The path to independent living: lived experiences of inclusive education for one of a set of twins with disabilities and her parents

References

• Agaliotis, I., and E. Kalyva. 2011. “A Survey of Greek General and Special Education teachers’ Per-Ceptions Regarding the Role of the Special Needs Coordinator: Implications for Educational Policy on Inclusion and Teacher Education.” Teaching & Teacher Education 27 (3): 543–551.
   Web of Science ®Google Scholar
• Berasategi, S. N., M. N. Idoiaga, S. M. Dosil, and G. M. Picaza. 2022. “The Well-Being of Children with Special Needs During the COVID-19 Lockdown: Academic, Emotional, Social and Physical Aspects.” European Journal of Special Needs Education 37 (5): 776–789. doi:10.1080/08856257.2021.1949093.
   Web of Science ®Google Scholar
• Braun, V., and V. Clarke. 2006. “Using Thematic Analysis in Psychology.” Qualitative Research in Psychology 3 (2): 77–101. doi:10.1191/1478088706qp063oa.
   Google Scholar
• Cresswell, J. W. 2018. Educational Research: Planning, Conducting, and Evaluating Quantitative and Qualitative Research. 6th ed. New York: Pearson Education Limited.
   Google Scholar
• Elangkovan, I. T., and S. Shorey. 2020. “Experiences and Needs of Parents Caring for Children with Cerebral Palsy: A Systematic Review.” Journal of Developmental & Behavioral Pediatrics 41 (9): 730–739. doi:10.1097/DBP.0000000000000880.
   PubMed Web of Science ®Google Scholar
• Freeborn, D., and K. Knafl. 2014. “Growing Up with Cerebral Palsy: Perceptions of the Influence of Family.” Child: Care, Health and Development 40 (5): 671–679. doi:10.1111/cch.12113.
   PubMed Web of Science ®Google Scholar
• Harden, J., R. Black, and R. F. M. Chin. 2016. “Families’ Experiences of Living with Pediatric Epilep-Sy: A Qualitative Systematic Review.” Epilepsy & Behavior 60: 225–237. doi:10.1016/j.yebeh.2016.04.034.
   PubMed Web of Science ®Google Scholar
• Harouna, A. D., I. Salahoudine, A. Mahamoudi, A. El Madi, K. Khattala, and Y. Bouabdallah. 2018. “Perforation cæcale néonatale inaugurale du diagnostic d’un mégacôlon congénital.” Pan Af-Rican Medical Journal 31 (216). doi:10.11604/pamj.2018.31.216.15220.
   Google Scholar
• Kokorelias, K. M., F. K. T. Lu, Y. Santos, J. F. Xu. (2020). “Caregiving is a Full‐time job” Im-Pacting Stroke caregivers’ Health and well‐being: A Qualitative Meta‐synthesis.” Health & Social Care in the Community 28 (2): 325–340.
   PubMed Web of Science ®Google Scholar
• Patton, M. Q. 2002. Qualitative Research and Evaluation Methods. 3rd. NY: Sage Publications Inc 832p.
   Google Scholar
• Pit-Ten Cate, I. M., and G. M. P. Loots. 2000. “Experiences of Siblings of Children with Physi-Cal Disabilities: An Empirical Investigation.” Disability & Rehabilitation 22 (9): 399–408. doi:10.1080/096382800406013.
   PubMed Web of Science ®Google Scholar
• Pitten Cate, I. M., M. Markova, M. Krischler, S. Krolak-Schwerdt, B. Lanková, M. Vos-Trý, L. Zilcher, and T. Landová. 2018. “Support Measures and Their Implementation as a Part of Education of Individuals with the Special Needs.” EduPort 5 (2): 1–8. doi:10.21062/edp.2021.011.
   Google Scholar
• Roper, S. O., D. W. Allred, B. Mandleco, D. Freeborn, and T. Dyches. 2014. “Caregiver Burden and Sibling Relationships in Families Raising Children with Disabilities and Typically Developing Children.” Families, Systems, & Health 32 (2): 241.
   PubMed Web of Science ®Google Scholar
• Sakarneh, M. A. 2021. “The Impact of COVID-19 and Lockdown on Families of Students with Special Education Needs.” Cypriot Journal of Educational Sciences 16 (3): 1010–1020.
   Google Scholar
• Sedláčková, D., and J. Kantor. 2022a. “The Factors Important in Inclusive Education of the Pupil with Traumatic Brain Injury Identified on the Basis of the Lived Experience of His Mother.” Education Re-Search International 2022.
   Google Scholar
• Sedláčková, D., and J. Kantor. 2022b. “Family Experiences with the Upbringing and Education of a Child with Congenital Malformations, Focusing on the Conditions of an Inclusive School Environ-Ment.” Education Sciences 12 (5): 362. doi:10.3390/educsci12050362.
   Web of Science ®Google Scholar
• Talishinskiy, T., and S. Tomita. 2013. “Intestinal Perforation in Preterm Infant as an Unusual Initial Presentation of Hirschsprung’s Disease.” Journal of Pediatric Surgery Case Reports 1 (11): 381–382. doi:10.1016/j.epsc.2013.10.003.
   Google Scholar
• Van Mannen, M. 2016. Researching Lived Experience: Human Science for an Action Sensitive Pedagogy. 2nd. New York: Routledge.
   Google Scholar
• Zhou, L., F. Li, S. Wu, and M. Zhou. 2020. ““School’s Out, but Class’s on”, the Largest Online Educa-Tion in the World Today: Taking China’s Practical Exploration During the COVID-19 Epidemic Pre-Vention and Control as an Example.” Best Evidence in Chinese Education 4 (2): 501–519. doi:10.15354/bece.20.ar023.
   Google Scholar