508
Views
9
CrossRef citations to date
0
Altmetric
Articles

Quality of life and emotional distress among caregivers of patients newly diagnosed with cancer: Understanding trajectories across the first year post-diagnosis

, M Psych (Clinical), B.Soc.Sci (Hons)ORCID Icon, , B.Soc.Sci (Hons)ORCID Icon & , MBBS, MMed (Psych), MMedEdORCID Icon

References

  • Given BA, Given CW, Kozachik S. Family support in advanced cancer. CA Cancer J Clin. 2001;51(4):213–231. doi:10.3322/canjclin.51.4.213
  • Bevans M, Sternberg EM. Caregiving burden, stress, and health effects among family caregivers of adult cancer patients. JAMA. 2012;307(4):398–403. doi:10.1001/jama.2012.29
  • Kim Y, Given BA. Quality of life of family caregivers of cancer survivors. Cancer. 2008;112(S11):2556–2568. doi:10.1002/cncr.23449
  • Yun YH, Rhee YS, Kang IO, et al. Economic burdens and quality of life of family caregivers of cancer patients. Oncology. 2005;68(2-3):107–114. doi:10.1159/000085703
  • Fletcher BS, Miaskowski C, Given B, Schumacher K. The cancer family caregiving experience: An updated and expanded conceptual model. Eur J Oncol Nurs. 2012;16(4):387–398. doi:10.1016/j.ejon.2011.09.001
  • Stamataki Z, Ellis JE, Costello J, Fielding J, Burns M, Molassiotis A. Chronicles of informal caregiving in cancer: using `The Cancer Family Caregiving Experience’ model as an explanatory framework. Support Care Cancer. 2014;22(2):435–444. doi:10.1007/s00520-013-1994-1
  • Kitrungrote L, Cohen MZ. Quality of Life of Family Caregivers of Patients With Cancer: A Literature Review. Oncol Nurs Forum. 2006;33(3):625–632. doi:10.1188/06.ONF.625-632
  • Pitceathly C, Maguire P. The psychological impact of cancer on patients’ partners and other key relatives: a review. Eur J Cancer. 2003;39(11):1517–1524. doi:10.1016/S0959-8049(03)00309-5
  • Swore Fletcher BAS, Dodd MJ, Schumacher KL, et al. Symptom experience of family caregivers of patients with cancer. Oncol Nurs Forum. 2008;35(2):E23–E44. Vol doi:10.1188/08.ONF.E23-E44
  • Vanderwerker LC, Laff RE, Kadan-Lottick NS, McColl S, Prigerson HG. Psychiatric disorders and mental health service use among caregivers of advanced cancer patients. JCO. 2005;23(28):6899–6907. doi:10.1200/JCO.2005.01.370
  • Weitzner MA, Jacobsen PB, Wagner H, Friedland J, Cox C. The Caregiver Quality of Life Index–Cancer (CQOLC) scale: development and validation of an instrument to measure quality of life of the family caregiver of patients with cancer. Qual Life Res. 1999;8(1/2):55–63. doi:10.1023/A:1026407010614
  • Kim Y, Baker F, Spillers RL, Wellisch DK. Psychological adjustment of cancer caregivers with multiple roles. Psycho. Oncology. 2006;15(9):795–804. doi:10.1002/pon.1013
  • Nijboer C, Tempelaar R, Sanderman R, Triemstra M, Spruijt RJ, Van Den Bos GAM. Van Den Bos GAM. Cancer and caregiving: the impact on the caregiver’s health. Psycho Oncol. 1998;7(1):3–13. doi:10.1002/(SICI)1099-1611(199801/02)7:1<3::AID-PON320>3.0.CO;2-5
  • Weitzner MA, McMillan SC, Jacobsen PB. Family caregiver quality of life: differences between curative and palliative cancer treatment settings. J Pain Symptom Manage. 1999;17(6):418–428. doi:10.1016/S0885-3924(99)00014-7
  • Kim Y, Schulz R. Family caregivers’ strains: comparative analysis of cancer caregiving with dementia, diabetes, and frail elderly caregiving. J Aging Health. 2008;20(5):483–503.
  • Sherman DW, Ye XY, McSherry C, Calabrese M, Parkas V, Gatto M. Spiritual well-being as a dimension of quality of life for patients with advanced cancer and AIDS and their family caregivers: Results of a longitudinal study. Am J Hosp Palliat Care. 2005;22(5):349–362. doi:10.1177/104990910502200508
  • Delgado-Guay MO, Parsons HA, Hui D, De la Cruz MG, Thorney S, Bruera E. Spirituality, religiosity, and spiritual pain among care- givers of patients with advanced cancer. Am J Hosp Palliat Care. 2013;30(5):455–461. doi:10.1177/1049909112458030
  • Efficace F, Marrone R. Spiritual issues and quality of life assessment in cancer care. Death Stud. 2002;26(9):743–757. doi:10.1080/0748118029010652
  • Kim Y, Spillers RL. Quality of life of family caregivers at 2 years after a relative’s cancer diagnosis. Psycho‐oncology. 2010;19(4):431–440. doi:10.1002/pon.1576
  • Kim Y, Shaffer KM, Carver CS, Cannady RS. Prevalence and predictors of depressive symptoms among cancer caregivers 5 years after the relative’s cancer diagnosis. J Consult Clin Psychol. 2014;82(1):1–8. doi:10.1037/a0035116
