References
- Becker , S.L. , Raffanti , S.R. , Hansen , N.I. , Fusco , J.S. , Fusco , G.P. , Slatko , G.H. , Igboko , E. F. and Graham , N.M. 2001 . Zidovudine and stavudine sequencing in HIV treatment planning: Findings from the CHORUS HIV cohort . Journal of Acquired Immune Deficiency Syndromes , 26 ( 1 ) : 72 – 81 .
- Couzigou , C. , Semaille , C. , Le Strat , Y. , Pinget , R. , Pillonel , J. , Lot , F. , Cazein , F. , Vittecoq , D. and Desenclos , J.C. 2007 . Differential improvement in survival among patients with AIDS after the introduction of HAART . AIDS Care , 19 ( 4 ) : 523 – 531 .
- de Saxe-Zerden , L. , Zerden , M.L. and Billinghurst , K.G. 2006 . Caring for home-based care workers . Southern African Journal of HIV Medicine , 7 ( 3 ) : 38 – 43 .
- FCA ( 2008 ). Fact sheet: Selected caregiver statistics . San Francisco, CA: Author .
- Folkman , S. , Chesney , M.A. and Christopher-Richards , A. 1994 . Stress and coping in caregiving partners of men with AIDS . Psychiatric Clinics of North America , 17 ( 1 ) : 35 – 53 .
- Folkman , S. , Chesney , M.A. , Cooke , M. , Boccellari , A. and Collette , L. 1994 . Caregiver burden in HIV-positive and HIV-negative partners of men with AIDS . Journal of Consulting & Clinical Psychology , 62 ( 4 ) : 746 – 756 .
- Gandek , B. , Ware , J.E. , Aaronson , N.K. , Apolone , G. , Bjorner , J.B. , Brazier , J.E. , Bullinger , M. , Kaasa , S. , Leplege , A. , Prieto , L. and Sullivan , M. 1998 . Cross-validation of item selection and scoring for the SF-12 health survey in nine countries: Results from the IQOLA Project. International quality of life assessment . Journal of Clinical Epidemiology , 51 ( 11 ) : 1171 – 1178 .
- HHS ( 1998 ). Informal Caregiving: Compassion in Action . Washington , DC : Office of Disability, Aging and Long-Term Care Policy, US Department of Health and Human Services .
- Hogg , R.S. , Strathdee , S.A. , Craib , K.J. , O'Shaughnessy , M.V. , Montaner , J.S. and Schechter , M.T. 1994 . Lower socioeconomic status and shorter survival following HIV infection.[comment] . Lancet , 344 ( 8930 ) : 1120 – 1124 .
- Irving , G. , Bor , R. and Catalan , J. 1995 . Psychological distress among gay men supporting a lover or partner with AIDS: A pilot study . AIDS Care , 7 ( 5 ) : 605 – 617 .
- Justice , A.C. , Holmes , W. , Gifford , A.L. , Rabeneck , L. , Zackin , R. , Sinclair , G. , Weissman , S. , Neidig , J. , Marcus , C. , Chesney , M. , Cohn , S.E. , Wu , A.W. and Adult , A.C.T.U.O.C. 2001 . Development and validation of a self-completed HIV symptom index . Journal of Clinical Epidemiology , 54 ( Suppl. 1 ) : S77 – S90 .
- Kipp , W. , Matukala Nkosi , T. , Laing , L. and Jhangri , G.S. 2006 . Care burden and self-reported health status of informal women caregivers of HIV/AIDS patients in Kinshasa, Democratic Republic of Congo . AIDS Care , 18 ( 7 ) : 694 – 697 .
- Land , H. , Hudson , S.M. and Stiefel , B. 2003 . Stress and depression among HIV-positive and HIV-negative gay and bisexual AIDS caregivers . AIDS & Behavior , 7 ( 1 ) : 41 – 53 .
- LeBlanc , A.J. , London , A.S. and Aneshensel , C.S. 1997 . The physical costs of AIDS caregiving . Social Science & Medicine , 45 ( 6 ) : 915 – 923 .
- LeBlanc , A.J. and Wardlaw , L.A. 1999 . Health-related worry among informal aids caregivers . Health (London) , 3 ( 4 ) : 421 – 449 .
- Lindsey , E. , Hirschfeld , M. and Tlou , S. 2003 . Home-based care in Botswana: Experiences of older women and young girls . Health Care for Women International , 24 ( 6 ) : 486 – 501 .
- MacNeil , J.M. 1996 . Use of culture care theory with Baganda women as AIDS caregivers . Journal of Transcultural Nursing , 7 ( 2 ) : 14 – 20 .
