An update of the reported effects of the COVID-19 pandemic on person with intellectual disability and their carers: a scoping review

References

• Rommel A. Covid-19–an unexpected journey. Argumentum. 2022;18:1–39.
   Google Scholar
• World Health Organisation. 2022. Who coronavirus disease (COVID-19) pandemic. Geneva: world Health Organization. https://www.who.int/emergencies/diseases/novel-coronavirus-2019?adgroupsurvey={adgroupsurvey}&gclid=EAIaIQobChMIjc-Pk9Da-QIVwu7tCh01EQfiEAAYASAAEgJ5VPD_BwE.
   Google Scholar
• Burke S, Parker S, Fleming P, et al. Building health system resilience through policy development in response to COVID-19 in Ireland: from shock to reform. Lancet Regional Health-Europe. 2021;9:100223.
   PubMedGoogle Scholar
• Chu DK, Akl EA, Duda S, et al. Physical distancing, face masks, and eye protection to prevent person-to-person transmission of SARS-CoV-2 and COVID-19: a systematic review and meta-analysis. Lancet. 2020;395(10242):1973–1987.
   PubMed Web of Science ®Google Scholar
• Desroches ML, Ailey S, Fisher K, et al. Impact of COVID-19: nursing challenges to meeting the care needs of people with developmental disabilities. Disabil Health J. 2021;14(1):101015.
   PubMed Web of Science ®Google Scholar
• Maher B, Van Noorden R. How the COVID pandemic is changing global science collaborations. Nature. 2021;594(7863):316–319.
   PubMedGoogle Scholar
• Doody O, Keenan PM. The reported effects of the COVID-19 pandemic on people with intellectual disability and their carers: a scoping review. Ann Med. 2021;53(1):786–804.
   PubMed Web of Science ®Google Scholar
• Schalock RL, Luckasson R, Tasse MJ. 2021. Intellectual disability: definition, classification, and systems of supports. 12th ed. Silver Spring (MD): American Association on Intellectual and Developmental Disabilities.
   Google Scholar
• Arksey H, O’Malley L. Scoping studies: towards a methodological framework. Int J Soc Res Methodol. 2005;8(1):19–32.
   Google Scholar
• Munn Z, Peters MD, Stern C, et al. Systematic review or scoping review? Guidance for authors when choosing between a systematic or scoping review approach. BMC Med Res Methodol. 2018;18(1):143.
   PubMed Web of Science ®Google Scholar
• Bradbury-Jones C, Aveyard H, Herber OR, et al. Scoping reviews: the PAGER framework for improving the quality of reporting. Int J Soc Res Methodol. 2022;25(4):457–470.
   Web of Science ®Google Scholar
• Levac D, Colquhoun H, O’Brien KK. Scoping studies: advancing the methodology. Implementation Sci. 2010;5(1):69.
   PubMed Web of Science ®Google Scholar
• Pollock D, Davies EL, Peters MD, et al. Undertaking a scoping review: a practical guide for nursing and midwifery students, clinicians, researchers, and academics. J Adv Nurs. 2021;77(4):2102–2113.
   PubMed Web of Science ®Google Scholar
• Tricco AC, Lillie E, Zarin W, et al. PRISMA extension for scoping reviews (PRISMA-ScR): checklist and explanation. Ann Intern Med. 2018;169(7):467–473.
   PubMed Web of Science ®Google Scholar
• Page MJ, McKenzie JE, Bossuyt PM, et al. The PRISMA 2020 statement: an updated guideline for reporting systematic reviews. Syst Rev. 2021;10(1):1–1.
   PubMed Web of Science ®Google Scholar
• Daudt HM, van Mossel C, Scott SJ. Enhancing the scoping study methodology: a large, inter-professional team’s experience with Arksey and O’Malley’s framework. BMC Med Res Methodol. 2013;13(1):48.
   PubMed Web of Science ®Google Scholar
• Abuzaid SMO, Taibah University, Special Education, Saudi Arabia. Consequences of coronavirus as a predictor of emotional security among mothers of children with intellectual disabilities. J Intellect Disabl Diagn Treat. 2021;9(4):390–396.
   Google Scholar
• Amor AM, Navas P, Verdugo MÁ, et al. Perceptions of people with intellectual and developmental disabilities about COVID‐19 in Spain: a cross‐sectional study. J Intell Disabil Res. 2021;65(5):381–396.
