Partners of young breast cancer survivors: a cross-sectional evaluation of psychosocial concerns, coping, and mental health

References

• Gaugler JE, Eppinger A, King J, Sandberg T, Regine WF. Coping and its effects on cancer caregiving. Support Care Cancer. 2013;21(2):385–395. doi:10.1007/s00520-012-1525-5
   PubMed Web of Science ®Google Scholar
• Kim Y, Given BA. Quality of life of family caregivers of cancer survivors: across the trajectory of the illness. Cancer. 2008;112(11 Suppl):2556–2568. doi:10.1002/cncr.23449
   PubMed Web of Science ®Google Scholar
• Given B, Wyatt G, Given C, et al. Burden and depression among caregivers of patients with cancer at the end of life. Oncol Nurs Forum. 2004;31(6):1105–1117. doi:10.1188/04.ONF.1105-1117
   PubMed Web of Science ®Google Scholar
• Williams AL, Bakitas M. Cancer family caregivers: a new direction for interventions. J Palliat Med. 2012;15(7):775–783. doi:10.1089/jpm.2012.0046
   PubMed Web of Science ®Google Scholar
• Lopez V, Copp G, Molassiotis A. Male caregivers of patients with breast and gynecologic cancer: experiences from caring for their spouses and partners. Cancer Nurs. 2012;35(6):402–410. doi:10.1097/NCC.0b013e318231daf0
   PubMed Web of Science ®Google Scholar
• Nijboer C, Triemstra M, Tempelaar R, Mulder M, Sanderman R, van den Bos GA. Patterns of caregiver experiences among partners of cancer patients. Gerontologist. 2000;40(6):738–746. doi:10.1093/geront/40.6.738
   PubMed Web of Science ®Google Scholar
• Donovan-Kicken E, Tollison AC, Goins ES. The nature of communication work during cancer: advancing the theory of illness trajectories. Health Commun. 2012;27(7):641–652. doi:10.1080/10410236.2011.629405
   PubMed Web of Science ®Google Scholar
• Blum K, Sherman DW. Understanding the experience of caregivers: a focus on transitions. Semin Oncol Nurs. 2010;26(4):243–258. doi:10.1016/j.soncn.2010.08.005
   PubMedGoogle Scholar
• Kim Y, Kashy DA, Spillers RL, Evans TV. Needs assessment of family caregivers of cancer survivors: three cohorts comparison. Psychooncology. 2010;19(6):573–582. doi:10.1002/pon.1597
   PubMed Web of Science ®Google Scholar
• van Ryn M, Sanders S, Kahn K, et al. Objective burden, resources, and other stressors among informal cancer caregivers: a hidden quality issue? Psychooncology. 2011;20(1):44–52. doi:10.1002/pon.1703
   PubMed Web of Science ®Google Scholar
• Trudeau-Hern S, Daneshpour M. Cancer's impact on spousal caregiver health: a qualitative analysis in grounded theory. Contemp Fam Ther. 2012;34(4):534–554. doi:10.1007/s10591-012-9211-9
   Google Scholar
• Pitceathly C, Maguire P. The psychological impact of cancer on patients' partners and other key relatives: a review. Eur J Cancer. 2003;39(11):1517–1524. doi:10.1016/s0959-8049(03)00309-5
   PubMed Web of Science ®Google Scholar
• Northouse L, Williams AL, Given B, McCorkle R. Psychosocial care for family caregivers of patients with cancer. J Clin Oncol. 2012;30(11):1227–1234. d doi:10.1200/JCO.2011.39.5798
   PubMed Web of Science ®Google Scholar
• Braun M, Mikulincer M, Rydall A, Walsh A, Rodin G. Hidden morbidity in cancer: spouse caregivers. JCO. 2007;25(30):4829–4834. doi:10.1200/JCO.2006.10.0909
   PubMed Web of Science ®Google Scholar
• Printz C. Cancer caregivers still have many unmet needs. Cancer. 2011;117(7):1331. doi:10.1002/cncr.26075
   PubMed Web of Science ®Google Scholar
• Cohee AA, Bigatti SM, Shields CG, et al. Quality of life in partners of young and old breast cancer survivors. Cancer Nurs. 2018;41(6):491–497.
