194
Views
1
CrossRef citations to date
0
Altmetric
Articles

“The disease is mine, the body is mine, I decide”: Individual, interpersonal, and institutional barriers and facilitators among survivors of women's cancers in Andean countries

, , , , , , , & show all
Pages 522-535 | Received 08 Jul 2017, Accepted 20 Dec 2017, Published online: 02 Feb 2018

References

  • Ashing, K. T., Miller, A. M., Mitchell, E., Martin, V., McDowell, K., Santifer, R. H., … Carrington, A. (2014). Nurturing advocacy inclusion to bring health equity in breast cancer among African–American women. Breast Cancer Management, 3(6), 487–495. doi:10.2217/bmt.14.41.
  • Bernard, H. R., & Ryan, G. W. (2010). Analyzing qualitative data: Systematic approaches. Los Angeles, CA: SAGE.
  • Bickell, N. A., Weidmann, J., Fei, K., Lin, J. J., & Leventhal, H. (2009). Underuse of breast cancer adjuvant treatment: Patient knowledge, beliefs, and medical mistrust. Journal of Clinical Oncology, 27(31), 5160–5167. doi:10.1200/JCO.2009.22.9773.
  • Bloom, J. R., & Kessler, L. (1994). Emotional support following cancer: A test of the stigma and social activity hypotheses. Journal of Health and Social Behavior, 35(2), 118–133. doi:10.2307/2137360.
  • Butts Stahly, G. (1989). Psychosocial aspects of the stigma of cancer: An overview. Journal of Psychosocial Oncology, 6(3–4), 3–27. doi:10.1300/J077v06n03_02.
  • Coughlin, S. S. (2008). Surviving cancer or other serious illness: A review of individual and community resources. CA: A Cancer Journal for Clinicians, 58(1), 60–64. doi:10.3322/CA.2007.0001
  • Dein, S. (2004). Explanatory models of and attitudes towards cancer in different cultures. The Lancet Oncology, 5(2), 119–124. doi:10.1016/S1470-2045(04)01386-5.
  • DeSantis, C. E., Bray, F., Ferlay, J., Lortet-Tieulent, J., Anderson, B. O., & Jemal, A. (2015). International variation in female breast cancer incidence and mortality rates. Cancer Epidemiology Biomarkers & Prevention, 24(10), 1495–1506. doi:10.1158/1055-9965.EPI-15-0535.
  • Dua, P., Heiland, M. F., Kracen, A. C., & Deshields, T. L. (2015). Cancer-related hair loss: A selective review of the alopecia research literature. Psycho-Oncology, 26(4), 438–443. doi:10.1002/pon.4039.
  • Dunkel-Schetter, C. (1984). Social support and cancer: Findings based on patient interviews and their implications. Journal of Social Issues, 40(4), 77–98. doi:10.1111/j.1540-4560.1984.tb01108.x.
  • Elkan, R., Avis, M., Cox, K., Wilson, E., Patel, S., Miller, S., … Kai, J. (2007). The reported views and experiences of cancer service users from minority ethnic groups: A critical review of the literature. European Journal of Cancer Care, 16(2), 109–121. doi:10.1111/j.1365-2354.2006.00726.x.
  • Errico, K. M., & Rowden, D. (2006). Experiences of breast cancer survivor-advocates and advocates in countries with limited resources: A shared journey in breast cancer advocacy. The Breast Journal, 12, S111–S116. doi:10.1111/j.1075-122X.2006.00208.x.
  • Espinosa de Los Monteros, K., & Gallo, L. C. (2011). The relevance of fatalism in the study of Latinas’ cancer screening behavior: A systematic review of the literature. International Journal of Behavioral Medicine, 18(4), 310–318. doi:10.1007/s12529-010-9119-4.
  • Fann, J. R., Thomas-Rich, A. M., Katon, W. J., Cowley, D., Pepping, M., McGregor, B. A., & Gralow, J. (2008). Major depression after breast cancer: A review of epidemiology and treatment. General Hospital Psychiatry, 30(2), 112–126. doi:10.1016/j.genhosppsych.2007.10.008.
