774
Views
0
CrossRef citations to date
0
Altmetric
Research Articles

How compassionate is your neighborhood? Results of a cross-sectional survey on neighborhood participation regarding serious illness, death, and loss

ORCID Icon, ORCID Icon, ORCID Icon, ORCID Icon, ORCID Icon, ORCID Icon, ORCID Icon & ORCID Icon show all

References

  • Abel, J., Walter, T., Carey, L. B., Rosenberg, J., Noonan, K., Horsfall, D., Leonard, R., Rumbold, B., & Morris, D. (2013). Circles of care: Should community development redefine the practice of palliative care? BMJ Supportive & Palliative Care, 3(4), 383–388. https://doi.org/10.1136/bmjspcare-2012-000359
  • Act of 30 July 2018 on the Protection of Natural Persons with Regard to the Processing of Personal Data (2018).
  • Adler, R. P., & Goggin, J. (2005). What do we mean by “civic engagement”? Journal of Transformative Education, 3(3), 236–253. https://doi.org/10.1177/1541344605276792
  • Aoun, S. M., Richmond, R., Gunton, K., Noonan, K., Abel, J., & Rumbold, B. (2022). The compassionate communities connectors model for end-of-life care: Implementation and evaluation. Palliative Care and Social Practice, 16(n.d). https://doi.org/10.1177/26323524221139655
  • BC Centre for Palliative Care, Pallium Canada, & Hospice Palliative Care Ontario. (2020). Pan-Canadian compassionate community definition. https://www.pallium.ca/evaluation-toolkit/
  • Bovaird, T., Van Ryzin, G. G., Loeffler, E., & Parrado, S. (2015). Activating citizens to participate in collective co-production of public services. Journal of Social Policy, 44(1), 1–23. https://doi.org/10.1017/S0047279414000567
  • Buckner, J. C. (1988). The development of an instrument to measure neighborhood cohesion. American Journal of Community Psychology, 16(6), 771–791. https://doi.org/10.1007/BF00930892
  • Carbone, J. T., & McMillin, S. E. (2019). Neighborhood collective efficacy and collective action: The role of civic engagement. Journal of Community Psychology, 47(2), 311–326. https://doi.org/10.1002/jcop.22122
  • Christensen, T., & Lægreid, P. (2005). Trust in government: The relative importance of service satisfaction, political factors, and demography. Public Performance & Management Review, 28(4), 487–511.
  • Claxton-Oldfield, S. (2016). Hospice palliative care volunteers: A review of commonly encountered stressors, how they cope with them, and implications for volunteer training/management. The American Journal of Hospice & Palliative Care, 33(2), 201–204. https://doi.org/10.1177/1049909115571545
  • Crowley, D. (n.d). Summary of youth engagement strategy. Social Capital.
  • Dang, L., Seemann, A. K., Lindenmeier, J., & Saliterer, I. (2022). Explaining civic engagement: The role of neighborhood ties, place attachment, and civic responsibility. Journal of Community Psychology, 50(3), 1736–1755. https://doi.org/10.1002/jcop.22751
  • D'Eer, L., Quintiens, B., Van den Block, L., Dury, S., Deliens, L., Chambaere, K., Smets, T., & Cohen, J. (2022). Civic engagement in serious illness, death and loss: A systematic mixed-methods review. Palliative Medicine, 36(4), 625–651. https://doi.org/10.1177/02692163221077850
  • Diller, E. C. (2001). Citizens in service: The challenge of delivering civic engagement training to national service programs. Corporation for National and Community Service.
  • Grindrod, A., & Rumbold, B. (2017). Providing end-of-life care in disability community living services: An organizational capacity-building model using a public health approach. Journal of Applied Research in Intellectual Disabilities: JARID, 30(6), 1125–1137. https://doi.org/10.1111/jar.12372