- Marc , L. G. A. Patel-Larson , H. I. , Hall , Jeanty G. , M. Alegria , Y. Eveillard and E. Jean-Louis ( 2008 ). HIV/AIDS Among Haitian-born Persons in the United States 1985 to 2006 . Poster presented at the National Institutes of Mental Health Annual International Research Conference on the Role of Families in Preventing and Adapting to HIV/AIDS, Providence, RI .
- Marc , L.G. , Testa , M.A. , Walker , A.M. , Robbins , G.K. , Shafer , RW. , Anderson , N.B. Berkman , L.F. ( 2007 ). Educational attainment and response to HAART during initial therapy for HIV-1 infection Journal of Psychosomatic Research , 63 ( 2 ), 207 – 216 .
- Marc , L.G. , Wang , M. , Watson , M.E. , Fusco , J.A. , Justice , A.C. , & Testa , M.A. ( 2007 ). Psychometric evaluation of the HIV symptom distress scale Poster presented at the international society for quality of life research, 14th annual scientific meeting, October 10–13, Toronto, Canada.
- Ntozi , J. 1997 . AIDS morbidity and the role of the family in patient care in Uganda . Health Transition Review , 7 ( Suppl ) : 1 – 22 .
- Olenja , J.M. 1999 . Assessing community attitude towards home-based care for people with AIDS (PWAs) in Kenya . Journal of Community Health , 24 ( 3 ) : 187 – 199 .
- Osborn , J.E. 2008 . The past, present, and future of AIDS . JAMA , 300 ( 5 ) : 581 – 583 .
- Pirraglia , P.A. , Bishop , D. , Herman , D.S. , Trisvan , E. , Lopez , R.A. , Torgersen , C.S. , Van Hof , A.M. , Anderson , B.J. , Miller , I. and Stein , M.D. 2005 . Caregiver burden and depression among informal caregivers of HIV-infected individuals . Journal of General International Medicine , 20 ( 6 ) : 510 – 514 .
- Prachakul , W. and Grant , J.S. 2003 . Informal caregivers of persons with HIV/AIDS: A review and analysis . Journal of the Association of Nurses in AIDS Care , 14 ( 3 ) : 55 – 71 .
- Reynolds , N.R. , Testa , M.A. , Marc , L.G. , Chesney , M.A. , Neidig , J.L. , Smith , S.R. , Vella , S. and Robbinsm , G.K. 2004 . Factors influencing medication adherence beliefs and self-efficacy in persons naive to antiretroviral therapy: A multicenter, cross-sectional study . AIDS & Behavior , 8 ( 2 ) : 141 – 150 .
- Robson , E. 2000 . Invisible carers: Young people in Zimbabwe's home-based health care . Area , 32 ( 1 ) : 59 – 69 .
- Seeley , J. , Kajura , E. , Bachengana , C. , Okongo , M. , Wagner , U. and Mulder , D. 1993 . The extended family and support for people with AIDS in a rural population in south west Uganda: A safety net with holes? . AIDS Care , 5 ( 1 ) : 117 – 122 .
- Smallman , S.C. 2007 . The AIDS pandemic in Latin America , Chapel Hill , NC : University of North Carolina Press .
- Trussell , J. and Reinis , K.I. 1989 . Age at first marriage and age at first birth . Population Bulletin of the United Nations , 26 : 127 – 185 .
- UNAIDS/WHO ( 2003 ). AIDS epidemic update (December) . Geneva, Switzerland .
- UNAIDS/WHO ( 2004 ). AIDS epidemic estimates . Geneva, Switzerland .
- Vithayachockitikhun , N. 2006 . Family caregiving of persons living with HIV/AIDS in Thailand: Caregiver burden, an outcome measure . International Journal of Nursing Practice , 12 ( 3 ) : 123 – 128 .
- Ware , J.E. Jr and Sherbourne , C.D. 1992 . The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection . Medical Care , 30 ( 6 ) : 473 – 483 .
- WHO . ( 2008 ). World health statistics 2008 Retrieved from: http://www.who.int/whosis/whostat/EN_WHS08_Full.pdf
- Wight , R.G. 2000 . Precursive depression among HIV infected AIDS caregivers over time . Social Science & Medicine , 51 ( 5 ) : 759 – 770 .
- Wu , A.W. 2000 . Quality of life assessment comes of age in the era of highly active antiretroviral therapy . AIDS , 14 : 1449 – 1451 .
- Wu , A.W. , Hays , R.D. , Kelly , S. , Malitz , F. and Bozzette , S.A. 1997 . Applications of the medical outcomes study health-related quality of life measures in HIV/AIDS . Quality of Life Research , 6 ( 6 ) : 531 – 554 .