Theoretical models of parental HIV disclosure: A critical review

References

• Antle , B.J. , Wells , L.M. , Goldie , R.S. , DeMatteo , D. and King , S.M. 2001 . Challenges of parenting for families living with HIV/AIDS . Social Work , 46 ( 2 ) : 159 – 169 .
   PubMed Web of Science ®Google Scholar
• Armistead , L. , Klein , K. , Forehand , R. , & Wierson , M. 1997 . Disclosure of parental HIV infection to children in the families of men with hemophilia: Description, outcomes, and the role of family processes . Journal of Family Psychology , 11 ( 1 ), 49 – 61 . doi: 10.1037/0893-3200.11.1.49
   Web of Science ®Google Scholar
• Armistead , L. , Morse , E. , Forehand , R. , Morse , P. , & Clark , L. 1999 . African-American women and self-disclosure of HIV infection: Rates, predictors, and relationship to depressive symptomatology . AIDS and Behavior , 3 ( 3 ), 195 – 204 . doi: 10.1023/A:1025400410099
   Google Scholar
• Armistead , L. , Tannenbaum , L. , Forehand , R. , Morse , E. and Morse , P. 2001 . Disclosing HIV status: Are mothers telling their children? . Journal of Pediatric Psychology , 26 ( 1 ) : 11 – 20 .
   PubMed Web of Science ®Google Scholar
• Babcock , J. 1998 . “ Involving family and significant others in acute care ” . In HIV and social work , Edited by: Aronstein , D. and Thompson , B. 101 – 108 . Binghamton , NY : Harrington .
   Google Scholar
• Bairan , A. , Taylor , G. , Blake , B.J. , Akers , T. , Sowell , R. and Mendiola , R. 2007 . A model of HIV disclosure: Disclosure and types of social relationships . Journal of the American Academy of Nurse Practitioners , 19 : 242 – 250 .
   PubMed Web of Science ®Google Scholar
• Baxter , L.A. and Montgomery , B.M. 1996 . Relating: Dialogues and dialectics , New York , NY : Guilford .
   Google Scholar
• Baxter , L.A. and Sahlstein , E.M. 2000 . “ Some possible directions for future research ” . In Balancing the secrets of private disclosures , Edited by: Petronio , S. 289 – 300 . Mahwah , NJ : Lawrence Erlbaum Associates .
   Google Scholar
• Bikaako-Kajura , W. , Luyirika , E. , Purcell , D.W. , Downing , J. , Kaharuza , F. , Mermin , J. , Bunnell , R. 2006 . Disclosure of HIV status and adherence to daily drug regimens among HIV-infected children in Uganda . AIDS and Behavior , 10 ( Suppl. 4 ), S85 – 93 . doi: doi: 10.1007/s10461-006-9141-3
   PubMed Web of Science ®Google Scholar
• Bird , J. and Voisin , D.R. 2010 . A conceptual model of HIV disclosure in casual sexual encounters among men who have sex with men . Journal of Health Psychology , 16 ( 2 ) : 365 – 373 .
   PubMed Web of Science ®Google Scholar
• Blasini , I. , Chantry , C. , Cruz , C. , Ortiz , L. , Salabarria , I. , Scalley , N. , Diaz , C. 2004 . Disclosure model for pediatric patients living with HIV in Puerto Rico: Design, implementation, and evaluation . Journal of Developmental and Behavioral Pediatrics , 25 ( 3 ), 181 – 189 . 00004703-200406000-00007 [pii]
   PubMed Web of Science ®Google Scholar
• Chaudoir , S.R. and Fisher , J.D. 2010 . The disclosure processes model: Understanding disclosure decision-making and post-disclosure outcomes among people living with a concealable stigmatized identity . Psychological Bulletin , 136 ( 2 ) : 236 – 256 .
