2,205
Views
2
CrossRef citations to date
0
Altmetric
Research Article

How life events are perceived to link to bodily distress: A qualitative study of women with chronic pelvic pain

, ORCID Icon &
Pages 1218-1238 | Received 03 Nov 2021, Accepted 04 Jun 2022, Published online: 28 Jun 2022

References

  • Ahangari, A. (2014). Prevalence of chronic pelvic pain among women: An updated review. Pain Physician, 17(2), E141–E147.
  • As-Sanie, S., Clevenger, L. A., Geisser, M. E., Williams, D. A., & Roth, R. S. (2014). History of abuse and its relationship to pain experience and depression in women with chronic pelvic pain. American Journal of Obstetrics and Gynecology, 210(4), 317.e311–317.e318.
  • Ayorinde, A. A., Macfarlane, G. J., Saraswat, L., & Bhattacharya, S. (2015). Chronic pelvic pain in women: An epidemiological perspective. Women’s Health, 11(6), 851–864. https://doi.org/10.2217/whe.15.30
  • Bergeron, S., Reed, B. D., Wesselmann, U., & Bohm-Starke, N. (2020). Vulvodynia. Nature Reviews. Disease Primers, 6(1), 36. https://doi.org/10.1038/s41572-020-0164-2
  • Bottaccioli, F., & Bottaccioli, A. G. (2017). Psycho-neuro-endocrino-immunology Paradigm and Cardiovascular Diseases. In M. Fioranelli (Ed.), Integrative cardiology: A new therapeutic vision (pp. 139–151). Springer International Publishing.
  • Brinkmann, S., & Kvale, S. (2015). InterViews: Learning the craft of qualitative research interviewing (3rd. ed.). Sage.
  • Covan, E. K. (2022). Chronic illness: Misunderstood, misdiagnosed, and mistreated among women. Health Care for Women International, 43(1–3), 1–4. https://doi.org/10.1080/07399332.2022.2028470
  • Engeler, D., B, A. P., Berghmans, B., Borovicka, J., Cottrell, A. M., D.-O, P., Elneil, S., Hughes, J., Messelink, E. J., d. C. W, A. C., B. Parsons, S. G., & P. Abreu-Mendes, V. Z. (2021, March). EAU Guidelines on Chronic Pelvic Pain. Retrieved August 15, from https://uroweb.org/wp-content/uploads/EAU-Pocket-Guidelines-on-Chronic-Pelvic-Pain-2021.pdf
  • Danielsen, K. G., Dahl-Michelsen, T., Håkonsen, E., & Haugstad, G. K. (2019). Recovering from provoked vestibulodynia: Experiences from encounters with somatocognitive therapy. Physiotherapy Theory and Practice, 35(3), 219–228. https://doi.org/10.1080/09593985.2018.1442540
  • Dolezal, L. (2015). The phenomenology of shame in the clinical encounter. Medicine, Health Care, and Philosophy, 18(4), 567–576. https://doi.org/10.1007/s11019-015-9654-5
  • Dolezal, L., & Lyons, B. (2017). Health-related shame: An affective determinant of health? Medical Humanities, 43(4), 257–263. https://doi.org/10.1136/medhum-2017-011186
  • Dragesund, T., & Råheim, M. (2008). Norwegian psychomotor physiotherapy and patients with chronic pain: Patients’ perspective on body awareness. Physiotherapy Theory and Practice, 24(4), 243–254. https://doi.org/10.1080/09593980701738400
  • Elmerstig, E., Wijma, B., & Berterö, C. (2008). Why do young women continue to have sexual intercourse despite pain? Journal of Adolescent Health, 43(4), 357–363. https://doi.org/10.1016/j.jadohealth.2008.02.011
  • Eriksen, T. E., Kerry, R., Mumford, S., Lie, S. A. N., & Anjum, R. L. (2013). At the borders of medical reasoning: Aetiological and ontological challenges of medically unexplained symptoms. Philosophy, Ethics, and Humanities in Medicine: PEHM, 8(1), 11–11. https://doi.org/10.1186/1747-5341-8-11
  • Felitti, V. J., Anda, R. F., Nordenberg, D., Williamson, D. F., Spitz, A. M., Edwards, V., Koss, M. P., & Marks, J. S. (2019). Relationship of childhood abuse and household dysfunction to many of the leading causes of death in adults: The adverse childhood experiences (ACE) study. American Journal of Preventive Medicine, 56(6), 774–786. https://doi.org/10.1016/j.amepre.2019.04.001
  • Giorgi, A. (1997). The theory, practice, and evaluation of the phenomenological method as a qualitative research procedure. Journal of Phenomenological Psychology, 28(2), 235–260. https://doi.org/10.1163/156916297X00103
  • Giorgi, A. (1975). An application of phenomenological method in psychology. Duquesne studies in phenomenological psychology, 2, 82–103.
