Unexpressed psychosocial needs in cancer patients at the beginning of inpatient rehabilitation: a qualitative analysis

References

• Mehnert A, Hartung TJ, Friedrich M, et al. One in two cancer patients is significantly distressed: Prevalence and indicators of distress. Psychooncology. 2018;27(1):75–82. doi:10.1002/pon.4464
   PubMed Web of Science ®Google Scholar
• Andrykowski MA, Donovan KA, Laronga C, Jacobsen PB. Prevalence, predictors, and characteristics of off-treatment fatigue in breast cancer survivors. Cancer. 2010;116(24):5740–5748. doi:10.1002/cncr.25294
   PubMed Web of Science ®Google Scholar
• Duijts SF, van Egmond MP, Spelten E, van Muijen P, Anema JR, van der Beek AJ. Physical and psychosocial problems in cancer survivors beyond return to work: a systematic review. Psychooncology. 2014;23(5):481–492. doi:10.1002/pon.3467
   PubMed Web of Science ®Google Scholar
• Simard S, Thewes B, Humphris G, et al. Fear of cancer recurrence in adult cancer survivors: a systematic review of quantitative studies. J Cancer Surviv. 2013;7(3):300–322. doi:10.1007/s11764-013-0272-z
   PubMed Web of Science ®Google Scholar
• Mehnert A, Brähler E, Faller H, et al. Four-week prevalence of mental disorders in patients with cancer across major tumor entities. J Clin Oncol. 2014;32(31):3540–3554. doi:10.1200/JCO.2014.56.0086
   PubMed Web of Science ®Google Scholar
• Kuhnt S, Brähler E, Faller H, et al. Twelve-month and lifetime prevalence of mental disorders in cancer patients. Psychother Psychosom. 2016;85(5):289–296. doi:10.1159/000446991
   PubMed Web of Science ®Google Scholar
• Hartung TJ, Brähler E, Faller H, et al. The risk of being depressed is significantly higher in cancer patients than in the general population: Prevalence and severity of depressive symptoms across major cancer types. Eur J Cancer. 2017;72:46–53. doi:10.1016/j.ejca.2016.11.017
   PubMed Web of Science ®Google Scholar
• Faller H, Schuler M, Richard M, Heckl U, Weis J, Küffner R. Effects of psycho-oncologic interventions on emotional distress and quality of life in adult patients with cancer: systematic review and meta-analysis. J Clin Oncol. 2013;31(6):782–793. doi:10.1200/JCO.2011.40.8922
   PubMed Web of Science ®Google Scholar
• Kalter J, Verdonck-de Leeuw IM, Sweegers MG, et al. Effects and moderators of psychosocial interventions on quality of life, and emotional and social function in patients with cancer: An individual patient data meta-analysis of 22 RCTs. Psychooncology. 2018;27(4):1150–1161. doi:10.1002/pon.4648
   PubMed Web of Science ®Google Scholar
• Lewis-Smith H, Diedrichs PC, Rumsey N, Harcourt D. Efficacy of psychosocial and physical activity-based interventions to improve body image among women treated for breast cancer: A systematic review. Psychooncology. 2018;27(12):2687–2699. doi:10.1002/pon.4870
   PubMed Web of Science ®Google Scholar
• Faller H, Hass HG, Engehausen D, Reuss-Borst M, Wöckel A. Supportive care needs and quality of life in patients with breast and gynecological cancer attending inpatient rehabilitation. A prospective study. Acta Oncol. 2019;58(4):417–424. doi:10.1080/0284186X.2018.1543947
   PubMed Web of Science ®Google Scholar
• Sanson-Fisher R, Girgis A, Boyes A, Bonevski B, Burton L, Cook P. The unmet supportive care needs of patients with cancer. Cancer. 2000;88(1):226–236. doi:10.1002/(SICI)1097-0142(20000101)88:1<226::AID-CNCR30>3.0.CO;2-P
   PubMed Web of Science ®Google Scholar
• Faller H, Weis J, Koch U, et al. Utilization of professional psychological care in a large German sample of cancer patients. Psychooncology. 2017;26(4):537–543. doi:10.1002/pon.4197
   PubMed Web of Science ®Google Scholar
• Salmon P, Clark L, McGrath E, Fisher P. Screening for psychological distress in cancer: renewing the research agenda. Psychooncology. 2015;24(3):262–268. doi:10.1002/pon.3640
