Stigma, burden, social support, and willingness to care among caregivers of PLWHA in home-based care in South Africa

References

• Adam , M.A. and Johnson , L.F. 2009 . Estimation of adult antiretroviral treatment coverage in South Africa . South African Medical Journal , 99 : 661 – 667 .
   PubMed Web of Science ®Google Scholar
• Andrén , S. and Elmståhl , S. 2007 . Relationships between income, subjective health and caregiver burden in caregivers of people with dementia in group living care: A cross-sectional community-based study . International Journal of Nursing Studies , 44 ( 3 ) : 435 – 446 .
   PubMed Web of Science ®Google Scholar
• Apondi , R. , Bunnell , R. , Awor , A. , Wamai , N. , Bikaako-Kajura , W. , Solberg , P. and Mermin , J. 2007 . Home-based antiretroviral care is associated with positive social outcomes in a prospective cohort in Uganda . Journal of Acquired Immune Deficiency Syndromes , 44 ( 1 ) : 71 – 76 .
   PubMed Web of Science ®Google Scholar
• Baingana , G. , Choi , K.H. , Barrett , D.C. , Byansi , R. , & Hearst , N. ( 1995 ). Female partners of AIDS patients in Uganda: Reported knowledge, perceptions and plans . AIDS , 9 ( Suppl. 1 ), S15 – S19 .
   PubMed Web of Science ®Google Scholar
• Baker , S. , Sudit , M. and Litwak , E. 1998 . Caregiver burden and coping strategies used by informal caregivers of minority women living with HIV/AIDS . Association of Black NursingFacility Journal , 9 ( 3 ) : 56 – 60 .
   PubMedGoogle Scholar
• Bogart , L.M. , Cowgill , B.O. , Kennedy , D. , Ryan , G. , Murphy , D.A. , Elijah , J. and Schuster , M.A. 2008 . HIV-related stigma among people with HIV and their families: A qualitative analysis . AIDS and Behaviour , 12 ( 2 ) : 244 – 254 .
   PubMed Web of Science ®Google Scholar
• Brown , L. , Trujillo , L. , & MacIntyre , K. ( 2001 ). Interventions to reduce HIV/AIDS stigma: What have we learned? Horizons Program, Tulane University. September 2001. Retrieved from http://www.popcouncil.org/pdfs/horizons/litrvwstigdisc.pdf
   Google Scholar
• Campbell , C. , Nair , Y. , Maimane , S. and Sibiya , Z. 2008 . Supporting people with AIDS and their carers in rural South Africa: Possibilities and challenges . Health & Place , 14 ( 3 ) : 507 – 518 .
   PubMed Web of Science ®Google Scholar
• Chimwaza , A.F. and Watkins , S.C. 2004 . Giving care to people with symptoms of AIDS in rural sub-Saharan Africa . Aids Care-Psychological and Socio-Medical Aspects of AIDS/HIV , 16 ( 7 ) : 795 – 807 .
   PubMed Web of Science ®Google Scholar
• Choo , W.Y. , Low , W.Y. , Karina , R. , Poi , P.J. , Ebenezer , E. and Prince , M.J. 2003 . Social support and burden among caregivers of patients with dementia in Malaysia . Asia Pacific Journal of Public Health , 15 ( 1 ) : 23 – 29 .
   PubMedGoogle Scholar
• Demmer , C. 1998 . Death anxiety, coping resources, and comfort with dying patients among nurses in AIDS care facilities . Psychological Reports , 83 : 1051 – 1057 .
   PubMed Web of Science ®Google Scholar
• Demmer , C. 2004 . Burnout: The health care worker as survivor . AIDS Reader , 14 ( 10 ) : 522 – 530 .
   PubMedGoogle Scholar
• Demmer , C. 2007 . Responding to AIDS-related bereavement in the South African context . Death Studies , 31 ( 9 ) : 821 – 843 .
