The impact of post-stroke fatigue on work and other everyday life activities for the working age population – a registry-based cohort study

References

• Kassberg AC, Nyman A, Larsson Lund M. Perceived occupational balance in people with stroke [review]. Disabil Rehabil. 2021;43(4):1–11. doi: 10.1080/09638288.2019.1632940.
   PubMed Web of Science ®Google Scholar
• Ekker MS, Verhoeven JI, Vaartjes I, et al. Stroke incidence in young adults according to age, subtype, sex, and time trends [article]. Neurology. 2019;92(21):e2444–e2454. doi: 10.1212/WNL.0000000000007533.
   PubMed Web of Science ®Google Scholar
• Rosengren A, Giang KW, Lappas G, et al. Twenty-four-year trends in the incidence of ischemic stroke in Sweden from 1987 to 2010. Stroke. 2013;44(9):2388–2393. doi: 10.1161/STROKEAHA.113.001170.
   PubMed Web of Science ®Google Scholar
• Statistikdatabas. [Internet.]. 2023 [cited 20230221]. Available from: https://sdb.socialstyrelsen.se/if_stroke/val.aspx.
   Google Scholar
• Hartke RJ, Trierweiler R. Survey of survivors’ perspective on return to work after stroke [review. Top Stroke Rehabil. 2015;22(5):326–334. doi: 10.1179/1074935714Z.0000000044.
   PubMed Web of Science ®Google Scholar
• Vestling M, Tufvesson B, Iwarsson S. Indicators for return to work after stroke and the importance of work for subjective well-being and life satisfaction. J Rehabil Med. 2003;35(3):127–131. doi: 10.1080/16501970310010475.
   PubMed Web of Science ®Google Scholar
• Westerlind E, Persson HC, Törnbom K, et al. Return to work predicts perceived participation and autonomy by individuals with stroke. Disabil Rehabil. 2020;42(25):3673–3678. doi: 10.1080/09638288.2019.1608324.
   PubMed Web of Science ®Google Scholar
• Alenljung M, Ranada ÅL, Liedberg GM. Struggling with everyday life after mild stroke with cognitive impairments – The experiences of working age women [article]. Br J Occup Ther. 2019;82(4):227–234. doi: 10.1177/0308022618800184.
   Web of Science ®Google Scholar
• Brannigan C, Galvin R, Walsh ME, et al. Barriers and facilitators associated with return to work after stroke: a qualitative meta-synthesis [review]. Disabil Rehabil. 2017;39(3):211–222. doi: 10.3109/09638288.2016.1141242.
   PubMed Web of Science ®Google Scholar
• Gard G, Pessah-Rasmussen H, Brogårdh C, et al. Need for structured healthcare organization and support for return to work after stroke in Sweden: experiences of stroke survivors [article]. J Rehabil Med. 2019;51(10):741–748. doi: 10.2340/16501977-2591.
   PubMed Web of Science ®Google Scholar
• Lindgren I, Brogårdh C, Pessah-Rasmussen H, et al. Work conditions, support, and changing personal priorities are perceived important for return to work and for stay at work after stroke–a qualitative study [article]. Disabil Rehabil. 2022;44(11):2500–2506. doi: 10.1080/09638288.2020.1836522.
   PubMed Web of Science ®Google Scholar
• Samuelsson H, Viken J, Redfors P, et al. Cognitive function is an important determinant of employment amongst young ischaemic stroke survivors with good physical recovery [article]. Eur J Neurol. 2021;28(11):3692–3701. doi: 10.1111/ene.15014.
   PubMed Web of Science ®Google Scholar
• Walsh ME, Galvin R, Loughnane C, et al. Community re-integration and long-term need in the first five years after stroke: results from a national survey [review]. Disabil Rehabil. 2015;37(20):1834–1838. doi: 10.3109/09638288.2014.981302.
