Intricacies and inter-relationships between HIV disclosure and HAART: A qualitative study

References

• Ammassari , A , Murri , R , Pezzotti , P , Trotta , MP , Ravasio , L , De Longis , P , Lo Caputo , S , Narciso , P , Pauluzzi , S , Carosi , G , Nappa , S , Piano , P , Izzo , CM , Lichtner , M , Rezza , G , Monforte , A , Ippolito , G , D'arminio Moroni , M , Wu , AW , Antinori , A and Adicona Study Group . 2001 . Self-reported symptoms and medication side effects influence adherence to highly active antiretroviral therapy in persons with HIV infection . Journal of Acquired Immune Deficiency Syndromes , 28 : 445 – 449 .
   PubMed Web of Science ®Google Scholar
• Babcock JH 1998 Involving family and significant others in acute care In: Aronstein, D. M. & Thompson, B. J. (Eds) HIV and social work (pp. 101–108) Binghamton Harrington
   Google Scholar
• Chesney , MA and Smith , AW . 1999 . Critical delays in HIV testing and care: the potential role of stigma . American Behavioral Scientist , 42 (7) : 1162 – 1174 .
   Web of Science ®Google Scholar
• Chesney , MA , Ickovics , JR , Chambers , DB , Gifford , AL , Neidig , J , Zwickl , B and Wu , AW . 2000 . Self reported adherence to antiretroviral medications among participants in HIV clinical trials: the AACTG adherence instruments. Patient Care Committee & Adherence Working Group of the Outcomes Committee of the Adult AIDS Clinical Trials Group (AACTG) . AIDS Care , 12 (3) : 255 – 266 .
   PubMed Web of Science ®Google Scholar
• Crespo-Fierro , M . 1997 . Compliance/adherence and care management in HIV disease . Journal of the Association of Nurses in AIDS Care , 8 (4) : 43 – 54 .
   PubMedGoogle Scholar
• DeMatteo , D , Wells , LM , Goldie , RS and King , SM . 2002 . The family context of HIV: a need for comprehensive health and social policies . AIDS Care , 14 (2) : 261 – 278 .
   PubMed Web of Science ®Google Scholar
• Derlega V Metts S Petronio S Margulis S Self-disclosure, Sage Publications Newbury Park CA 1993
   Google Scholar
• Duran , S , Savès , M , Spire , B , Cailleton , V , Sobel , A , Carrieri , P , Salmon , D , Moatti , JP , Leport , C and The Aproco Study Group . 2001 . Failure to maintain long-term adherence to highly active antiretroviral therapy: the role of lipodystrophy . AIDS , 15 (8) : 2441 – 2444 .
   PubMedGoogle Scholar
• Garcia De Olalla , P , Knobel , H , Carmona , A , Guelar , A , Lopez-Colomes , JL and Cayla , JA . 2002 . Impact of adherence and highly active antiretroviral therapy on survival in HIV-infected patients . Journal of Acquired Immune Deficiency Syndrome , 30 (1) : 105 – 110 .
   PubMed Web of Science ®Google Scholar
• Gielen , AC , Fogarty , L , O'campo , P , Anderson , J , Keller , J and Faden , R . 2000a . Women living with HIV: disclosure, violence and social support . Journal of Urban Health , 77 (3) : 480 – 491 .
   PubMed Web of Science ®Google Scholar
• Gielen , AC , McDonnell , Burke , JG and O'campo , P . 2000b . Women's lives after an HIV-positive diagnosis: disclosure and violence . Maternal and Child Health , 4 (2) : 111 – 120 .
   PubMedGoogle Scholar
• Gifford , A , Bormann , J , Shively , M , Wright , B , Richman , D and Bozzette , S . 2000 . Predictors of self-reported adherence and plasma HIV concentrations in patients on multidrug antiretroviral regimens . Journal of Acquired Immune Deficiency Syndromes , 23 (5) : 386 – 395 .