   PubMed Web of Science ®Google Scholar
• Chaudoir , S.R. , Fisher , J.D. , & Simoni , J.M. 2011 . Understanding HIV disclosure: A review and application of the disclosure processes model . Social Science and Medicine , 72 ( 10 ), 1618 – 1629 . S0277-9536(11)00191-2 [pii] doi: 10.1016/j.socscimed.2011.03.028
   PubMed Web of Science ®Google Scholar
• Cohn , D.L. , Miller , L.A. , Yamaguchi , K.J. and Douglas , J.M. 1992 . Denver's increase in HIV counseling after Magic Johnson's HIV disclosure . American Journal of Public Health , 82 ( 12 ) : 1692
   PubMed Web of Science ®Google Scholar
• Corona , R. , Beckett , M.K. , Cowgill , B.O. , Elliott , M.N. , Murphy , D.A. , Zhou , A.J. , & Schuster , M.A. 2006 . Do children know their parent's HIV status? Parental reports of child awareness in a nationally representative sample . Ambulatory Pediatrics , 6 ( 3 ), 138 – 144 . S1530-1567(06)00062-1 [pii] doi: 10.1016/j.ambp.2006.02.005
   PubMedGoogle Scholar
• Dane , B. 2002 . Disclosure: The voices of Thai women living with HIV/AIDS . International Social Work , 45 ( 2 ), 185 – 204 . doi: 10.1177/0020872802045002323
   Web of Science ®Google Scholar
• Datye , V. , Kielmann , K. , Sheikh , K. , Deshmukh , D. , Deshpande , S. , Porter , J. , & Rangan , S. 2006 . Private practitioners' communications with patients around HIV testing in Pune, India . Health Policy Plan , 21 ( 5 ), 343 – 352 . 21/5/343 [pii] doi: 10.1093/heapol/czl021
   PubMed Web of Science ®Google Scholar
• DeBaets , A.J. , Sifovo , S. , Parsons , R. , & Pazvakavambwa , I.E. 2008 . HIV disclosure and discussions about grief with Shona children: A comparison between health care workers and community members in Eastern Zimbabwe . Social Science and Medicine , 66 ( 2 ), 479 – 491 . S0277-9536(07)00482-0 [pii] doi: 10.1016/j.socscimed.2007.08.028
   PubMed Web of Science ®Google Scholar
• Dematteo , D. , Harrison , C. , Arneson , C. , Goldie , R.S. , Lefebvre , A. , Read , S.E. and King , S.M. 2002 . Disclosing HIV/AIDS to children: The paths families take to truthtelling. Psychology . Health & Medicine , 7 ( 3 ) : 339 – 356 .
   Google Scholar
• Derlega , V.J. , Winstead , B.A. , Greene , K. , Serovich , J.M. and Elwood , W.N. 2004 . Reasons for HIV disclosure/nondisclosure in close relationships: Testing a model of HIV-disclosure decision making . Journal of Social and Clinical Psychology , 23 ( 6 ) : 747 – 767 .
   Web of Science ®Google Scholar
• Ehde , D.M. , Holm , J.E. , & Robbins , G.M. 1995 . The impact of Magic Johnson's HIV serostatus disclosure on unmarried college students’ HIV knowledge, attitudes, risk perception, and sexual behavior . Journal of American College Health , 44 ( 2 ), 55 – 58 . doi: 10.1080/07448481.1995.9937512
   PubMed Web of Science ®Google Scholar
• Emlet , C.A. 2006 . A comparison of HIV stigma and disclosure patterns between older and younger adults living with HIV/AIDS . AIDS Patient Care and STDS , 20 ( 5 ), 350 – 358 . doi: 10.1089/apc.2006.20.350
   PubMed Web of Science ®Google Scholar
• Emlet , C.A. 2008 . Truth and consequences: A qualitative exploration of HIV disclosure in older adults . AIDS Care , 20 ( 6 ), 710 – 717 . 794404774 [pii] doi: 10.1080/09540120701694014
   PubMed Web of Science ®Google Scholar
• Enger , C. , Graham , N. , Peng , Y. , Chmiel , J.S. , Kingsley , L.A. , Detels , R. and Muñoz , A. 1996 . Survival from early, intermediate, and late stages of HIV infection . Journal of the American Medical Association , 275 ( 17 ) : 1329 – 1334 .
