1,205
Views
6
CrossRef citations to date
0
Altmetric
Research Article

Exploring participation experiences of youth who use AAC in social media settings: impact of an e-mentoring intervention

ORCID Icon, ORCID Icon, ORCID Icon & ORCID Icon
Pages 132-141 | Received 06 Feb 2018, Accepted 25 Nov 2018, Published online: 08 Feb 2019

References

  • Adair, B., Ullenhag, A., Keen, D., Granlund, M., & Imms, C. (2015). The effect of interventions aimed at improving participation outcomes for children with disabilities: A systematic review. Developmental Medicine and Child Neurology, 57, 1093–1104. doi: 10.1111/dmcn.12809
  • Ahola Kohut, S., Stinson, J.N., Ruskin, D., Forgeron, P., Harris, L., van Wyk, M., … Campbell, F. (2016). iPeer2Peer program: A pilot feasibility study in adolescents with chronic pain. Pain, 157, 1146–1155. doi: 10.1097/j.pain.0000000000000496
  • Australian Bureau of Statistics. (2016, February 18). 81460DO002_201415 Household use of information technology, Australia, 2014-2015 Retrieved from http://www.abs.gov.au/AUSSTATS/[email protected]/DetailsPage/8146.02014-15?OpenDocument
  • Bartlett, D., & Gorter, J. W. (2015, July 31). GMFCS-E&R self report questionnaire: For young people aged 12- 18 years. Retrieved from http://motorgrowth.canchild.ca/en/GMFCS/resources/GMFCS_self_12-18.pdf
  • Batorowicz, B., King, G., Mishra, L., & Missiuna, C. (2016). An integrated model of social environment and social context for pediatric rehabilitation. Disability & Rehabilitation, 38, 1204–1215. doi: 10.3109/09638288.2015.1076070
  • Batorowicz, B., King, G., Vane, F., Pinto, M., & Raghavendra, P. (2017). Exploring validation of a graphic symbol questionnaire to measure participation experiences of youth in activity settings. Augmentative & Alternative Communication, 33, 97–109. doi: 10.1080/07434618.2017.13078741307874
  • Beukelman, D.R., & Mirenda, P. (2013). Augmentative & alternative communication: Supporting children and adults with complex communication needs. Baltimore, MD: Paul H. Brookes Publishing.
  • boyd, D., & Ellison, N. (2007). Social network sites: Definition, history, and scholarship. Journal of Computer-Mediated Communication, 13, 210– 230. doi: 10.1111/j.1083-6101.2007.00393.x
  • Cohen, K., & Light, J. (2000). Use of electronic communication to develop mentor-protégé relationships between adolescent and adult AAC users: Pilot study. Augmentative & Alternative Communication, 16, 227–238. doi: d10.1080/07434610012331279084
  • DuBois, D., Portillo, N., Rhodes, J., Silverthorn, N., & Valentine, J. (2011). How effective are mentoring programs for youth? A systematic assessment of the evidence. Psychological Science in the Public Interest, 12, 57–91. doi: 10.1177/1529100611414806
  • Eliasson, A., Krumlinde-Sundholm, L., Rösblad, B., Beckung, E., Arner, M., Ohrvall, A., & Rosenbaum, P. (2006). The manual ability classification system (MACS) for children with cerebral palsy: Scale development and evidence of validity and reliability. Developmental Medicine & Child Neurology, 48, 549–554. doi: 10.1017/S0012162206001162
  • Erickson, K., & Kopenhaver, D. (2014). AGOSCI Level 2 literacy intensive. Literacy in AAC: Assessments to guide instruction. Whole to part reading assessment. Melbourne, Australia.
  • Garringer, M., Kupersmidt, J., Rhodes, J., Stelter, R., & Tai, T. (2015, October 2). Elements of effective practice for mentoring: Research-informed and practitioner-approved best practices for creating and sustaining impactful mentoring relationships and strong program services. Retrieved from http://www.mentoring.org/images/uploads/Final_Elements_Publication_Fourth.pdf.program services.
  • Gliner, J., Morgan, G., & Leech, N. (2017). Research methods in applied settings: An integrated approach to design and analysis (3rd ed.). New York, NY: Taylor & Francis.
