304
Views
0
CrossRef citations to date
0
Altmetric
Research Articles

Passing through end-of-life suffering: Possible or not? Results from a qualitative inquiry

, , , , , , ORCID Icon & show all

References

  • Althaus, B., Borasio, G. D., & Bernard, M. (2018). Gratitude at the end of life: A promising lead for palliative care. Journal of Palliative Medicine, 21(11), 1566–1572. https://doi.org/10.1089/jpm.2018.0027
  • Barskova, T., & Oesterreich, R. (2009). Post-traumatic growth in people living with a serious medical condition and its relations to physical and mental health: A systematic review. Disability and Rehabilitation, 31(21), 1709–1733. https://doi.org/10.1080/09638280902738441
  • Bernard, M., Poncin, E., Althaus, B., & Borasio, G. D. (2022). Posttraumatic growth in palliative care patients and its associations with psychological distress and quality of life. Palliative and Supportive Care, 1–8. https://doi.org/10.1017/S1478951521002066
  • Bueno-Gómez, N. (2017). Conceptualizing suffering and pain. Philosophy, Ethics, and Humanities in Medicine : PEHM, 12(1), 7. https://doi.org/10.1186/s13010-017-0049-5
  • Cadell, S., Hemsworth, D., Smit Quosai, T., Steele, R., Davies, E., Liben, S., Straatman, L., & Siden, H. (2014). Posttraumatic growth in parents caring for a child with a life-limiting illness: A structural equation model. The American Journal of Orthopsychiatry, 84(2), 123–133. https://doi.org/10.1037/h0099384
  • Calhoun, L. G., & Tedeschi, R. G. (2006). The foundations of posttraumatic growth: An expanded framework. In L. G. Calhoun & R. G. Tedeschi (Eds.), Handbook of posttraumatic growth: Research & practice (pp. 3–23). Lawrence Erlbaum Associates Publishers.
  • Cassel, E. J. (1982). The nature of suffering and the goals of medicine. The New England Journal of Medicine, 306(11), 639–645. https://doi.org/10.1056/NEJM198203183061104
  • Correia, M. E., Melo, T., & Nobre, J. (2022). Grieving experiences of parents with children in end-of-life care-a qualitative review protocol. Nursing Reports (Pavia, Italy), 12(3), 426–430. https://doi.org/10.3390/nursrep12030041
  • Daneault, S., Lussier, V., Mongeau, S., Paille, P., Hudon, E., Dion, D., & Yelle, L. (2004). The nature of suffering and its relief in the terminally ill: A qualitative study. Journal of Palliative Care, 20(1), 7–11. https://doi.org/10.1177/082585970402000103
  • Dunigan, J. T., Carr, B. I., & Steel, J. L. (2007). Posttraumatic growth, immunity and survival in patients with hepatoma. Digestive Diseases and Sciences, 52(9), 2452–2459. https://doi.org/10.1007/s10620-006-9477-6
  • Dutta, O., Tan-Ho, G., Choo, P. Y., & Ho, A. (2019). Lived experience of a child’s chronic illness and death: A qualitative systematic review of the parental bereavement trajectory. Death Studies, 43(9), 547–561. https://doi.org/10.1080/07481187.2018.1503621
  • Dutta, O., Tan-Ho, G., Choo, P. Y., Low, X. C., Chong, P. H., Ng, C., Ganapathy, S., & Ho, A. (2020). Trauma to transformation: The lived experience of bereaved parents of children with chronic life-threatening illnesses in Singapore. BMC Palliative Care, 19(1), 46. https://doi.org/10.1186/s12904-020-00555-8
  • Egnew, T. R. (2005). The meaning of healing: Transcending suffering. Annals of Family Medicine, 3(3), 255–262. https://doi.org/10.1370/afm.313
  • Ellis, J., Cobb, M., O’Connor, T., Dunn, L., Irving, G., & Lloyd-Williams, M. (2015). The meaning of suffering in patients with advanced progressive cancer. Chronic Illness, 11(3), 198–209. https://doi.org/10.1177/1742395314565720
  • Frankl, V. (1963). Man’s search for meaning: An introduction to logotherapy. Holt Rinehart & Winston.
  • Gallagher, E., & Marshall, D. (2020). Framework on palliative care in Canada: Do we have a broad enough lens? Canadian family physician Medecin de famille canadien, 66(9), 642–643.