   PubMed Web of Science ®Google Scholar
• Willers C, Westerlind E, Borgström F, et al. Health insurance utilisation after ischaemic stroke in Sweden: a retrospective cohort study in a system of universal healthcare and social insurance [article]. BMJ Open. 2021;11(3):e043826. doi: 10.1136/bmjopen-2020-043826.
   PubMed Web of Science ®Google Scholar
• Donker-Cools BHPM, Schouten MJE, Wind H, et al. Return to work following acquired brain injury: the views of patients and employers [article]. Disabil Rehabil. 2018;40(2):185–191. doi: 10.1080/09638288.2016.1250118.
   PubMed Web of Science ®Google Scholar
• Schwarz B, Claros-Salinas D, Streibelt M. Meta-synthesis of qualitative research on facilitators and barriers of return to work after stroke [review]. J Occup Rehabil. 2018;28(1):28–44. doi: 10.1007/s10926-017-9713-2.
   PubMed Web of Science ®Google Scholar
• Aarnes R, Stubberud J, Lerdal A. A literature review of factors associated with fatigue after stroke and a proposal for a framework for clinical utility [article]. Neuropsychol Rehabil. 2020;30(8):1449–1476. doi: 10.1080/09602011.2019.1589530.
   PubMed Web of Science ®Google Scholar
• Alghamdi I, Ariti C, Williams A, et al. Prevalence of fatigue after stroke: a systematic review and meta-analysis [review]. Eur Stroke J. 2021;6(4):319–332. doi: 10.1177/23969873211047681.
   PubMed Web of Science ®Google Scholar
• Wu S, Mead G, Macleod M, et al. Model of understanding fatigue after stroke [review]. Stroke. 2015;46(3):893–898. doi: 10.1161/STROKEAHA.114.006647.
   PubMed Web of Science ®Google Scholar
• Holmqvist A, Berthold Lindstedt M, Möller MC. Relationship between fatigue after acquired brain injury and depression, injury localization and aetiology: an explorative study in a rehabilitation setting [article]. J Rehabil Med. 2018;50(8):725–731. doi: 10.2340/16501977-2365.
   PubMed Web of Science ®Google Scholar
• Pedersen A, Almkvist E, Holmegaard L, et al. Fatigue 7 years post-stroke: predictors and correlated features [article]. Acta Neurol Scand. 2022;146(3):295–303. doi: 10.1111/ane.13665.
   PubMed Web of Science ®Google Scholar
• Ormstad H, Eilertsen G. A biopsychosocial model of fatigue and depression following stroke [article]. Med Hypotheses. 2015;85(6):835–841. doi: 10.1016/j.mehy.2015.10.001.
   PubMed Web of Science ®Google Scholar
• Kutlubaev MA, Shenkin SD, Farrall AJ, et al. CT and clinical predictors of fatigue at one month after stroke. Cerebrovasc Dis Extra. 2013;3(1):26–34. doi: 10.1159/000347113.
   PubMedGoogle Scholar
• Liljehult J, Molsted S, Christensen T, et al. Mastering health following minor stroke—A qualitative explorative study [article]. JStroke Cerebrovasc Dis. 2022;31(8):106607. doi: 10.1016/j.jstrokecerebrovasdis.2022.106607.
   PubMed Web of Science ®Google Scholar
• Rudberg AS, Berge E, Laska AC, et al. Stroke survivors’ priorities for research related to life after stroke [article]. Top Stroke Rehabil. 2021;28(2):153–158. doi: 10.1080/10749357.2020.1789829.
   PubMed Web of Science ®Google Scholar
• Palstam A, Törnbom M, Sunnerhagen KS. Experiences of returning to work and maintaining work 7 to 8 years after a stroke: a qualitative interview study in Sweden [review]. BMJ Open. 2018;8(7):e021182. doi: 10.1136/bmjopen-2017-021182.
   PubMed Web of Science ®Google Scholar
• Riksstroke TSSR. 2022. Available from: https://www.riksstroke.org/general-information/.
