References
- O’Connor M, O’Donovan B, Drummond F, Donnelly C. The Unmet Needs of Cancer Survivors in Ireland: A Scoping Review. Cork: National Cancer Registry Ireland; 2019.
- Diefenbach MA, Mohamed NE. Regret of treatment decision and its association with disease-specific quality of life following prostate cancer treatment. Cancer Investig. 2007;25(6):449–457.
- Connolly T, Reb J. Regret in cancer-related decisions. Health Psychol. 2005;24(4S):S29–S34. doi:https://doi.org/10.1037/0278-6133.24.4.S29
- Christie DR, Sharpley CF, Bitsika V. Why do patients regret their prostate cancer treatment? A systematic review of regret after treatment for localized prostate cancer. Psychooncology 2015;24(9):1002–1011.
- Ratcliff CG, Cohen L, Pettaway CA, Parker PA. Treatment regret and quality of life following radical prostatectomy. Support Care Cancer 2013;21(12):3337–3343. doi:https://doi.org/10.1007/s00520-013-1906-4
- Flitcroft K, Brennan M, Spillane A. Decisional regret and choice of breast reconstruction following mastectomy for breast cancer: A systematic review. Psychooncology 2018;27(4):1110–1120. doi:https://doi.org/10.1002/pon.4585
- Wilson A, Ronnekleiv-Kelly SM, Pawlik TM. Regret in surgical decision-making: A systematic review of patient and physician perspectives. World J Surg. 2017;41(6):1454–1465. doi:https://doi.org/10.1007/s00268-017-3895-9
- Becerra Pérez MM, Menear M, Brehaut JC, Légaré F. Extent and Predictors of Decision Regret about Health Care Decisions: A Systematic Review. Los Angeles, CA: SAGE Publications; 2016. doi:https://doi.org/10.1177/0272989X16636113
- Vercellini P, Frattaruolo MP, Rosati R, et al. Medical treatment or surgery for colorectal endometriosis? Results of a shared decision-making approach. Hum Reprod. 2018;33(2):202–211. doi:https://doi.org/10.1093/humrep/dex364
- Deucher AB, Hengartner MP, Kawohl W, et al. Participation in medical decision-making across Europe: An international longitudinal multicenter study. Eur Psychiatry 2016;35:39–46.
- King JS, Moulton BW. Rethinking informed consent: The case for shared medical decision-making. Am J Law Med. 2006;32(4):429–501. doi:https://doi.org/10.1177/009885880603200401
- Elwyn G, Frosch D, Thomson R, et al. Shared decision-making: A model for clinical practice. J Gen Intern Med. 2012;27(10):1361–1367. doi:https://doi.org/10.1007/s11606-012-2077-6
- Wang AW-T, Chang S-M, Chang C-S, et al. Regret about surgical decisions among early-stage breast cancer patients: Effects of the congruence between patients' preferred and actual decision-making roles. Psychooncology 2018;27(2):508–514., doi:https://doi.org/10.1002/pon.4522
- Wilding S, Downing A, Selby P, et al. Decision regret in men living with and beyond non‐metastatic prostate cancer in the UK: A population‐based patient‐reported outcome study. Psychooncology 2020;29(5):886–893.
- Ouzzani M, Hammady H, Fedorowicz Z, Elmagarmid A. Rayyan-A web and mobile app for systematic reviews. Syst Rev. 2016;5(1):210. doi:https://doi.org/10.1186/s13643-016-0384-4
- Hong QN, Pluye P, Fàbregues S, et al. Mixed Methods Appraisal Tool (MMAT), Version 2018. Registration of Copyright (#1148552). Canada: Canadian Intellectual Property Office, Industry Canada.
- Ngwenya N, Kenten C, Jones L, et al. Experiences and preferences for end-of-life care for young adults with cancer and their informal carers: A narrative synthesis. J Adolesc Young Adult Oncol. 2017;6(2):200–212. doi:https://doi.org/10.1089/jayao.2016.0055
- O’Connor AM. 2003. User Manual – Decision Regret Scale. Ottawa: Ottawa Hospital Research Institute. Available from: https://decisionaid.ohri.ca/docs/develop/User_Manuals/UM_Regret_Scale.pdf.
- Clark JA, Wray NP, Ashton CM. Living with treatment decisions: Regrets and quality of life among men treated for metastatic prostate cancer. J Clin Oncol. 2001;19(1):72–80. doi:https://doi.org/10.1200/JCO.2001.19.1.72
- Collingwood SA, McBride RB, Leapman M, et al. Decisional regret after robotic-assisted laparoscopic prostatectomy is higher in African American men. Urol Oncol. 2014;32(4):419–425.
- van Stam MA, Aaronson NK, Bosch JR, et al. Patient-reported outcomes following treatment of localised prostate cancer and their association with regret about treatment choices. Eur Urol Oncol. 2018;3(1):21–31. doi:https://doi.org/10.1016/j.euo.2018.12.004
- Whelan T, Levine M, Willan A, et al. Effect of a decision aid on knowledge and treatment decision-making for breast cancer surgery: A randomized trial. JAMA. 2004;292(4):435–441.