  • Grace, E., Raghavendra, P., Newman, L., Wood, D., & Connell, T. (2014). Learning to use the Internet and online social media: What is the effectiveness of home-based intervention for youth with complex communication needs?. Child Language Teaching and Therapy, 30, 141–157. doi: 10.1177/0265659013518565
  • Granlund, M. (2013). Participation: Challenges in conceptualization, measurement and intervention. Child: Care, Health and Development, 39, 470–473. doi: 10.1111/cch.12080
  • Granlund, M., Arvidsson, P., Niia, A., Björck-Åkesson, E., Simeonsson, R., Maxwell, G., … Pless, M. (2012). Differentiating activity and participation of children and youth with disability in Sweden: A third qualifier in the International Classification of Functioning, Disability, and Health for Children and Youth?. American Journal of Physical Medicine and Rehabilitation, 91, S84–S96. doi: 10.1097/PHM.0b013e31823d5376
  • Harris, A.D., McGregor, J.C., Perencevich, E.N., Furuno, J.P., Zhu, J., Peterson, D.E., & Finkelstein, J. (2006). The use and interpretation of quasi-experimental studies in medical informatics. Journal of the American Medical Informatics Association, 13, 16–23. doi: 10.1197/jamia.M1749
  • Hassan, E. (2005). Recall bias can be a threat to retrospective and prospective research designs. The Internet Journal of Epidemiology, 3, 1–7.
  • Herring, S. (1999). Interactional coherence in CMC. Journal of Computer-Mediated Communication, 4, 1–18. doi: 10.1111/j.10836101.1999.tb00106.x
  • Herring, S. (2007). A faceted classification scheme for computer-mediated discourse. Language@Internet, 4, 1–37.
  • Herring, S., & Androutsopoulos, J. (2015). Computer-mediated discourse 2.0. In D. Tannen, H. Hamilton, & D. Schiffrin (Eds.), The handbook of discourse analysis (2nd ed.). Chichester, UK
  • Hemsley, B., Palmer, S., Dann, S., & Balandin, S. (2018). Using Twitter to access the human right of communication for people who use Augmentative and Alternative Communication (AAC). International Journal of Speech Language Pathology, 20, 50–58. doi: 10.1080/17549507.2017.1413137
  • Hidecker, M.A.R.Y.J.O.C.O.O.L.E.Y., Paneth, N.I.G.E.L., Rosenbaum, P.E.T.E.R.L., Kent, R.A.Y.M.O.N.D.D., Lillie, J.A.N.E.T., Eulenberg, J.O.H.N.B., … Taylor, K.A.R.A. (2011). Developing and validating the communication function classification system for individuals with cerebral palsy. Developmental Medicine and Child Neurology, 53, 704–710. doi: 10.1111/j.1469-8749.2011.03996.x
  • Higginbotham, J., & Wilkins, D.P. (1999). Slipping through the timestream: Social issues of time and timing in augmented interactions. In D. Kovarsky, J. Duchan & M. Maxwell (Eds.), Constructing (in)competence (pp. 49–82). Mahwah, NJ: Lawrence Erlbaum Associates.
  • Hoogsteen, L., & Woodgate, R.L. (2010). Can I play? A concept analysis of participation in children with disabilities. Physical & Occupational Therapy in Pediatrics, 30, 325–339. doi: 10.3109/01942638.2010.481661
  • Hynan, A., Goldbart, J., & Murray, J. (2015). A grounded theory of Internet and social media use by young people who use augmentative and alternative communication (AAC). Disability & Rehabilitation, 37, 1559–1575. doi: 10.3109/09638288.2015.1056387
  • Jimenez, D., & Czaja, S. (2016). Recruitment and Retention: Two of the most important, yet challenging, tasks in behavioral intervention research. In L. Gitlin & S. Czaja (Eds.), Behavioral intervention research: Designing, evaluating, and implementing. New York, NY
  • Johns, J. (2012). Basic Reading Inventory (11th ed.). Dubuque, IA: Kendall Hunt Publishing Company.
  • Karcher, M. (2014). Cross-age peer mentoring. In D. DuBois & M. Karcher (Eds.), Handbook of youth mentoring (2nd ed., pp. 233–258). Thousand Oaks, CA: Sage.