   PubMed Web of Science ®Google Scholar
• Dlamini , P.S. , Kohi , T.W. , Uys , L.R. , Phetlhu , R.D. , Chirwa , M.L. , Naidoo , J.R. and Makoae , L.N. 2007 . Verbal and physical abuse and neglect as manifestations of HIV/AIDS stigma in five African countries . Public Health Nursing , 24 ( 5 ) : 389 – 399 .
   PubMed Web of Science ®Google Scholar
• Engler , P. , Anderson , B. , Herman , D. , Bishop , D. , Miller , I. , Pirraglia , P. and Stein , M. 2006 . Coping and burden among informal HIV caregivers . Psychosomatic Medicine , 68 ( 6 ) : 985 – 992 .
   PubMed Web of Science ®Google Scholar
• Flaskerud , J.H. and Tabora , B. 1998 . Health problems of low-income female caregivers of adults with HIV/AIDS . Health Care for Women International , 19 ( 1 ) : 23 – 36 .
   PubMedGoogle Scholar
• Fox , S. , Fawcett , C. , Kelly , K. and Ntlabati , P. 2002 . Integrated community-based home care (ICHC) in South Africa: A review of the model implemented by the Hospice Association of South Africa , Cape Town : Center for AIDS Development, Research and Evaluation (Cadre) .
   Google Scholar
• Goffman , E. 1963 . Stigma: Notes on the management of spoiled identity , Englewood Cliffs , MJ : Prentice Hall .
   Google Scholar
• Harding , R. , Karus , D. , Easterbrook , P. , Raveis , V.H. , Higginson , I.J. and Marconi , K. 2005 . Does palliative care improve outcomes for patients with HIV/AIDs? A systematic review of the evidence . Sexually Transmitted Infections , 81 : 5 – 14 .
   PubMed Web of Science ®Google Scholar
• Holzemer , W.L. , Uys , L. , Makoae , L. , Stewart , A. , Phetlhu , R. , Dlamini , P.S. and Naidoo , J. 2007 . A conceptual model of HIV/AIDS stigma from five African countries . Journal of Advanced Nursing , 58 ( 6 ) : 541 – 551 .
   PubMed Web of Science ®Google Scholar
• Kalichman , S.C. , DiMarco , M. , Austin , J. , Luke , W. and DiFonzo , K. 2003 . Stress, social support, and HIV-status disclosure to family and friends among HIV-positive men and women . Journal of Behavioral Medicine , 26 ( 4 ) : 315 – 332 .
   PubMed Web of Science ®Google Scholar
• Kalichman , S.C. , Simbayi , L.C. , Jooste , S. , Toefy , Y. , Cain , D. , Cherry , C. and Kagee , A. 2005 . Development of a brief scale to measure AIDS-related stigma in South Africa . AIDS and Behavior , 9 ( 2 ) : 135 – 143 .
   PubMed Web of Science ®Google Scholar
• Kipp , W. , Matukala , N.T. , Laing , L. and Jhangri , G.S. 2006 . Care burden and self-reported health status of informal women caregivers of HIV/AIDS patients in Kinshasa, Democratic Republic of Congo . AIDS Care , 18 ( 7 ) : 694 – 697 .
   PubMed Web of Science ®Google Scholar
• Kipp , W. , Tindyebwa , D. , Rubaale , T. , Karamagi , E. and Bajenja , E. 2007 . Family caregivers in rural Uganda: The hidden reality . Health Care for Women International , 28 ( 10 ) : 856 – 871 .
   PubMedGoogle Scholar
• Land , H. and Hudson , S.M. 2004 . Stress, coping, and depressive symptomatology in Latina and Anglo aids caregivers . Psychology & Health , 19 ( 5 ) : 643 – 666 .
   Web of Science ®Google Scholar
• Lindsey , E. , Hirschfeld , M. and Tlou , S. 2003 . Home-based care in Botswana: Experiences of older women and young girls . Health Care for Women International , 24 ( 6 ) : 486 – 501 .
