The greater involvement of people living with AIDS principle: theory versus practice in Ontario's HIV/AIDS community-based research sector

References

• Asthana , S. and Oostvogels , R. 1996 . Community participation in HIV prevention: Problems and prospects for community-based strategies among female sex workers in Madras . Social Science & Medicine , 43 : 133 – 148 .
   PubMed Web of Science ®Google Scholar
• Capitanio , J.P. and Herek , G.M. 1999 . AIDS-related stigma and attitudes toward injecting drug users among black and white Americans . American Behavioral Scientist , 42 : 1148 – 1161 .
   Web of Science ®Google Scholar
• Carolo , H. and Travers , R. 2005 . Challenges, complexities and solutions: A unique HIV research partnership in Toronto, Canada . Journal of Urban Health , 82 : ii42
   Google Scholar
• Collins , E. , Cain , R. , Bereket , T. , Chen , Y.Y. , Cleverly , S. , George , C. , Hayes , P. , Jackson , R. , Layman-Pleet , D. , Li , A. , Prentice , T. , Taylor , D. and Travers , R. 2007 . Living and serving II: 10 years later: The involvement of people living with HIV/AIDS in the Community AIDS Movement in Ontario , Toronto , ON : Ontario HIV Treatment Network .
   Google Scholar
• Courtenay-Quirk , C. , Wolitski , R.J. , Parsons , J.T. , Gomez , C.A. and The Seropositive Urban Men's Study , T. 2006 . Is HIV/AIDS stigma dividing the gay community? Perceptions of HIV-positive men who have sex with men . AIDS Education and Prevention , 18 : 56 – 67 .
   PubMed Web of Science ®Google Scholar
• Dias , S.F. , Matos , M.G. and Gonsalves , A.C. 2006 . AIDS-related stigma and attitudes towards AIDS-infected people among adolescents . AIDS Care Special Issue: AIDS Impact , 18 : 208 – 214 .
   PubMed Web of Science ®Google Scholar
• European Coalition of Positive People 1994 . Paris Declaration, Paris AIDS Summit: 1 December 1994. Retrieved January 7, 2007, from www.ecpp.co.uk
   Google Scholar
• Examining Community-Institutional Partnerships for Prevention Research Group 2006 . Developing and sustaining community-based participatory research partnerships: A skill-building curriculum . Retrieved, from www.cbprcurriculum.info
   Google Scholar
• Flicker , S. 2006 . Who benefits from community based participatory research? Health Education & Behavior, May 31, [Epub ahead of print]
   Google Scholar
• Flicker , S. Savan , B. McGrath , M. Kolenda , B. & Mildenberger , M. 2007 . If you could change one thing… What Community-Based Researchers wish they could have done differently . Journal of Community Development , doi:10.1093/cdj/bsm009
   Google Scholar
• Flicker , S. Savan , B. Mildenberger , M. & Kolenda , B. 2007 . A snapshot of community based research in Canada: Who? What? Why? How? Health Education Research , doi: 10.1093/her/cym007 .
   PubMed Web of Science ®Google Scholar
• Flicker , S. , Skinner , H. , Veinot , T. , McClelland , A. , Saulnier , P. Read , S.R. 2005 . Falling through the cracks of the big cities: Who is meeting the needs of young people with HIV? . Canadian Journal of Public Health , 96 : 308 – 312 .
   PubMed Web of Science ®Google Scholar
• Glaser , B.G. and Strauss , A.L. 1967 . The discovery of grounded theory: Strategies for qualitative research , Chicago : Aldine .
   Google Scholar
• GNP +  2004 . A multi-country study of the involvement of people living with HIV/AIDS (PLWHA) in the Country Coordinating Mechanisms (CMM) . Amsterdam : The Global Network of People Living with HIV/AIDS .
   Google Scholar
• Green , L. , George , M. , Daniel , M. , Frankish , C. , Herbert , C. and Bowie , W. 1995 . Review and recommendations for the development of participatory research in health promotion in Canada , Vancouver , BC : Royal Society of Canada .
   Google Scholar
• Guenter , G. , Majumdar , B. , Travers , R. , Willms , D. , Browne , G. and Robinson , G. 2005 . Community-based HIV education and prevention workers respond to a changing environment . Journal of the Association of Nurses in AIDS Care , 16 : 29 – 36 .
   PubMed Web of Science ®Google Scholar
• Harrington , K.F. , DiClemente , R.J. , Wingood , G.M. , Crosby , R.A. , Person , S. Oh , M.K. 2001 . Validity of self-reported sexually transmitted diseases among African American female adolescents participating in an HIV/STD prevention intervention trial . Sexually Transmitted Diseases , 28 : 468 – 471 .
   PubMed Web of Science ®Google Scholar
• Israel , B. , Eng , E. , Schultz , A. and Parker , E. 2006 . Methods in community-based participatory research for health , Berkeley , CA : Jossey-Bass .
   Google Scholar
• Israel , B. , Schulz , A. , Parker , E. and Becker , A. 1998 . Review of community-based research: Assessing partnership approaches to improve public health . Annual Reviews Public Health , 19 : 173 – 194 .
