Designing augmentative and alternative communication systems with Aboriginal Australians: vocabulary representation, layout, and access

References

• Amery, R., Wunungmurra, J. G., Gondarra, J., Gumbula, F., Raghavendra, P., Barker, R., Theodoros, D., Amery, H., Massey, L., & Lowell, A. (2020). Yolŋu with Machado-Joseph disease: Exploring communication strengths and needs. International Journal of Speech-Language Pathology, 22(5), 499–510. https://doi.org/10.1080/17549507.2019.1670863
   PubMed Web of Science ®Google Scholar
• Amery, R., Wunungmurra, J. G., Raghavendra, P., Bukuḻatjpi, G., Baker, R. D., Gumbula, F., Barker, R., Theodoros, D., Amery, H., Massey, L., & Lowell, A. (in press). Augmentative and alternative communication for Aboriginal Australians: Developing core vocabulary for Yolŋu speakers. Augmentative and Alternative Communication. https://doi.org/10.1080/07434618.2022.2128410
   Google Scholar
• Andres, P. (2006). Developing an appropriate icon set for a Mandarin Chinese augmentative communication system. International Journal of Computer Processing of Languages, 19(04), 275–283. https://doi.org/10.1142/S0219427906001499
   Google Scholar
• Baker, B. R., & Chang, S. (2006). A Mandarin language system in augmentative and alternative communication (AAC). International Journal of Computer Processing of Languages, 19(04), 225–237. https://doi.org/10.1142/S0219427906001438
   Google Scholar
• Baum, F., MacDougall, C., & Smith, D. (2006). Participatory action research. Journal of Epidemiology and Community Health, 60(10), 854–857. https://doi.org/10.1136/jech.2004.028662
   PubMed Web of Science ®Google Scholar
• Beukelman, D. R., & Mirenda, P. (2013). Augmentative and alternative communication: Supporting children and adults with complex communication needs (4th ed.). Brookes Publishing.
   Google Scholar
• Carr, J. J., Lalara, J., Lalara, G., Smith, M., Quaill, J., Clough, A. R., Lowell, A., & Barker, R. N. (2019). What is the best way to keep walking and moving around for individuals with Machado-Joseph disease? A scoping review through the lens of Aboriginal families with Machado-Joseph disease in the Top End of Australia. BMJ Open, 9(9), e032092. https://doi.org/10.1136/bmjopen-2019-032092
   PubMed Web of Science ®Google Scholar
• Cass, A., Lowell, A., Christie, M., Snelling, P. L., Flack, M., Marrnganyin, B., & Brown, I. (2002). Sharing the true stories: Improving communication between Aboriginal patients and healthcare workers. The Medical Journal of Australia, 176(10), 466–70470. https://doi.org/10.5694/j.1326-5377.2002.tb04517.x
   PubMed Web of Science ®Google Scholar
• Charmaz, K. (2008). Constructionism and the grounded theory method. In J. A. Holstein & J. F. Gubrium (Eds.), Handbook of constructionist research (pp. 397–412). Guilford Press.
   Google Scholar
• Christie, M. (2001). Aboriginal knowledge on the internet. Ngoonjook, 19, 33–50. https://www.cdu.edu.au/centres/ik/pdf/AbKnowInternet.pdf
   Google Scholar
• Christie, M. (2005). Words, ontologies and Aboriginal databases. Media International Australia, 116(1), 52–63. https://doi.org/10.1177/1329878X0511600107
   Google Scholar
• Christie, M., & Charles Darwin University. (2016). Yolngu languages and culture: Gupapuyŋu. Uniprint NT.
   Google Scholar
• Creswell, J. W. & Creswell, J.D. (2018). Research design: Qualitative. quantitative and mixed methods approaches (5th ed.). SAGE Publications.