   PubMed Web of Science ®Google Scholar
• Goffman E Asylums: essays on the social situation of mental patients and other inmates, Penguin London 1961
   Google Scholar
• Johnson MO Charlebois E Morin SF Catz SL Goldstein RB Remien RH Rotheram-Borus MJ Kitell L Samimy-Muzaffar F Lightfoot M Gore-Felton C Chesney MA The Nimh Health Living Project Team (in press) Perceived adverse effects of antiretroviral therapy Journal of Pain and Symptom Management
   Google Scholar
• Johnson , MO , Catz , SL , Remien , RH , Rotheram-Borus , MJ , Morin , SF , Charlebois , E , Gore-Felton , C , Goldstein , RB , Wolfe , H , Lightfoot , M , Chesney , MA and The Nimh Hlp Team . 2003a . Theory guided, empirically supported avenues for intervention on HIV medication nonadherence: findings from the Healthy Living Project . AIDS Patient Care and STD , 17 : 645 – 656 .
   PubMed Web of Science ®Google Scholar
• Johnson , M , Stallworth , T and Neilands , T . 2003b . The drugs or the disease? Causal attributions of symptoms held by HIV positive adults on HAART . AIDS and Behavior , 7 (2) : 109 – 117 .
   PubMed Web of Science ®Google Scholar
• Kalichman SC Understanding AIDS: a guide for mental health professionals, American Psychological Association Washington DC 1995
   Google Scholar
• Kalichman , SC and Nachimson , D . 1999 . Self-efficacy and disclosure of HIV-positive serostatus to sex partners . Health Psychology , 18 : 281 – 287 .
   PubMed Web of Science ®Google Scholar
• Kastrissios , H , Su′ Arez , JR , Hammer , S , Katzenstein , D and Blaschke , TF . 1998 . The extent of non-adherence in a large AIDS clinical trial using plasma dideoxynucleoside concentrations as a marker . AIDS , 12 : 2305 – 2311 .
   PubMed Web of Science ®Google Scholar
• Kirshenbaum SB 1999 Maternal disclosure of HIV/AIDS in relation to children's adjustment Doctoral dissertation, St. John's University, UMI #9952389
   Google Scholar
• Kirshenbaum , SB and Nevid , JS . 2002 . The specificity of maternal disclosure of HIV/AIDS in relation to children's adjustment . AIDS Education and Prevention , 14 (1) : 1 – 16 .
   PubMed Web of Science ®Google Scholar
• Klitzman , R . 1999 . Self-disclosure of HIV serostatus to sexual partners: a qualitative study of issues faced by gay men . Journal of the Gay and Lesbian Medical Association , 3 (2) : 39 – 49 .
   Google Scholar
• Klitzman R Bayer R Mortal secrets: truth and lies in the age of AIDS, Johns Hopkins University Press Baltimore 2003
   Google Scholar
• Mansergh , G , Marks , G and Simoni , J . 1995 . Self-disclosure of HIV infection among men who vary in time since seropositive diagnosis and symptomatic status . AIDS , 9 : 639 – 644 .
   PubMed Web of Science ®Google Scholar
• Marks , G and Crepaz , N . 2001 . HIV-positive men's sexual practices in the context of self-disclosure of HIV status . Journal of Acquired Immune Deficiency Syndromes , 27 (1) : 79 – 85 .
   PubMed Web of Science ®Google Scholar
• Marks , G , Richardson , J and Maldonado , N . 1991 . Self-disclosure of HIV infection to sexual partners . American Journal of Public Health , 81 (10) : 1321 – 1322 .
   PubMed Web of Science ®Google Scholar
• Marks , G , Ruiz , M , Richardson , J , Reed , D , Mason , H , Sotelo , M and Turner , P . 1994 . Anal intercourse and disclosure of HIV infection among seropositive gay and bisexual men . Journal of Acquired Immune Deficiency Syndromes , 7 (8) : 866 – 869 .
   PubMed Web of Science ®Google Scholar
• Mellins , C , Havens , J , Mccaskill , E , Leu , C , Brudnew , K and Chesney , M . 2002 . Mental health, substance use and disclosure are significantly associated with the medical treatment adherence of HIV-infected mothers . Psychology, Health and Medicine , 7 (4) : 451 – 460 .
