Promoting children’s informed assent in research participation

References

• Alderson , P. 2004 . “ Ethics ” . In Doing research with children and young people , Edited by: Fraser , S. , Lewis , V. , Ding , S. , Kellett , M. and Robinson , C. 97 – 112 . London : Sage .
   Google Scholar
• Alderson , P. 2005 . “ Ethics ” . In Ethical research with children , Edited by: Farrell , A. 27 – 36 . New York , NY : Open University Press .
   Google Scholar
• Arizpe , E. and Styles , M. 2003 . Children reading pictures , London : Routledge .
   Google Scholar
• Atencio , M. 2007 . “ Basketball is like breathing: Young people’s use of urban physical activity spaces ” . In Child space: An anthropological exploration of young people’s use of space , Edited by: Malone , K. 94 – 126 . New Delhi : Concept .
   Google Scholar
• Beauchamp , T. and Childress , J. 2001 . Principles of biomedical ethics , Oxford : Oxford University Press .
   Google Scholar
• Bessell, S. 2008. Research with children: Thinking about method and methodology. In Involving children and young people in research: A compendium of papers and reflections from a think tank co-hosted by the Australian Alliance for Children and Youth and the NSW Commission for Children and Young People, ed. Australian Research Alliance for Children and Youth and New South Wales Commission for Children and Young People, 17–27. http://www.aracy.org.au (accessed November 2008).
   Google Scholar
• Bray , L. 2007 . Developing an activity to aid informed assent when interviewing children and young people . Journal of Research in Nursing , 12 ( 5 ) : 447 – 456 .
   Google Scholar
• Bruzzesse , J.M. and Fisher , C.B. 2003 . Assessing and enhancing the research consent capacity of children and youth . Applied Developmental Science , 7 ( 1 ) : 13 – 26 .
   Google Scholar
• Clark , A. and Moss , P. 2001 . Listening to young children: The mosaic approach , London : National Children’s Bureau and Joseph Rowntree Foundation .
   Google Scholar
• Cocks , A. 2007 . The ethical maze: Finding an inclusive path towards gaining children’s agreement to participation . Childhood , 13 ( 2 ) : 247 – 266 .
   Web of Science ®Google Scholar
• Connors , C. and Stalker , K. 2003 . The views and experiences of disabled children and their siblings: A positive outlook , London : Jessica Kingsley .
   Google Scholar
• Connors , C. and Stalker , K. 2007 . Children’s experiences of disability: Pointers to a social model of childhood disability . Disability and Society , 22 ( 1 ) : 19 – 33 .
   Web of Science ®Google Scholar
• Conroy , H. and Harcourt , D. 2009 . Informed agreement to participate: Beginning the partnership with children in research . Early Childhood Development and Care , 179 ( 2 ) : 157 – 165 .
   Google Scholar
• Cutliffe , J.R. and Ramcharan , P. 2002 . Levelling the playing field? Exploring the merits of the ethics-as-process approach for judging qualitative research proposals . Qualitative Health Research , 12 ( 7 ) : 1000 – 1010 .
   PubMed Web of Science ®Google Scholar
• Danby , S. and Farrell , A. 2005 . “ Opening the research conversation ” . In Ethical research with children , Edited by: Farrell , A. 49 – 67 . London : Open University Press .
   Google Scholar
• David , M. , Edwards , R. and Alldred , P. 2001 . Children and school-based research: “Informed consent” or “educated consent” . British Educational Research Journal , 27 ( 3 ) : 347 – 365 .
   Web of Science ®Google Scholar
• Denscombe , M. and Aubrook , L. 1992 . The ethics of questionnaire research on pupils in schools: It’s just another piece of schoolwork . British Educational Research Journal , 18 ( 2 ) : 113 – 131 .
   Google Scholar
• Einarsdottir , J. 2007 . Research with children: Methodological and ethical challenges . European Early Childhood Education Research Journal , 15 ( 2 ) : 197 – 211 .
   Web of Science ®Google Scholar
• Flewitt , R. 2005 . Conducting research with young children: Some ethical issues . Early Childhood Development and Care , 175 ( 6 ) : 553 – 565 .
   Google Scholar
• Ford , K. , Sankey , J. and Crisp , J. 2007 . Development of children’s assent documents using a child-centred approach . Journal of Child Health Care , 11 ( 1 ) : 19 – 28 .
   PubMedGoogle Scholar
• Gleeson , B. and Sipe , N. 2006 . Creating child-friendly cities: Reinstating kids in the city , New York , NY : Routledge .
   Google Scholar
• Heath , S. , Charles , V. , Crow , G. and Wiles , R. 2007 . Informed consent, gatekeepers and go-betweens: Negotiating consent in child- and youth-oriented institutions . British Educational Research Journal , 33 ( 3 ) : 403 – 417 .
   Web of Science ®Google Scholar
• Howard, A. 2006. What constitutes child-friendly communities and how they are built? Canberra: Australian Research Alliance for Children and Youth. http//:www.aracy.org.au.
   Google Scholar
• Hurley , J.C. and Underwood , M.K. 2002 . Children’s understanding of their research rights before and after debriefing: Informed assent, confidentiality, and stopping participation . Child Development , 73 ( 1 ) : 132 – 143 .