   Google Scholar
• Daems, J., Bosch, N., Solberg, S., Dekelver, J., & Kultsova, M. (2016). AbleChat: Development of a chat app with pictograms for people with intellectual disabilities. Proceedings of Engineering4Society, Belgium. https://www.researchgate.net/publication/309292433_AbleChat_Development_of_a_chat_app_with_pictograms_for_People_with_Intellectual_Disabilities
   Google Scholar
• de Silva, R., Greenfield, J., Cook, A., Bonney, H., Vallortigara, J., Hunt, B., & Giunti, P. (2019). Guidelines on the diagnosis and management of the progressive ataxias. Orphanet Journal of Rare Diseases, 14(1), 51. https://doi.org/10.1186/s13023-019-1013-9
   PubMedGoogle Scholar
• Draffan, E. A., Kadous, A., Idris, A., Banes, D., Wald, M., & Halabi, N. (2015). A participatory research approach to develop an Arabic symbol dictionary. Assistive Technology, 217, 796–804. https://doi.org/10.3233/978-1-61499-566-1-796
   Google Scholar
• Elo, S., Kääriäinen, M., Kanste, O., Pölkki, T., Utriainen, K., & Kyngäs, H. (2014). Qualitative content analysis: A focus on trustworthiness. SAGE Open, 4(1), 215824401452263. https://doi.org/10.1177/2158244014522633
   Google Scholar
• Fager, S., Bardach, L., Russell, S., & Higginbotham, J. (2012). Access to augmentative and alternative communication: New technologies and clinical decision-making. Journal of Pediatric Rehabilitation Medicine, 5(1), 53–61. https://doi.org/10.3233/PRM-2012-0196
   PubMedGoogle Scholar
• Gilroy, J., & Donelly, M. (2016). Australian Indigenous people with disability: Ethics and standpoint theory. In S. Grech & K. Soldatic (Eds.), Disability in the Global South (pp. 545–566). Springer International Publishing. https://doi.org/10.1007/978-3-319-42488-0_35
   Google Scholar
• Hervás, R., Bautista, S., Méndez, G., Galván, P., & Gervás, P. (2020). Predictive composition of pictogram messages for users with autism. Journal of Ambient Intelligence and Humanized Computing, 11(11), 5649–5664. https://doi.org/10.1007/s12652-020-01925-z
   Web of Science ®Google Scholar
• Hetzroni, O., & Harris, O. (1996). Cultural aspects in the development of AAC users. Augmentative and Alternative Communication, 12(1), 52–58. https://doi.org/10.1080/07434619612331277488
   Google Scholar
• Hyter, Y. D. (2014). A conceptual framework for responsive global engagement in communication sciences and disorders. Topics in Language Disorders, 34(2), 103–120. https://doi.org/10.1097/TLD.0000000000000015
   Web of Science ®Google Scholar
• Johnson, R. B., Onwuegbuzie, A. J., & Turner, L. A. (2007). Toward a definition of mixed methods research. Journal of Mixed Methods Research, 1(2), 112–133. https://doi.org/10.1177/1558689806298224
   Web of Science ®Google Scholar
• Jones, L., Jacklin, K., & O’Connell, M. E. (2017). Development and use of health-related technologies in Indigenous communities: Critical review. Journal of Medical Internet Research, 19(7), e256. https://doi.org/10.2196/jmir.7520
   PubMed Web of Science ®Google Scholar
• Karal, Y., Karal, H., Şılbır, L., & Altun, T. (2016). Standardization of a graphic symbol system as an alternative communication tool for Turkish. Journal of Educational Technology & Society, 19(1), 53–66. ERIC. https://eric.ed.gov/?id=EJ1087122
   Web of Science ®Google Scholar
• Klockgether, T., Lüdtke, R., Kramer, B., Abele, M., Bürk, K., Schöls, L., Riess, O., Laccone, F., Boesch, S., Lopes-Cendes, I., Brice, A., Inzelberg, R., Zilber, N., & Dichgans, J. (1998). The natural history of degenerative ataxia: A retrospective study in 466 patients. Brain, 121(4), 589–600. https://doi.org/10.1093/brain/121.4.589
   PubMedGoogle Scholar
• Kulkarni, S. S., & Parmar, J. (2017). Culturally and linguistically diverse student and family perspectives of AAC. Augmentative and Alternative Communication, 33(3), 170–180. https://doi.org/10.1080/07434618.2017.1346706
   PubMed Web of Science ®Google Scholar