  • García-Rueda, N., Carvajal Valcárcel, A., Saracíbar-Razquin, M., & Arantzamendi Solabarrieta, M. (2016). The experience of living with advanced-stage cancer: A thematic synthesis of the literature. European Journal of Cancer Care, 25(4), 551–569. https://doi.org/10.1111/ecc.12523
  • Glaser, B. G., & Strauss, A. L. (2007). The discovery of grounded theory: Strategies for qualitative research. Aldine Publishing Company.
  • Hasson-Ohayon, I., Tuval-Mashiach, R., Goldzweig, G., Levi, R., Pizem, N., & Kaufman, B. (2016). The need for friendships and information: Dimensions of social support and posttraumatic growth among women with breast cancer. Palliative & Supportive Care, 14(4), 387–392. https://doi.org/10.1017/s1478951515001042
  • Hegarty, G., Storey, L., Dempster, M., & Rogers, D. (2021). Correlates of post-traumatic growth following a myocardial infarction: A systematic review. Journal of Clinical Psychology in Medical Settings, 28(2), 394–404. https://doi.org/10.1007/s10880-020-09727-3
  • Hennink, M. M., Kaiser, B. N., & Marconi, V. C. (2017). Code saturation versus meaning saturation: how many interviews are enough? Qualitative Health Research, 27(4), 591–608. https://doi.org/10.1177/1049732316665344
  • Hoffstädt, H., Stouthard, J., Meijers, M. C., Westendorp, J., Henselmans, I., Spreeuwenberg, P., de Jong, P., van Dulmen, S., & van Vliet, L. M. (2020). Patients’ and clinicians’ perceptions of clinician-expressed empathy in advanced cancer consultations and associations with patient outcomes. Palliative Medicine Reports, 1(1), 76–83. https://doi.org/10.1089/pmr.2020.0052
  • Holloway, I., & Todres, L. (2007). Thinking differently: Challenges in qualitative research. International Journal of Qualitative Studies on Health and Well-Being, 2(1), 12–18. https://doi.org/10.1080/17482620701195162
  • Knowles, J. G., & Cole, A. L. (2008). Handbook of the arts in qualitative research: Perspectives, methodologies, examples, and issues. Sage Publications.
  • Langaro, F., & Schneider, D. R. (2021). Narratives of cancer patients about life trajectories and illness: Contributions of Sartrian existentialism to palliative care. Existential Analysis, 32(1), 125–138.
  • Li, X., Chen, S., Zhang, J., Li, L., Li, Y., & Ye, M. (2021). Resilience process and its protective factors in long-term survivors after lung cancer surgery: A qualitative study. Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer, 29(3), 1455–1463. https://doi.org/10.1007/s00520-020-05633-4
  • Manove, E. E., Lowe, S. R., Bonumwezi, J., Preston, J., Waters, M. C., & Rhodes, J. E. (2019). Posttraumatic growth in low-income Black mothers who survived Hurricane Katrina. The American Journal of Orthopsychiatry, 89(2), 144–158. https://doi.org/10.1037/ort0000398
  • Miles, M. B., Huberman, A. M., & Saldaña, J. (2014). Qualitative data analysis: A methods sourcebook (3rd ed.). Sage.
  • Moreno, P. I., & Stanton, A. L. (2013). Personal growth during the experience of advanced cancer: A systematic review. Cancer Journal (Sudbury, Mass.), 19(5), 421–430. https://doi.org/10.1097/PPO.0b013e3182a5bbe7
  • Morse, J. M. (2015). Data were saturated …. Qualitative Health Research, 25(5), 587–588. https://doi.org/10.1177/1049732315576699
  • Nowels, D., Jones, J., Nowels, C. T., & Matlock, D. (2016). Perspectives of primary care providers toward palliative care for their patients. Journal of the American Board of Family Medicine: JABFM, 29(6), 748–758. https://doi.org/10.3122/jabfm.2016.06.160054
  • Ogińska-Bulik, N., & Michalska, P. (2021). Psychological resilience and secondary traumatic stress in nurses working with terminally ill patients – The mediating role of job burnout. Psychological Services, 18(3), 398–405. https://doi.org/10.1037/ser0000421
  • Paillé, P., & Mucchielli, A. (2016). L’analyse qualitative en sciences humaines et sociales [Qualitative analysis in the human and social sciences]. Armand Colin.
  • Parsons, J. A., & Boydell, K. M. (2012). Arts-based research and knowledge translation: Some key concerns for health-care professionals. Journal of Interprofessional Care, 26(3), 170–172. https://doi.org/10.3109/13561820.2011.647128
