669
Views
0
CrossRef citations to date
0
Altmetric
Research Articles

Social support experiences of hispanic/latino parents of childhood cancer survivors in a safety-net hospital: a qualitative study

, , PhD, MPHORCID Icon, , , MDORCID Icon, , , MD, , , PhD MPHORCID Icon & , , PhD, MPHORCID Icon

References

  • SEER Cancer Statistics. SEER Cancer Statistics Review, 1975–2015. National Cancer Institute. Accessed November 28, 2018.
  • Siegel RL, Miller KD, Jemal A. Cancer statistics, 2018. CA Cancer J Clin. Jan 2018;68(1):7–30. doi:10.3322/caac.21442
  • Yeh JM, Ward ZJ, Chaudhry A, et al. Life Expectancy of Adult Survivors of Childhood Cancer Over 3 Decades. JAMA Oncol. 2020;6(3):350–357. Jan 2 doi:10.1001/jamaoncol.2019.5582
  • Koch KD, Jones BL. Supporting Parent Caregivers of Children with Life-Limiting Illness. Children (Basel). 2018;5(7):85. doi:10.3390/children5070085
  • Casillas J, Kahn KL, Doose M, et al. Transitioning childhood cancer survivors to adult-centered healthcare: insights from parents, adolescent, and young adult survivors. Psychooncology. 2010;19(9):982–990. Sep doi:10.1002/pon.1650
  • Frederick NN, Bober SL, Berwick L, Tower M, Kenney LB. Preparing childhood cancer survivors for transition to adult care: The young adult perspective. Pediatr Blood Cancer. 2017;64(10):e26544. doi:10.1002/pbc.26544
  • Milam JE, Meeske K, Slaughter RI, et al. Cancer-related follow-up care among Hispanic and non-Hispanic childhood cancer survivors: The Project Forward study. Cancer. Feb 15 2015;121(4):605–613. doi:10.1002/cncr.29105
  • Young B, Dixon-Woods M, Findlay M, Heney D. Parenting in a crisis: conceptualising mothers of children with cancer. Soc Sci Med. Nov 2002;55(10):1835–1847. doi:10.1016/s0277-9536(01)00318-5
  • Van Dongen-Melman JEWM, Van Zuuren FJ, Verhulst FC. Experiences of parents of childhood cancer survivors: A qualitative analysis. Patient Educ Couns. 1998;34(3):185–200. doi:10.1016/S0738-3991(98)00031-7
  • Klassen A, Raina P, Reineking S, Dix D, Pritchard S, O’Donnell M. Developing a literature base to understand the caregiving experience of parents of children with cancer: a systematic review of factors related to parental health and well-being. Support Care Cancer. 2007;15(7):807–818. Jul doi:10.1007/s00520-007-0243-x
  • Wittenberg E, Prosser LA. Disutility of Illness for Caregivers and Families: A Systematic Review of the Literature. Pharmacoeconomics. 2013/06/012013;31(6):489–500. doi:10.1007/s40273-013-0040-y
  • Klassen AF, Anthony SJ, Khan A, Sung L, Klaassen R. Identifying determinants of quality of life of children with cancer and childhood cancer survivors: a systematic review. Support Care Cancer. 2011;19(9):1275–1287. doi:10.1007/s00520-011-1193-x
  • Slaughter RI, Hamilton AS, Cederbaum JA, Unger JB, Baezconde-Garbanati L, Milam JE. Relationships between parent and adolescent/young adult mental health among Hispanic and non-Hispanic childhood cancer survivors. J Psychosoc Oncol. 2020;38(6):746–760. doi:10.1080/07347332.2020.1815924
  • Long KA, Marsland AL. Family adjustment to childhood cancer: a systematic review. Clin Child Fam Psychol Rev. 2011;14(1):57–88. Mar doi:10.1007/s10567-010-0082-z
  • Decker CL. Social support and adolescent cancer survivors: A review of the literature. Psychooncology. 2007;16(1):1–11. Jan doi:10.1002/pon.1073