• LaGrappe, D., Massey, L., Couchman, M., Rantell, A., & Rungan, C. (2017). Urinary continence and living with Machado-Joseph disease: Insights from a literature review and experience of the Machado-Joseph Disease Foundation. The Australian and New Zealand Continence Journal, 23(3), 62–66. https://www.researchgate.net/publication/359411811_Theoria_Urinary_continence_and_living_with_Machado-Joseph_disease_Insights_from_a_literature_review_and_experience_of_the_Machado-Joseph_Disease_Foundation
   Google Scholar
• Laubscher, E., & Light, J. (2020). Core vocabulary lists for young children and considerations for early language development: A narrative review. Augmentative and Alternative Communication, 36(1), 43–53. https://doi.org/10.1080/07434618.2020.1737964
   PubMed Web of Science ®Google Scholar
• Light, J., Wilkinson, K. M., Thiessen, A., Beukelman, D. R., & Fager, S. K. (2019). Designing effective AAC displays for individuals with developmental or acquired disabilities: State of the science and future research directions. Augmentative and Alternative Communication, 35(1), 42–55. https://doi.org/10.1080/07434618.2018.1558283
   PubMed Web of Science ®Google Scholar
• Lowell, A., Maypilama, E. L., Fasoli, L., Gundjarranbuy, R., Godwin-Thompson, J., Guyula, A., Yunupiŋu, M., Armstrong, E., Garrutju, J., & McEldowney, R. (2018). Building Yolŋu skills, knowledge, and priorities into early childhood assessment and support: Protocol for a qualitative study. JMIR Research Protocols, 7(3), e50. https://doi.org/10.2196/resprot.8722
   PubMed Web of Science ®Google Scholar
• Marika-Mununggiritj, R., & Christie, M. (1995). Yolngu metaphors for learning. International Journal of the Sociology of Language, 113(1), 59–62. https://doi.org/10.1515/ijsl.1995.113.59
   Google Scholar
• Marŋgithinyaraw, Y. (2012). Doing research with Yolŋu. http://yalu.cdu.edu.au/healthResources/research.html
   Google Scholar
• Martin, K., & Mirraboopa, B. (2003). Ways of knowing, being and doing: A theoretical framework and methods for indigenous and indigenist re-search. Journal of Australian Studies, 27(76), 203–214. https://doi.org/10.1080/14443050309387838
   Google Scholar
• Maypilama, E., & Adone, D. (2013). Yolngu sign language: An undocumented language of Arnhem Land. Learning Communities: International Journal of Learning in Social Contexts, 13(13), 37–44. https://doi.org/10.18793/LCJ2013.13.05
   Google Scholar
• Mngomezulu, J., Tönsing, K. M., Dada, S., & Bokaba, N. B. (2019). Determining a Zulu core vocabulary for children who use augmentative and alternative communication. Augmentative and Alternative Communication, 35(4), 274–284. https://doi.org/10.1080/07434618.2019.1692902
   PubMed Web of Science ®Google Scholar
• Nigam, R. (2006). Sociocultural development and validation of lexicon for Asian-Indian individuals who use augmentative and alternative communication. Disability and Rehabilitation. Assistive Technology, 1(4), 245–256. https://doi.org/10.1080/09638280500476063
   PubMedGoogle Scholar
• QSR International Pty Ltd. (2019). NVivo qualitative data analysis software (Version 12) [Computer software]. https://www.qsrinternational.com/nvivo-qualitative-data-analysis-software/home
   Google Scholar
• Rigney, L.-I. (1999). Internationalization of an Indigenous anticolonial cultural critique of research methodologies: A Guide to Indigenist research methodology and it’s principles. Wicazo Sa Review, 14(2), 109–121. https://doi.org/10.2307/1409555
   Google Scholar
• Rüb, U., Brunt, E. R., De Vos, R. A. I., Del Turco, D., Del Tredici, K., Gierga, K., Schultz, C., Ghebremedhin, E., Bürk, K., Auburger, G., & Braak, H. (2004). Degeneration of the central vestibular system in spinocerebellar ataxia type 3 (SCA3) patients and its possible clinical significance. Neuropathology and Applied Neurobiology, 30(4), 402–414. https://doi.org/10.1111/j.1365-2990.2004.00554.x
   PubMed Web of Science ®Google Scholar
• Saldaña, J. (2009). First cycle coding methods. In J. Saldaña (Ed.), The coding manual for qualitative researchers (pp. 45–148). Sage Publications.