   Google Scholar
• Molaghan , JB . 1997 . Adherence issues in HIV therapeutics. Introduction: the situation . Journal of the Association of Nurses in AIDS Care , 8 : 7 – 9 .
   PubMedGoogle Scholar
• Oette , M , Juretzko , P , Kroidl , A , Sagir , A , Wettstein , M , Siegrist , J and Häussinger , D . 2002 . Lipodystrophy syndrome and self-assessment of well-being and physical appearance in HIV-positive patients . AIDS Patient Care and STDs , 16 (9) : 413 – 417 .
   PubMed Web of Science ®Google Scholar
• Paterson , DL , Swindells , S , Mohr , J , Brester , M , Vergis , EN , Squier , C , Wagener , MM and Singh , N . 2000 . Adherence to protease inhibitor therapy and outcomes in patients with HIV infection . Annals of Internal Medicine , 133 : 21 – 30 .
   PubMed Web of Science ®Google Scholar
• Patton , MQ . 1990 . Humanistic psychology and humanistic research. Special issue: human inquiry & the person-centered approach . Person-Centered Review , 5 : 191 – 202 .
   Web of Science ®Google Scholar
• Perry S Card C Moffatt M Jr Fishman B Jacobsberg L Self disclosure of HIV infection to sexual partners after repeated counseling AIDS Education and Prevention 6 403 411 1994
   PubMed Web of Science ®Google Scholar
• Perry , S , Ryan , J , Fogel , K , Fishman , B and Jacobsberg , L . 1990 . Voluntarily informing others of positive HIV test results: patterns of notification by infected gay men . Hospital and Community Psychiatry , 41 (5) : 549 – 551 .
   PubMedGoogle Scholar
• Remien , RH . 1998 . Adhering to HIV combination therapy: the role of the pharmacist . Pharmacy Times , 5 (98) : 28 – 37 .
   Google Scholar
• Remien , RH , Hirky , AE , Johnson , M , Weinhardt , L ,  Whittier , D and Le Giang , M . 2003 . Adherence to medication treatment: a qualitative study of facilitators and barriers among a diverse sample of HIV-positive men and women in four US cities . AIDS & Behavior , 7 (1) : 61 – 72 .
   PubMed Web of Science ®Google Scholar
• Rodriguez Rosado , R , Jimenez Nacher , I and Soriano , V . 1998 . Virological failure and adherence to antiretroviral therapy in HIV-infected patients . AIDS , 12 : 1112 – 1113 .
   PubMed Web of Science ®Google Scholar
• Sepkowitz , KA . 2001 . AIDS—the first twenty years . New England Journal of Medicine , 344 (23) : 1764 – 1772 .
   PubMed Web of Science ®Google Scholar
• Serovich , JM . 2001 . A test of two HIV disclosure theories . AIDS Education and Prevention , 13 (4) : 355 – 364 .
   PubMed Web of Science ®Google Scholar
• Simoni , JM , Mason , HR , Marks , G , Ruiz , MS , Reed , D and Richardson , JL . 1995 . Women's self-disclosure of HIV infection: rates, reasons, and reactions . Journal of Consulting and Clinical Psychology , 63 (3) : 474 – 478 .
   PubMed Web of Science ®Google Scholar
• Stein , MD , Freedberg , KA , Sullivan , LM , Savetsky , J , Levenson , SM , Hingson , R and Samet , JH . 1998 . Sexual ethics: disclosure of HIV-positive status to partners . Archives of Internal Medicine , 158 (3) : 253 – 257 .
   PubMedGoogle Scholar
• Stempel , R , Moulton , J and Moss , A . 1995 . Self-disclosure of HIV-1 antibody test results: the San Francisco general hospital cohort . AIDS Education and Prevention , 7 (2) : 116 – 123 .
   PubMed Web of Science ®Google Scholar
• Strauss A Corbin J Basics of qualitative research—techniques and procedures for developing grounded theory, Sage Newbury Park CA 1990
   Google Scholar
• Wahl L Nowak M Adherence and resistance: predictions for therapy outcome Proceedings of the Royal Society Biological 267 835 843 2000
   Google Scholar