  • Quinn GP, Gonçalves V, Sehovic I, Bowman ML, Reed DR. Quality of life in adolescent and young adult cancer patients: a systematic review of the literature. Patient Relat Outcome Meas. 2015;6:19–51. doi:10.2147/PROM.S51658
  • Steele AC, Mullins LL, Mullins AJ, Muriel AC. Psychosocial Interventions and Therapeutic Support as a Standard of Care in Pediatric Oncology. Pediatr Blood Cancer. 2015;62 (S5):S585–S618. doi:10.1002/pbc.25701
  • Zhou ES. Social Support. In: Michalos AC, edEncyclopedia of Quality of Life and Well-Being Research. Springer Netherlands; 2014. p. 6161–6164.
  • Langford CP, Bowsher J, Maloney JP, Lillis PP. Social support: a conceptual analysis. J Adv Nurs. 1997;25(1):95–100. Jan doi:10.1046/j.1365-2648.1997.1997025095.x
  • Nicklin E, Velikova G, Hulme C, et al. Long-term issues and supportive care needs of adolescent and young adult childhood brain tumour survivors and their caregivers: A systematic review. Psychooncology. 2019;28(3):477–487. Mar doi:10.1002/pon.4989
  • Coulson NS, Greenwood N. Families affected by childhood cancer: An analysis of the provision of social support within online support groups. Child Care Health Dev. 2012;38(6):870–877. doi:10.1111/j.1365-2214.2011.01316.x
  • Gardner MH, Mrug S, Schwebel DC, Phipps S, Whelan K, Madan-Swain A. Demographic, medical, and psychosocial predictors of benefit finding among caregivers of childhood cancer survivors. Psychooncology. 2017;26(1):125–132. Jan doi:10.1002/pon.4014
  • Wilford JG, Hopfer S, Wenzel L. Perceptions of changes in clinical, informational, and supportive relationships after end of treatment among parents of young childhood cancer survivors. Psychooncology. 2019;28(4):913–919. Apr doi:10.1002/pon.5042
  • Gage EA. The dynamics and processes of social support: families’ experiences coping with a serious paediatric illness. Sociol Health Illn. 2013;35(3):405–418. Mar doi:10.1111/j.1467-9566.2012.01491.x
  • Christen S, Mader L, Baenziger J, et al. I wish someone had once asked me how I’m doing”: Disadvantages and support needs faced by parents of long-term childhood cancer survivors. Pediatr Blood Cancer. 2019;66(8):e27767. Aug doi:10.1002/pbc.27767
  • Moore SL, Fischer I, Havranek EP. Translating Health Services Research into Practice in the Safety Net. Health Serv Res. 2016;51(1):16–31. doi:10.1111/1475-6773.12341
  • Ochoa CY, Chan RY, Cervantes L, et al. Barriers and facilitators of Hispanic/Latino parents caregiving for a childhood cancer survivor: a qualitative study. Cancer Causes Control. 2023;34(2):151–160. doi:10.1007/s10552-022-01651-1
  • Braun V, Clarke V. Using thematic analysis in psychology. Qualitative Research in Psychology. 2006;3(2):77–101. doi:10.1191/1478088706qp063oa
  • Charmaz K. The power and potential of grounded theory. Medical Sociology Online. 2012;6(3):2–15.
  • Charmaz K. Constructing Grounded Theory: A Practical Guide through Qualitative Analysis. Thousand Oaks, CA: Sage; 2006.
  • Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19(6):349–357. doi:10.1093/intqhc/mzm042
  • Rodriguez-Alcalá ME, Qin H, Jeanetta S. The Role of Acculturation and Social Capital in Access to Health Care: A Meta-study on Hispanics in the US. J Community Health. 2019;44(6):1224–1252. doi:10.1007/s10900-019-00692-z