Gaps in patient-centered follow-up cancer care: a cross sectional study

References

• Institute of Medicine (IOM). Crossing the Quality Chasm: A New Health System for the 21st Century. Washington, DC: National Academy Press; 2001.
   Google Scholar
• Zucca A, Sanson-Fisher R, Waller A, Carey M, Boadle D. The first step in ensuring patient‐centred quality of care: ask the patient. Eur J Cancer Care. 2017; 26(1):e12345. doi:10.1111/ecc.12435
   Web of Science ®Google Scholar
• Catt S, Starkings R, Shilling V, Fallowfield L. Patient-reported outcome measures of the impact of cancer on patients' everyday lives: a systematic review. J Cancer Surviv. 2017; 11(2):211–232. doi:10.1007/s11764-016-0580-1
   PubMed Web of Science ®Google Scholar
• Bouazza Y, Chiairi I, El Kharbouchi O, et al. Patient-reported outcome measures (PROMs) in the management of lung cancer: a systematic review. Lung Cancer. 2017; 113:140–151. doi:10.1016/j.lungcan.2017.09.011
   PubMed Web of Science ®Google Scholar
• Williams K, Sansoni J, Morris D, Grootemaat P, Thompson C. Patient-Reported Outcome Measures: Literature Review Sydney. New South Wales: Australian Commission on Safety and Quality in Health Care; 2016.
   Google Scholar
• Hewitt M, Ganz P. From Cancer Patient to Cancer Survivor: Lost in Transition. Washington, DC: National Academies Press; 2006.
   Google Scholar
• Wu H, Harden J. Symptom burden and quality of life in survivorship: a review of the literature. Cancer Nurs. 2015; 38(1):E29–54. doi:10.1097/NCC.0000000000000135
   PubMed Web of Science ®Google Scholar
• Cancer Australia. The Impact of Fear of Cancer Recurrence (FCR) on Wellness: A Systematic Literature Review. Surry Hills, NSW: Cancer Australia; 2014.
   Google Scholar
• Ng A, Kenney L, Gilbert E, Travis L. Secondary malignancies across the age spectrum. Semin Radiat Oncol. 2010; 20(1):67–78. doi:10.1016/j.semradonc.2009.09.002
   PubMed Web of Science ®Google Scholar
• Brandenbarg D, Berendsen AJ, de Bock GH. Patients' expectations and preferences regarding cancer follow-up care. Maturitas. 2017; 105:58–63. doi:10.1016/j.maturitas.2017.07.001
   PubMed Web of Science ®Google Scholar
• Sanson-Fisher R, Hobden B, Carey M, Turon H, Waller A, Proietto A. The System for Patient Assessment of Cancer Experiences (SPACE): a cross-sectional study examining feasibility and acceptability. Support Care Cancer. 2020;28(4):1737–1745. doi:10.1007/s00520-019-04943-6
   PubMed Web of Science ®Google Scholar
• Quality Health. National Cancer Patient Experience Survey 2014 National Report. Leeds, UK: NHS England; 2014.
   Google Scholar
• Bureau of Health Information. Patient Perspectives - Hospital Care for People with Cancer. Sydney, NSW: BHI; 2015.
   Google Scholar
• Cancer Australia. Recommendations for the Identification and Management of Fear of Cancer Recurrence in Adult Cancer Survivors. Sydney: Cancer Australia; 2014.
   Google Scholar
• Cancer Australia. Clinical Guidance for Responding to Suffering in Adults with Cancer. Sydney: Cancer Australia; 2014.
   Google Scholar
• National Breast Cancer Centre, National Cancer Control Initiative. Clinical Practice Guidelines for the Psychosocial Care of Adults with Cancer. Camperdown: National Breast Cancer Centre; 2003.
   Google Scholar
• National Comprehensive Cancer Network. Clinical Practice Guidelines in Oncology (NCCN Guidelines) for Distress Management; 2014. https://www.nccn.org/professionals/physician_gls/pdf/distress.
   Google Scholar
• National Institute for Clinical Excellence. Guidance on Cancer Service: Improving Supportive and Palliative Care for Adults with Cancer. London: NICE; 2004.
   Google Scholar
• Sabatino SA, Thompson TD, Smith JL, et al. Receipt of cancer treatment summaries and follow-up instructions among adult cancer survivors: results from a national survey. J Cancer Surviv. 2013; 7(1):32–43. doi:10.1007/s11764-012-0242-x
   PubMed Web of Science ®Google Scholar
• Johnson C, Lizama N, Garg N, Ghosh M, Emery J, Saunders C. Australian general practitioners' preferences for managing the care of people diagnosed with cancer. Asia-Pac J Clin Oncol. 2014; 10(2):e90-8–e98. doi:10.1111/ajco.12047
   PubMed Web of Science ®Google Scholar
• Grunfeld E, Fitzpatrick R, Mant D, et al. Comparison of breast cancer patient satisfaction with follow-up in primary care versus specialist care: results from a randomised controlled trial. Br J Gen Pract. 1999; 49(446):705–710.
