Without AAC: The Stories of Unpaid Carers of Adults with Cerebral Palsy and Complex Communication Needs in Hospital

References

• Adair, L. (1994). The patient's agenda. Nursing Standard, 9, 20–23.
   PubMedGoogle Scholar
• Australian Institute of Health and Welfare (2000). Disability and ageing: Australian population patterns and implica-tions. Canberra: Australian Institute of Health and Welfare.
   Google Scholar
• Balandin, S., Dew, A., Llewellyn, G., & Kendig, H. (2003). Health care experiences of people with cerebral palsy & complex communication needs [CD ROM]. In Proceed-ings of the AGOSCI national conference, 'Something to Say'. Sydney: AGOSCI.
   Google Scholar
• Balandin, S., Hemsley, B., Sigafoos, J., Green, V., Forbes, R., Taylor, C., & Parmenter, T. (2001). Communicating with nurses: The experiences of 10 individuals with an acquired severe communication impairment. Brain Im-pairment, 2, 109–118.
   Google Scholar
• Balandin, S., & Morgan, J. (2001). Preparing for the future: Aging and AAC. Augmentative and Alternative Commu-nication, 17, 99 — 108.
   Google Scholar
• Bigby, C. (2000). Moving on without parents: Planning, transitions and sources of support for older adults with intellectual disabilities. New South Wales/Baltimore: Mclennan + Petty/Paul H. Brookes.
   Google Scholar
• Buzio, A., Morgan, J., & Blount, D. (2002). The experiences of adults with cerebral palsy during periods of hospita-lisation. Australian Journal of Advanced Nursing, 19(4), 8–14.
   PubMedGoogle Scholar
• Connelly, F. M., & Clandinin, D. J. (1990). Stories of experience and narrative inquiry. Educational Researcher, 19, 2–14.
   Google Scholar
• Costello, J. (2000). AAC intervention in the intensive care unit: The Children's Hospital Boston model. Augmenta-tive and Alternative Communication, 16, 137–153.
   Google Scholar
• Creswell, J. W. (1998). Qualitative inquiry and research design: Choosing among five Traditions. California: SAGE Publications.
   Google Scholar
• Dowden, P. A., Honsinger, M. J., & Beukelman, D. R. (1986). Serving the nonspeaking patients in acute care settings: An intervention approach. Augmentative and Alternative Communication, 2, 25–32.
   Google Scholar
• Fox, D., & Wilson, D. (1999). Parents' experiences of general hospital admission for adults with learning disabilities. Journal of Clinical Nursing, 8, 610–614.
   PubMed Web of Science ®Google Scholar
• Fitton, P. (1994). Listen To Me: Communicating the needs of people with profound intellectual and multiple disabilities. London: Jessica Kingsley Publishers Ltd.
   Google Scholar
• Fried-Oken, M., Howard, J. M., & Stewart, S. R. (1991). Feedback on AAC intervention for adults who are temporarily unable to speak. Augmentative and Alter-native Communication, 7, 43–50.
   Google Scholar
• Hemsley, B., Balandin, S., Sigafoos, J., Green, V., Forbes, R., Taylor, C., & Parmenter, T. (2001a). Communication experiences of nurses and individuals who have severe communication impairment. Proceedings of the 2001 Speech Pathology Australia national conference, 19–25.
   Google Scholar
• Hemsley, B., Sigafoos, J., Balandin, S., Forbes, R., Taylor, C., Green, V., & Parmenter, T. (2001b). Nursing the patient with severe communication impairment. Journal of Advanced Nursing, 35, 827–835.
   PubMed Web of Science ®Google Scholar
• Holstein, J. A., & Gubrium, J. F. (1995). The Active Interview. In M. Miller, P. K. Manning, & J. Van Maanen (Eds.), Qualitative Research Methods, Volume 37. California: Sage Publications.
   Google Scholar
• Huer, M. B., & Lloyd, L. L. (1990). AAC users' perspectives on augmentative and alternative communication. Aug-mentative and Alternative Communication, 6, 242–249.
   Google Scholar
• Iacono, T., & Davis, R. (2003). The experiences of people with developmental disability in emergency departments and hospital wards. Research in Developmental Disabil-ities, 24(4), 247–264.
   PubMed Web of Science ®Google Scholar
• Jaffe, D. J., & Miller, E. M. (1994). Problematizing meaning. In A. Sankar (Ed.), Qualitative Methods in Aging Research (pp. 51–64). Thousand Oaks, SAGE Publications.
   Google Scholar
• Juleff, B., & Fox, M. (2003). Something To Say About Care And Communication in Hospital. Presentation at the Perspectives on Health in Developmental Disability conference, Sydney, Australia: CDDS & ADIDD.
   Google Scholar
• King, A. R. (2000). I almost died, but somehow I lived. In M. Fried-Oken & H. Bersani (Eds.), Speaking Up and Spelling It Out (pp. 221–230). Baltimore: Paul H Brookes.
   Google Scholar
• Kinsala, E. (1999). The very important partner program: Integrating family and friends into the health care experience. Progress in Cardiovascular Nursing, 14(3), 103–110.
   PubMedGoogle Scholar
• Labov, W. (1997). Some further steps in narrative analysis. Journal of Narrative & Life History (71–4), 395–415.
   Google Scholar
• Lo Surdo, P. (1996). A brush with death: My hospital experience. Paper presented at the 'They Thought We'd Never Make it' conference on ageing and cerebral Palsy, Sydney.
   Google Scholar
• McCooey, R. T., Toffolo, D. & Code, C. (2000). A socioenvironmental approach to functional communica-tion in hospital in-patients. In L. E. Worral & C. M. Frattalie (Eds.), Neurogenic communication disorders: A functional approach (pp. 295–311). New York: Thierre.
   Google Scholar
• MENCAP (1998). The NHSHealth for all? London: MENCAP.
   Google Scholar
• Minichiello, V., Aroni, R., Timewell, E., & Alexander, L. (1995). In-depth interviewing: Principles, techniques, ana-lysis. Melbourne, Australia: Longman Press.
   Google Scholar
• Patton, M. Q. (2002). Qualitative research & evaluation methods. Thousand Oaks, CA: Sage Publications.
   Google Scholar
• Polkinghorne, D. E. (1988). Narrative knowing and the human sciences (p. 18). Albany: State University of New York Press.
   Google Scholar
• Polkinghorne, D. E. (1995). Narrative configuration in qualitative analysis. Qualitative Studies in Education, 8(1), 5–23.
   Google Scholar
• Riessman, C. K. (1993). Narrative analysis. In P. K. Manning, J. Van Maanen, & M. L. Miller, (Eds.), Qualitative Research Methods, Vol. 30. Qualitative Re-search (pp. 1–79). Newbury Park CA: Sage Publications.
   Google Scholar
• Russell, S. (1999). An exploratory study of patients' perceptions, memories and experiences of an intensive care unit. Journal of Advanced Nursing, 29, 783–791.
   PubMed Web of Science ®Google Scholar
• Schmidt, L. A. (2003). Patients' perceptions of nursing care in the hospital setting. Journal of Advanced Nursing November, 44, 393–399.
   PubMed Web of Science ®Google Scholar
• Van Maanen, M. (1997). Researching lived experience: Human science for an action sensitive pedagogy. Toronto: The Althouse Press.
   Google Scholar
• Yellen, E., Davis, G. C., & Ricard, R. (2002). The measurement of patient satisfaction. Journal of Nursing Care Quality, 16(4), 23–29.
   PubMed Web of Science ®Google Scholar
• Young, A. (1995). Complaints. British Journal of Nursing, 4, 59.
   PubMedGoogle Scholar