   PubMed Web of Science ®Google Scholar
• Faller H, Weis J, Koch U, et al. Perceived need for psychosocial support depending on emotional distress and mental comorbidity in men and women with cancer. J Psychosom Res. 2016;81:24–30. doi:10.1016/j.jpsychores.2015.12.004
   PubMed Web of Science ®Google Scholar
• Cohen A, Ianovski LE, Frenkiel S, et al. Barriers to psychosocial oncology service utilization in patients newly diagnosed with head and neck cancer. Psychooncology. 2018;27(12):2786–2793. doi:10.1002/pon.4889
   PubMed Web of Science ®Google Scholar
• Brandes K, Linn AJ, Smit EG, van Weert JC. Patients' reports of barriers to expressing concerns during cancer consultations. Patient Educ Couns. 2015;98(3):317–322. doi:10.1016/j.pec.2014.11.021
   PubMed Web of Science ®Google Scholar
• Adams RN, Mosher CE, Cohee AA, et al. Avoidant coping and self-efficacy mediate relationships between perceived social constraints and symptoms among long-term breast cancer survivors. Psychooncology. 2017;26(7):982–990. doi:10.1002/pon.4119
   PubMed Web of Science ®Google Scholar
• Clover KA, Mitchell AJ, Britton B, Carter G. Why do oncology outpatients who report emotional distress decline help? Psychooncology. 2015;24(7):812–818. doi:10.1002/pon.3729
   PubMed Web of Science ®Google Scholar
• Fagerlind H, Kettis A, Glimelius B, Ring L. Barriers against psychosocial communication: oncologists' perceptions. JCO. 2013;31(30):3815–3822. doi:10.1200/JCO.2012.45.1609
   PubMed Web of Science ®Google Scholar
• Rankin NM, Butow PN, Thein T, et al. Everybody wants it done but nobody wants to do it: An exploration of the barrier and enablers of critical components towards creating a clinical pathway for anxiety and depression in cancer. BMC Health Serv Res. 2015;15(:28doi:10.1186/s12913-015-0691-9
   PubMed Web of Science ®Google Scholar
• Dilworth S, Higgins I, Parker V, Kelly B, Turner J. Patient and health professional's perceived barriers to the delivery of psychosocial care to adults with cancer: a systematic review. Psychooncology. 2014;23(6):601–612. doi:10.1002/pon.3474
   PubMed Web of Science ®Google Scholar
• Langbecker D, Ekberg S, Yates P. Don't need help, don't want help, can't get help: How patients with brain tumors account for not using rehabilitation, psychosocial and community services. Patient Educ Couns. 2017;100(9):1744–1750. doi:10.1016/j.pec.2017.04.004
   PubMed Web of Science ®Google Scholar
• Nowossadeck E, Barnes B. Inanspruchnahme der onkologischen Rehabilitation im Verhältnis zur Krebsinzidenz. Gesundheitswesen. 2016;78(08/09):163. doi:10.1055/s-0036-1586673
   Google Scholar
• Heckl U, Singer S, Wickert M, Weis J. Recent health care standards in psychooncology. Nervenheilkunde. 2011;30(03):124–130. doi:10.1055/s-0038-1627780
   Google Scholar
• Haberland J, Bertz J, Wolf U, Ziese T, Kurth B. German cancer statistics 2004. BMC Cancer. 2010;10(52):52doi:10.1186/1471-2407-10-52
   PubMedGoogle Scholar
• Kroenke K, Spitzer RL, Williams JB. The PHQ-9: validity of a brief depression severity measure. J Gen Intern Med. 2001;16(9):606–613. doi:10.1046/j.1525-1497.2001.016009606.x
   PubMed Web of Science ®Google Scholar
• Mehnert A, Herschbach P, Berg P, Henrich G, Koch U. Fear of progression in breast cancer patients – validation of the short form of the Fear of Progression Questionnaire (FoP-Q-SF. ). Zeitschrift Psychosomatische Medizin Psychotherapie. 2006;52(3):274–288. doi:10.13109/zptm.2006.52.3.274
   PubMed Web of Science ®Google Scholar
• Einsle F, Köllner V, Dannemann S, Maercker A. Development and validation of a self-report for the assessment of adjustment disorders. Psychol Health Med. 2010;15(5):584–595. doi:10.1080/13548506.2010.487107
   PubMed Web of Science ®Google Scholar
• Mayring P. Qualitative content analysis. A Companion to Qualitative Research. 2004;1:12.
