When residents die in Portuguese care facilities: The experiences and practices of care facility directors before and during the COVID-19 pandemic

References

• Afonso, R. M., Barbosa, M. M., Paúl, C., & Sousa, L. (2022). Face-to-face with the pandemic: Experiences of staff in Portuguese residential care facilities. Journal of Gerontological Social Work, 65(7), 782–794. https://doi.org/10.1080/01634372.2022.2043505
   PubMed Web of Science ®Google Scholar
• Balmer, D. G., Frey, R., Gott, M., Collier, A., & Boyd, M. (2022). A place to live and to die: a qualitative exploration of the social practices and rituals of death in residential aged care. OMEGA - Journal of Death and Dying, 85(1), 38–58. https://doi.org/10.1177/0030222820935217
   PubMed Web of Science ®Google Scholar
• Carlini, J., Bahudin, D., Michaleff, Z. A., Plunkett, E., Shé, É. N., Clark, J., & Cardona, M. (2022). Discordance and concordance on perception of quality care at end of life between older patients, caregivers and clinicians: A scoping review. European geriatric Medicine, 13(1), 87–99. https://doi.org/10.1007/s41999-021-00549-6
   PubMed Web of Science ®Google Scholar
• Chen, C., Chow, A. Y. M., & Jiao, K. (2022). The meaning of patient deaths for professional caregivers: A quantitative construct validation. Death Studies, 47(4), 440–449. https://doi.org/10.1080/07481187.2022.2089776
   PubMed Web of Science ®Google Scholar
• Childs, A., Zullo, A. R., Joyce, N. R., McConeghy, K. W., van Aalst, R., Moyo, P., van Aalst, R., Moyo, P., Bosco, E., & Gravenstein, S. (2019). The burden of respiratory infections among older adults in long-term care: A systematic review. BMC Geriatrics, 19(1), 1–10. https://doi.org/10.1186/s12877-019-1236-6
   PubMed Web of Science ®Google Scholar
• Connolly, M. J., Broad, J. B., Boyd, M., Kerse, N., & Gott, M. (2014). Residential aged care: The de facto hospice for New Zealand’s older people. Australasian Journal on Ageing, 33(2), 114–120. https://doi.org/10.1111/ajag.12010
   PubMed Web of Science ®Google Scholar
• DeSpelder, L. A., & Strickland, A. L. (2015). The last dance: Encountering death and dying (7th ed.). McGraw-Hill.
   Google Scholar
• Dias, S. F., Araújo, L., & Sousa, L. (2023). Gerontological social workers’ perspectives about the future at the start of a COVID-19 vaccination program: A photovoice study. Journal of Social Work. https://doi.org/10.1177/14680173221144412
   Web of Science ®Google Scholar
• Fonseca, L. M., & Testoni, I. (2012). The emergence of thanatology and current practice in death education. OMEGA - Journal of Death and Dying, 64(2), 157–169. https://doi.org/10.2190/OM.64.2.d
   Web of Science ®Google Scholar
• Fryer, S., Bellamy, G., Morgan, T., & Gott, M. (2016). “Sometimes I’ve gone home feeling that my voice hasn’t been heard”: A focus group study exploring the views and experiences of health care assistants when caring for dying residents. BMC palliative Care, 15(1), 78–79. https://doi.org/10.1186/s12904-016-0150-3
   PubMedGoogle Scholar
• Gordon, J. M., Magbee, T., & Yoder, L. H. (2021). The experiences of critical care nurses caring for patients with COVID-19 during the 2020 pandemic: A qualitative study. Applied nursing Research : ANR, 59, 151418–151417. https://doi.org/10.1016/j.apnr.2021.151418
   PubMed Web of Science ®Google Scholar
• Guideline no. 009/2020 of General Directorate of Health (DGS) (2020). COVID-19: Procedimentos para Estruturas Residenciais para Idosos (ERPI) e para Unidades de Cuidados Continuados Integrados (várias tipologias) [COVID-19: Procedures for Residential Care Facilities (RCFs) and for Integrated Continuing Care Units (various typologies)]. DGS. https://www.app.com.pt/orientacao-no-009-2020-de-11-03-2020-atualizada-em-02-11-2021-covid-19-procedimentos-para-estruturasresidenciais-para-idosos-erpi-e-para-unidades-de-cuidados-continuados-integrados-varias-tipolog
   Google Scholar
• Järviö, T., Nosraty, L., & Aho, A. L. (2022). Older individuals’ perceptions of a good death: A systematic literature review. Death Studies, 47(4), 476–489. https://doi.org/10.1080/07481187.2022.2092787
   PubMed Web of Science ®Google Scholar
• Jordan, T. R., Wotring, A. J., McAfee, C. A., Polavarapu, M., Cegelka, D., Wagner-Greene, V. R., & Hamdan, Z. (2022). The COVID-19 pandemic has changed dying and grief: Will there be a surge of complicated grief? Death studies, 46(1), 84–90. https://doi.org/10.1080/07481187.2021.1929571
   PubMed Web of Science ®Google Scholar
• Kevern, J., & Webb, C. (2001). Focus groups as a tool for critical social research in nurse education. Nurse education Today, 21(4), 323–333. https://doi.org/10.1054/nedt.2001.0563