  • Powell, S., & Rosner, R. (2005). The Bosnian version of the international self-report measure of posttraumatic stress disorder, the Posttraumatic Stress Diagnostic Scale, is reliable and valid in a variety of different adult samples affected by war. BMC Psychiatry, 5(1), Article 11. https://doi.org/10.1186/1471-244X-5-11
  • Purc-Stephenson, R. J. (2014). The Posttraumatic Growth Inventory: Factor structure and invariance among persons with chronic diseases. Rehabilitation Psychology, 59(1), 10–18. https://doi.org/10.1037/a0035353
  • Ramos, C., & Leal, I. (2013). Posttraumatic growth in the aftermath of trauma: A literature review about related factors and application contexts. Psychology, Community & Health, 2(1), 43–54. https://doi.org/10.5964/pch.v2i1.39
  • Renz, M., Reichmuth, O., Bueche, D., Traichel, B., Schuett Mao, M., Cerny, T., & Strasser, F. (2018). Fear, pain, denial, and spiritual experiences in dying processes. The American Journal of Hospice & Palliative Care, 35(3), 478–491. https://doi.org/10.1177/1049909117725271
  • Richardson, K. M. (2015). Meaning reconstruction in the face of terror: An examination of recovery and posttraumatic growth among victims of the 9/11 World Trade Center attacks. Journal of Emergency Management (Weston, Mass.), 13(3), 239–246. https://doi.org/10.5055/jem.2015.0237
  • Romotzky, V., Strupp, J., Hayn, A., Rüffer, J. U., Grümmer, J., & Voltz, R. (2019). “All of a sudden, a lot less still makes it worthwhile to be alive:” Palliative care patients’ views on life. Palliative & Supportive Care, 17(2), 214–220. https://doi.org/10.1017/S1478951518000081
  • Ruijs, C. D. M., Kerkhof, A. J. F. M., van der Wal, G., & Onwuteaka-Philipsen, B. D. (2013). Symptoms, unbearability and the nature of suffering in terminal cancer patients dying at home: A prospective primary care study. BMC Family Practice, 14, 201. https://doi.org/10.1186/1471-2296-14-201
  • Silverstein, M. W., Lee, D. J., Witte, T. K., & Weathers, F. W. (2017). Is posttraumatic growth trauma-specific? Invariance across trauma- and stressor-exposed groups. Psychological Trauma : theory, Research, Practice and Policy, 9(5), 553–560. https://doi.org/10.1037/tra0000236
  • Svenaeus, F. (2014). The phenomenology of suffering in medicine and bioethics. Theoretical Medicine and Bioethics, 35(6), 407–420. https://doi.org/10.1007/s11017-014-9315-3
  • Tedeschi, R. G., & Calhoun, L. G. (1996). The Posttraumatic Growth Inventory: Measuring the positive legacy of trauma. Journal of Traumatic Stress, 9(3), 455–471. https://doi.org/10.1007/bf02103658
  • Tedeschi, R. G., & Calhoun, L. G. (2004). Posttraumatic growth: Conceptual foundations and empirical evidence. Psychological Inquiry, 15(1), 1–18. https://doi.org/10.1207/s15327965pli1501_01
  • Tong, A., Sainsbury, P., & Craig, J. (2007). Consolidated criteria for reporting qualitative research (COREQ): A 32-item checklist for interviews and focus groups. International Journal for Quality in Health Care : journal of the International Society for Quality in Health Care, 19(6), 349–357. https://doi.org/10.1093/intqhc/mzm042
  • Towers, A., MacDonald, N., & Wallace, E. (2003). Ethical issues in palliative care: Views of patients, families, and nonphysician staff. Canadian family physician Medecin de famille canadien, 49, 1626–1631.
  • VanderWeele, T. J. (2019). Suffering and response: Directions in empirical research. Social Science & Medicine (1982), 224, 58–66. https://doi.org/10.1016/j.socscimed.2019.01.041
  • Wekerle, C., Wolfe, D. A., Hawkins, D. L., Pittman, A. L., Glickman, A., & Lovald, B. E. (2001). Childhood maltreatment, posttraumatic stress symptomatology, and adolescent dating violence: Considering the value of adolescent perceptions of abuse and a trauma mediational model. Development and Psychopathology, 13(4), 847–871. https://doi.org/10.1017/S0954579401004060

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.