1,633
Views
387
CrossRef citations to date
0
Altmetric
Original Articles

Patients' Preferences for Participation in Clinical Decision Making: A Review of Published Surveys

Pages 81-88 | Published online: 25 Mar 2010

References

  • Green , J A . 1988 . Minimizing malpractice risks by role clarification. The confusing transition from tort to contract . Ann Intern Med , 109 : 234 – 241 .
  • Emanuel , E J and Emanuel , L L . 1992 . Four models of physician-patient relationship . JAMA , 267 : 2221 – 2226 .
  • Vertinsky , I B and Thompson , W A . 1974 . Uyeno D. Measuring consumers' desire for participation in clinical decision making . Health Serv, Res , 9 : 121 – 134 .
  • Kassirer , J P . 1994 . Incorporating patients' preferences into medical decisions . N Engl J Med , 330 : 1895 – 1896 .
  • Beauchamp , T and Childress , J. 1978 . Principles of Biomedical Ethics , Oxford University Press .
  • President's Commission for the Study of Ethical Problems in Medicine and Biomedical Research. 1982 . Making Health Care Decisions: The Ethical and Legal Implications of Informed Consent in the Patient-Practitioner Relationship , 1 : 29 – 35 . US Government Printing Office;;
  • La Puma , J , Orentlicher , D and Moss , R J . 1991 . Advance directives in admissions, clinical implications and analysis of the Patient Self-Determination Act of 1990 . JAMA , 266 : 402 – 406 .
  • Laws of the State of Israel. Patient's Rights Law 5756 – 1996 .
  • Kaplan , S H , Greenfield , S and Gandek , B . 1996 . et al. Characteristics of physicians with participatory decision-making styles . Ann Intern Med , 124 : 497 – 504 .
  • Segev , A. 1996 . So far we managed without using the term leukemia . Ha'aretz , October 8
  • Quill , T E . 1989 . Partnership in patient care: A contractual approach . Ann Intern Med , 98 : 228 – 294 .
  • Haug , M R and Lavin , B. 1979 . Public challenge of physicians' authority . Med Care , 17 : 844 – 858 .
  • Harris , L. 1982 . President's Commission for the Study of Ethical Problems in Medicine and Biomedical Research . Making Health Care Decisions: The Ethical and Legal Implications of Informed Consent in the Patient-Practitioner Relationship , 2 : 17 – 316 . US Government Printing Office;; (Quoted by Ende, et al. 1989)
  • Degner , L F and Sloan , J A . 1992 . Decision making during serious illness: What role do patients really want to play? . J Clin Epidemiol , 45 : 941 – 950 .
  • Strull , W M , Lo , B and Charles , G. 1984 . Do patients want to participate in medical decision making? . JAMA , 252 : 2990 – 2994 .
  • Deber , R B , Kraetschmer , N and Irvine , J. 1996 . What role do patients wish to play in treatment decision making? . Arch Intern Med , 156 : 1414 – 1420 .
  • Cassileth , B R , Zupkis , R V , Sutton-Smith , K and March , V. 1980 . Information and participation preferences among cancer patients . Ann Intern Med , 92 : 832 – 836 .
  • Blanchard , C G , Labrecque , M S , Ruckdeschel , J C and Blanchard , E B . 1988 . Information and decision-making preferences of hospitalized adult cancer patients . Soc Sci Med , 27 : 1139 – 1145 .
  • Sutherland , H J , Llewellyn-Thomas , H A and Lockwood , G A . 1989 . et al. Cancer patients: Their desire for information and participation in treatment decisions . J R Soc Med , 82 : 260 – 263 .
  • Davison , B J , Degner , L F and Morgan , T R . 1995 . Information and decision-making preferences of men with prostate cancer . Oncol Nurs Forum , 22 : 1401 – 1408 .
  • Bilodeau , B A and Degner , L F . 1996 . Information needs, sources of information, and decisional roles in women with breast cancer . Oncol Nurs Forum , 23 : 691 – 696 .
  • Hack , T F , Degner , L F and Dyck , D G . 1994 . Relationship between preferences for decisional control and illness information among women with breast cancer . Soc Sci Med , 39 : 279 – 289 .
  • Baider , L , Ever-Hadani , P and Kaplan De-Nour , A. 1995 . The impact of culture on perceptions of patient-physician satisfaction . Isr J Med Sci , 31 : 179 – 185 .
  • Krantz , D S , Baum , A and Wideman , M V . 1980 . Assessment of preferences for self-treatment and information in health care . J Person Soc Psychol , 39 : 977 – 990 .
  • Ende , J , Kazis , L and Moskowitz , M A . 1990 . Preferences for autonomy when patients are physicians . J Gen Intern Med , 5 : 506 – 509 .
  • Pendelton , L and House , W C . 1984 . Preferences for treatment approaches in medical care: College students versus diabetic outpatients . Med Care , 22 : 644 – 646 .
  • Ende , J , Kazis , L , Ash , A and Moskowitz , M A . 1989 . Measuring patients' desire for autonomy: Decision making and information-seeking preferences among medical patients . J Gen Intern Med , 4 : 23 – 30 .
