Visual functioning in adults with Idiopathic Infantile Nystagmus Syndrome (IINS)

References

• Dell’Osso LF. Congenital, latent and manifest latent nystagmus-similarities, differences and relation to strabismus. Jpn J Ophthalmol. 1985;29:351–368.
   PubMed Web of Science ®Google Scholar
• Harris C. Nystagmus and eye movement disorders. In: Taylor D, ed. Paediatric Ophthalmology. Oxford: Blackwell Science; 1997:869–895.
   Google Scholar
• Leigh RJ, Rucker JC. Nystagmus and related ocular motility disorders. In: Miller NR, Newman NJ, eds. Walsh Hoyt’s Clin Neuro-Ophthalmology. 6th ed. Philadelphia: Lippincott Williams and Wilkins; 2005:1133–1173.
   Google Scholar
• Abadi RV, Bjerre A. Motor and sensory characteristics of infantile nystagmus. Br J Ophthalmol. 2002;86:1152–1160. doi:10.1136/bjo.86.10.1152.
   PubMed Web of Science ®Google Scholar
• Sarvananthan N, Surendran M, Roberts EO, et al. The prevalence of nystagmus: the Leicestershire nystagmus survey. Investig Ophthalmol Vis Sci. 2009;50:5201–5206. doi:10.1167/iovs.09-3486.
   PubMed Web of Science ®Google Scholar
• Pilling RF, Thompson JR, Gottlob I. Social and visual function in nystagmus. Br J Ophthalmol. 2005;89:1278–1281. doi:10.1136/bjo.2004.059121.
   PubMed Web of Science ®Google Scholar
• Morris B, Smith V, Elphick J, et al. Compensatory head posture and neck problems: is there an association? A cohort study of nystagmus patients. Eye. 2009;23:279–283. doi:10.1038/sj.eye.6703087.
   PubMed Web of Science ®Google Scholar
• Barot N, McLean RJ, Gottlob I, et al. Reading performance in infantile nystagmus. Ophthalmol. 2013;120:1232–1238. doi:10.1016/j.ophtha.2012.11.032.
   PubMed Web of Science ®Google Scholar
• Atilla H. Assessment and management of infantile nystagmus syndrome. J Clin Exp Ophthalmol. 2016;7(2). doi:10.4172/2155-9570.1000550.
   Google Scholar
• Mackenzie K, Hancox J, Mcbain H, et al. Psychosocial interventions for improving quality of life outcomes in adults undergoing strabismus surgery. Cochrane Database Syst Rev. 2016;12(5). doi:10.1002/14651858.CD010092.pub4.
   Web of Science ®Google Scholar
• Adams GGW, McBain H, MacKenzie K, et al. Is strabismus the only problem? Psychological issues surrounding strabismus surgery. J AAPOS. 2016;383–386. doi:10.1016/j.jaapos.2016.07.221.
   PubMed Web of Science ®Google Scholar
• Hancox J, Sharma S, MacKenzie K, et al. The effect on quality of life of long-term botulinum toxin A injections to maintain ocular alignment in adult patients with strabismus. Br J Ophthalmol. 2012;96:838–840. doi:10.1136/bjophthalmol-2011-301332.
   PubMed Web of Science ®Google Scholar
• Hatt SR, Leske DA, Liebermann L, et al. Changes in health-related quality of life 1 year following strabismus surgery. Am J Ophthalmol. 2012;153:614–619. doi:10.1016/j.ajo.2011.09.014.
   PubMed Web of Science ®Google Scholar
• Durnian JM, Owen ME, Baddon AC, et al. The psychosocial effects of strabismus: effect of patient demographics on the AS-20 score. J AAPOS. 2010;14:469–471. doi:10.1016/j.jaapos.2010.08.013.
   PubMed Web of Science ®Google Scholar
• Archer SM, Musch DC, Wren PA, et al. Social and emotional impact of strabismus surgery on quality of life in children. J AAPOS. 2005;9:148–151. doi:10.1016/j.jaapos.2004.12.006.
   PubMed Web of Science ®Google Scholar
• Jackson S, Morris M, Gleeson K. The long-term psychosocial impact of corrective surgery for adults with strabismus. Br J Ophthalmol. 2013;97:419–422. doi:10.1136/bjophthalmol-2012-302983.
   PubMed Web of Science ®Google Scholar
• McLean RJ, Windridge KC, Gottlob I. Living with nystagmus: a qualitative study. Br J Ophthalmol. 2012;96:981–986. doi:10.1136/bjophthalmol-2011-301183.
   PubMed Web of Science ®Google Scholar
• McLean RJ, Maconachie GDE, Gottlob I, et al. The development of a nystagmus-specific Quality-of-Life Questionnaire. Ophthalmol. 2016;123:2023–2027. doi:10.1016/j.ophtha.2016.05.033.
