Parent perspectives on augmentative and alternative communication in Sri Lanka

References

• Ambikile, J. S., & Outwater, A. (2012). Challenges of caring for children with mental disorders: Experiences and views of caregivers attending the outpatient clinic at Muhimbili National Hospital, Dar es Salaam - Tanzania. Child and Adolescent Psychiatry and Mental Health, 6(1), 16. https://doi.org/10.1186/1753-2000-6-16
   PubMedGoogle Scholar
• Anderson, K., Balandin, S., & Stancliffe, R. (2014). Australian parents’ experiences of speech generating device (SGD) service delivery. Developmental Neurorehabilitation, 17(2), 75–83. https://doi.org/10.3109/17518423.2013.857735
   PubMed Web of Science ®Google Scholar
• Bailey, R., Parette, H., Stoner, J., Angell, M., & Carroll, K. (2006). Family members’ perceptions of augmentative and alternative communication device use. Language, Speech, and Hearing Services in Schools, 37(1), 50–60. https://doi.org/10.1044/0161-1461(2006/006)
   PubMed Web of Science ®Google Scholar
• Balan, P., & Manjula, R. (2009). Communication functions, modalities, and maternal responses in children with severe speech and physical impairment. Asia Pacific Journal of Speech, Language and Hearing, 12(1), 27–56. https://doi.org/10.1179/jslh.2009.12.1.27
   Google Scholar
• Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. https://doi.org/10.1191/1478088706qp063oa
   Google Scholar
• Central Bank of Sri Lanka. (2018). Economic and social statistics of Sri Lanka. Central Bank Printing Press.
   Google Scholar
• Costigan, F. A., & Light, J. (2010). A review of preservice training in augmentative and alternative communication for speech-language pathologists, special education teachers, and occupational therapists. Assistive Technology: The Official Journal of RESNA, 22(4), 200–212. https://doi.org/10.1080/10400435.2010.492774
   PubMed Web of Science ®Google Scholar
• Cress, C. J. (2004). Augmentative and alternative communication and language: Understanding and responding to parents’ perspectives. Topics in Language Disorders, 24(1), 51–61. https://doi.org/10.1097/00011363-200401000-00006
   Web of Science ®Google Scholar
• Creswell, J. W., & Poth, C. N. (2016). Qualitative inquiry and research design: Choosing among five approaches. Sage Publications.
   Google Scholar
• Dada, S. (2019). A comparison of special education teachers’ attitudes toward various augmentative and alternative communication systems. In S. Halder & V. Argyropoulos (Eds.), Inclusion, equity and access for individuals with disabilities (pp. 153–178). Palgrave Macmillan. https://doi.org/10.1007/978-981-13-5962-0_8
   Google Scholar
• Department of Census and Statistics. (2012). Population and housing. Retrieved from http://www.statistics.gov.lk/PopHouSat/CPH2011/Pages/Activities/Reports/FinalReport/FinalReport.pdf
   Google Scholar
• Dunst, C. (2002). Family-centered practices: Birth through high school. The Journal of Special Education, 36(3), 141–149. https://doi.org/10.1177/00224669020360030401
   Web of Science ®Google Scholar
• Dunst, C. J., Trivette, C. M., & Hamby, D. W. (2007). Meta‐analysis of family‐centered helpgiving practices research. Mental Retardation and Developmental Disabilities Research Reviews, 13(4), 370–378. https://doi.org/10.1002/mrdd.20176
   PubMedGoogle Scholar
• Dykens, E. M., Fisher, M. H., Taylor, J. L., Lambert, W., & Miodrag, N. (2014). Reducing distress in mothers of children with autism and other disabilities: A randomized trial. Pediatrics, 134(2), e454–e463. https://doi.org/10.1542/peds.2013-3164
   PubMed Web of Science ®Google Scholar
• Eastwood, J. (1988). Qualitative research: An additional research methodology for speech pathology? The British Journal of Disorders of Communication, 23(2), 171–184. https://doi.org/10.3109/13682828809019885
   PubMedGoogle Scholar
• Farzana, W., Sarker, F., Hossain, Q. D., Chau, T., & Mamun, K. A. (2020). An evaluation of augmentative and alternative communication research for ASD children in developing countries: Benefits and barriers. In C. Stephanidis, M. Antona, & S. Ntoa (Eds.), HCI International 2020 – Late Breaking Posters. HCII 2020: A paper from the Communications in Computer and Information Science Conference 2020 (pp. 51–62). Springer. https://doi.org/10.1007/978-3-030-60703-6_7
   Google Scholar
• Ferm, U., Andersson, M., Broberg, M., Liljegren, T., & Thunberg, G. (2011). Parents and course leaders’ experiences of the ComAlong augmentative and alternative communication early intervention course. Disability Studies Quarterly, 31(4), 1–31. https://doi.org/10.18061/dsq.v31i4.1718
   Google Scholar