   PubMed Web of Science ®Google Scholar
• Araten-Bergman T, Shpigelman CN. Staying connected during COVID-19: family engagement with adults with developmental disabilities in supported accommodation. Res Dev Disabil. 2021;108:103812.
   PubMed Web of Science ®Google Scholar
• Ashworth M, Palikara O, Burchell E, et al. Online and face-to-face performance on two cognitive tasks in children with Williams syndrome. Front Psychol. 2021;11:594465.
   PubMed Web of Science ®Google Scholar
• Athbah SY. Covid-19 impact on children with autism spectrum disorder and intellectual disability: study in Saudi Arabia. JESR. 2021;11(6):78–90.
   Google Scholar
• Bailey T, Hastings RP, Totsika V. COVID‐19 impact on psychological outcomes of parents, siblings and children with intellectual disability: longitudinal before and during lockdown design. J Intell Disabil Res. 2021;65(5):397–404.
   PubMed Web of Science ®Google Scholar
• Baksh RA, Pape SE, Smith J, et al. Understanding inequalities in COVID-19 outcomes following hospital admission for people with intellectual disability compared to the general population: a matched cohort study in the UK. BMJ Open. 2021;11(10):e052482.
   PubMed Web of Science ®Google Scholar
• Bente BE, Van ‘t Klooster JWJR, Schreijer MA, et al. The Dutch COVID-19 contact tracing app (the CoronaMelder): usability study. JMIR Form Res. 2021;5(3):e27882.
   PubMedGoogle Scholar
• Bond C, Stacey G, Gordon E, et al. COVID-19: experiences and contributions of learning disability nurses during the first wave of the pandemic. Learn Disabil Pr. 2021;24(4):17–25.
   Google Scholar
• Bullard L, Harvey D, Abbeduto L. Exploring the feasibility of collecting multimodal multiperson assessment data via distance in families affected by fragile X syndrome. J Telemed Telecare. 2021;Online paper identifier - 1357633X211003810.
   PubMed Web of Science ®Google Scholar
• Carey IM, Cook DG, Harris T, et al. Risk factors for excess all-cause mortality during the first wave of the COVID-19 pandemic in England: a retrospective cohort study of primary care data. PLOS One. 2021;16(12):e0260381.
   PubMed Web of Science ®Google Scholar
• Chemerynska N, Marczak M, Kucharska J. What are the experiences of clinical psychologists working with people with intellectual disabilities during the COVID-19 pandemic. Res Intellect Disabil. 2022;35(2):587–595.
   PubMed Web of Science ®Google Scholar
• MacKenna B, Curtis HJ, Walker AJ, et al.; All OpenSAFELY study authors. Trends and clinical characteristics of 57.9 million COVID-19 vaccine recipients: a federated analysis of patients’ primary care records in situ using OpenSAFELY. Br J Gen Pract. 2022;72(714):e51–e62.
   PubMedGoogle Scholar
• Das-Munshi J, Chang CK, Bakolis I, et al. All-cause and cause-specific mortality in people with mental disorders and intellectual disabilities, before and during the COVID-19 pandemic: cohort study. Lancet Reg Health Eur. 2021;11:100228.
   PubMedGoogle Scholar
• Domagała-Zyśk E. Attitudes of different age groups toward people with intellectual disability during the COVID-19 pandemic. Front Psychiatry. 2021;12:591707.
   PubMed Web of Science ®Google Scholar
• Embregts P, Heerkens L, Frielink N, et al. Experiences of mothers caring for a child with an intellectual disability during the COVID-19 pandemic in The Netherlands. J Intellect Disabil Res. 2021;65(8):760–771.
   PubMed Web of Science ®Google Scholar
• Embregts PJCM, Tournier T, Frielink N. The experiences of psychologists working with people with intellectual disabilities during the COVID-19 crisis. Res Intellect Disabil. 2022;35(1):295–298.
   PubMed Web of Science ®Google Scholar
• Festen DAM, Schoufour JD, Hilgenkamp TIM, et al. Determining frailty in people with intellectual disabilities in the COVID‐19 pandemic. J Policy Practic Intellect Disabil. 2021;18(3):203–206.
   PubMed Web of Science ®Google Scholar
• Fisher MH, Sung C, Kammes RR, et al. Social support as a mediator of stress and life satisfaction for people with intellectual or developmental disabilities during the COVID-19 pandemic. J Appl Res Intellect Disabil. 2022;35(1):243–251.