   PubMed Web of Science ®Google Scholar
• Mangione CM, Lee PP, Gutierrez PR, et al. Development of the 25-item National Eye Institute Visual Function Questionnaire. Evidence-Based Eye Care. 2002;3:58–59. doi:10.1097/00132578-200201000-00028.
   Google Scholar
• Wolffsohn JS, Cochrane AL. Design of the Low Vision Quality-Of-Life Questionnaire (LVQOL) and measuring the outcome of low-vision rehabilitation. Am J Ophthalmol. 2000;130:793–802. doi:10.1016/S0002-9394(00)00610-3.
   PubMed Web of Science ®Google Scholar
• Miskala PH, Hawkins BS, Mangione CM, et al. Responsiveness of the National Eye Institute Visual Function Questionnaire to changes in visual acuity: findings in patients with subfoveal choroidal neovascularization–SST report no. 1. Arch Ophthalmol. 2003;121:531–539. doi:10.1001/archopht.121.4.531.
   PubMed Web of Science ®Google Scholar
• Clemons TE, Gillies MC, Chew EY, et al. The National Eye Institute Visual Function Questionnaire in the Macular Telangiectasia (MacTel) project. Investig Ophthalmol Vis Sci. 2008;49:4340–4346. doi:10.1167/iovs.08-1749.
   PubMed Web of Science ®Google Scholar
• Parrish RK, Gedde SJ, Scott IU, et al. Visual function and quality of life among patients with glaucoma. Arch Ophthalmol. 1997;115:1447–1455. doi:10.1001/archopht.1997.01100160617016.
   PubMedGoogle Scholar
• Hertle RW, Dell’Osso LF, FitzGibbon EJ, et al. Horizontal rectus tenotomy in 10 patients with congenital nystagmus: results in 10 adults. Ophthalmol. 2003;110(11):2097–2105. doi:10.1016/S0161-6420(03)00802-9.
   PubMed Web of Science ®Google Scholar
• Theodorou M, Quartilho A, Xing W, et al. Soft contact lenses to optimise vision in adults with idiopathic infantile nystagmus: a pilot parallel randomised controlled trial. Strabismus. 2018;26(1):11–21. doi:10.1080/09273972.2017.1418394.
   PubMed Web of Science ®Google Scholar
• Globe D, Varma R, Azen SP, et al. Psychometric performance of the NEI VFQ-25 in visually normal latinos: the Los Angeles Latino eye study. Clin Epidemiological Res. 2003;44:1470–1478.
   Google Scholar
• DVLA. Assessing fitness to drive. 2016. https://www.gov.uk/guidance/assessing-fitness-to-drive-a-guide-for-medical-professionals [Accessed December 25, 2017]
   Google Scholar
• Revicki DA, Rentz AM, Harnam N, et al. Reliability and validity of the National Eye Institute Visual Function Questionnaire-25 in patients with age-related macular degeneration. Invest Ophthalmol Vis Sci. 2010 Feb;51(2):712–717. doi:10.1167/iovs.09-3766.
   PubMed Web of Science ®Google Scholar
• Klein R, Moss SE, Klein BE, et al. The NEI-VFQ-25 in people with long-term type 1 diabetes mellitus.The wisconsin epidemiologic study of diabetic retinopathy. Arch Ophthalmol. 2001;119(5):733–740.
   PubMedGoogle Scholar
• Cole SR, Beck RW, Moke PS, et al. The National Eye Institute Visual Function Questionnaire: experience of the ONTT: optic neuritis treatment trial. Invest Ophthal Vis Sci. 2000;41:1017–1102.
   PubMed Web of Science ®Google Scholar
• Abadi RV, Dickinson CM. Waveform characteristics in congenital nystagmus. Doc Ophthalmol. 1987;64:153–167. doi:10.1007/BF00159990.
   Web of Science ®Google Scholar
• Dell’Osso LF, Jacobs JB. An expanded nystagmus acuity function: intra- and intersubject prediction of best-corrected visual acuity. Doc Ophthalmol. 2002;104:249–276. doi:10.1023/A:1015299930849.
   PubMedGoogle Scholar
• Hertle RW, Reese M. Clinical contrast sensitivity testing in patients with infantile nystagmus syndrome compared with age-matched controls. Am Ophthalmol. 2007;143(6):1063–1065. doi:10.1016/j.ajo.2007.02.028.
   PubMed Web of Science ®Google Scholar
• Roberts TL, Kester KN, Hertle RW. Reliability and validity of gaze-dependent functional vision space: a novel metric quantifying visual function in infantile nystagmus syndrome. Invest Ophthalmol Vis Sci. 2018;59(5):1760–1768. doi:10.1167/iovs.17-23229.
   PubMed Web of Science ®Google Scholar
• World Health Organisation. Disabilities. 2017. http://www.who.int/topics/disabilities/en/ [Accessed December 25, 2017]
   Google Scholar