   Web of Science ®Google Scholar
• Garcia , J.A. , & Crocker , J. 2008 . Reasons for disclosing depression matter: The consequences of having egosystem and ecosystem goals . Social Science and Medicine , 67 ( 3 ), 453 – 462 . S0277-9536(08)00149-4 [pii] doi: 10.1016/j.socscimed.2008.03.016
   PubMed Web of Science ®Google Scholar
• Gergen , K. 1994 . Realities and relationships: Soundings in social construction , Cambridge , MA : Harvard University Press .
   Google Scholar
• Greene , K. , Derlega , V.J. and Mathews , A. 2006 . “ Self-disclosure in personal relationship ” . In Cambridge handbook of personal relationships , Edited by: Vangelisti , A. and Perlman , D. 409 – 427 . Cambridge , , UK : Cambridge University Press .
   Google Scholar
• Hawk , S.T. 2007 . Disclosures of maternal HIV infection to seronegative children: A literature review . Journal of Social and Personal Relationships , 24 ( 5 ), 657 – 673 . doi: 10.1177/0265407507081453
   Web of Science ®Google Scholar
• Kalichman , S.C. and Hunter , T.L. 1992 . The disclosure of celebrity HIV infection: Its effects on public attitudes . American Journal of Public Health , 82 ( 10 ) : 1374 – 1376 .
   PubMed Web of Science ®Google Scholar
• Kennedy , D.P. , Cowgill , B.O. , Bogart , L.M. , Corona , R. , Ryan , G.W. , Murphy , D.A. , Schuster , M.A. 2010 . Parents' disclosure of their HIV infection to their children in the context of the family . AIDS and Behavior , 14 ( 5 ), 1095 – 1105 . doi: 10.1007/s10461-010-9715-y
   PubMed Web of Science ®Google Scholar
• Kirshenbaum , S.B. and Nevid , J.S. 2002 . The specificity of maternal disclosure of HIV/AIDS in relation to children's adjustment . AIDS Education and Prevention , 14 ( 1 ) : 1 – 16 .
   PubMed Web of Science ®Google Scholar
• Kubler-Ross , E. 1969 . On death and dying , New York , NY : Scribner .
   Google Scholar
• LCS Associates . 1994 . Report on the lives of Chicago women and children living with HIV infection , Chicago , IL : Department of Children and Family Services .
   Google Scholar
• Lee , M.B. and Rotheram-Borus , M.J. 2002 . Parents' disclosure of HIV to their children . AIDS , 16 ( 16 ) : 2201 – 2207 .
   PubMed Web of Science ®Google Scholar
• Mason , H.R. , Marks , G. , Simoni , J.M. , Ruiz , M.S. and Richardson , J.L. 1995 . Culturally sanctioned secrets? Latino men's nondisclosure of HIV infection to family, friends, and lovers . Health Psychology , 14 ( 1 ) : 6 – 12 .
   PubMed Web of Science ®Google Scholar
• Mellins , C.A. , Brackis-Cott , E. , Dolezal , C. , Leu , C.S. , Valentin , C. , & Meyer-Bahlburg , H.F. 2008 . Mental health of early adolescents from high-risk neighborhoods: The role of maternal HIV and other contextual, self-regulation, and family factors . Journal of Pediatric Psychology , 33 ( 10 ), 1065 – 1075 . jsn004 [pii] doi: 10.1093/jpepsy/jsn004
   PubMed Web of Science ®Google Scholar
• Mobeireek , A.F. , Al-Kassimi , F. , Al-Zahrani , K. , Al-Shimemeri , A. , al-Damegh , S. , Al-Amoudi , O. , Gamal-Eldin , M. 2008 . Information disclosure and decision-making: The Middle East versus the Far East and the West . Journal of Medicine and Ethics , 34 ( 4 ), 225 – 229 . 34/4/225 [pii] doi: 10.1136/jme.2006.019638
   PubMed Web of Science ®Google Scholar
• Murphy , D.A. 2008 . HIV-positive mothers’ disclosure of their serostatus to their young children: A review . Clinical Child Psychology and Psychiatry , 13 ( 1 ) : 105 – 122 .