  • King, G., Batorowicz, B., Rigby, P., McMain-Klein, M., Thompson, L., & Pinto, M. (2014). Development of a measure to assess youth self-reported experiences of activity settings (SEAS). International Journal of Disability, Development and Education, 61, 44–66. doi: 10.1080/1034912X.2014.878542
  • King, G., Batorowicz, B., Rigby, P., Pinto, M., Thompson, L., & Goh, F. (2014). The leisure activity settings and experiences of youth with severe disabilities. Developmental Neurorehabilitation, 17, 259–269. doi: 10.3109/17518423.2013.799244
  • King, G., Rigby, P., & Batorowicz, B. (2013). Conceptualizing participation in context for children and youth with disabilities: An activity setting perspective. Disability & Rehabilitation, 35, 1578–1585. doi: 10.3109/09638288.2012.748836
  • King, G., Rigby, P., Batorowicz, B., McMain-Klein, M., Petrenchik, T., Thompson, L., & Gibson, M. (2014). Development of a direct observation measure of environmental qualities of activity settings. Developmental Medicine and Child Neurology, 56, 763–769. doi: 10.1111/dmcn.12400
  • Kratochwill, T., & Levin, J. (2014). Single-Case Intervention Research: Methodological and Statistical Advances. Washington, DC: American Psychological Association.
  • Light, J., & McNaughton, D. (2015). Designing AAC research and intervention to improve outcomes for individuals with complex communication needs. Augmentative & Alternative Communication, 31, 85–96. doi: 10.3109/07434618.2015.1036458
  • Palisano, R., Rosenbaum, P., Bartlett, D., & Livingston, M. (2008). Content validity of the expanded and revised Gross Motor Function Classification System. Developmental Medicine and Child Neurology, 50, 744–750. doi: 10.1111/j.1469-8749.2008.03089.x
  • Raghavendra, P., Newman, L., Grace, E., & Wood, D. (2013). “I could never do that before”: Effectiveness of a tailored Internet support intervention to increase the social participation of youth with disabilities. Child: Care, Health and Development, 39, 552–561. doi: 10.1111/cch.12048doi:
  • Raghavendra, P., Newman, L., Wood, D., Grace, E., & Hutchinson, C. (2015). “It’s helped me connect with more friends”: Supporting social media use to enhance the social networks of young people with disabilities living in rural South Australia Adelaide. Retrieved from Research Report to the National Disability Research and Development Agenda https://www.dss.gov.au/disability-and-carers/facilitating-social-participation-of-children-and-young-people-with-disabilities-in-rural-and-regional-australia-using-mobile-and-computer-based-technologies
  • Raghavendra, P., Virgo, R., Olsson, C., Connell, T., & Lane, A. (2011). Activity participation of children with complex communication needs, physical disabilities and typically-developing peers. Developmental Neurorehabilitation, 14, 145–155. doi: 10.3109/17518423.2011.568994
  • Stewart, M., Letourneau, N., Masuda, J., Anderson, S., & McGhan, S. (2013). Impacts of online peer support for children with asthma and allergies: "It just helps you every time you can't breathe well.". Journal of Pediatric Nursing, 28, 439–452. doi: 10.1016/j.pedn.2013.01.003
  • Stinson, J., A., Kohut, S., Forgeron, P., Amaria, K., Bell, M., Kaufman, M., …., Spiegel L, (2016). The iPeer2Peer program: A pilot randomized controlled trial in adolescents with juvenile idiopathic arthritis. Pediatric Rheumatology, 14, 1–10. doi: 10.1186/s12969-016-0108-2
  • Sundqvist, A., & Rönnberg, J. (2010). A qualitative analysis of email interactions of children who use augmentative and alternative communication. Augmentative & Alternative Communication, 26, 255–266. doi: 10.3109/07434618.2010.528796
  • Thirumanickam, A., Raghavendra, P., & Olsson, C. (2011). Participation and social networks of school-age children with complex communication needs: A descriptive study. Augmentative & Alternative Communication, 27, 195–204. doi: 10.3109/07434618.2011.610818
  • World Health Organization. (2007). International Classification of Functioning, Disability and Health – Children and Youth Version (ICF-CY). Geneva, Switzerland: Author.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.