  • Goffman, E. (2005). Interaction ritual: Essays in face-to-face behavior. Aldine Transaction.
  • Grace, V. (2003). Embodiment and meaning: Understanding chronic pelvic pain. Journal of Consciousness Studies, 10(11), 41–60. https://doi.org/10.1630/0326785041834748
  • Grace, V. M., & MacBride-Stewart, S. (2007). “How to say it”: Women’s descriptions of pelvic pain. Women & Health, 46(4), 81–98. https://doi.org/10.1300/j013v46n04_05
  • Groven, K. S., Raheim, M., Hakonsen, E., & Haugstad, G. K. (2016). “Will I ever be a true woman?” An exploration of the experiences of women with vestibulodynia. Health Care for Women International, 37(8), 818–835. https://doi.org/10.1080/07399332.2015.1103739
  • Halvorsen, L., Nerum, H., Øian, P., & Sørlie, T. (2013). Giving birth with rape in one’s past: A qualitative study. Birth (Berkeley, California), 40(3), 182–191. https://doi.org/10.1111/birt.12054
  • Haugstad, G. K., Haugstad, T. S., Kirste, U. M., Leganger, S., Wojniusz, S., Klemmetsen, I., & Malt, U. F. (2006). Posture, movement patterns, and body awareness in women with chronic pelvic pain. Journal of Psychosomatic Research, 61(5), 637–644. https://doi.org/10.1016/j.jpsychores.2006.05.003
  • Heim, C., Ehlert, U., Hanker, J. P., & Hellhammer, D. H. (1998). Abuse-related posttraumatic stress disorder and alterations of the hypothalamic-pituitary-adrenal axis in women with chronic pelvic pain. Psychosomatic Medicine, 60(3), 309–318.
  • Hilden, M., Schei, B., Swahnberg, K., Halmesmaki, E., Langhoff-Roos, J., Offerdal, K., Pikarinen, U., Sidenius, K., Steingrimsdottir, T., Stoum-Hinsverk, H., Wijma, B. (2004). A history of sexual abuse and health: a Nordic multicentre study (1121–1127). Oxford. https://doi.org/10.1111/j.1471-0528.2004.00205.x
  • IASP. (2020). Classification of chronic pain. International Association of the Study of Pain. Retrieved October 7, from https://iaspfiles.s3.amazonaws.com/production/public/2021/Part_II-F.pdf
  • Kaler, A. (2006). Unreal women: Sex, gender, identity and the lived experience of vulvar pain. Feminist Review, 82(1), 50–75. https://doi.org/10.1057/palgrave.fr.9400262
  • Kalman, H. (1999). The structure of knowing: Existential trust as an epistemological category. Umeå universitet.
  • Kirkengen, A. L. (2008). Inscriptions of violence: Societal and medical neglect of child abuse-impact on life and health. Medicine, Health Care, and Philosophy, 11(1), 99–110. https://doi.org/10.1007/s11019-007-9076-0
  • Kvale, S., Brinkmann, S., Anderssen, T. M., & Rygge, J. (2015). Det kvalitative forskningsintervju (3. utg. ed.). Gyldendal akademisk.
  • Lampe, A., Doering, S., Rumpold, G., Sölder, E., Krismer, M., Kantner-Rumplmair, W., Schubert, C., & Söllner, W. (2003). Chronic pain syndromes and their relation to childhood abuse and stressful life events. Journal of Psychosomatic Research, 54(4), 361–367. https://doi.org/10.1016/S0022-3999(02)00399-9
  • Lamvu, G., Carrillo, J., Ouyang, C., & Rapkin, A. (2021). Chronic pelvic pain in women: A review. JAMA, 325(23), 2381–2391. https://doi.org/10.1001/jama.2021.2631
  • Leder, D. (1990). The absent body. University of Chicago Press.
  • Levine, P. A. (2010). In an unspoken voice: How the body releases trauma and restores goodness. North Atlantic Books.
  • Lindseth, A., & Norberg, A. (2004). A phenomenological hermeneutical method for researching lived experience. Scandinavian Journal of Caring Sciences, 18(2), 145–153. https://doi.org/10.1111/j.1471-6712.2004.00258.x
  • Marriott, C., & Thompson, A. R. (2008). Managing threats to femininity: Personal and interpersonal experience of living with vulval pain. Psychology & Health, 23(2), 243–258.
