References
- Alzheimer’s Association. (2019). 2019 Alzheimer’s disease facts and figures. Alzheimer’s Dementia, 15(3), 321–387.
- Barusch, A., Gringeri, C., & George, M. (2011). Rigor in qualitative social work research: A review of strategies used in published articles. Social Work Research, 35(1), 11–19. doi:https://doi.org/10.1093/swr/35.1.11
- Boerner, K., & Schulz, R. (2009). Caregiving, bereavement and complicated grief. Bereavement Care, 28(3), 10–13. doi:https://doi.org/10.1080/02682620903355382
- Breen, L. J., Aoun, S. M., O’Connor, M., Howting, D., & Halkett, G. K. B. (2018). Family caregivers’ preparations for death: A qualitative analysis. Journal of Pain and Symptom Management, 55(6), 1473–1479. doi:https://doi.org/10.1016/j.jpainsymman.2018.02.018
- Burke, L. A., Clark, K. A., Ali, K. S., Gibson, B. W., Smigelsky, M. A., & Neimeyer, R. A. (2015). Risk factors for anticipatory grief in family members of terminally ill veterans receiving palliative care services. Journal of Social Work in End-of-Life & Palliative Care, 11(3–4), 244–266. doi:https://doi.org/10.1080/15524256.2015.1110071
- Burke, L. A., Neimeyer, R. A., Bottomley, J. S., & Smigelsky, M. A. (2019). Prospective risk factors for intense grief in family members of veterans who died of terminal illness. Illness, Crisis & Loss, 27(3), 147–171. doi:https://doi.org/10.1177/1054137317699580
- Colaizzi, P. (1978). Psychological research as a phenomenologist views it. In R. S. Valle & M. King (Eds.), Existential phenomenological alternatives for psychology (pp. 48–71). New York: Open University Press.
- Coleman, R. A., & Neimeyer, R. A. (2010). Measuring meaning: Searching for and making sense of spousal loss in late-life. Death Studies, 34(9), 804–834. doi:https://doi.org/10.1080/07481181003761625
- Crunk, A. E., Burke, L. A., & Robinson, E. M. (2017). Complicated grief: An evolving theoretical landscape. Journal of Counseling & Development, 95(2), 226–233. doi:https://doi.org/10.1002/jcad.12134
- DeCuir-Gunby, J. T., Marshall, P. L., & McCulloch, A. W. (2011). Developing and using a codebook for the analysis of interview data: An example from a professional development research project. Field Methods, 23(2), 136–155. doi:https://doi.org/10.1177/1525822X10388468
- Doering, B. K., & Eisma, M. C. (2016). Treatment for complicated grief: State of the science and ways forward. Current Opinion in Psychiatry, 29(5), 286–291. doi:https://doi.org/10.1097/YCO.0000000000000263
- Gillies, J., & Neimeyer, R. A. (2006). Loss, grief, and the search for significance: Toward a model of meaning reconstruction in bereavement. Journal of Constructivist Psychology, 19(1), 31–65. doi:https://doi.org/10.1080/10720530500311182
- Givens, J. L., Prigerson, H. G., Kiely, D. K., Shaffer, M. L., & Mitchell, S. L. (2011). Grief among family members of nursing home residents with advanced dementia. The American Journal of Geriatric Psychiatry, 19(6), 543–550. doi:https://doi.org/10.1097/JGP.0b013e31820dcbe0
- Hebert, R. S., Dang, Q., & Schulz, R. (2006). Preparedness for the death of a loved one and mental health in bereaved caregivers of patients with dementia: Findings from the REACH study. Journal of Palliative Medicine, 9(3), 683–693. doi:https://doi.org/10.1089/jpm.2006.9.683
- Heidegger, M. (1962). Being and time. New York: State University of New York Press.