   PubMed Web of Science ®Google Scholar
• Flynn S, Caton S, Gillooly A, et al. The experiences of adults with learning disabilities in the UK during the COVID-19 pandemic: qualitative results from wave 1 of the coronavirus and people with learning disabilities study. TLDR. 2021;26(4):224–229.
   Google Scholar
• Flynn S, Hatton C. Health and social care access for adults with learning disabilities across the UK during the COVID-19 pandemic in 2020. TLDR. 2021;26(3):174–179.
   Google Scholar
• Friedman C. The COVID-19 pandemic and quality of life outcomes of people with intellectual and developmental disabilities. Disabil Health J. 2021;14(4):101117.
   PubMed Web of Science ®Google Scholar
• Gacek M, Krzywoszanski L. Symptoms of anxiety and depression in students with developmental disabilities during COVID-19 lockdown in Poland. Front Psychiatry. 2021;12:576867.
   PubMed Web of Science ®Google Scholar
• Gale TM, Boland B. COVID-19 deaths in a secondary mental health service. Comph Psychiat. 2021;111:152277.
   PubMed Web of Science ®Google Scholar
• Geuijen PM, Vromans L, Embregts PJCM. A qualitative investigation of support workers’ experiences of the impact of the COVID-19 pandemic on Dutch migrant families who have children with intellectual disabilities. J Intellect Dev Disabil. 2021;46(4):300–305.
   Web of Science ®Google Scholar
• Gil-Llario MD, Díaz-Rodríguez I, Morell-Mengual V, et al. Sexual health in Spanish people with intellectual disability: the impact of the lockdown due to COVID-19. Sex Res Soc Policy. 2021;19(3):1217–1227.
   PubMed Web of Science ®Google Scholar
• Hatton C, Bailey T, Bradshaw J, et al. The willingness of UK adults with intellectual disabilities to take COVID-19 vaccines. J Intellect Disabil Res. 2021;65(11):949–961.
   PubMed Web of Science ®Google Scholar
• Heslop P, Byrne V, Calkin R, et al. Deaths of people with intellectual disabilities: analysis of deaths in England from COVID-19 and other causes. J Appl Res Intellect Disabil. 2021;34(6):1630–1640.
   PubMed Web of Science ®Google Scholar
• Honingh AK, Koelewijn A, Veneberg B, et al. Implications of COVID-19 regulations for people with visual and intellectual disabilities: lessons to learn from visiting restrictions. Policy Practice Intel Disabi. 2022;19(1):64–71.
   PubMed Web of Science ®Google Scholar
• Hüls A, Costa ACS, Dierssen M, et al. Medical vulnerability of individuals with down syndrome to severe COVID-19-data from the trisomy 21 research society and the UK ISARIC4C survey. EClinicalMed. 2021;33:100769.
   PubMedGoogle Scholar
• Iadarola S, Siegel JF, Gao Q, et al. COVID-19 vaccine perceptions in New York state’s intellectual and developmental disabilities community. Disabil Health J. 2022;15(1):101178.
   PubMed Web of Science ®Google Scholar
• Kaya A, Sahin CH. I did not even receive even a phone call from any institution: experiences and recommendations related to disability during COVID-19. Int J Dev Disabil. 2021;Online paper identifier - 20473869.2021.1978268
   PubMed Web of Science ®Google Scholar
• Kim MA, Yi J, Sung J, et al. Changes in life experiences of adults with intellectual disabilities in the COVID-19 pandemics in South Korea. Disabil Health J. 2021;14(4):101120.
   PubMed Web of Science ®Google Scholar
• Kim MA, Yi J, Jung SM, et al. A qualitative study on parents’ concerns about adult children with intellectual disabilities amid the COVID-19 pandemic in South Korea. J Appl Res Intellect Disabil. 2021;34(4):1145–1155.
   PubMed Web of Science ®Google Scholar
• Lake JK, Jachyra P, Volpe T, et al. The wellbeing and mental health care experiences of adults with intellectual and developmental disabilities during COVID-19. J Ment Health Res Intellect Disabil. 2021;14(3):285–300.
   Web of Science ®Google Scholar
• Landes SD, Turk MA, Damiani MR, et al. Risk factors associated with covid-19 outcomes among people with intellectual and developmental disabilities receiving residential services. JAMA Netw Open. 2021;4(6):e2112862.