  • Kim Y, Spillers RL, Hall DL. Quality of life of family caregivers 5 years after a relative’s cancer diagnosis: follow‐up of the national quality of life survey for caregivers. Psycho‐Oncology. 2012;21(3):273–281. doi:10.1002/pon.1888
  • Stenberg U, Ruland CM, Miaskowski C. Review of the literature on the effects of caring for a patient with cancer. Psycho‐oncology. 2010;19(10):1013–1025. doi:10.1002/pon.1670
  • Mahendran R, Lim HA, Tan J. The relationship between hope, resilience, optimism, and psychiatric co-morbidities in cancer patients: The HOPE study overview. Ann Acad Med Singapore. 2014;43:S46.
  • Mahendran R, Lim HA, Chua J, Peh CX, Lim SE, Kua EH. The Caregiver Quality of Life Index–Cancer (CQOLC) in Singapore: a new preliminary factor structure for caregivers of ambulatory patients with cancer. Qual Life Res. 2015;24(2):399–404. doi:10.1007/s11136-014-0768-7
  • Lovibond PF, Lovibond SH. The structure of negative emotional states: Comparison of the Depression Anxiety Stress Scales (DASS) with the beck depression and anxiety inventories. Behav Res Ther. 1995;33(3):335–343. doi:10.1016/0005-7967(94)00075-U
  • Oei TPS, Sawang S, Goh YW, Mukhtar F. Using the depression anxiety stress scale 21 (DASS-21) across cultures. Int J Psychol. 2013;48(6):1018–1029. doi:10.1080/00207594.2012.755535
  • Zigmond AS, Snaith RP. The hospital anxiety and depression scale. Acta Psychiatr Scand. 1983;67(6):361–370. doi:10.1111/j.1600-0447.1983.tb09716.x
  • Riba MB, Donovan KA, Andersen B, et al. Distress management, version 3.2019, NCCN clinical practice guidelines in oncology. J Natl Compr Cancer Netw. 2019;17(10):1229–1249. doi:10.6004/jnccn.2019.0048
  • Hughes KL, Sargeant H, Hawkes AL. Acceptability of the distress thermometer and problem list to community-based telephone cancer helpline operators, and to cancer patients and carers. BMC Cancer. 2011;11(1):46. doi:10.1186/1471-2407-11-46
  • Scherbring M. Effect of caregiver perception of preparedness on burden in an oncology population. Oncol Nurs Forum. 2002;29(6):E70–E76. doi:10.1188/02.ONF.E70-E76
  • McCorkle R, Yost LS, Jepson C, Malone D, Baird S, Lusk E. A cancer experience: Relationship of patient psychosocial responses to care‐giver burden over time. Psycho‐Oncology. 1993;2(1):21–32. doi:10.1002/pon.2960020105
  • Grunfeld E, Coyle D, Whelan T. Family caregiver burden: results of a longitudinal study of breast cancer patients and their principal caregivers. Can Med Assoc J. 2004;170(12):1795–1801. doi:10.1503/cmaj.1031205
  • Ng HY, Griva K, Lim HA, Tan JYS, Mahendran R. The burden of filial piety: A qualitative study on caregiving motivations amongst family caregivers of patients with cancer in Singapore. Psychol Health. 2016;31(11):1293–1310. doi:10.1080/08870446.2016.1204450
  • Seal K, Murray CD, Seddon L. The experience of being an informal “carer” for a person with cancer: A meta-synthesis of qualitative studies. Palliat Support Care. 2010;2015:1–12. doi:10.1017/S1478951513001132
  • Williams L. Whatever it takes: informal caregiving dynamics in blood and marrow transplantation. Oncol Nurs Forum. 2007;34(2):379–387. doi:10.1188/07.ONF.379-387
  • Girgis A, Lambert SD, McElduff P, et al. Some things change, some things stay the same: a longitudinal analysis of cancer caregivers’ unmet supportive care needs. Psycho Oncol. 2013;22(7):1557–1564. doi:10.1002/pon.3166
  • Morita T, Sakaguchi Y, Hirai K, Tsuneto S, Shima Y. Desire for death and requests to hasten death of Japanese terminally ill cancer patients receiving specialized inpatient palliative care. J Pain Symptom Manage. 2004;27(1):44–52. doi:10.1016/j.jpainsymman.2003.05.001
  • Shim E-J, Shin Y-W, Oh D-Y, Hahm B-J. Increased fear of progression in cancer patients with recurrence. Gen Hosp Psychiatry. 2010;32(2):169–175. doi:10.1016/j.genhosppsych.2009.11.017
  • Butler EA, Lee TL, Gross JJ. Emotion regulation and culture: are the social consequences of emotion suppression culture-specific? Emotion. 2007;7(1):30–48. doi:10.1037/1528-3542.7.1.30
  • Rhee YS, Shin DO, Lee KM, et al. Korean version of the Caregiver Quality of Life Index–Cancer (CQOLC-K). Qual Life Res. 2005;14(3):899–904. doi:10.1007/s11136-004-1264-2
  • Bektas HA, Ozer ZC. Reliability and validity of the caregiver quality of life index‐cancer (CQOLC) scale in Turkish cancer caregivers. J Clin Nurs. 2009;18(21):3003–3012. doi:10.1111/j.1365-2702.2009.02915.x
  • Tang W-R, Tang S-T, Kao C-Y. Psychometric testing of the Caregiver Quality of Life Index-Cancer on a Taiwanese family caregiver sample. Cancer Nurs. 2009;32(3):220–229.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.