   PubMed Web of Science ®Google Scholar
• James , A. and Prout , A. 1997 . Constructing and reconstructing childhood: Contemporary issues in the sociological study of childhood , 2nd ed. , London : Falmer Press .
   Google Scholar
• Jans , M. 2004 . Children as citizens: Towards a contemporary notion of child participation . Childhood , 11 ( 1 ) : 27 – 44 .
   Web of Science ®Google Scholar
• Jones , A. 2004 . “ Involving children and young people as a researcher ” . In Doing research with children and young people , Edited by: Fraser , S. , Lewis , V. , Ding , S. , Kellett , M. and Robinson , C. 113 – 130 . London : Routledge .
   Google Scholar
• Kirk , S. 2007 . Methodological and ethical issues in conducting qualitative research with children and young people: A literature review . International Journal of Nursing Studies , 44 ( 7 ) : 1250 – 1260 .
   PubMed Web of Science ®Google Scholar
• Kress , G.R. 1994 . Learning to write , London : Routledge .
   Google Scholar
• Kress , G.R. and Van Leeuwen , T. 2006 . Reading images: The grammar of visual design , 2nd ed. , London : Routledge .
   Google Scholar
• Lansdown , G. 2005 . The evolving capacities of the child , Florence : UNICEF Innocenti Research Centre .
   Google Scholar
• Lewis , M. 2001 . Learning to listen: Consulting children and young people with disabilities , London : Save the Children .
   Google Scholar
• Moore , T. , McArthur , M. and Noble-Carr , D. 2008 . Little voices and big ideas: Lessons learned from children about research . International Journal of Qualitative Methods , 7 ( 2 ) : 77 – 91 .
   Google Scholar
• Morrow , V. 2008 . Ethical dilemmas in research with children and young people about their social environments . Children’s Geographies , 6 ( 1 ) : 49 – 61 .
   Web of Science ®Google Scholar
• National Association for the Prevention of Child Abuse and Neglect (NAPCAN) Foundation. 2006. Visions of a child-friendly community. http://www.napcan.org.au2006.
   Google Scholar
• National Health and Medical Research Council. 2007. National statement on ethical conduct in human research. http://www.nhmrc.gov.au/publications/ethics/2007_human/section4.2htm.
   Google Scholar
• Prout , A. 2003 . “ Participation, policy and childhood ” . In Hearing the voices of children: Social policy for a new century , Edited by: Hallett , C. and Prout , A. 11 – 25 . London : Routledge .
   Google Scholar
• Roberts , H. 2003 . “ Children’s participation in policy matters ” . In Hearing the voices of children: Social policy for a new century , Edited by: Hallett , C. and Prout , A. 26 – 37 . London : Routledge Falmer .
   Google Scholar
• Sancar , F.H. and Severcan , Y.C. 2010 . “ In search of agency: Participation in a youth organisation in Turkey ” . In A handbook of children and young people’s participation: Perspectives from theory and practice , Edited by: Percy-Smith , B. and Thomas , N. 277 – 286 . London : Routledge .
   Google Scholar
• Sipe , L.R. 2000 . Those two gingerbread boys could be brothers: How children use intertextual connections during storybook readalouds . Children’s Literature in Education , 31 ( 2 ) : 73 – 90 .
   Web of Science ®Google Scholar
• Thomas , N. and O’Kane , C. 1998 . The ethics of participatory research with children . Children & Society , 12 ( 5 ) : 336 – 348 .
   Google Scholar
• Thomson , F. 2007 . Are methodologies for children keeping them in their place? . Children’s Geographies , 5 ( 3 ) : 207 – 218 .
   Google Scholar
• UNICEF (United Nations Children’s Fund). 1996. Towards child-friendly cities. New York, NY: UNICEF. http://www.childfriendlycities.org.
   Google Scholar
• UNICEF (United Nations Children’s Fund). 2004. Building child-friendly cities: A framework for action. Florence: UNICEF Innocenti Research Centre. http://www.childfriendlycities.org.
   Google Scholar
• United Nations. 1989. Convention on the rights of the child. New York, NY: United Nations. http://www.unicef.org/crc.
   Google Scholar
• Vitiello , B. 2003 . Ethical considerations in psychopharmacological research involving children and adolescents . Psychopharmacology (Berl) , 171 ( 1 ) : 86 – 91 .
   PubMed Web of Science ®Google Scholar
• Wallace , G. , Rudduck , J. and Harris , S. 1994 . “ Students’ secondary school careers: Research in a climate of moving perspectives ” . In Researching education policy: Ethical and methodological issues , Edited by: Halpin , D. and Troyna , B. 170 – 183 . London : Falmer .
   Google Scholar
• Walsh , M. 2003 . “Reading” pictures: What do they reveal? Young children’s reading of visual texts . Reading: Literacy and Language , 37 ( 3 ) : 123 – 130 .
   Google Scholar
• Walsh , K. 2005 . “ Researching sensitive issues ” . In Ethical research with children , Edited by: Farrell , A. 68 – 80 . Maidenhead : Open University Press .
   Google Scholar
• Wiles, R., S. Heath, G. Crow, and V. Charles. 2005. Informed consent in social research: A literature review. ESRC National Centre for Research Methods. http://www.ncrm.ac.uk/research/outputs/publications/methosreview/MethisReviewPaperNCRM-001.pdf.
   Google Scholar