   PubMed Web of Science ®Google Scholar
• Landes SD, Turk MA, Wong AWWA. COVID-19 outcomes among people with intellectual and developmental disability in California: the importance of type of residence and skilled nursing care needs. Disabil Health J. 2021;14(2):101051.
   PubMed Web of Science ®Google Scholar
• Landes SD, Turk MA, Ervin DA. COVID-19 case-fatality disparities among people with intellectual and developmental disabilities: evidence from 12 US jurisdictions. Disabil Health J. 2021;14(4):101116.
   PubMed Web of Science ®Google Scholar
• Langdon PE, Marczak M, Clifford C, et al. Occupational stress, coping and wellbeing among registered psychologists working with people with intellectual disabilities during the COVID-19 pandemic in the United Kingdom. J Intellect Dev Disabil. 2022;47(3):195–205.
   Web of Science ®Google Scholar
• Lee RLT, West S, Tang ACY, et al. A qualitative exploration of the experiences of school nurses during COVID-19 pandemic as the frontline primary health care professionals. Nurs Outlook. 2021;69(3):399–408.
   PubMed Web of Science ®Google Scholar
• LoPorto J, Spina K. Risk perception and coping strategies among direct support professionals in the age of COVID-19. J Soc Behav Health Sci. 2021;15(1):201–216.
   Google Scholar
• Lunsky Y, Durbin A, Balogh R, et al. Covid-19 positivity rates, hospitalizations and mortality of adults with and without intellectual and developmental disabilities in Ontario, Canada. Disabil Health J. 2022;15(1):101174.
   PubMed Web of Science ®Google Scholar
• Lunsky Y, Bobbette N, Chacra MA, et al. Predictors of worker mental health in intellectual disability services during COVID‐19. J Appl Res Intellect Disabil. 2021;34(6):1655–1660.
   PubMed Web of Science ®Google Scholar
• Lunsky Y, Kithulegoda N, Thai K, et al. Beliefs regarding COVID-19 vaccines among Canadian workers in the intellectual disability sector prior to vaccine implementation. J Intellect Disabil Res. 2021;65(7):617–625.
   PubMed Web of Science ®Google Scholar
• Lunsky Y, Bobbette N, Selick A, et al. The doctor will see you now: direct support professionals’ perspectives on supporting adults with intellectual and developmental disabilities accessing health care during COVID-19. Disabil Health J. 2021;14(3):101066.
   PubMed Web of Science ®Google Scholar
• Maggio MG, Cuzzola F, Calatozzo M, et al. Improving cognitive functions in adolescents with learning difficulties: a feasibility study on the potential use of telerehabilitation during covid-19 pandemic in Italy. J Adol. 2021;89(1):194–202.
   PubMedGoogle Scholar
• McCausland D, Luus R, McCallion P, et al. The impact of COVID‐19 on the social inclusion of older adults with an intellectual disability during the first wave of the pandemic in Ireland. J Intellect Disabil Res. 2021;65(10):879–889.
   PubMed Web of Science ®Google Scholar
• McKenzie K, Murray GC, Martin R. It’s been adapted rather than impacted: a qualitative evaluation of the impact of covid-19 restrictions on the positive behavioural support of people with an intellectual disability and/or autism. J Appl Res Intellect Disabil. 2021;34(4):1089–1097.
   PubMed Web of Science ®Google Scholar
• McNally Keehn R, Enneking B, James C, et al. Telehealth evaluation of pediatric neurodevelopmental disabilities during the COVID-19 pandemic: clinician and caregiver perspectives. J Dev Behav Pediatr. 2022;43(5):262–272.
   PubMed Web of Science ®Google Scholar
• Mosbah H, Coupaye M, Jacques F, et al. Effects of the COVID-19 pandemic and lockdown on the mental and physical health of adults with Prader-Willi syndrome. Orphanet J Rare Dis. 2021;16(1):202.
   PubMed Web of Science ®Google Scholar
• Munir MM, Rubaca U, Munir MH, et al. An analysis of families’ experiences with young children with intellectual and developmental disabilities (IDDs) during COVID-19 lockdown in Pakistan. Int Multidiscip J Soc Sci. 2021;10(1):81–103.