   PubMed Web of Science ®Google Scholar
• McMichael, T. M., Currie, D. W., Clark, S., Pogosjans, S., Kay, M., Schwartz, N. G., Lewis, J., Baer, A., Kawakami, V., Lukoff, M. D., Ferro, J., Brostrom-Smith, C., Rea, T. D., Sayre, M. R., Riedo, F. X., Russell, D., Hiatt, B., Montgomery, P., Rao, A. K., … Duchin, J. S. (2020). Epidemiology of COVID-19 in a long-term care facility in King County, Washington. New England Journal of Medicine, 382(21), 2005–2011. https://doi.org/10.1056/NEJMoa2005412
   PubMed Web of Science ®Google Scholar
• Ministry of Labour, Solidarity and Social Security (MTSSS) (2020). Carta Social Rede de Serviços e Equipamentos [Social charter services and equipment network]. MTSSS. http://www.gep.mtsss.gov.pt/documents/10182/81866/csocial2020.pdf/df44fadb-b9d1-40e6-af40-0bb96ead158f
   Google Scholar
• National Statistical Institute of Portugal (INE) (2022). Mortalidade por COVID-19 mais elevada e prematura nos homens – 2020 [Higher and premature mortality from COVID-19 in men – 2020]. INE. https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_destaques&DESTAQUESdest_boui=540774816&DESTAQUESmodo=2
   Google Scholar
• Neimeyer, R. A., & Lee, S. A. (2022). Circumstances of the death and associated risk factors for severity and impairment of COVID-19 grief. Death studies, 46(1), 34–42. https://doi.org/10.1080/07481187.2021.1896459
   PubMed Web of Science ®Google Scholar
• Oliveira, M., & Sousa, L. (2021). VALIDA: A validation therapy-training program for staff of a residential care facility. International journal of Aging & Human Development, 93(2), 786–802. https://doi.org/10.1177/0091415020920003
   PubMed Web of Science ®Google Scholar
• Omori, M., Jayasuriya, J., Scherer, S., Dow, B., Vaughan, M., & Savvas, S. (2022). The language of dying: Communication about end-of-life in residential aged care. Death Studies, 46(3), 684–694. https://doi.org/10.1080/07481187.2020.1762263
   PubMed Web of Science ®Google Scholar
• Onishi, K. (2014). Reduction in the number of hospital beds in a super-aging society: An upsurge in isolation deaths. Japan-Hospitals: The Journal of the Japan Hospital Association, 33, 35–43. https://europepmc.org/article/med/25145114
   Google Scholar
• Ordinance no. 67/2012 of the Ministry Labour of Solidarity and Social Security (MTSSS) (2012). Diário da República: 1.a série, n° 58/21. https://dre.pt/dre/detalhe/portaria/67-2012 553657?ts=1652486400034
   Google Scholar
• Ouslander, J. G., & Grabowski, D. C. (2020). COVID‐19 in nursing homes: Calming the perfect storm. Journal of the American Geriatrics Society, 68(10), 2153–2162. https://doi.org/10.1111/jgs.16784
   PubMed Web of Science ®Google Scholar
• Park, S. A., Lim, J. Y., & Yoon, Y. M. (2019). Perceptions of a dignified death among elderly veterans using homecare in South Korea. Home Health Care Management & Practice, 31(3), 155–161. https://doi.org/10.1177/1084822318818821
   Web of Science ®Google Scholar
• Parker, D. (2011). Residential aged care facilities: Places for living and dying. Cultural Studies Review, 17(1), 31–51. https://doi.org/10.3316/informit.030603581010974
   Google Scholar
• Regulation no. 002/2020 of General Directorate of Health (DGS) (2020). COVID-19: Procedimentos post mortem [Post mortem procedures]. https://www.stss.pt/web/images/_Data/Covid19/data_stss-norma-0022020-dgs-20200703.pdf
   Google Scholar
• Smith, J., Flowers, P., & Larkin, M. (2009). Interpretative phenomenological analysis: Theory, method, research. SAGE.
   Google Scholar
• Wallace, C. L., Wladkowski, S. P., Gibson, A., & White, P. (2020). Grief during the COVID-19 pandemic: Considerations for palliative care providers. Journal of Pain and Symptom Management, 60(1), e70–e76. https://doi.org/10.1016/j.jpainsymman.2020.04.012
   PubMed Web of Science ®Google Scholar
• World Health Organization (WHO) (2020). WHO announces COVID-19 outbreak a pan-demic. https://www.euro.who.int/en/health-topics/health-emergencies/pages/news/news/2020/03/who-announces-covid-19-outbreak-a-pandemic
   Google Scholar
• World Health Organization (WHO) (2021). For a safer, Healthier and Fairer World Results report Programme budget 2020–2021. https://www.who.int/about/accountability/results/who-results-report-2020-2021
   Google Scholar
• Wu, Z., & McGoogan, J. M. (2020). Characteristics of and important lessons from the coronavirus disease 2019 (COVID-19) outbreak in China: Summary of a report of 72 314 cases from the Chinese Center for Disease Control and Prevention. JAMA, 323(13), 1239–1242. https://doi.org/10.1001/jama.2020.2648
   PubMed Web of Science ®Google Scholar