. doi:10.1016/j.ejon.2007.01.002
   PubMed Web of Science ®Google Scholar
• Lang, H., France, E., Williams, B., Humphris, G., & Wells, M. (2013). The psychological experience of living with head and neck cancer: a systematic review and meta-synthesis. Psychooncology, 22(12), 2648–2663. doi:10.1002/pon.3343
   PubMed Web of Science ®Google Scholar
• Larsson, M., Hedelin, B., & Athlin, E. (2003). Lived experiences of eating problems for patients with head and neck cancer during radiotherapy. Journal of Clinical Nursing, 12(4), 562–570. Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/12790870
   PubMed Web of Science ®Google Scholar
• Larsson, M., Hedelin, B., & Athlin, E. (2007). A supportive nursing care clinic: conceptions of patients with head and neck cancer. European Journal of Oncology Nursing, 11(1), 49–59. doi:10.1016/j.ejon.2006.04.033
   PubMed Web of Science ®Google Scholar
• Lebel, S., Castonguay, M., Mackness, G., Irish, J., Bezjak, A., & Devins, G. M. (2013). The psychosocial impact of stigma in people with head and neck or lung cancer. Psychooncology, 22(1), 140–152. doi:10.1002/pon.2063
   PubMed Web of Science ®Google Scholar
• Lincoln, Y. S., & Guba, E. G. (1986). Naturalistic Inquiry. Newbury Park, CA: Sage Publications.
   Google Scholar
• Low, C., Fullarton, M., Parkinson, E., O'Brien, K., Jackson, S. R., Lowe, D., & Rogers, S. N. (2009). Issues of intimacy and sexual dysfunction following major head and neck cancer treatment. Oral Oncology, 45(10), 898–903. doi:10.1016/j.oraloncology.2009.03.014
   PubMed Web of Science ®Google Scholar
• Manne, S., & Badr, H. (2010). Intimacy processes and psychological distress among couples coping with head and neck or lung cancers. Psychooncology, 19(9), 941–954. doi:10.1002/pon.1645
   PubMed Web of Science ®Google Scholar
• Manne, S. L., Ostroff, J. S., Norton, T. R., Fox, K., Goldstein, L., & Grana, G. (2006). Cancer-related relationship communication in couples coping with early stage breast cancer. Psychooncology, 15(3), 234–247. doi:10.1002/pon.941
   PubMed Web of Science ®Google Scholar
• Mehanna, H., Paleri, V., West, C. M., & Nutting, C. (2011). Head and neck cancer-part 1: epidemiology, presentation, and preservation. Clinical Otolaryngology, 36(1), 65–68. doi:10.1111/j.1749-4486.2010.02231.x
   PubMed Web of Science ®Google Scholar
• Mehanna, H., West, C. M., Nutting, C., & Paleri, V. (2010). Head and neck cancer–Part 2: Treatment and prognostic factors. BMJ, 341, c4690. Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/20876637
   PubMed Web of Science ®Google Scholar
• O'Brien, K., Roe, B., Low, C., Deyn, L., & Rogers, S. N. (2012). An exploration of the perceived changes in intimacy of patients' relationships following head and neck cancer. Journal of Clinical Nursing, 21(17–18), 2499–2508. doi:10.1111/j.1365-2702.2012.04162.x
   PubMed Web of Science ®Google Scholar
• Ottosson, S., Laurell, G., & Olsson, C. (2013). The experience of food, eating and meals following radiotherapy for head and neck cancer: a qualitative study. Journal of Clinical Nursing, 22(7–8), 1034–1043. doi:10.1111/jocn.12151
   PubMed Web of Science ®Google Scholar
• Penedo, F. J., Traeger, L., Benedict, C., Thomas, G., Dahn, J. R., Krause, M. H., & Goodwin, W. J. (2012). Perceived social support as a predictor of disease-specific quality of life in head-and-neck cancer patients. The Journal of Supportive Oncology, 10(3), 119–123. doi:10.1016/j.suponc.2011.09.002
   PubMedGoogle Scholar
• Richardson, A. E., Morton, R. M., & Broadbent, E. A. (2016). Changes over time in head and neck cancer patients' and caregivers' illness perceptions and relationships with quality of life. Psychology & Health, 31(10), 1203–1219. doi:10.1080/08870446.2016.1203686
   PubMed Web of Science ®Google Scholar
• Riessman, C. K. (2007). Narrative Methods for the Human Sciences. Thousand Oaks, California: Sage Publication Inc.
   Google Scholar
• Ronis, D. L., Duffy, S. A., Fowler, K. E., Khan, M. J., & Terrell, J. E. (2008). Changes in quality of life over 1 year in patients with head and neck cancer. Archives of Otolaryngology - Head and Neck Surgery, 134(3), 241–248. doi:10.1001/archoto.2007.43
   PubMed Web of Science ®Google Scholar
• Salander, P., Isaksson, J., Granström, B., & Laurell, G. (2016). Motives that head and neck cancer patients have for contacting a specialist nurse – an empirical study. The Journal of Clinical Nursing, 25(21–22), 3160–3166. doi:10.1111/jocn.13283
   PubMed Web of Science ®Google Scholar
• Schaller, A., Liedberg, G. M., & Larsson, B. (2014). How relatives of patients with head and neck cancer experience pain, disease progression and treatment: a qualitative interview study. European Journal of Oncology Nursing, 18(4), 405–410. doi:10.1016/j.ejon.2014.03.008
   PubMed Web of Science ®Google Scholar
• Semple, C. J., Dunwoody, L., George Kernohan, W., McCaughan, E., & Sullivan, K. (2008). Changes and challenges to patients' lifestyle patterns following treatment for head and neck cancer. Journal of Advanced Nursing, 63(1), 85–93. doi:10.1111/j.1365-2648.2008.04698.x
   PubMed Web of Science ®Google Scholar
• Strauss, A. (1987). Qualitative Analysis for Social Scientists. New York: Cambridge University Press.
   Google Scholar
• Thambyrajah, C., Herold, J., Altman, K., & Llewellyn, C. (2010). “Cancer doesn't mean curtains”: benefit finding in patients with head and neck cancer in remission. Journal of Psychosocial Oncology, 28(6), 666–682. doi:10.1080/07347332.2010.516812
   PubMed Web of Science ®Google Scholar
• Wells, M., Donnan, P. T., Sharp, L., Ackland, C., Fletcher, J., & Dewar, J. A. (2008). A study to evaluate nurse-led on-treatment review for patients undergoing radiotherapy for head and neck cancer. The Journal of Clinical Nursing, 17(11), 1428–1439. doi:10.1111/j.1365-2702.2007.01976.x
   PubMed Web of Science ®Google Scholar