   Google Scholar
• Hsieh HF, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res. 2005;15(9):1277–1288. doi:10.1177/1049732305276687
   PubMed Web of Science ®Google Scholar
• Dey I. Qualitative Data Analysis: A User-Friendly Guide for Social Scientists. London: Routledge; 1993.
   Google Scholar
• Creswell JW, Creswell JD. Research Design: Qualitative, Quantitative and Mixed Methods Approaches. 5th ed. New York, NY: SAGE publications; 2017.
   Google Scholar
• Kowitz S, Zielasek J, Gaebel W. Mental healthcare in Germany-current situation and perspectives. Dtsch Med Wochenschr. 2014;139(23):1249–1252. doi:10.1055/s-0034-1370039
   PubMed Web of Science ®Google Scholar
• Fobair P, Stewart SL, Chang S, D'Onofrio C, Banks PJ, Bloom JR. Body image and sexual problems in young women with breast cancer. Psychooncology. 2006;15(7):579–594. doi:10.1002/pon.991
   PubMed Web of Science ®Google Scholar
• Ettridge KA, Bowden JA, Chambers SK, et al. "Prostate cancer is far more hidden…": Perceptions of stigma, social isolation and help-seeking among men with prostate cancer . Eur J Cancer Care (Engl)). 2018;27(2):e12790doi:10.1111/ecc.12790
   PubMed Web of Science ®Google Scholar
• Phelan SM, Griffin JM, Jackson GL, et al. Stigma, perceived blame, self-blame, and depressive symptoms in men with colorectal cancer. Psychooncology. 2013;22(1):65–73. doi:10.1002/pon.2048
   PubMed Web of Science ®Google Scholar
• Ross L, Abild-Nielsen AG, Thomsen BL, Karlsen RV, Boesen EH, Johansen C. Quality of life of Danish colorectal cancer patients with and without a stoma. Support Care Cancer. 2007;15(5):505–513. doi:10.1007/s00520-006-0177-8
   PubMed Web of Science ®Google Scholar
• Mercadante S, Vitrano V, Catania V. Sexual issues in early and late stage cancer: a review. Support Care Cancer. 2010;18(6):659–665. doi:10.1007/s00520-010-0814-0
   PubMed Web of Science ®Google Scholar
• Schover LR. Sexual quality of life in men and women after cancer. Climacteric. 2019;22(6):553–555. doi:10.1080/13697137.2018.1526893
   PubMed Web of Science ®Google Scholar
• Ljungman L, Ahlgren J, Petersson LM, et al. Sexual dysfunction and reproductive concerns in young women with breast cancer: Type, prevalence, and predictors of problems. Psycho-Oncology. 2018;27(12):2770–2777. doi:10.1002/pon.4886
   PubMed Web of Science ®Google Scholar
• Stanford JL, Feng Z, Hamilton AS, et al. Urinary and Sexual Function After Radical Prostatectomy for Clinically Localized Prostate Cancer: The Prostate Cancer Outcomes Study. JAMA. 2000;283(3):354–360. doi:10.1001/jama.283.3.354
   PubMed Web of Science ®Google Scholar
• Hordern AJ, Street AF. Communicating about patient sexuality and intimacy after cancer: mismatched expectations and unmet needs. Med J Aust. 2007;186(5):224–227. doi:10.5694/j.1326-5377.2007.tb00877.x
   PubMed Web of Science ®Google Scholar
• Reese JB, Sorice K, Beach MC, et al. Patient-provider communication about sexual concerns in cancer: a systematic review. J Cancer Surviv. 2017;11(2):175–188. doi:10.1007/s11764-016-0577-9
   PubMed Web of Science ®Google Scholar
• Stead ML, Brown JM, Fallowfield L, Selby P. Lack of communication between healthcare professionals and women with ovarian cancer about sexual issues. Br J Cancer. 2003;88(5):666–671. doi:10.1038/sj.bjc.6600799
   PubMed Web of Science ®Google Scholar