  • Forouzanfar, M. H., Foreman, K. J., Delossantos, A. M., Lozano, R., Lopez, A. D., Murray, C. J. L., & Naghavi, M. (2011). Breast and cervical cancer in 187 countries between 1980 and 2010: A systematic analysis. Lancet, 378: 1461–1484. doi:10.1016/S0140-6736(11)61351-2.
  • Hay, J. L., McCaul, K. D., & Magnan, R. E. (2006). Does worry about breast cancer predict screening behaviors? A meta-analysis of the prospective evidence. Preventive Medicine, 42(6), 401–408. doi:10.1016/j.ypmed.2006.03.002.
  • Holland, J. C. (2002). History of psycho-oncology: Overcoming attitudinal and conceptual barriers. Psychosomatic Medicine, 64(2), 206–221. doi:10.1097/00006842-200203000-00004.
  • Holland, J. C., Kelly, B. J., & Weinberger, M. I. (2010). Why psychosocial care is difficult to integrate into routine cancer care: Stigma is the elephant in the room. Journal of the National Comprehensive Cancer Network, 8(4), 362–366. doi:10.6004/jnccn.2010.0028.
  • Huaman, M. A., Kamimura-Nishimura, K. I., Kanamori, M., Siu, A., & Lescano, A. G. (2011). Validation of a susceptibility, benefits, and barrier scale for mammography screening among Peruvian women: A cross-sectional study. BMC Women's Health, 11, 54. doi:10.1186/1472-6874-11-54.
  • Institute of Medicine (US) Committee on Psychosocial Services to Cancer Patients/Families in a Community Setting. (2008). Cancer care for the whole patient: Meeting psychosocial health needs. N. E. Adler & A. E. Page (Eds.), Washington, DC: National Academies Press. Retrieved from http://www.ncbi.nlm.nih.gov/books/NBK4015/
  • Jacobs, E. A., Rathouz, P. J., Karavolos, K., Everson-Rose, S. A., Janssen, I., Kravitz, H. M., … Powell, L. H. (2014). Perceived discrimination is associated with reduced breast and cervical cancer screening: The Study of Women's Health Across the Nation (SWAN). Journal of Women's Health, 23(2), 138–145. doi:10.1089/jwh.2013.4328.
  • Justo, N., Wilking, N., Jonsson, B., Luciani, S., & Cazap, E. (2013). A review of breast cancer care and outcomes in Latin America. The Oncologist, 18(3), 248–256. doi:10.1634/theoncologist.2012-0373.
  • Koller, M., Kussman, J., Lorenz, W., Jenkins, M., Voss, M., Arens, E., … Rothmund, M. (1996). Symptom reporting in cancer patients: The role of negative affect and experienced social stigma. Cancer, 77(5), 983–995.
  • Lannin, D. R., Mathews, H. F., Mitchell, J., Swanson, M. S., Swanson, F. H., & Edwards, M. S. (1998). Influence of socioeconomic and cultural factors on racial differences in late-stage presentation of breast cancer. JAMA, 279(22), 1801–1807. doi:10.1001/jama.279.22.1801.
  • Mathieson, C. M., & Stam, H. J. (1995). Renegotiating identity: Cancer narratives. Sociology of Health and Illness, 17(3), 283–306. doi:10.1111/1467-9566.ep10933316.
  • Meacham, E., Orem, J., Nakigudde, G., Zujewski, J. A., & Rao, D. (2016). Exploring stigma as a barrier to cancer service engagement with breast cancer survivors in Kampala, Uganda: Exploring stigma and cancer service engagement in Kampala, Uganda. Psycho-Oncology, 25(10), 1206–1211. doi:10.1002/pon.4215.