  • Beisecker , A I and Beisecker , T D . 1990 . Patient information seeking behaviors when communicating with doctors . Med Care , 28 : 19 – 28 .
  • Thompson , S C , Pitts , J S and Schwankovsky , L. 1993 . Preferences for involvement in medical decision-making: Situational and demographic influences . Patient Educ Couns , 22 : 133 – 140 .
  • Blackhall , L J , Murphy , S T and Frank , G . 1995 . et al. Ethnicity and attitudes'towards patient autonomy . JAMA , 274 : 820 – 825 .
  • Llewellyn-Thomas , H A , McGreal , M J and Thiel , E C . 1995 . Cancer patients' decision making and trial entry preferences . Med Decis Making , 15 : 4 – 12 .
  • Kaplan , S H , Gandek , B , Greenfield , S , Rogers , W and Ware , J E . 1995 . Patient and visit characteristics related to physicians' participatory decision-making style. Results from the Medical Outcomes Study . Med Care , 33 : 1176 – 1187 .
  • Speedling , E J and Rose , D N . 1985 . Building an effective doctor-patient relationship: From patient satisfaction to patient participation . Soc Sci Med , 21 : 115 – 120 .
  • Faden , R R , Becker , C and Lewis , C . 1981 . et al. Disclosure of information to patients in medical care . Med Care , 19 : 718 – 733 .
  • Katz , J. 1984 . Why doctors don't disclose uncertainty? . The Hastings Center Report , 14 : 35 – 44 .
  • Laine , C , Davidoff , F and Lewis , C E . 1996 . et al. Important elements of outpatient care: A comparison of patients' and physicians' opinions . Ann Intern Med , 125 : 640 – 645 .
  • Turner , S , Maher , E J , Young , T , Young , J and Vaughan-Hudson , G. 1996 . What are the information priorities for cancer patients involved in treatment decisions? An experienced surrogate study in Hodgkin's disease . Br J Cancer , 73 : 222 – 227 .
  • Vennin , P , Hecquet , B , Marcuzzi , I and Demaille , M C . 1995 . Breast neoplasms: Information in question(s). A survey of patients and physicians at a cancer treatment center . Bull Cancer (Paris) , 82 : 698 – 704 .
  • Koning , C J , Maille , A R , Stevens , I and Dekker , F W . 1995 . Patients' opinions on respiratory care: Do doctors fulfill their needs? . J Asthma , 32 : 355 – 363 .
  • Danis , M , Gerrity , M S , Southerland , L I and Patrick , D L . 1988 . A comparison of patient, family, and physician assessments of the value of medical intensive care . Crit Care Med , 16 : 594 – 600 .
  • Ebell , M H , Doukas , D J and Smith , M A . 1991 . The do-not-resuscitate order: A comparison of physician and patient preferences and decision-making . Am J Med , 91 : 255 – 260 .
  • Druley , J A , Ditto , P H and Moore , K A . 1993 . et al. Physicians' predictions of elderly outpatients' preferences for life-sustaining treatment . J Fam Pract , 37 : 469 – 475 .
  • Beisecker , A E , Murden , R A , Moore , W P , Graham , D and Nelmig , L. 1996 . Attitudes of medical students and primary care physicians regarding input of older and younger patients in medical decisions . Med Care , 34 : 126 – 137 .
  • Greenfield , S , Kaplan , S and Ware , J E . 1985 . Expanding patient involvement in care . Ann Intern Med , 102 : 520 – 528 .
  • Kaplan , S H , Greenfield , S and Ware , J E . 1989 . Assessing the effect of physician-patient interaction on the outcomes of chronic disease . Med Care , 27 ( 3 Suppl ) : S110 – 127 .
  • Rost , K M , Flavin , K S , Cole , K and McGill , J B . 1991 . Change in metabolic control and functional status after hospitalization. Impact of patient activation intervention in diabetic patients . Diabetes Care , 14 : 881 – 889 .
  • Smith , R C and Hoppe , R B . 1991 . The patient's story: Integrating the patient- and physician-centered approaches to interviewing . Ann Intern Med , : 470 – 477 .
  • Consensus statement . 1992 . workshop on teaching and assessment of communication skills in Canadian Medical Schools . Canad Med Assoc J , 147 : 1149 – 1150 .
  • Wharton , R H , Levine , K R , Buka , S and Emanuel , L. 1996 . Advance care planning for children with special health care needs: A survey of parental attitudes . Pediatrics , 97 : 682 – 687 .
  • Thompson , A GH and Sunol , R. 1995 . Expectations as determinants of patient satisfaction . Int J Qual Health Care , 7 : 127 – 141 .
  • McNeil , B J , Pauker , S G , Sox , H C and Tversky , A. 1982 . On the elicitation of preferences for alternative therapies . N Engl J Med , 306 : 1259 – 1262 .
  • Mazur , D J and Hickam , D H . 1990 . Treatment preferences of patients and physicians: Influences of summary data when framing effects are controlled . Med Decis Making , 10 : 2 – 5 .
  • Mazur , D J and Hickam , D H . 1991 . Patients' interpretations of probability terms . J Gen Intern Med , 6 : 237 – 240 .

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.