   PubMed Web of Science ®Google Scholar
• Acquati C, Kayser K. Dyadic coping across the lifespan: a comparison between younger and middle-aged couples with breast cancer. Front Psychol. 2019;10:404. doi:10.3389/fpsyg.2019.00404
   PubMed Web of Science ®Google Scholar
• Rhee YS, Yun YH, Park S, et al. Depression in family caregivers of cancer patients: the feeling of burden as a predictor of depression. JCO. 2008;26(36):5890–5895. doi:10.1200/JCO.2007.15.3957
   PubMed Web of Science ®Google Scholar
• Rivera HR. Depression symptoms in cancer caregivers. Clin J Oncol Nurs. 2009;13(2):195–202. doi:10.1188/09.CJON.195.202
   PubMed Web of Science ®Google Scholar
• Baider L, Ever-Hadani P, Goldzweig G, Wygoda M, Peretz T. Is perceived family support a relevant variable in psychological distress? A sample of prostate and breast cancer couples. J Psychosom Res. 2003;55(5):453–460. doi:10.1016/s0022-3999(03)00502-6
   PubMed Web of Science ®Google Scholar
• Baucom DH, Porter LS, Kirby JS, Gremore TM, Keefe FJ. Psychosocial issues confronting young women with breast cancer. Breast Dis. 2005;23:103–113. doi:10.3233/bd-2006-23114
   PubMedGoogle Scholar
• Kim Y, Carver CS. Frequency and difficulty in caregiving among spouses of individuals with cancer: effects of adult attachment and gender. Psychooncology. 2007;16(8):714–723. doi:10.1002/pon.1110
   PubMed Web of Science ®Google Scholar
• Manne S, Badr H. Intimacy and relationship processes in couples' psychosocial adaptation to cancer. Cancer. 2008;112(11 Suppl):2541–2555. doi:10.1002/cncr.23450
   PubMed Web of Science ®Google Scholar
• Borstelmann NA, Rosenberg SM, Ruddy KJ, et al. Partner support and anxiety in young women with breast cancer. Psychooncology. 2015;24(12):1679–1685. doi:10.1002/pon.3780
   PubMed Web of Science ®Google Scholar
• Manne S, Kashy DA, Siegel S, Myers Virtue S, Heckman C, Ryan D. Unsupportive partner behaviors, social-cognitive processing, and psychological outcomes in couples coping with early stage breast cancer. J Fam Psychol. 2014;28(2):214–224. doi:10.1037/a0036053
   PubMed Web of Science ®Google Scholar
• Wimberly SR, Carver CS, Laurenceau JP, Harris SD, Antoni MH. Perceived partner reactions to diagnosis and treatment of breast cancer: impact on psychosocial and psychosexual adjustment. J Consult Clin Psychol. 2005;73(2):300–311. doi:10.1037/0022-006X.73.2.300
   PubMed Web of Science ®Google Scholar
• Baucom DH, Kirby JS, Pukay-Martin ND, et al. Men's psychological functioning in the context of women's breast cancer. J Marital Fam Ther. 2012;38(2):317–329. doi:10.1111/j.1752-0606.2009.00133.x
   PubMed Web of Science ®Google Scholar
• Rowland AA. Developmental states and adaptation: Adult model. In: Holland J, Rowland J, eds. Handbook of Psycho-Oncology: psychological Care of the Patient with Cancer. New York: Oxford University Press; 1990:25–43.