   Google Scholar
• Mupaku WM, van Breda AD, Kelly B. Transitioning to adulthood from residential childcare during COVID‐19: experiences of young people with intellectual disabilities and/or autism spectrum disorder in South Africa. Br J Learn Disabil. 2021;49(3):341–351.
   PubMed Web of Science ®Google Scholar
• Murray GC, McKenzie K, Martin R, et al. The impact of COVID-19 restrictions in the United Kingdom on the positive behavioural support of people with an intellectual disability. Br J Learn Disabil. 2021;49(2):138–144.
   PubMed Web of Science ®Google Scholar
• Naqvi D, Perera B, Mitchell S, et al. COVID-19 pandemic impact on psychotropic prescribing for adults with intellectual disability: an observational study in English specialist community services. BJPsych Open. 2021;8(1):e7.
   PubMed Web of Science ®Google Scholar
• Navas P, Verdugo MÁ, Martínez S, et al. Impact of COVID-19 on the burden of care of families of people with intellectual and developmental disabilities. Res Intellect Disabil. 2022;35(2):577–586.
   PubMed Web of Science ®Google Scholar
• Navas P, Amor AM, Crespo M, et al. Supports for people with intellectual and developmental disabilities during the COVID-19 pandemic from their own perspective. Res Dev Disabil. 2021;108:103813.
   PubMed Web of Science ®Google Scholar
• Oudshoorn CEM, Frielink N, Riper H, et al. Experiences of therapists conducting psychological assessments and video conferencing therapy sessions with people with mild intellectual disabilities during the COVID-19 pandemic. Int J Dev Disabil. 2021;Online paper identifier - 20473869.2021.1967078.
   PubMedGoogle Scholar
• Parchomiuk M. Care and rehabilitation institutions for people with intellectual disabilities during the COVID-19 pandemic: polish experiences. Int Soc Work. 2021;Online paper identifier - 00208728211060471.
   PubMed Web of Science ®Google Scholar
• Patel V, Perez‐Olivas G, Kroese BS, et al. The experiences of carers of adults with intellectual disabilities during the first COVID‐19 lockdown period. Policy Practice Intel Disabi. 2021;18(4):254–262.
   PubMed Web of Science ®Google Scholar
• Paulauskaite L, Farris O, Spencer HM, et al. My son can’t socially distance or wear a mask: how families of preschool children with severe developmental delays and challenging behavior experienced the COVID-19 pandemic. J Ment Health Res Intellect Disabil. 2021;14(2):225–236.
   Web of Science ®Google Scholar
• Peacock-Brennan S, Stewart K, Angier RJ, et al. The experience of COVID-19 “lockdown” for people with a learning disability: results from surveys in Jersey and Guernsey. TLDR. 2021;26(3):121–129.
   Google Scholar
• Power N, Dolby R, Thorne D. Reflecting or frozen: the impact of covid-19 on art therapists working with people with a learning disability. Int J Art Ther. 2021;26(3):84–95.
   Web of Science ®Google Scholar
• Purrington J, Nye A, Beail N. Exploring maintaining gains following therapy during the coronavirus pandemic with adults with an intellectual disability. AMHID. 2021;15(6):253–268.
   Google Scholar
• Rauf B, Sheikh H, Majid H, et al. COVID-19-related prescribing challenge in intellectual disability. BJPsych Open. 2021;7(2):E66.
   PubMed Web of Science ®Google Scholar
• Rawlings GH, Wright KP, Rolling K, et al. Telephone-delivered compassion-focused therapy for adults with intellectual disabilities: a case series. AMHID. 2021;15(2/3):89–103.
   Google Scholar
• Rawlings GH, Gaskell C, Rolling K, et al. Exploring how to deliver videoconference-mediated psychological therapy to adults with an intellectual disability during the coronavirus pandemic. AMHID. 2021;15(1):20–32.
   Google Scholar
• Redquest BK, Tint A, Ries H, et al. Exploring the experiences of siblings of adults with intellectual/developmental disabilities during the COVID‐19 pandemic. J Intellect Disabil Res. 2021;65(1):1–10.
   PubMed Web of Science ®Google Scholar
• Rogers K, McAliskey S, McKinney P, et al. Managing an outbreak of COVID-19 in a learning disability setting. Learn Disabil Pract. 2021;25(3):ldp.2021.e2116.
   Google Scholar
• Rosencrans M, Arango P, Sabat C, et al. The impact of the COVID-19 pandemic on the health, wellbeing, and access to services of people with intellectual and developmental disabilities. Res Dev Disabil. 2021;114:103985–103985.