• Ganz, J. (2015). AAC interventions for individuals with autism spectrum disorders: State of the science and future research directions. Augmentative and Alternative Communication (Baltimore, Md.: 1985), 31(3), 203–214. https://doi.org/10.3109/07434618.2015.1047532
   PubMed Web of Science ®Google Scholar
• Geiger, M. (2012). Communication training for centre-based carers of children with severe or profound disabilities in the Western Cape, South Africa. African Journal of Disability, 1(1), 10. https://doi.org/10.4102/ajod.v1i1.10
   PubMedGoogle Scholar
• Glacken, M., Healy, D., Gilrane, U., Gowan, S. H. M., Dolan, S., Walsh-Gallagher, D., & Jennings, C. (2019). Key word signing: Parents’ experiences of an unaided form of augmentative and alternative communication (Lámh). Journal of Intellectual Disabilities: JOID, 23(3), 327–343. https://doi.org/10.1177/1744629518790825
   PubMed Web of Science ®Google Scholar
• Goldbart, J., & Marshall, J. (2004). Pushes and pulls on the parents of children who use AAC. Augmentative and Alternative Communication, 20(4), 194–208. https://doi.org/10.1080/07434610400010960
   Google Scholar
• Gona, J., Mung’ala-Odera, V., Newton, C., & Hartley, S. (2011). Caring for children with disabilities in Kilifi, Kenya: What is the carer’s experience? Child: Care, Health and Development, 37(2), 175–183. https://doi.org/10.1111/j.1365-2214.2010.01124.x
   PubMed Web of Science ®Google Scholar
• Gona, J., Newton, C., Hartley, S., & Bunning, K. (2014). A home-based intervention using augmentative and alternative communication (AAC) techniques in rural Kenya: What are the caregivers’ experiences? Child: Care, Health and Development, 40(1), 29–41. https://doi.org/10.1111/cch.12031
   PubMed Web of Science ®Google Scholar
• Guest, G., MacQueen, K. M., & Namey, E. E. (2012). Validity and reliability (credibility and dependability) in qualitative research and data analysis. In Applied thematic analysis. 79, 106. Sage Publications. https://doi.org/10.4135/9781483384436
   Google Scholar
• Hettiarachchi, S., Kitnasamy, G., & Gopi, D. (2020). “Now I am a techie too” – Parental perceptions of using mobile technology for communication by children with complex communication needs in the Global South. Disability and Rehabilitation. Assistive Technology, 15(2), 183–194. https://doi.org/10.1080/17483107.2018.1554713
   PubMed Web of Science ®Google Scholar
• Iacono, T., & Cameron, M. (2009). Australian speech-language pathologists’ perceptions and experiences of augmentative and alternative communication in early childhood intervention. Augmentative and Alternative Communication (Baltimore, Md.: 1985), 25(4), 236–249. https://doi.org/10.3109/07434610903322151
   PubMed Web of Science ®Google Scholar
• King, G., & Chiarello, L. (2014). Family-centered care for children with cerebral palsy: Conceptual and practical considerations to advance care and practice. Journal of Child Neurology, 29(8), 1046–1054. https://doi.org/10.1177/0883073814533009
   PubMed Web of Science ®Google Scholar
• Kulkarni, S. S., & Parmar, J. (2017). Culturally and linguistically diverse student and family perspectives of AAC. Augmentative and Alternative Communication (Baltimore, Md.: 1985), 33(3), 170–180. https://doi.org/10.1080/07434618.2017.1346706
   PubMed Web of Science ®Google Scholar
• Light, J. C., Roberts, B., Dimarco, R., & Greiner, N. (1998). Augmentative and alternative communication to support receptive and expressive communication for people with autism. Journal of Communication Disorders, 31(2), 153–180. https://doi.org/10.1016/S0021-9924(97)00087-7
   PubMed Web of Science ®Google Scholar
• Maloni, P. K., Despres, E. R., Habbous, J., Primmer, A. R., Slatten, J. B., Gibson, B. E., & Landry, M. D. (2010). Perceptions of disability among mothers of children with disability in Bangladesh: Implications for rehabilitation service delivery. Disability and Rehabilitation, 32(10), 845–854. https://doi.org/10.3109/09638280903326063
   PubMed Web of Science ®Google Scholar
• Mandak, K., O’Neill, T., Light, J., & Fosco, G. M. (2017). Bridging the gap from values to actions: A family systems framework for family-centered AAC services. Augmentative and Alternative Communication (Baltimore, Md.: 1985), 33(1), 32–41. https://doi.org/10.1080/07434618.2016.1271453
   PubMed Web of Science ®Google Scholar
• Marshall, J., & Goldbart, J. (2008). ‘Communication is everything I think.’ Parenting a child who needs augmentative and alternative communication (AAC). International Journal of Language & Communication Disorders, 43(1), 77–98. https://doi.org/10.1080/13682820701267444
   PubMed Web of Science ®Google Scholar
• Miles, M. B., & Huberman, A. M. (1994). Qualitative data analysis: An expanded sourcebook (2nd ed.). Sage.