   PubMedGoogle Scholar
• Murphy , D.A. , Marelich , W.D. , & Amaro , H. 2009 . Maternal HIV/AIDS and adolescent depression: A covariance structure analysis of the “Parents and Adolescents Coping Together” (PACT) model . Vulnerable Child Youth Studies , 4 ( 1 ), 67 – 82 . doi: 10.1080/17450120802385729
   PubMedGoogle Scholar
• Murphy , D.A. , Marelich , W.D. , & Hoffman , D. 2002 . A longitudinal study of the impact on young children of maternal HIV serostatus disclosure . Clinical Child Psychology and Psychiatry , 7 ( 1 ), 55 – 70 . doi: 10.1177/1359104502007001005
   Google Scholar
• Murphy , D.A. , Roberts , K.J. , & Hoffman , D. 2002 . Stigma and ostracism associated with HIV/AIDS: Children carrying the secret of their mothers’ HIV+ serostatus . Journal of Child and Family Studies , 11 ( 2 ), 191 – 202 . doi: 10.1023/A:1015177609382
   Google Scholar
• Murphy , D.A. , Roberts , K.J. , & Hoffman , D. 2003 . Regrets and advice from Mothers who have disclosed their HIV + serostatus to their young children . Journal of Child and Family Studies , 12 ( 3 ), 307 – 318 . doi: 10.1023/A:1023939827449
   Google Scholar
• Murphy , D.A. , Steers , W.N. and DelloStritto , M.E. 2001 . Maternal disclosure of mothers’ HIV serostatus to their young children . Journal of Family Psychology , 15 ( 3 ) : 441 – 450 .
   PubMed Web of Science ®Google Scholar
• Nam , S.L. , Fielding , K. , Avalos , A. , Gaolathe , T. , Dickinson , D. , & Geissler , P.W. 2009 . Discussing matters of sexual health with children: What issues relating to disclosure of parental HIV status reveal . AIDS Care , 21 ( 3 ), 389 – 395 . 909439661 [pii] doi: 10.1080/09540120802270276
   PubMed Web of Science ®Google Scholar
• Nöstlinger , C. , Bartoli , G. , Gordillo , V. , Roberfroid , D. , & Colebunders , R. 2006 . Children and adolescents living with HIV positive parents: Emotional and behavioural problems . Vulnerable Children and Youth Studies , 1 ( 1 ), 29 – 43 . doi: 10.1080/17450120600659036
   Google Scholar
• Nostlinger , C. , Jonckheer , T. , DeBelder , E. , VanWijngaerden , E. , Wylock , C. , Pelgrom , J. , & Colebunders , R. 2004 . Families affected by HIV: Parents' and children's characteristics and disclosure to the children . AIDS Care , 16 ( 5 ), 641 – 648 . doi: 10.1080/09540120410001716432WECGHW1A541N69AD [pii]
   PubMed Web of Science ®Google Scholar
• Obermeyer , C.M. , Baijal , P. , & Pegurri , E. 2011 . Facilitating HIV disclosure across diverse settings: A review . American Journal of Public Health , 101 ( 6 ), 1011 – 1023 . AJPH.2010.300102 [pii] doi: 10.2105/AJPH.2010.300102
   PubMed Web of Science ®Google Scholar
• Omarzu , J. 2000 . A disclosure decision model: Determining how and when individuals will self-disclose . Personality and Social Psychology Review , 4 ( 2 ) : 174 – 185 .
   Web of Science ®Google Scholar
• Ontario HIV Treatment Network Rapid Response Service . 2010 . HIV disclosure rapid review . Toronto , ON : Ontario HIV Treatment Network .
   Google Scholar
• Palin , F.L. , Armistead , L. , Clayton , A. , Ketchen , B. , Lindner , G. , Kokot-Louw , P. , & Pauw , A. 2009 . Disclosure of maternal HIV-infection in South Africa: Description and relationship to child functioning . AIDS and Behavior , 13 ( 6 ), 1241 – 1252 . doi: 10.1007/s10461-008-9447-4
   PubMed Web of Science ®Google Scholar
• Petronio , S. 2000 . Balancing the secrets of private disclosures . Mahwah , NJ : Lawrence Erlbaum Associates .