   Google Scholar
• Lebel S, Beattie S, Ares I, Bielajew C. Young and worried: Age and fear of recurrence in breast cancer survivors. Health Psychol. 2013;32(6):695–705. doi:10.1037/a0030186
   PubMed Web of Science ®Google Scholar
• Howard-Anderson J, Ganz PA, Bower JE, Stanton AL. Quality of life, fertility concerns, and behavioral health outcomes in younger breast cancer survivors: a systematic review. J Natl Cancer Inst. 2012;104(5):386–405. doi:10.1093/jnci/djr541
   PubMedGoogle Scholar
• Partridge AH, Hughes ME, Warner ET, et al. Subtype-dependent relationship between young age at diagnosis and breast cancer survival. J Clin Oncol. 2016;34(27):3308–3314. doi:10.1200/JCO.2015.65.8013
   PubMed Web of Science ®Google Scholar
• Ziner KW, Sledge GW, Bell CJ, Johns S, Miller KD, Champion VL. Predicting fear of breast cancer recurrence and self-efficacy in survivors by age at diagnosis. Oncol Nurs Forum. 2012;39(3):287–295. doi:10.1188/12.ONF.287-295
   PubMed Web of Science ®Google Scholar
• Lazarus RS, Folkman S. Stress, Appraisal, and Coping. New York, NY: Springer; 1984:456.
   Google Scholar
• Sherbourne CD, Stewart AL. The MOS social support survey. Soc Sci Med. 1991;32(6):705–714. doi:10.1016/0277-9536(91)90150-B
   PubMed Web of Science ®Google Scholar
• Weitzner MA, Jacobsen PB, Wagner H, Jr., Friedland J, Cox C. The Caregiver Quality of Life Index-Cancer (CQOLC) scale: development and validation of an instrument to measure quality of life of the family caregiver of patients with cancer. Qual Life Res. 1999;8(1-2):55–63. doi:10.1023/A:1026407010614
   PubMed Web of Science ®Google Scholar
• Carver CS. You want to measure coping but your protocol's too long: consider the brief COPE. Int J Behav Med. 1997;4(1):92–100. doi:10.1207/s15327558ijbm0401_6
   PubMed Web of Science ®Google Scholar
• Benson P. Coping, distress, and well-being in mothers of children with autism. Res Autism Spectr Disord. 2010;4(2):217–228. doi:10.1016/j.rasd.2009.09.008
   Web of Science ®Google Scholar
• Gierisch JM, Earp JA, Brewer NT, Rimer BK. Longitudinal predictors of nonadherence to maintenance of mammography. Cancer Epidemiol Biomarkers Prev. 2010;19(4):1103–1111. doi:10.1158/1055-9965.EPI-09-1120
   PubMed Web of Science ®Google Scholar
• Muriel AC, Moore CW, Baer L, et al. Measuring psychosocial distress and parenting concerns among adults with cancer: the Parenting Concerns Questionnaire. Cancer. 2012;118(22):5671–5678. doi:10.1002/cncr.27572
   PubMed Web of Science ®Google Scholar
• Ganz PA, Schag CA, Lee JJ, Sim MS. The CARES: a generic measure of health-related quality of life for patients with cancer. Qual Life Res. 1992;1(1):19–29. doi:10.1007/BF00435432
   PubMedGoogle Scholar
• Schag CA, Ganz PA, Heinrich RL. CAncer Rehabilitation Evaluation System–short form (CARES-SF). A cancer specific rehabilitation and quality of life instrument. Cancer. 1991;68(6):1406–1413. doi:10.1002/1097-0142(19910915)68:6<1406::AID-CNCR2820680638>3.0.CO;2-2
   PubMed Web of Science ®Google Scholar
• Lawrance K, Byers E. Development of the Interpersonal Exchange Model of Sexual Satisfaction in long-term relationships. Can J Hum Sex. 1992;1:123–128.