   Google Scholar
• STROBE. STROBE Strengthening the reporting of observational studies in epidemiology 2022. Available from: https://www.strobe-statement.org/.
   Google Scholar
• Polit DF, Beck CT. Nursing research generating and assessin evidence for nursing practice. Philadelphia: Wolters Kluwer; 2021.
   Google Scholar
• Lemeshow S, Sturdivant RX, Hosmer DW, Jr., et al. Applied logistic regression. New York, UNITED STATES: john Wiley & Sons, Incorporated; 2013.
   Google Scholar
• IBM. IBM SPSS statistics for windows. Version 28.0. Armonk, NY: 2021.
   Google Scholar
• Vitturi BK, Mitre LP, Kim AIH, et al. Prevalence and predictors of fatigue and neuropsychiatric symptoms in patients with minor ischemic stroke [article]. Journal of Stroke and Cerebrovascular Diseases. 2021;30(9):105964. doi: 10.1016/j.jstrokecerebrovasdis.2021.105964.
   PubMed Web of Science ®Google Scholar
• Bicknell ED, Said CM, Haines KJ, et al. ‘I give it everything for an hour then I sleep for four.’ The experience of post-stroke fatigue During outpatient rehabilitation including the perspectives of carers: a qualitative study [article]. Front Neurol. 2022;13:900198. doi: 10.3389/fneur.2022.900198.
   PubMed Web of Science ®Google Scholar
• Eriksson G, Larsson I, Guidetti S, et al. Handling fatigue in everyday activities at five years after stroke: a long and demanding process [article]. Scand J Occup Ther. 2023;30(2):228–238. doi: 10.1080/11038128.2022.2089230.
   PubMed Web of Science ®Google Scholar
• Erlandsson L-K, Persson D, Ehnsiö R. The ValMO Model: occupational therapy for a healthy life by doing. First edition. Lund: Studentlitteratur; 2020.
   Google Scholar
• van de Port IGL, Kwakkel G, Schepers VPM, et al. Is fatigue an independent factor associated with activities of daily living, instrumental activities of daily living and health-related quality of life in chronic stroke? Cerebrovasc Dis. 2007;23(1):40–45. doi: 10.1159/000095757.
   PubMed Web of Science ®Google Scholar
• Blomgren C, Samuelsson H, Blomstrand C, et al. Long-term performance of instrumental activities of daily living in young and Middle-aged stroke survivors—impact of cognitive dysfunction, emotional problems and fatigue [article]. PLOS One. 2019;14(5):e0216822. doi: 10.1371/journal.pone.0216822.
   PubMed Web of Science ®Google Scholar
• Cumming TB, Packer M, Kramer SF, et al. The prevalence of fatigue after stroke: a systematic review and meta-analysis [review]. Int J Stroke. 2016;11(9):968–977. doi: 10.1177/1747493016669861.
   PubMed Web of Science ®Google Scholar
• Lanctôt KL, Lindsay MP, Smith EE, et al. Canadian stroke best practice recommendations: mood, cognition and fatigue following stroke, 6th edition update 2019. Int J Stroke. 2020;15(6):668–688. doi: 10.1177/1747493019847334.
   PubMed Web of Science ®Google Scholar
• Turner GM, McMullan C, Atkins L, et al. TIA and minor stroke: a qualitative study of long-term impact and experiences of follow-up care. BMC Fam Pract. 2019;20(1):176. doi: 10.1186/s12875-019-1057-x.
   PubMed Web of Science ®Google Scholar
• Ullberg T, Månsson K, Berhin I, et al. Comprehensive and structured 3-month stroke follow-up using the post-stroke checklist (The Struct-FU study): a feasibility and explorative study [article]. J Stroke Cerebrovasc Dis. 2021;30(2):105482. doi: 10.1016/j.jstrokecerebrovasdis.2020.105482.