- Lam WW, Chan M, Or A, Kwong A, Suen D, Fielding R. Reducing treatment decision conflict difficulties in breast cancer surgery: A randomized controlled trial. J Clin Oncol. 2013;31(23):2879–2885. doi:https://doi.org/10.1200/JCO.2012.45.1856
- van Tol-Geerdink JJ, Leer JWH, Wijburg CJ, et al. Does a decision aid for prostate cancer affect different aspects of decisional regret, assessed with new regret scales? A randomized, controlled trial. Health Expect. 2016;19(2):459–470. doi:https://doi.org/10.1111/hex.12369
- Hubbard G, Kidd L, Donaghy E. Preferences for involvement in treatment decision-making of patients with cancer: A review of the literature. Eur J Oncol Nurs. 2008;12(4):299–318. doi:https://doi.org/10.1016/j.ejon.2008.03.004
- Marahrens L, Kern R, Ziemssen T, et al. Patients' preferences for involvement in the decision-making process for treating diabetic retinopathy. BMC Ophthalmol. 2017;17(1):139 doi:https://doi.org/10.1186/s12886-017-0526-z
- Sekimoto M, Asai A, Ohnishi M, et al. Patients' preferences for involvement in treatment decision-making in Japan. BMC Fam Pract. 2004;5(1):1. doi:https://doi.org/10.1186/1471-2296-5-1
- Nicolai J, Buchholz A, Seefried N, et al. When do cancer patients regret their treatment decision? A path analysis of the influence of clinicians’ communication styles and the match of decision-making styles on decision regret. Patient Educ Couns. 2016;99(5):739–746.
- Kee JW, Khoo HS, Lim I, Koh MY. Communication skills in patient doctor interactions: Learning from patient complaints. Health Profess Educ. 2018;4(2):97–106. doi:https://doi.org/10.1016/j.hpe.2017.03.006
- Janz NK, Li Y, Zikmund-Fisher BJ, et al. The impact of doctor-patient communication on patients' perceptions of their risk of breast cancer recurrence. Breast Cancer Res Treat. 2017;161(3):525–535. doi:https://doi.org/10.1007/s10549-016-4076-5
- Sawka AM, Straus S, Gafni A, et al. Thyroid cancer patients' involvement in adjuvant radioactive iodine treatment decision-making and decision regret: an exploratory study. Support Care Cancer 2012;20(3):641–645. doi:https://doi.org/10.1007/s00520-011-1302-x
- Chien CH, Chuang CK, Liu KL, Li CL, Liu HE. Changes in decisional conflict and decisional regret in patients with localised prostate cancer. J Clin Nurs. 2014;23(13–14):1959–1969. doi:https://doi.org/10.1111/jocn.12470
- Hewitt M, Rowland JH. Mental health service use among adult cancer survivors: Analyses of the National Health Interview Survey. J Clin Oncol. 2002;20(23):4581–4590. doi:https://doi.org/10.1200/JCO.2002.03.077
- Cuypers M, Lamers RE, Kil PJ, van de Poll-Franse LV, de Vries M. Longitudinal regret and information satisfaction after deciding on treatment for localized prostate cancer with or without a decision aid. Results at one-year follow-up in the PCPCC trial. Patient Educ Couns. 2019;102(3):424–428. doi:https://doi.org/10.1016/j.pec.2018.10.006
- Bradt J, Dileo C, Magill L, Teague A. Music interventions for improving psychological and physical outcomes in cancer patients. Cochrane Database Systemat Rev. 2016;(8):CD006911.
- Breitbart W, Rosenfeld B, Pessin H, Applebaum A, Kulikowski J, Lichtenthal WG. Meaning-centered group psychotherapy: An effective intervention for improving psychological well-being in patients with advanced cancer. J Clin Oncol. 2015;33(7):749–754. doi:https://doi.org/10.1200/JCO.2014.57.2198
- Bränström R, Kvillemo P, Brandberg Y, Moskowitz JT. Self-report mindfulness as a mediator of psychological well-being in a stress reduction intervention for cancer patients—A randomized study. Ann Behav Med. 2010;39(2):151–161. doi:https://doi.org/10.1007/s12160-010-9168-6
- Mollica MA, Underwood III, W, Homish GG, Homish DL, Orom H. Spirituality is associated with less treatment regret in men with localized prostate cancer. Psychooncology. 2017;26(11):1839–1845.
- Attai DJ, Cowher MS, Al-Hamadani M, Schoger JM, Staley AC, Landercasper J. Twitter social media is an effective tool for breast cancer patient education and support: Patient-reported outcomes by survey. J Med Internet Res. 2015;17(7):e188. doi:https://doi.org/10.2196/jmir.4721
- Laidsaar-Powell R, Butow P, Bu S, et al. Family involvement in cancer treatment decision-making: A qualitative study of patient, family, and clinician attitudes and experiences. Patient Educ Couns. 2016;99(7):1146–1155. doi:https://doi.org/10.1016/j.pec.2016.01.014
- Loonen JJ, Blijlevens NM, Prins J, et al. Cancer survivorship care: person centered care in a multidisciplinary shared care model. Int J Integr Care. 2018;18(1):4.
- Carrera PM, Kantarjian HM, Blinder VS. The financial burden and distress of patients with cancer: understanding and stepping‐up action on the financial toxicity of cancer treatment. Cancer J Clin. 2018;68(2):153–165.
- Zhong W, Smith B, Haghighi K, Mancuso P. Systematic review of decision aids for the management of men with localized prostate cancer. Urology 2018;114:1–7. doi:https://doi.org/10.1016/j.urology.2017.10.022
- Lin GA, Aaronson DS, Knight SJ, Carroll PR, Dudley RA. Patient decision aids for prostate cancer treatment: a systematic review of the literature. Cancer J Clin. 2009;59(6):379–390.