   Google Scholar
• Mark KP, Herbenick D, Fortenberry JD, Sanders S, Reece M. A psychometric comparison of three scales and a single-item measure to assess sexual satisfaction. J Sex Res. 2014;51(2):159–169. doi:10.1080/00224499.2013.816261
   PubMed Web of Science ®Google Scholar
• Zigmond AS, Snaith RP. The hospital anxiety and depression scale. Acta Psychiatr Scand. 1983;67(6):361–370. doi:10.1111/j.1600-0447.1983.tb09716.x
   PubMed Web of Science ®Google Scholar
• Bjelland I, Dahl AA, Haug TT, Neckelmann D. The validity of the Hospital Anxiety and Depression Scale. An updated literature review. J Psychosom Res. 2002;52(2):69–77. doi:10.1016/S0022-3999(01)00296-3
   PubMed Web of Science ®Google Scholar
• Dalton WT, 3rd, Nelson DV, Brobst JB, Lindsay JE, Friedman LC. Psychosocial variables associated with husbands' adjustment three months following wives' diagnosis of breast cancer. J Cancer Educ. 2007;22(4):245–249. doi:10.1007/BF03174124
   PubMed Web of Science ®Google Scholar
• Lambert SD, Jones BL, Girgis A, Lecathelinais C. Distressed partners and caregivers do not recover easily: adjustment trajectories among partners and caregivers of cancer survivors. Ann Behav Med. 2012;44(2):225–235. doi:10.1007/s12160-012-9385-2
   PubMed Web of Science ®Google Scholar
• Lambert SD, Girgis A, Lecathelinais C, Stacey F. Walking a mile in their shoes: anxiety and depression among partners and caregivers of cancer survivors at 6 and 12 months post-diagnosis. Support Care Cancer. 2013;21(1):75–85. doi:10.1007/s00520-012-1495-7
   PubMed Web of Science ®Google Scholar
• Fitzell A, Pakenham KI. Application of a stress and coping model to positive and negative adjustment outcomes in colorectal cancer caregiving. Psychooncology. 2010;19(11):1171–1178. doi:10.1002/pon.1666
   PubMed Web of Science ®Google Scholar
• Cohee AA, Adams RN, Johns SA, et al. Long-term fear of recurrence in young breast cancer survivors and partners. Psychooncology. 2017;26(1):22–28. doi:10.1002/pon.4008
   PubMed Web of Science ®Google Scholar
• Hodgson J, Shields C, Rousseau S. Disengaging communication in later-life couples coping with breast cancer. Fam Syst Health. 2003;21(2):145–163. doi:10.1037/1091-7527.21.2.145
   Google Scholar
• Manne SL, Ostroff J, Winkel G, Grana G, Fox K. Partner unsupportive responses, avoidant coping, and distress among women with early stage breast cancer: patient and partner perspectives. Health Psychol. 2005;24(6):635–641. doi:10.1037/0278-6133.24.6.635
   PubMed Web of Science ®Google Scholar
• Ganz PA, Desmond KA, Leedham B, Rowland JH, Meyerowitz BE, Belin TR. Quality of life in long-term, disease-free survivors of breast cancer: a follow-up study. J Natl Cancer Inst. 2002;94(1):39–49. doi:10.1093/jnci/94.1.39
   PubMed Web of Science ®Google Scholar
• Hagedoorn M, Sanderman R, Bolks HN, Tuinstra J, Coyne JC. Distress in couples coping with cancer: a meta-analysis and critical review of role and gender effects. Psychol Bull. 2008;134(1):1–30. doi:10.1037/0033-2909.134.1.1
   PubMed Web of Science ®Google Scholar
• Hodges LJ, Humphris GM, Macfarlane G. A meta-analytic investigation of the relationship between the psychological distress of cancer patients and their carers. Soc Sci Med. 2005;60(1):1–12. doi:10.1016/j.socscimed.2004.04.018
   PubMed Web of Science ®Google Scholar
• Kim Y, Mitchell HR, Ting A. Application of psychological theories on the role of gender in caregiving to psycho-oncology research. Psychooncology. 2019;28(2):228–254. doi:10.1002/pon.4953
   PubMed Web of Science ®Google Scholar