   Google Scholar
• Millar, D. C., Light, J., & Schlosser, R. (2006). The impact of augmentative and alternative communication intervention on the speech production of individuals with developmental disabilities: A research review. Journal of Speech, Language, and Hearing Research: JSLHR, 49(2), 248–264. https://doi.org/10.1044/1092-4388(2006/021)
   PubMed Web of Science ®Google Scholar
• Muttiah, N., Drager, K., & O’Connor, L. (2016). Special education in Sri Lanka: A snapshot of three provinces. Disability Studies Quarterly, 36(2), 1–16. https://doi.org/10.18061/dsq.v36i2.4388
   Google Scholar
• O’Neill, T., & Wilkinson, K. M. (2020). Preliminary investigation of the perspectives of parents of children with cerebral palsy on the supports, challenges, and realities of integrating augmentative and alternative communication into everyday life. American Journal of Speech-Language Pathology, 29(1), 238–254. https://doi.org/10.1044/2019_AJSLP-19-00103
   PubMed Web of Science ®Google Scholar
• Parette, H., Brotherson, M., & Huer, M. (2000). Giving families a voice in augmentative and alternative communication decision-making. Education and Training in Mental. Retardation and Developmental Disabilities, 35, 177–190.
   Google Scholar
• Pietkiewicz, I., & Smith, J. A. (2014). Praktyczny przewodnik interpretacyjnej analizy fenomenologicznej w badaniach jakościowych w psychologii. Czasopismo Psychologiczne, 18, 361–369. [A practical guide to using Interpretive Phenomenological Analysis in qualitative research psychology; English version reprint]. https://doi.org/10.14691/CPPJ.20.1.7
   Google Scholar
• Schlebusch, L., Huus, K., Samuels, A., Granlund, M., & Dada, S. (2020). Participation of young people with disabilities and/or chronic conditions in low- and middle-income countries: A scoping review. Developmental Medicine and Child Neurology, 62(11), 1259–1265. https://doi.org/10.1111/dmcn.14609
   PubMed Web of Science ®Google Scholar
• Schlosser, R. W., & Wendt, O. (2008). Effects of augmentative and alternative communication intervention on speech production in children with autism: A systematic review. American Journal of Speech-Language Pathology, 17(3), 212–230. https://doi.org/10.1044/1058-0360(2008/021)
   PubMed Web of Science ®Google Scholar
• Singh, S. J., Hussein, N. H., Kamal, R. M., & Hassan, F. H. (2017). Reflections of Malaysian parents of children with developmental disabilities on their experiences with AAC. Augmentative and Alternative Communication (Baltimore, Md.: 1985), 33(2), 110–120. https://doi.org/10.1080/07434618.2017.1309457
   PubMed Web of Science ®Google Scholar
• Vaughn, S., Schumm, J. S., & Sinagub, J. (1996). Focus group interviews in education and psychology. SAGE Publications.
   Google Scholar
• Viera, A. J., & Garrett, J. M. (2005). Understanding interobserver agreement: The kappa statistic. Family Medicine, 37(5), 360–363.
   PubMed Web of Science ®Google Scholar
• Watson, W. H. (2012). Family systems. In V. S. Ramachandran (Ed.), Encyclopedia of human behavior (2nd ed., pp. 84–193). Academic Press.
   Google Scholar
• West, P., Van Riper, M., Wyatt, G., Lehto, R., Douglas, S. N., & Robbins, L. (2020). Adaptation to technology use in families of children with complex communication needs: An integrative review and family theory application. Journal of Family Nursing, 26(2), 153–178. https://doi.org/10.1177/1074840720915536
   PubMed Web of Science ®Google Scholar
• Wormnaes, S., & Abdel Malek, Y. (2004). Egyptian speech therapists want more knowledge about augmentative and alternative communication. Augmentative and Alternative Communication, 20(1), 30–41. https://doi.org/10.1080/07434610310001629571
   Google Scholar