- Hibberd, R. (2013). Meaning reconstruction in bereavement: Sense and significance. Death Studies, 37(7), 670–692. doi:https://doi.org/10.1080/07481187.2012.692453
- Holland, J. M., Futterman, A., Thompson, L. W., Moran, C., & Gallagher-Thompson, D. (2013). Difficulties accepting the loss of a spouse: A precursor for intensified grieving among widowed older adults. Death Studies, 37(2), 126–144. doi:https://doi.org/10.1080/07481187.2011.617489
- Husserl, E. (1931). Ideas: General introduction to pure phenomenology. London, England: Allen & Unwin.
- Ives, D. G., Samuel, P., Psaty, B. M., & Kuller, L. H. (2009). Agreement between nosologist and Cardiovascular Health Study review of deaths: Implications of coding differences. Journal of the American Geriatrics Society, 57(1), 133–139. doi:https://doi.org/10.1111/j.1532-5415.2008.02056.x
- Keyes, K. M., Pratt, C., Galea, S., McLaughlin, K. A., Koenen, K. C., & Shear, M. K. (2014). The burden of loss: Unexpected death of a loved one and psychiatric disorders across the life course in a national study. The American Journal of Psychiatry, 171(8), 864–871. doi:https://doi.org/10.1176/appi.ajp.2014.13081132
- Lobb, E. A., Kristjanson, L. J., Aoun, S. M., Monterosso, L., Halkett, G. K., & Davies, A. (2010). Predictors of complicated grief: A systematic review of empirical studies. Death Studies, 34(8), 673–698. doi:https://doi.org/10.1080/07481187.2010.496686
- Marshall, C., & Rossman, G. B. (2016). Designing qualitative research (6th ed.). Thousand Oaks, CA: Sage.
- McConnell-Henry, T., Chapman, Y., & Francis, K. (2009). Husserl and Heidegger: Exploring the disparity. International Journal of Nursing Practice, 15(1), 7–15. doi:https://doi.org/10.1111/j.1440-172X.2008.01724.x
- Miller, M. D. (2012). Complicated grief in late life. Dialogues in Clinical Neuroscience, 14(2), 195–202.
- Murphy, S. L., Xu, J., Kochanek, K. D., Curtin, S. C., & Arias, E. (2017). Deaths: Final data for 2015. National Vital Statistics Reports, 66(6), 76.
- Newson, R. S., Boelen, P. A., Hek, K., Hofman, A., & Tiemeier, H. (2011). The prevalence and characteristics of complicated grief in older adults. Journal of Affective Disorders, 132(1–2), 231–238.
- Nielsen, M. K., Neergaard, M. A., Jensen, A. B., Bro, F., & Guldin, M. B. (2016). Do we need to change our understanding of anticipatory grief in caregivers? A systematic review of caregiver studies during end-of-life caregiving and bereavement. Clinical Psychology Review, 44, 75–93. doi:https://doi.org/10.1016/j.cpr.2016.01.002
- Noyes, B. B., Hill, R. D., Hicken, B. L., Luptak, M., Rupper, R., Dailey, N. K., & Bair, B. D. (2010). The role of grief in dementia caregiving. American Journal of Alzheimer's Disease & Other Dementiasr, 25(1), 9–17. doi:https://doi.org/10.1177/1533317509333902
- O’Brien, B. C., Harris, I. B., Beckman, T. J., Reed, D. A., & Cook, D. A. (2014). Standards for reporting qualitative research: A synthesis of recommendations. Academic Medicine, 89(9), 1245–1251. doi:https://doi.org/10.1097/ACM.0000000000000388
- Park, C. L. (2010). Making sense of the meaning literature: An integrative review of meaning making and its effects on adjustment to stressful life events. Psychological Bulletin, 136(2), 257–301. doi:https://doi.org/10.1037/a0018301
- Piiparinen, R., & Whitlatch, C. J. (2011). Existential loss as a determinant to well-being in the dementia caregiving dyad: A conceptual model. Dementia, 10(2), 185–201. doi:https://doi.org/10.1177/1471301211398989
- Prigerson, H. G., Maciejewski, P. K., Reynolds, C. F., Bierhals, A. J., Newsom, J. T., Fasiczka, A., … Miller, M. (1995). Inventory of Complicated Grief: A scale to measure maladaptive symptoms of loss. Psychiatry Research, 59(1–2), 65–79. doi:https://doi.org/10.1016/0165-1781(95)02757-2
- Romero, J. P., Benito-Leon, J., Mitchell, A. J., Trincado, R., & Bermejo-Pareja, F. (2014). Under reporting of dementia deaths on death certificates using data from a population-based study (NEDICES). Journal of Alzheimer's Disease, 39(4), 741–748. doi:https://doi.org/10.3233/JAD-131622
- Saldana, J. (2009). The coding manual for qualitative researchers. London: Sage Publications.