   PubMedGoogle Scholar
• Mwinituo , P.P. and Mill , J.E. 2006 . Stigma associated with Ghanaian caregivers of AIDS patients . Western Journal of Nursing Research. , 28 ( 4 ) : 369 – 382 .
   PubMed Web of Science ®Google Scholar
• Ngamvithayapong , J. , Yanai , H. , Winkvist , A. , Saisorn , S. and Diwan , V. 2001 . Feasibility of home-based and health centre-based DOT: Perspectives of TB care providers and clients in an HIV-endemic area of Thailand . The International Journal of Tuberculosis and Lung Disease , 5 ( 8 ) : 741 – 745 .
   PubMed Web of Science ®Google Scholar
• Okello , D. , Floyd , K. , Adatu , F. , Odeke , R. , & Gargioni , G. ( 2003 ). Cost and cost-effectiveness of community-based care for tuberculosis patients in rural Uganda . The International Journal of Tuberculosis and Lung Diseases , 7 ( 9 Suppl. 1 ), S72 – S79 .
   PubMed Web of Science ®Google Scholar
• Pirraglia , P.A. , Bishop , D. , Herman , D.S. , Trisvan , E. , Lopez , R.A. , Torgersen , C.S. and Stein , M.D. 2005 . Caregiver burden and depression among informal caregivers of HIV-infected individuals . Journal of General Internal Medicine , 20 ( 6 ) : 510 – 514 .
   PubMed Web of Science ®Google Scholar
• Powell-Cope , G.M. and Brown , M.A. 1992 . Going public as an AIDS family caregiver . Social Science and Medicine , 34 : 571 – 580 .
   PubMed Web of Science ®Google Scholar
• Prachakul , W. and Grant , J.S. 2003 . Informal caregivers of persons with HIV/AIDS: A review and analysis . Journal of the Association of Nurses in AIDS Care , 14 ( 3 ) : 55 – 71 .
   PubMedGoogle Scholar
• Russel , M. and Schneider , H. 2000 . A rapid appraisal of community based HIV/AIDS care and support programs in South Africa , Johannesburg : Center for Health Policy, University of Witwatersrand .
   Google Scholar
• Sen , S. and Srivastava , M. 1990 . Regression analysis: Theory, methods, and application , New York : Springer-Verlag .
   Google Scholar
• Uys , L.R. 2002 . The practice of community caregivers in a home-based HIV/AIDS project in South Africa . Journal of Clinical Nursing , 11 ( 1 ) : 99 – 108 .
   PubMed Web of Science ®Google Scholar
• WHO . ( 2008 ). Towards universal access: Scaling up priority HIV/AIDS interventions in health sector, progress report, June 2008 . Geneva , , Switzerland : Author .
   Google Scholar
• Wight , R.G. , Beals , K.P. , Miller-Martinez , D. , Murphy , D.A. and Aneshensel , C.S. 2007 . HIV-related traumatic stress symptoms in AIDS caregiving family dyads . AIDS Care , 19 ( 7 ) : 901 – 909 .
   PubMed Web of Science ®Google Scholar
• Wight , R.G. , LeBlanc , A.J. and Aneshensel , C.S. 1998 . AIDS caregiving and health among midlife and older women . Health Psychology , 17 ( 2 ) : 130 – 137 .
   PubMed Web of Science ®Google Scholar
• Yaima , N. , Ningthouja , S. , Sharma , D. , Bijaya , L. , Shyamkanhai , K. , Narendra , P. and Agarwal , A.K. 1995 . Lessons from home based care for persons affecting with HIV and AIDS . Indian Journal of Public Health , 39 ( 3 ) : 113 – 115 .
   PubMedGoogle Scholar
• Zarit , S. , & Zarit , J.M. ( 1990 ). The memory and behavior problems checklist and the burden interview . Pennsylvania : Pennsylvania State University Gerontology Center .
   Google Scholar