   PubMed Web of Science ®Google Scholar
• Turner GM, Mullis R, Lim L, et al. Using a checklist to facilitate management of long-term care needs after stroke: insights from focus groups and a feasibility study. BMC Fam Pract. 2019;20(1):2. doi: 10.1186/s12875-018-0894-3.
   PubMedGoogle Scholar
• Kjörk EK, Carlsson G, Sunnerhagen KS, et al. Experiences using the poststroke checklist in Sweden with a focus on feasibility and relevance: a mixed-method design. BMJ Open. 2019;9(5):e028218. doi: 10.1136/bmjopen-2018-028218.
   PubMed Web of Science ®Google Scholar
• Worthington E, Hawkins L, Lincoln N, et al. The day-to-day experiences of people with fatigue after stroke: results from the nottingham fatigue After stroke study [review]. Int J Ther Rehabil. 2017;24(10):449–455. doi: 10.12968/ijtr.2017.24.10.449.
   Google Scholar
• Norrving B, Barrick J, Davalos A, et al. Action plan for stroke in Europe 2018–2030. Eur Stroke J. 2018;3(4):309–336. doi: 10.1177/2396987318808719.
   PubMed Web of Science ®Google Scholar
• Norlander A, Lindgren I, Pessah-Rasmussen H, et al. Fatigue in men and women who have returned to work after stroke: assessed with the fatigue severity scale and mental fatigue scale. J Rehabil Med. 2021;53(9):jrm00227. doi: 10.2340/16501977-2863.
   PubMed Web of Science ®Google Scholar
• Palm S, Rönnbäck L, Johansson B. Long-term mental fatigue after traumatic brain injury and impact on employment status [article]. J Rehabil Med. 2017;49(3):228–233. doi: 10.2340/16501977-2190.
   PubMed Web of Science ®Google Scholar
• Zhang S, Cheng S, Zhang Z, et al. Related risk factors associated with post-stroke fatigue: a systematic review and meta-analysis. Neurol Sci. 2021;42(4):1463–1471. doi: 10.1007/s10072-020-04633-w.
   PubMed Web of Science ®Google Scholar
• Statistics Sweden Women and men in Sweden 2022 [Internet]. Stockholm: Statistics Sweden; 2022 [cited 2023 Mar 14]. Available from: https://www.scb.se/contentassets/1fbf4f9815374356a786278faca6a7f0/le0201_2021b22_x10br2202.pdf
   Google Scholar
• Skau S, Sundberg K, Kuhn HG. A proposal for a unifying set of definitions of fatigue. Front Psychol. 2021;12:739764. doi: 10.3389/fpsyg.2021.739764.
   PubMed Web of Science ®Google Scholar
• Riksstroke. Stroke och TIA - Riksstrokes årsrapport 2018. 2019.
   Google Scholar
• Riksstroke. Ett år efter stroke - 1-årsuppföljning 2019 – livssituation, tillgodosedda behov och resultat av vårdens och omsorgens insatser för de som insjuknade under 2018. 2021.
   Google Scholar
• Palmcrantz S, Sommerfeld DK. Development and validation of the swedish national stroke register riksstroke’s questionnaires in patients at 3 and 12 months after stroke: a qualitative study. BMJ Open. 2018;8(2):e018702. doi: 10.1136/bmjopen-2017-018702.
   PubMed Web of Science ®Google Scholar
• Skogestad IJ, Kirkevold M, Indredavik B, et al. Lack of content overlap and essential dimensions – A review of measures used for post-stroke fatigue [review]. J Psychosoma Res. 2019;124:109759. doi: 10.1016/j.jpsychores.2019.109759.
   PubMed Web of Science ®Google Scholar
• Holmberg J, Jondell B, Abzhandadze T, et al. Very early cognitive screening and Self-Reported feeling of fatigue three months after stroke [article]. Front Hum Neurosci. 2021;15:742105. doi: 10.3389/fnhum.2021.742105.
   PubMed Web of Science ®Google Scholar