   PubMed Web of Science ®Google Scholar
• Rousseau MC, Hully M, Milh M, et al. Clinical characteristics of COVID-19 infection in polyhandicapped persons in France. Arch Pediatrie. 2021;28(5):374–380.
   PubMed Web of Science ®Google Scholar
• Ryzhikov K. Virtual therapeutic horticulture: a social wellness program for adults with intellectual and developmental disabilities. Acta Hortic. 2021;1330:55–62.
   Google Scholar
• Salzner J, Dall M, Weber C, et al. Deaf residents with intellectual disabilities during the first covid-19 associated lockdown. J Deaf Stud Deaf Edu. 2021;26(4):556–559.
   PubMed Web of Science ®Google Scholar
• Sanchez-Larsen A, Conde-Blanco E, Viloria-Alebesque A, et al. COVID-19 prevalence and mortality in people with epilepsy: a nation-wide multicenter study. Epilepsy Behav. 2021;125:108379–108379.
   PubMed Web of Science ®Google Scholar
• Scheffers F, Moonen X, van Vugt E. Assessing the quality of support and discovering sources of resilience during COVID-19 measures in people with intellectual disabilities by professional carers. Res Dev Disabil. 2021;111:103889.
   PubMed Web of Science ®Google Scholar
• Schott W, Tao S, Shea L. COVID-19 risk: adult medicaid beneficiaries with autism, intellectual disability, and mental health conditions. Autism. 2022;26(4):975–987.
   PubMed Web of Science ®Google Scholar
• Sheehan R, Dalton-Locke C, Ali A, et al. Effects of the COVID-19 pandemic on mental healthcare and services: results of a UK survey of front-line staff working with people with intellectual disability and/or autism. BJPsych Bull. 2021;44(4):201–207.
   Google Scholar
• Suarez-Balcazar Y, Mirza M, Errisuriz VL, et al. Impact of covid-19 on the mental health and well-being of Latinx caregivers of children with intellectual and developmental disabilities. IJERPH. 2021;18(15):7971.
   Web of Science ®Google Scholar
• Vereijken FR, Giesbers SAH, Jahoda A, et al. Homeward bound: exploring the motives of mothers who brought their offspring with intellectual disabilities home from residential settings during the COVID-19 pandemic. Res Intellect Disabil. 2022;35(1):150–159.
   PubMed Web of Science ®Google Scholar
• Wieting J, Eberlein C, Bleich S, et al. Behavioural change in Prader–Willi syndrome during COVID-19 pandemic. J Intellect Disabil Res. 2021;65(7):609–616.
   PubMed Web of Science ®Google Scholar
• Williamson EJ, McDonald HI, Bhaskaran K, et al. Risks of covid-19 hospital admission and death for people with learning disability: population based cohort study using the OpenSAFELY platform. BMJ. 2021;374:n1592.
   PubMedGoogle Scholar
• Wolstencroft J, Hull L, Warner L, IMAGINE-ID consortium, et al. We have been in lockdown since he was born’: a mixed methods exploration of the experiences of families caring for children with intellectual disability during the COVID-19 pandemic in the UK. BMJ Open. 2021;11(9):e049386.
   PubMed Web of Science ®Google Scholar
• Wos K, Kamecka-Antczak C, Szafrański M. Remote support for adults with intellectual disability during COVID-19: from a caregiver’s perspective. Policy Practice Intel Disabi. 2021;18(4):279–285.
   PubMed Web of Science ®Google Scholar
• Yuan YQ, Ding JN, Bi N, et al. Physical activity and sedentary behaviour among children and adolescents with intellectual disabilities during the COVID-19 lockdown in China. J Intellect Disabil Res. 2021;66(12):913–923.
   PubMed Web of Science ®Google Scholar
• United Nation. Convention on the Rights of Persons with Disabilities (CRPD); 2006. Available from: www.un.org/development/desa/disabilities/convention-on-the-rights-of-persons-with-disabilities.html.
   Google Scholar
• Wang Z, Xu X, Han Q, et al. Factors associated with public attitudes towards persons with disabilities: a systematic review. BMC Public Health. 2021;21(1):1–5.