   PubMed Web of Science ®Google Scholar
• Jewkes , R. and Murcott , A. 1998 . Community representatives: Representing the “community”? . Social Science and Medicine , 46 : 843 – 858 .
   PubMed Web of Science ®Google Scholar
• Lekas , H.-M. , Siegel , K. and Schrimshaw , E.W. 2006 . Continuities and discontinuities in the experiences of felt and enacted stigma among women with HIV/AIDS . Qualitative health research , 16 : 1165 – 1190 .
   PubMed Web of Science ®Google Scholar
• Miles , M.B. and Huberman , A.M. 1994 . Qualitative data analysis: An expanded sourcebook , 2nd ed , Thousand Oaks : Sage Publications .
   Google Scholar
• Minkler , M. and Wallerstein , N. 2003 . Community-based participatory research for health , San Francisco , CA : Jossey-Bass .
   Google Scholar
• Morse , J. 1994 . Critical issues in qualitative research methods , Beverly Hills , CA : Sage Publications .
   Google Scholar
• Mosavel , M. , Simon , C. , van Stade , D. and Buchbinder , M. 2005 . Community-based participatory research (CBPR) in South Africa: Engaging multiple constituents to shape the research question . Social Science & Medicine , 61 : 2577 – 2587 .
   PubMed Web of Science ®Google Scholar
• Norman , G. and Streiner , D. 2000 . Biostatistics: The bare essentials , Hamilton , ON : B.C. Decker Inc .
   Google Scholar
• Paez-Victor , M. 2002 . Community-based participatory research: Community respondent feedback . First International Conference on Inner City Health , Toronto, ON, October 3, 2002 .
   Google Scholar
• Parker , R. and Aggleton , P. 2003 . HIV and AIDS-related stigma and discrimination: A conceptual framework and implications for action . Social Science and Medicine , 57 : 13 – 24 .
   PubMed Web of Science ®Google Scholar
• Remis , R. , Swantee , C. , Schiedel , L. , Merid , M. F. and Liu , J. 2006 . Report on HIV/AIDS in Ontario 2004 , Toronto , ON : Ontario HIV Epidemiologic Monitoring Unit .
   Google Scholar
• Roy , C. and Cain , R. 2001 . The involvement of people living with HIV/AIDS in community-based organizations: Contributions and constraints . AIDS Care , 13 : 421 – 432 .
   PubMed Web of Science ®Google Scholar
• Schnarch , B. 2004 . Ownership, control, access and possession (OCAP) or self-determination applied to research. A critical analysis of contemporary First Nations research and some options for First Nations communities , Ottawa : First Nations Centre, National Aboriginal Health Organization .
   Google Scholar
• Seifer , S. , Shore , N. and Holmes , S. 2002 . Developing and sustaining community-university partnerships for health research: Infrastructure requirements , Seattle , WA : Community-Campus Partnerships for Health & NIH Office of Behavioral and Social Sciences Research .
   Google Scholar
• Ship , S.J. and Norton , L. 2001 . HIV/AIDS and Aboriginal women in Canada . Canadian Woman Studies , 21 : 25 – 32 .
   Google Scholar
• Silversides , A. 2006 . Complex and unique HIV/AIDS epidemic among Aboriginal Canadians . Canadian Medical Association Journal , 175 : 1359 – 1360 .
   Web of Science ®Google Scholar
• Stephens , D. 2004 . Out of the shadows: Greater involvement of people living with HIV/AIDS (GIPA) in Policy , Washington DC : Policy Project .
   Google Scholar
• Stoecker , R. 1999 . Are academics irrelevant? Roles for scholars in participatory research . American Behavioral Scientists , 42 : 840 – 854 .
   Web of Science ®Google Scholar
• Strauss , A.L. and Corbin , J. 1990 . Basics of qualitative research: Grounded theory procedures and techniques , Newbury Park , CA : Sage .
   Google Scholar
• Teengs , D.O.B. and Travers , R. 2006 . “River of life, rapids of change”: Understanding HIV vulnerability among two-spirit youth who migrate to Toronto . Canadian Journal Of Aboriginal Community-Based HIV/AIDS Research , 1 : 17 – 28 .
   Google Scholar
• Travers , R. , Leaver , C. and McClelland , A. 2002 . Assessing HIV vulnerability among lesbian, gay, bisexual, transgender, transsexual (LGBT) and 2-spirited youth who migrate to Toronto . Canadian Journal of Infectious Diseases , 13 ( Suppl. A ) : 71A
   Google Scholar
• Trussler , T. , Perchal , P. and Barker , A. 2000 . Between what is said and what is done: Cultural constructs and young gay men's HIV vulnerability . Psychology Health & Medicine , 5 : 295 – 306 .
   Google Scholar
• UNAIDS 1999 . From principle to practice: Greater involvement of people living with or affected by HIV/AIDS (GIPA) . Geneva : UNAIDS .
   Google Scholar
• UNAIDS 2004 . 2004 Report on the global HIV/AIDS epidemic: 4th Global report . Geneva : UNAIDS .
   Google Scholar