  • Hoddinott, S. N., & Bass, M. J. (1986). The Dillman total design survey method. Canadian Family Physician, 32, 23662368.
  • Horsfall, D., Yardley, A., Leonard, R., Noonan, K., & Rosenberg, J. P. (2015). End of life at home: co-creating an ecology of care. Research Report.
  • Johansson, T. (2022). A 'new public health’ perspective on building competence for end-of-life care and communication: how death literacy can be developed and measured. Karolinska Institute.
  • Kellehear, A. (2013). Compassionate communities: End-of-life care as everyone’s responsibility. QJM: monthly Journal of the Association of Physicians, 106(12), 1071–1075. https://doi.org/10.1093/qjmed/hct200
  • Leonard, R., Noonan, K., Horsfall, D., Kelly, M., Rosenberg, J. P., Grindrod, A., Rumbold, B., & Rahn, A. (2022). Developing a death literacy index. Death Studies, 46(9), 2110–2122. https://doi.org/10.1080/07481187.2021.1894268
  • Noonan, K., Horsfall, D., Leonard, R., & Rosenberg, J. (2016). Developing death literacy. Progress in Palliative Care, 24(1), 31–35. https://doi.org/10.1080/09699260.2015.1103498
  • Onyx, J., & Bullen, P. (2000). Measuring social capital in five communities. The Journal of Applied Behavioral Science, 36(1), 23–42. https://doi.org/10.1177/0021886300361002
  • Parekh, R., Maleku, A., Fields, N., Adorno, G., Schuman, D., & Felderhoff, B. (2018). Pathways to age-friendly communities in diverse urban neighborhoods: Do social capital and social cohesion matter? Journal of Gerontological Social Work, 61(5), 492–512. https://doi.org/10.1080/01634372.2018.1454564
  • Pesut, B., Duggleby, W., Warner, G., Fassbender, K., Antifeau, E., Hooper, B., Greig, M., & Sullivan, K. (2017). Volunteer navigation partnerships: Piloting a compassionate community approach to early palliative care. BMC Palliative Care, 17(1), 2. https://doi.org/10.1186/s12904-017-0210-3
  • Pesut, B., Duggleby, W., Warner, G., Kervin, E., Bruce, P., Antifeau, E., & Hooper, B. (2020). Implementing volunteer-navigation for older persons with advanced chronic illness (Nav-CARE): A knowledge to action study. BMC Palliative Care, 19(1), 72. https://doi.org/10.1186/s12904-020-00578-1
  • Putnam, R. D. (2000). Bowling alone: The collapse and revival of American community. Simon and Schuster.
  • Salau, S., Rumbold, B., & Young, B. (2007). From concept to care: Enabling community health care through a health promoting palliative care approach. Contemporary Nurse, 27(1), 132–140. https://doi.org/10.5172/conu.2007.27.1.132
  • Sherbourne, C. D., & Stewart, A. L. (1991). The MOS social support survey. Social Science & Medicine (1982), 32(6), 705–714. https://doi.org/10.1016/0277-9536(91)90150-b
  • Southby, K., & South, J. (2016). Volunteering, inequalities and barriers to volunteering: a rapid evidence review. https://eprints.leedsbeckett.ac.uk/id/eprint/3434/1/Barriers
  • Verzekeringen, B. B. (2018). Samenstelling van de clusters Vlaanderen. https://research.belfius.be/wp-content/uploads/2018/06/CLUSTER_NL_INT.pdf
  • Vleminck, A. D., Paul, S., Reinius, M., Sallnow, L., Tishelman, C., & Cohen, J. (2022). Engagement of specialized palliative care services with the general public: A population-level survey in three European countries. Palliative Medicine, 36(5), 878–888. https://doi.org/10.1177/02692163221079546
  • Ziersch, A., Osborne, K., & Baum, F. (2011). Local community group participation: Who participates and what aspects of neighbourhood matter? Urban Policy and Research, 29(4), 381–399. https://doi.org/10.1080/08111146.2011.623295