  • Ministry of Health (n.d.). Fighting cancer through the hope Plan. Lima, Peru: Ministry of Health. Retrieved June 6, 2016, from https://peruprogresoparatodos.com/notas/combatiendo-el-cancer-a-traves-del-plan-esperanza/
  • Mitchell, A. J., Chan, M., Bhatti, H., Halton, M., Grassi, L., Johansen, C., & Meader, N. (2011). Prevalence of depression, anxiety, and adjustment disorder in oncological, haematological, and palliative-care settings: A meta-analysis of 94 interview-based studies. The Lancet Oncology, 12(2), 160–174. doi:10.1016/S1470-2045(11)70002-X.
  • Molina, Y., Scherman, A., Constant, T. H., Hempstead, B., Thompson-Dodd, J., Richardson, S., … Ceballos, R. M. (2016). Medical advocacy among African-American women diagnosed with breast cancer: From recipient to resource. Supportive Care in Cancer, 24(7), 3077–3084. doi:10.1007/s00520-016-3123-4.
  • Nausheen, B., Gidron, Y., Peveler, R., & Moss-Morris, R. (2009). Social support and cancer progression: A systematic review. Journal of Psychosomatic Research, 67(5), 403–415. doi:10.1016/j.jpsychores.2008.12.012.
  • Pan American Health Organization (PAHO). (2013). Peru cancer profile. Retrieved from http://www.paho.org/hq/index.php?option=com_docman&task=doc_download&gid=23456&Itemid=
  • Paz-Soldán, V. A., Bayer, A. M., Nussbaum, L., & Cabrera, L. (2012). Structural barriers to screening for and treatment of cervical cancer in Peru. Reproductive Health Matters, 20(40), 49–58. doi:10.1016/S0968-8080(12)40680-2.
  • Reich, M., Lesur, A., & Perdrizet-Chevallier, C. (2008). Depression, quality of life and breast cancer: A review of the literature. Breast Cancer Research and Treatment, 110(1), 9–17. doi:10.1007/s10549-007-9706-5.
  • Shepherd, M. A., & Gerend, M. A. (2014). The blame game: Cervical cancer, knowledge of its link to human papillomavirus and stigma. Psychology & Health, 29(1), 94–109. doi:10.1080/08870446.2013.834057.
  • Shulman, L. N., Willett, W., Sievers, A., & Knaul, F. M. (2010). Breast cancer in developing countries: Opportunities for improved survival. Journal of Oncology, 2010, 1–6. doi:10.1155/2010/595167.
  • Simon, C. E. (2006). Breast cancer screening: Cultural beliefs and diverse populations. Health & Social Work, 31(1), 36–43. doi:10.1093/hsw/31.1.36.
  • Soneji, S., & Fukui, N. (2013). Socioeconomic determinants of cervical cancer screening in Latin America. Revista Panamericana de Salud Publica = Pan American Journal of Public Health, 33(3), 174–182. doi:10.1590/S1020-49892013000300003.
  • World Health Organization (WHO). (2014). Cancer country profiles 2014. Retrieved July 26, 2014, from http://www.who.int/cancer/country-profiles/en/
  • Yano, E. M., Green, L. W., Glanz, K., Ayanian, J. Z., Mittman, B. S., Chollette, V., & Rubenstein, L. V. (2012). Implementation and spread of interventions into the multilevel context of routine practice and policy: Implications for the cancer care continuum. JNCI Monographs, 2012(44), 86–99. doi:10.1093/jncimonographs/lgs004.
  • Zapka, J., Taplin, S. H., Ganz, P., Grunfeld, E., & Sterba, K. (2012). Multilevel factors affecting quality: Examples from the cancer care continuum. JNCI Monographs, 2012(44), 11–19. doi:10.1093/jncimonographs/lgs005.
  • Zelle, S. G., Vidaurre, T., Abugattas, J. E., Manrique, J. E., Sarria, G., Jeronimo, J., … Baltussen, R. (2013). Cost-effectiveness analysis of breast cancer control interventions in Peru. PLoS One, 8(12), e82575. doi:10.1371/journal.pone.0082575.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.