  • McEwen, B. S., & Wingfield, J. C. (2003). The concept of allostasis in biology and biomedicine. Hormones and Behavior, 43(1), 2–15. https://doi.org/10.1016/S0018-506X(02)00024-7
  • Mellado, B. H., Pilger, T. L., Poli-Neto, O. B., Rosa e Silva, J. C., Nogueira, A. A., & Candido dos Reis, F. J. (2019). Current usage of qualitative research in female pelvic pain: A systematic review. Archives of Gynecology and Obstetrics, 300(3), 495–501. 10.1007/s00404-019-05212-x
  • Merleau-Ponty, M. (2002). Phenomenology of perception. Routledge.
  • Messelink, B., Benson, T., Berghmans, B., Bø, K., Corcos, J., Fowler, C., Laycock, J., Lim, P. H.-C., van Lunsen, R., á Nijeholt, G. L., Pemberton, J., Wang, A., Watier, A., & Van Kerrebroeck, P. (2005). Standardization of terminology of pelvic floor muscle function and dysfunction: Report from the pelvic floor clinical assessment group of the International Continence Society. Neurourology and Urodynamics, 24(4), 374–380. https://doi.org/10.1002/nau.20144
  • Prendergast, S. A., & Weiss, J. M. (2003). Screening for musculoskeletal causes of pelvic pain. Clinical Obstetrics and Gynecology, 46(4), 773–782. https://doi.org/10.1097/00003081-200312000-00006
  • Reissing, E. D., Brown, C., Lord, M. J., Binik, Y. M., & Khalifé, S. (2005). Pelvic floor muscle functioning in women with vulvar vestibulitis syndrome. Journal of Psychosomatic Obstetrics and Gynaecology, 26(2), 107–113. https://doi.org/10.1080/01443610400023106
  • Sadownik, L. A., Seal, B. N., & Brotto, L. A. (2012). Provoked vestibulodynia: A qualitative exploration of women’s experiences. British Columbia Medical Journal, 54(1), 22–28.
  • Shallcross, R., Dickson, J., Nunns, D., Mackenzie, C., & Kiemle, G. (2018). Women’s subjective experiences of living with vulvodynia: A systematic review and meta-ethnography. The Official Publication of the International Academy of Sex Research, 47(3), 577–595.
  • Spoelstra, S. K., Weijmar Schultz, W. C. M., Reissing, E. D., Borg, C., & Broens, P. M. A. (2019). The distinct impact of voluntary and autonomic pelvic floor muscles on genito-pelvic pain/penetration disorder. Sexual and Relationship Therapy, 34(4), 462–472. https://doi.org/10.1080/14681994.2018.1442568
  • Svenaeus, F. (2000). The body uncanny — Further steps towards a phenomenology of illness. Medicine, Health Care, and Philosophy, 3(2), 125–137.
  • Tomasdottir, M. O., Sigurdsson, J. A., Petursson, H., Kirkengen, A. L., Ivar Lund Nilsen, T., Hetlevik, I., & Getz, L. (2016). Does ‘existential unease’ predict adult multimorbidity? Analytical cohort study on embodiment based on the Norwegian HUNT population. BMJ Open, 6(11), e012602–e012602. https://doi.org/10.1136/bmjopen-2016-012602
  • Toye, F., Seers, K., & Barker, K. (2014). A meta-ethnography of patients’ experiences of chronic pelvic pain: Struggling to construct chronic pelvic pain as ‘real’. Journal of Advanced Nursing, 70(12), 2713–2727.
  • Van Der Kolk, B. A. (1994). The body keeps the score: Memory and the evolving psychobiology of posttraumatic stress. Harvard Review of Psychiatry, 1(5), 253–265. https://doi.org/10.3109/10673229409017088
  • Van Der Kolk, B. A., & Fisler, R. (1995). Dissociation and the fragmentary nature of traumatic memories: Overview and exploratory study. Journal of Traumatic Stress, 8(4), 505–525.
  • van der Velde, J., & Everaerd, W. (2001). The relationship between involuntary pelvic floor muscle activity, muscle awareness and experienced threat in women with and without vaginismus. Behaviour Research and Therapy, 39(4), 395–408. https://doi.org/10.1016/S0005-7967(00)00007-3
  • Wehrle, M., & Doyon, M. (2020). Body. In The Routledge handbook of phenomenology and phenomenological philosophy. Routledge.
  • Zahavi, D. (2020). Shame. In Routledge handbook on phenomenology and emotions (1st ed.). Routledge.