211
Views
0
CrossRef citations to date
0
Altmetric
Articles

Identification and Evaluation of Items for Vitreoretinal Diseases Quality of Life Item Banks

ORCID Icon, , , &
Pages 448-458 | Received 03 Apr 2019, Accepted 07 Oct 2019, Published online: 15 Oct 2019

References

  • McCloud C, Khadka J, Gilhotra JS, Pesudovs K. Divergence in the lived experience of people with macular degeneration. Optom Vis Sci. 2014;91:966–974. doi:10.1097/OPX.0000000000000320.
  • Fenwick EK, Pesudovs K, Khadka J, et al. The impact of diabetic retinopathy on quality of life: qualitative findings from an item bank development project. Qual Life Res. 2012;21:1771–1782. doi:10.1007/s11136-012-0110-1.
  • Coyne KS, Margolis MK, Kennedy-Martin T, et al. The impact of diabetic retinopathy: perspectives from patient focus groups. Fam Pract. 2004;21:447–453. doi:10.1093/fampra/cmh417.
  • Devenney R, O’Neill S. The experience of diabetic retinopathy: a qualitative study. Br J Health Psychol. 2011;16:707–721. doi:10.1111/j.2044-8287.2010.02008.x.
  • Moore LW. Severe visual impairment in older women. West J Nurs Res. 2000;22:571–88; discussion 88–95. doi:10.1177/01939450022044601.
  • Moore LW, Miller M. Older men’s experiences of living with severe visual impairment. J Adv Nurs. 2003;43:10–18. doi:10.1046/j.1365-2648.2003.02668.x.
  • Wong EYH, Guymer RH, Hassell JB, Keeffe JE. The experience of age-related macular degeneration. J Visual Impair Blin. 2004;98:629–640. doi:10.1177/0145482X0409801007.
  • Prem Senthil M, Khadka J, Pesudovs K. Assessment of patient-reported outcomes in retinal diseases: a systematic review. Surv Ophthalmol. 2017;62:546–582. doi:10.1016/j.survophthal.2016.12.011.
  • Lowe J, Drasdo N. Patients’ responses to retinitis pigmentosa. Optom Vis Sci. 1992;69:182–185. doi:10.1097/00006324-199203000-00003.
  • Sumi I, Matsumoto S, Okajima O, Shirato S. The relationship between visual disability and visual scores in patients with retinitis pigmentosa. Jpn J Ophthalmol. 2000;44:82–87.
  • Szlyk JP, Fishman GA, Alexander KR, Revelins BI, Derlacki DJ, Anderson RJ. Relationship between difficulty in performing daily activities and clinical measures of visual function in patients with retinitis pigmentosa. Arch Ophthalmol. 1997;115:53–59. doi:10.1001/archopht.1997.01100150055009.
  • Szlyk JP, Seiple W, Fishman GA, Alexander KR, Grover S, Mahler CL. Perceived and actual performance of daily tasks: relationship to visual function tests in individuals with retinitis pigmentosa. Ophthalmology. 2001;108:65–75. doi:10.1016/s0161-6420(00)00413-9.
  • Turano KA, Geruschat DR, Stahl JW, Massof RW. Perceived visual ability for independent mobility in persons with retinitis pigmentosa. Invest Ophthalmol Vis Sci. 1999;40:865–877.
  • Lodha N, Westall CA, Brent M, Abdolell M, Heon E. A modified protocol for the assessment of visual function in patients with retinitis pigmentosa. Adv Exp Med Biol. 2003;533:49–57. doi:10.1007/978-1-4615-0067-4_7.
  • Geruschat DR, Turano KA, Stahl JW. Traditional measures of mobility performance and retinitis pigmentosa. Optom Vis Sci. 1998;75:525–537. doi:10.1097/00006324-199807000-00022.
  • Kennedy WL, Rosten JG, Young LM, Ciuffreda KJ, Levin MI. A field expander for patients with retinitis pigmentosa: a clinical study. Am J Optom Physiol Opt. 1977;54:744–755. doi:10.1097/00006324-197711000-00002.
  • Somani S, Brent MH, Markowitz SN. Visual field expansion in patients with retinitis pigmentosa. Can J Ophthalmol. 2006;41:27–33. doi:10.1016/S0008-4182(06)80062-1.
  • Bijveld MM, van Genderen MM, Hoeben FP, et al. Assessment of night vision problems in patients with congenital stationary night blindness. PLoS One. 2013;8:e62927. doi:10.1371/journal.pone.0062927.
  • Miedziak AI, Perski T, Andrews PP, Donoso LA. Stargardt’s macular dystrophy–a patient’s perspective. Optometry. 2000;71:165–176.
  • Pearce IA, Branley M, Groenewald C, McGalliard J, Wong D. Visual function and patient satisfaction after macular hole surgery. Eye (Lond). 1998;12(Pt 4):651–658. doi:10.1038/eye.1998.163.
  • Ellis JD, Malik TY, Taubert MA, Barr A, Baines PS. Surgery for full-thickness macular holes with short-duration prone posturing: results of a pilot study. Eye (Lond). 2000;14(Pt 3A):307–312. doi:10.1038/eye.2000.78.
  • Singh A, Kendal A, Trivedi D, Cazabon S. Patient expectation and satisfaction after macular hole surgery. Optom Vis Sci. 2011;88:312–316. doi:10.1097/OPX.0b013e3182058fc0.