- Sandelowski, M. (2000). Focus on research methods. Whatever happened to qualitative description? Research in Nursing & Health, 23(4), 334–340. doi:https://doi.org/10.1002/1098-240X(200008)23:4<334::AID-NUR9>3.0.CO;2-G
- Sandelowski, M. (2010). What’s in a name? Qualitative description revisited. Research in Nursing and Health, 33(1), 77–84.
- Schulz, R., Boerner, K., Klinger, J., & Rosen, J. (2015). Preparedness for death and adjustment to bereavement among caregivers of recently placed nursing home residents. Journal of Palliative Medicine, 18(2), 127–133. doi:https://doi.org/10.1089/jpm.2014.0309
- Schulz, R., Boerner, K., Shear, K., Zhang, S., & Gitlin, L. N. (2006). Predictors of complicated grief among dementia caregivers: A prospective study of bereavement. The American Journal of Geriatric Psychiatry, 14(8), 650–658. doi:https://doi.org/10.1097/01.JGP.0000203178.44894.db
- Shear, K., & Essock, S. (2002). Brief Grief Questionnaire. Pittsburgh: University of Pittsburgh.
- Shear, M. K. (2012a). Grief and mourning gone awry: Pathway and course of complicated grief. Dialogues in Clinical Neuroscience, 14(2), 119–128.
- Shear, M. K. (2012b). Getting straight about grief. Depression and Anxiety, 29, 461–464. doi:https://doi.org/10.1002/da.21963
- Simon, N. M. (2015). Increasing support for the treatment of complicated grief in adults of all ages. JAMA, 313(21), 2172–2173. doi:https://doi.org/10.1001/jama.2015.105
- Supiano, K. P. (2015). And I have lost him twice: Grief in dementia caregivers. In K. J. Doka & A. S. Tucci (Eds.), The longest loss: Alzheimer’s Disease and dementia (pp. 29–41). Washington, DC: Hospice Foundation of America.
- Supiano, K. P., Andersen, T. C., & Haynes, L. B. (2015). Sudden-on-chronic death and complicated grief in bereaved dementia caregivers: Two case studies of complicated grief group therapy. Journal of Social Work in End-of-Life & Palliative Care, 11(3–4), 267–282. doi:https://doi.org/10.1080/15524256.2015.1107810
- Supiano, K. P., Haynes, L. B., & Pond, V. (2017). The transformation of meaning in complicated grief group therapy for suicide survivors: Treatment process analysis using the Meaning of Loss Codebook. Death Studies, 41(9), 553–561. doi:https://doi.org/10.1080/07481187.2017.1320339
- Supiano, K. P., Haynes, L. B., & Pond, V. (2017). The process of change in Complicated Grief Group Therapy for bereaved dementia caregivers: An evaluation using the Meaning Loss Codebook. Journal of Gerontological Social Work, 60(2), 155–169. doi:https://doi.org/10.1080/01634372.2016.1274930
- Supiano, K. P., & Luptak, M. (2014). Complicated grief in older adults: A randomized controlled trial of complicated grief group therapy. The Gerontologist, 54(5), 840–856. doi:https://doi.org/10.1093/geront/gnt076
- Washington, K. T., Wilkes, C. M., Rakes, C. R., Otten, S. J., Parker Oliver, D., & Demiris, G. (2018). Relationships among symptom management burden, coping responses, and caregiver psychological distress at end of life. Journal of Palliative Medicine, 21(9), 1234–1241. doi:https://doi.org/10.1089/jpm.2017.0584