   Google Scholar
• Saute, J. A. M., & Jardim, L. B. (2015). Machado Joseph disease: Clinical and genetic aspects, and current treatment. Expert Opinion on Orphan Drugs, 3(5), 517–535. https://doi.org/10.1517/21678707.2015.1025747
   Web of Science ®Google Scholar
• Schmitz-Hubsch, T., Du Montcel, S. T., Baliko, L., Berciano, J., Boesch, S., Depondt, C., Giunti, P., Globas, C., Infante, J., Kang, J.-S., Kremer, B., Mariotti, C., Melegh, B., Pandolfo, M., Rakowicz, M., Ribai, P., Rola, R., Schols, L., Szymanski, S., … Klockgether, T. (2006). Scale for the assessment and rating of ataxia: Development of a new clinical scale. Neurology, 66(11), 1717–1720. https://doi.org/10.1212/01.wnl.0000219042.60538.92
   PubMed Web of Science ®Google Scholar
• Shalley, F., & Stewart, A. (2017). A statistical overview: Aboriginal adult LLN in the Northern Territory (Vol. 88). Whole of Community Engagement Initiative Office of the PVC of Indigenous Leadership, Charles Darwin University.
   Google Scholar
• Smith, L. T. (2012). Decolonizing methodologies: Research and indigenous peoples (2nd ed.). Zed Books.
   Google Scholar
• Stone, B. C. (2019). Ko tōku reo tōku ohooho: Towards culturally located te reo Māori augmentative and alternative communication [Master of Science]. University of Canterbury. https://doi.org/10.26021/6594
   Google Scholar
• Stopher, K., & D’Antoine, H. (2008). Aboriginal people with disability: Unique approaches to unique issues. Disability Services Commission. http://www.healthinfonet.ecu.edu.au/key-resources/bibliography/?lid=20692
   Google Scholar
• Stuart, S., & Parette, H. P., Jr. (2002). Native Americans and augmentative and alternative communication issues. Multiple Voices for Ethnically Diverse Exceptional Learners, 5(1), 38–53. https://doi.org/10.5555/muvo.5.1.p8006861217m5414
   Google Scholar
• Tönsing, K. M., van Niekerk, K., Schlünz, G. I., & Wilken, I. (2018). AAC services for multilingual populations: South African service provider perspectives. Journal of Communication Disorders, 73, 62–76. https://doi.org/10.1016/j.jcomdis.2018.04.002
   PubMed Web of Science ®Google Scholar
• van Gelderen, B., & Guthadjaka, K. (2017). The Warramiri website: Applying an alternative Yolŋu epistemology to digital development. Research and Practice in Technology Enhanced Learning, 12(14), 1–19. https://doi.org/10.1186/s41039-017-0052-x
   PubMedGoogle Scholar
• van Gelderen, B., & Guthadjaka, K. (2019). Yuṯa gonydjuy: The ‘New Wax’ Warramiri Yolŋu parable as transculturation literature and Lonydju’yirr literacy at Gawa. English in Australia, 54(1), 30–42. https://search.informit.org/doi/abs/10.3316/aeipt.224722
   Web of Science ®Google Scholar
• Walter, M. (2009). Participatory action research. In A. Bryman (Ed.), Social research methods (pp. 151–158). Falmer Press.
   Google Scholar