Forced to Choose: When Medicare Policy Disrupts End-of-Life Care

References

• Abt Associates (2018). Evaluation of the medicare care choices model annual report #1. Center for Medicare & Medicaid Services Medicare Care Choices Model website. https://innovation.cms.gov/Files/reports/mccm-firstannrpt.pdf
   Google Scholar
• Aragon, K., Covinsky, K., Miao, Y., Boscardin, W. J., Flint, L., & Smith, A. K. (2012). Use of the medicare posthospitalization skilled nursing benefit in the last 6 months of life. Archives of Internal Medicine, 172(20), 1573–1579. https://doi.org/10.1001/archinternmed.2012.4451
   PubMed Web of Science ®Google Scholar
• Ayele, R., Jones, J., Ladebue, A., Lawrence, E., Valverde, P., Leonard, C., Cumbler, E., Allyn, R., & Burke, R. (2019). Perceived costs of care influence post-acute care choices by clinicians, patients, and caregivers. Journal of the American Geriatrics Society, 67(4), 703–710. https://doi.org/10.1111/jgs.15768
   Web of Science ®Google Scholar
• Carpenter, J. G., Berry, P. H., & Ersek, M. (2017). Nursing home care trajectories for older adults following in-hospital palliative care consultation. Geriatric Nursing, 38(6), 531–536. https://doi.org/10.1016/j.gerinurse.2017.03.016
   PubMed Web of Science ®Google Scholar
• Centers for Medicare & Medicaid Sevices. (2019). Medicare care choices model. https://innovation.cms.gov/initiatives/Medicare-Care-Choices/
   Google Scholar
• Flint, L. A., David, D. J., & Smith, A. K. (2019). Rehabbed to death. The New England Journal of Medicine, 380(5), 408–409. https://doi.org/10.1056/NEJMp1809354
   PubMed Web of Science ®Google Scholar
• GovTrack.us. (2020). H.R. 3590 — 111th Congress: Patient Protection and Affordable Care Act. Retrieved from https://www.govtrack.us/congress/bills/111/hr3590
   Google Scholar
• Harrison, K. L., & Connor, S. R. (2016). First medicare demonstration of concurrent provision of curative and hospice services for end-of-life care. American Journal of Public Health, 106(8), 1405–1408. https://doi.org/10.2105/ajph.2016.303238
   PubMed Web of Science ®Google Scholar
• Haverhals, L. M., Manheim, C. E., Mor, V., Ersek, M., Kinosian, B., Lorenz, K. A., Faricy-Anderson, K. E., Gidwani-Marszowski, R. A., & Levy, C. (2019). The experience of providing hospice care concurrent with cancer treatment in the VA. Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer, 27(4), 1263–1270. https://doi.org/10.1007/s00520-018-4552-z
   PubMed Web of Science ®Google Scholar
• Institute of Medicine. (2014). Dying in America: Improving quality and honoring individual preferences near the end of life. http://www.nationalacademies.org/hmd/Reports/2014/Dying-In-America-Improving-Quality-and-Honoring-Individual-Preferences-Near-the-End-of-Life.aspx
   Google Scholar
• Kelley, A. S., Deb, P., Du, Q., Aldridge Carlson, M. D., & Morrison, R. S. (2013). Hospice enrollment saves money for Medicare and improves care quality across a number of different lengths-of-stay. Health Affairs (Millwood), 32(3), 552–561. https://doi.org/10.1377/hlthaff.2012.0851
   PubMed Web of Science ®Google Scholar
• Krakauer, R., Spettell, C. M., Reisman, L., & Wade, M. J. (2009). Opportunities to improve the quality of care for advanced illness. Health Affairs, 28(5), 1357–1359. https://doi.org/10.1377/hlthaff.28.5.1357
   Web of Science ®Google Scholar
• Kumar, P., Wright, A. A., Hatfield, L. A., Temel, J. S., & Keating, N. L. (2017). Family perspectives on hospice care experiences of patients with cancer. Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology, 35(4), 432–439. https://doi.org/10.1200/JCO.2016.68.9257
   PubMed Web of Science ®Google Scholar
• Lage, D. E., Caudry, D. J., Ackerly, D. C., Keating, N. L., & Grabowski, D. C. (2018). The care continuum for hospitalized medicare beneficiaries near death. Annals of Internal Medicine, 168(10), 748. https://doi.org/10.7326/M17-2651
   PubMed Web of Science ®Google Scholar
• Lindley, L. (2011). Health care reform and concurrent curative treatment for terminally ill children: A policy analysis. Journal of Hospice & Palliative Nursing, 13(2), 81–88. https://doi.org/10.1097/NJH.0b013e318202e308
   Web of Science ®Google Scholar
• Lunney, J. R., Lynn, J., Foley, D. J., Lipson, S., & Guralnik, J. M. (2003). Patterns of functional decline at the end of life. JAMA, 289(18), 2387–2392. https://doi.org/10.1001/jama.289.18.2387
   PubMed Web of Science ®Google Scholar
• Medicare Interactive. (2019). Hospice and skilled nursing facility (SNF) care. https://www.medicareinteractive.org/get-answers/medicare-coveredservices/hospice/hospice-and-skilled-nursing-facility-snf-care
   Google Scholar
• Medicare Payment Advisory Committee. (2016). Report to the congress: Medicare payment policy. http://medpac.gov/documents/reports/march-2016-report-to-the-congress-medicare-payment-policy.pdf?sfvrsn=2
   Google Scholar
• Miller, S., C. & Lima, J. C. (2018). Palliative Care Consults in U.S. Nursing Homes: Not Just for the Dying. J Palliat Med. 21(2), 188–193. doi:10.1089/jpm.2017.0099
   Google Scholar
• Miller, S. C., Lima, J. C., Intrator, O., Martin, E., Bull, J., & Hanson, L. C. (2016). Palliative care consultations in nursing homes and reductions in acute care use and potentially burdensome end-of-life transitions. Journal of the American Geriatrics Society, 64(11), 2280–2287. https://doi.org/10.1111/jgs.14469
   PubMed Web of Science ®Google Scholar
• Miller, S. C., Lima, J. C., & Mitchell, S. L. (2012). Influence of hospice among nursing home residents with advanced dementia who received medicare-skilled nursing facility care near the end of life. Journal of the American Geriatrics Society, 60(11), 2035–2041. https://doi.org/10.1111/j.1532-5415.2012.04204.x
   PubMed Web of Science ®Google Scholar
• Silveira, M. J., Kim, S. Y., & Langa, K. M. (2010). Advance directives and outcomes of surrogate decision making before death. The New England Journal of Medicine, 362(13), 1211–1218. https://doi.org/10.1056/NEJMsa0907901
   PubMed Web of Science ®Google Scholar
• Temkin-Greener, H., Lee, T., Caprio, T., & Cai, S. (2019). Rehabilitation therapy for nursing home residents at the end-of-life. Journal of the American Medical Directors Association, 20(4), 476–480. https://doi.org/10.1016/j.jamda.2018.07.024
   PubMed Web of Science ®Google Scholar