   PubMed Web of Science ®Google Scholar
• Smith JJ, Co L. Attitudes and experiences of general practitioners who provided health care for people with intellectual disabilities: a South Australian perspective. Res Pract Intellect Dev Disabil. 2021;8(1):25–36.
   Web of Science ®Google Scholar
• Breau G, Baumbusch J, Thorne S, et al. Primary care providers’ attitudes towards individuals with intellectual disability: associations with experience and demographics. J Intellect Disabil. 2021;25(1):65–81.
   PubMed Web of Science ®Google Scholar
• National Health Service. The Oliver McGowan mandatory training on learning disability and autism. National Health Service Health Education England; 2022. https://www.hee.nhs.uk/our-work/learning-disability/current-projects/oliver-mcgowan-mandatory-training-learning-disability-autism
   Google Scholar
• Hirvikoski T, Boman M, Tideman M, et al. Association of intellectual disability with all-cause and cause-specific mortality in Sweden. JAMA Netw Open. 2021;4(6):e2113014.
   PubMed Web of Science ®Google Scholar
• Doyle A, O’Sullivan M, Craig S, et al. People with intellectual disability in Ireland are still dying young. J Appl Res Intellect Disabil. 2021;34(4):1057–1065.
   PubMed Web of Science ®Google Scholar
• Jeste S, Hyde C, Distefano C, et al. Changes in access to educational and healthcare services for individuals with intellectual and developmental disabilities during COVID‐19 restrictions. J Intellect Disabil Res. 2020;64(11):825–833.
   PubMed Web of Science ®Google Scholar
• Zaagsma M, Volkers KM, Swart EA, et al. The use of online support by people with intellectual disabilities living independently during COVID‐19. J Intellect Disabil Res. 2020;64(10):750–756.
   PubMed Web of Science ®Google Scholar
• Alexander R, Ravi A, Barclay H, et al. Guidance for the treatment and management of COVID‐19 among people with intellectual disabilities. J Policy Practic Intellect Disabil. 2020;17(3):256–269.
   PubMed Web of Science ®Google Scholar
• United Nations. 2020. Policy brief: education during COVID-19 and beyond. New York: United Nations.
   Google Scholar
• Taddio A, Ipp M, Thivakaran S, et al. Survey of the prevalence of immunization non-compliance due to needle fears in children and adults. Vaccine. 2012;30(32):4807–4812.
   PubMed Web of Science ®Google Scholar
• McLenon J, Rogers MA. The fear of needles: a systematic review and meta‐analysis. J Adv Nurs. 2019;75(1):30–42.
   PubMed Web of Science ®Google Scholar
• Goldsmith L, Woodward V, Jackson L, et al. Informed consent for blood tests in people with a learning disability. J Adv Nurs. 2013;69(9):1966–1976.
   PubMed Web of Science ®Google Scholar
• Gleason J, Ross W, Fossi A, et al. The devastating impact of covid-19 on individuals with intellectual disabilities in the United States. NEJM Catalyst. 20215;2(2):1–12.
   Google Scholar
• Baghdadli A, Picot MC, Miot S, et al. A call to action to implement effective COVID-19 prevention and screening of individuals with severe intellectual developmental and autism spectrum disorders. J Autism Dev Disord. 2021;51(7):2566–2568.
   PubMed Web of Science ®Google Scholar
• Bradley VJ. How COVID-19 may change the world of services to people with intellectual and developmental disabilities. Intellect Dev Disabil. 2020;58(5):355–360.
   PubMed Web of Science ®Google Scholar
• Kavanagh A, Dickinson H, Carey G, et al. Improving health care for disabled people in COVID-19 and beyond: lessons from Australia and England. Disabil Health J. 2021;14(2):101050.
   PubMed Web of Science ®Google Scholar
• Hughes N, Anderson G. The experience of the COVID-19 pandemic in a UK learning disability service: lost in a sea of ever changing variables–a perspective. Int J Dev Disabil. 2022;68(3):374–377.
   PubMed Web of Science ®Google Scholar
• Onwumere J, Creswell C, Livingston G, et al. H. COVID-19 and UK family carers: policy implications. The Lancet Psychiatry. 2021;8(10):929–936.
   PubMed Web of Science ®Google Scholar
• Pollock A, Campbell P, Struthers C, et al. Development of the ACTIVE framework to describe stakeholder involvement in systematic reviews. J Health Serv Res Policy. 2019;24(4):245–255.
   PubMed Web of Science ®Google Scholar