   PubMed Web of Science ®Google Scholar
• Grunfeld E, Levine M, Julian J, et al. Randomized trial of long-term follow-up for early-stage breast cancer: a comparison of family physician versus specialist care. J Clin Oncol. 2006; 24(6):848–855. doi:10.1200/JCO.2005.03.2235
   PubMed Web of Science ®Google Scholar
• Mitchell G, Burridge L, Colquist S, Love A. General practitioners' perceptions of their role in cancer care and factors which influence this role. Health Soc Care Community. 2012; 20(6):607–616. doi:10.1111/j.1365-2524.2012.01075.x
   PubMed Web of Science ®Google Scholar
• Meiklejohn J, Mimery A, Martin J, et al. The role of the GP in follow-up cancer care: a systematic literature review. J Cancer Surviv. 2016; 10(6):990–1011. doi:10.1007/s11764-016-0545-4
   PubMed Web of Science ®Google Scholar
• Chubak J, Bowles E, Tuzzio L, et al. Perspectives of cancer survivors on the role of different healthcare providers in an integrated delivery system. J Cancer Surviv. 2014; 8(2):229–238. doi:10.1007/s11764-013-0335-1
   PubMed Web of Science ®Google Scholar
• Weller D, Harris M. Cancer care: what role for the general practitioner? Med J Aust. 2008; 189(2):59–60. doi:10.5694/j.1326-5377.2008.tb01915.x
   PubMed Web of Science ®Google Scholar
• Dewar J, Kerr G. Value of routine follow up of women treated for early carcinoma of the breast. Br Med J (Clin Res Ed)). 1985; 291(6507):1464–1467. doi:10.1136/bmj.291.6507.1464
   PubMedGoogle Scholar
• Hiramanek N. Breast cancer recurrence: follow up after treatment for primary breast cancer. Postgrad Med J. 2004; 80(941):172–176. doi:10.1136/pgmj.2003.010728
   PubMed Web of Science ®Google Scholar
• Fardell J, Thewes B, Turner J, et al. Fear of cancer recurrence: a theoretical review and novel cognitive processing formulation. J Cancer Surviv. 2016; 10(4):663–673. doi:10.1007/s11764-015-0512-5
   PubMed Web of Science ®Google Scholar
• Gunnarsdottir S, Serlin RC, Ward S. Patient-related barriers to pain management: the Icelandic Barriers Questionnaire II. J Pain Symptom Manage. 2005; 29(3):273–285. doi:10.1016/j.jpainsymman.2004.06.015
   PubMed Web of Science ®Google Scholar
• Loh S, Packer T, Chinna K, Quek K. Effectiveness of a patient self-management programme for breast cancer as a chronic illness: a non-randomised controlled clinical trial. J Cancer Surviv. 2013; 7(3):331–342. doi:10.1007/s11764-013-0274-x
   PubMed Web of Science ®Google Scholar
• Cockle‐Hearne J, Faithfull S. Self-management for men surviving prostate cancer: a review of behavioural and psychosocial interventions to understand what strategies can work, for whom and in what circumstances . Psychooncology. 2010; 19(9):909–922. doi:10.1002/pon.1657
   PubMed Web of Science ®Google Scholar
• Blanch-Hartigan D, Forsyth L, Alfano C, et al. Provision and discussion of survivorship care plans among cancer survivors: results of a nationally representative survey of oncologists and primary care physicians. J Clin Oncol. 2014; 32(15):1578–1585. doi:10.1200/JCO.2013.51.7540
   PubMed Web of Science ®Google Scholar
• Mayer D, Nekhlyudov L, Snyder C, Merrill J, Wollins D, Shulman L. American Society of Clinical Oncology clinical expert statement on cancer survivorship care planning. J Oncol Pract. 2014;10(6):345–351. doi:10.1200/JOP.2014.001321
   PubMedGoogle Scholar
• Birken S, Ellis S, Walker J, et al. Guidelines for the use of survivorship care plans: a systematic quality appraisal using the AGREE II instrument. Implement Sci. 2015; 10(63).
   PubMedGoogle Scholar
• Salz T, Oeffinger K, McCabe M, Layne T, Bach P. Survivorship care plans in research and practice. CA Cancer J Clin. 2012; 62(2):101–117. doi:10.3322/caac.20142
   PubMed Web of Science ®Google Scholar
• van de Poll-Franse L, Nicolaije K, Ezendam N. The impact of cancer survivorship care plans on patient and health care provider outcomes: a current perspective. Acta Oncol. 2017; 56(2):137–138.
   Web of Science ®Google Scholar
• Salz T, Baxi S. Moving survivorship care plans forward: focus on care coordination. Cancer Med. 2016; 5(7):1717–1722. doi:10.1002/cam4.733
   PubMed Web of Science ®Google Scholar
• Turon H, Carey M, Boyes A, Hobden B, Dilworth S, Sanson-Fisher R. Agreement between a single-item measure of anxiety and depression and the Hospital Anxiety and Depression Scale: A cross-sectional study. PLoS One. 2019; 14(1):e0210111. doi:10.1371/journal.pone.0210111
   PubMed Web of Science ®Google Scholar
• Simon-Davies J. Statistics and Mapping Section. Population and Migration Statistics in Australia. Canberra: Department of Parliamentary Services; 2018.
   Google Scholar