  • Wu AW, Coleson LC, Holbrook J, Jabs DA. Measuring visual function and quality of life in patients with cytomegalovirus retinitis. Development of a questionnaire. Studies of Ocular Complication of AIDS Research Group. Arch Ophthalmol. 1996;114:841–847. doi:10.1001/archopht.1996.01100140055008.
  • Pesudovs K. Patient-centred measurement in ophthalmology–a paradigm shift. BMC Ophthalmol. 2006;6:25. doi:10.1186/1471-2415-6-25.
  • van Alphen A, Halfens R, Hasman A, Imbos T. Likert or Rasch? Nothing is more applicable than good theory. J Adv Nurs. 1994;20:196–201. doi:10.1046/j.1365-2648.1994.20010196.x.
  • Prem Senthil M, Khadka J, Pesudovs K. Seeing through their eyes: lived experiences of people with retinitis pigmentosa. Eye (Lond). 2017;31:741–748. doi:10.1038/eye.2016.315.
  • Bittner AK, Edwards L, George M. Coping strategies to manage stress related to vision loss and fluctuations in retinitis pigmentosa. Optometry. 2010;81:461–468. doi:10.1016/j.optm.2010.03.006.
  • Prem Senthil M, Khadka J, Gilhotra JS, Simon S, Pesudovs K. Exploring the quality of life issues in people with retinal diseases: a qualitative study. J Patient Reported Outcomes. 2017;1:15. doi:10.1186/s41687-017-0023-4.
  • Pesudovs K. Item banking: a generational change in patient-reported outcome measurement. Optom Vis Sci. 2010;87:285–293. doi:10.1097/OPX.0b013e3181d408d7.
  • Wainer H. Computerized Adaptive Testing. A Primer. Mahway, NJ: Lawerance Erlbaum; 2000.
  • Wang YC, Hart DL, Cook KF, Mioduski JE. Translating shoulder computerized adaptive testing generated outcome measures into clinical practice. J Hand Ther. 2010;23:372–382. doi:10.1016/j.jht.2010.06.001.
  • Lundstrom M, Pesudovs K. Questionnaires for measuring cataract surgery outcomes. J Cataract Refract Surg. 2011;37:945–959. doi:10.1016/j.jcrs.2011.03.010.
  • Khadka J, Pesudovs K, McAlinden C, Vogel M, Kernt M, Hirneiss C. Reengineering the glaucoma quality of life-15 questionnaire with rasch analysis. Invest Ophthalmol Vis Sci. 2011;52:6971–6977. doi:10.1167/iovs.11-7423.
  • McAlinden C, Gothwal VK, Khadka J, Wright TA, Lamoureux EL, Pesudovs K. A head-to-head comparison of 16 cataract surgery outcome questionnaires. Ophthalmology. 2011;118:2374–2381. doi:10.1016/j.ophtha.2011.06.008.
  • Gothwal VK, Wright TA, Lamoureux EL, Pesudovs K. Rasch analysis of visual function and quality of life questionnaires. Optom Vis Sci. 2009;86:1160–1168. doi:10.1097/OPX.0b013e3181bab10c.
  • Khadka J, McAlinden C, Craig JE, Fenwick EK, Lamoureux EL, Pesudovs K. Identifying content for the glaucoma-specific item bank to measure quality-of-life parameters. J Glaucoma. 2015;24:12–19. doi:10.1097/IJG.0b013e318287ac11.
  • Fenwick EK, Pesudovs K, Khadka J, Rees G, Wong TY, Lamoureux EL. Evaluation of item candidates for a diabetic retinopathy quality of life item bank. Qual Life Res. 2013;22:1851–1858. doi:10.1007/s11136-012-0307-3.
  • DeWalt DA, Rothrock N, Yount S, Stone AA, Group PC. Evaluation of item candidates: the PROMIS qualitative item review. Med Care. 2007;45:S12–21. doi:10.1097/01.mlr.0000254567.79743.e2.
  • Bredart A, Marrel A, Abetz-Webb L, Lasch K, Acquadro C. Interviewing to develop Patient-Reported Outcome (PRO) measures for clinical research: eliciting patients’ experience. Health Qual Life Outcomes. 2014;12:15. doi:10.1186/1477-7525-12-15.
  • Hayeems RZ, Geller G, Finkelstein D, Faden RR. How patients experience progressive loss of visual function: a model of adjustment using qualitative methods. Brit J Ophthalmol. 2005;89:615–620. doi:10.1136/bjo.2003.036046.
  • Combs R, Hall G, Payne K, et al. Understanding the expectations of patients with inherited retinal dystrophies. Br J Ophthalmol. 2013;97:1057–1061. doi:10.1136/bjophthalmol-2012-302911.
  • Wittich W, Southall K. Coping with extended facedown positioning after macular hole surgery: a qualitative diary analysis. Nurs Res. 2008;57:436–443. doi:10.1097/NNR.0b013e31818c3e8e.
  • Deramo VA, Cox TA, Dyed AB, Lee PP, Fekrat S. Vision-related quality of life in people with central retinal vein occlusion using the 25-item national eye institute visual function questionnaire. Arch Ophthalmol. 2003;121:1297–1302. doi:10.1001/archopht.121.9.1297.
  • Weger M, Pichler T, Franke GH, et al. Assessment of vision-related quality of life in patients with central retinal artery occlusion. Retina. 2014;34:539–545. doi:10.1097/IAE.0b013e3182a0e42e.
  • Okamoto F, Okamoto Y, Hiraoka T, Oshika T. Effect of vitrectomy for epiretinal membrane on visual function and vision-related quality of life. Am J Ophthalmol. 2009;147(869–74):74.e1. doi:10.1016/j.ajo.2008.11.018.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.