   Google Scholar
• Pilowsky , D.J. , Sohler , N. , & Susser , E. 2000 . Reasons given for disclosure of maternal HIV status to children . Journal of Urban Health , 77 ( 4 ), 723 – 734 . doi: 10.1007/BF02344033
   PubMed Web of Science ®Google Scholar
• Qiao , S. , Li , X. , & Stanton , B. 2011 . Disclosure of parental HIV infection to children: A systematic review of global literature . AIDS and Behavior . doi: 10.1007/s10461-011-0069-x
   Google Scholar
• Rotheram-Borus , M.J. , Draimin , B.H. , Reid , H.M. and Murphy , D.A. 1997 . The impact of illness disclosure and custody plans on adolescents whose parents live with AIDS . AIDS , 11 ( 9 ) : 1159 – 1164 .
   PubMed Web of Science ®Google Scholar
• Rwemisisi , J. , Wolff , B. , Coutinho , A. , Grosskurth , H. , & Whitworth , J. 2008 . ‘What if they ask how I got it?’ Dilemmas of disclosing parental HIV status and testing children for HIV in Uganda . Health Policy Plan , 23 ( 1 ), 36 – 42 . 23/1/36 [pii] doi: 10.1093/heapol/czm040
   PubMed Web of Science ®Google Scholar
• Sampson , E.E. 1993 . Celebrating the other: A dialogic account of human nature , Boulder , CO : Westview Press .
   Google Scholar
• Schrimshaw , E.W. , & Siegel , K. 2002 . HIV-infected mothers’ disclosure to their uninfected children: Rates, reasons, and reactions . Journal of Social and Personal Relationships (Special Issue: Personal and Social Relationships of Individuals Living with HIV and/or AIDS) , 19 ( 1 ), 19 – 44 . doi: 10.1177/0265407502191002
   Web of Science ®Google Scholar
• Seidel , G. 1996 . Confidentiality and HIV status in Kwazulu-Natal, South Africa: Implications, resistances and challenges . Health Policy Plan , 11 ( 4 ) : 418 – 427 .
   PubMed Web of Science ®Google Scholar
• Serovich , J.M. 2001 . A test of two HIV disclosure theories . AIDS Education and Prevention , 13 ( 4 ) : 355 – 364 .
   PubMed Web of Science ®Google Scholar
• Shaffer , A. , Jones , D.J. , Kotchick , B.A. , Forehand , R. , Armistead , L. , Morse , E. , & Morse , P.S. 2001 . Telling the children: Disclosure of maternal HIV infection and its effects on child psychosocial adjustment . Journal of Child and Family Studies , 10 ( 3 ), 301 – 313 . doi: doi: 10.1023/A:1012502527457
   Google Scholar
• Stenger , C.E. 1996 . Taking Tarasoff where no one has gone before: Looking at “duty to warn” under the AIDS crisis . St Louis University Public Law Review , 15 ( 2 ) : 471 – 504 .
   PubMedGoogle Scholar
• Tasker , M. 1992 . How can I tell you? Secrecy and disclosure with children when a family member has AIDS , Bethesda , MD : Association for the Care of Children's Health .
   Google Scholar
• Thomas , B. , Nyamathi , A. , & Swaminathan , S. 2009 . Impact of HIV/AIDS on mothers in Southern India: A qualitative study . AIDS and Behavior , 13 ( 5 ), 989 – 996 . doi: 10.1007/s10461-008-9478-x
   PubMed Web of Science ®Google Scholar
• Thorne , C. , Newell , M.L. and Peckham , C.S. 2000 . Disclosure of diagnosis and planning for the future in HIV-affected families in Europe . Child Care Health and Development , 26 ( 1 ) : 29 – 40 .
   PubMed Web of Science ®Google Scholar
• Tompkins , T.L. 2007 . Disclosure of maternal HIV status to children: To tell or not to tell … That is the question . Journal of Child and Family Studies , 16 ( 6 ), 773 – 788 . doi: 10.1007/s10826-006-9124-z
   Google Scholar
• Vallerand , A.H. , Hough , E. , Pittiglio , L. , & Marvicsin , D. 2005 . The process of disclosing HIV serostatus between HIV-positive mothers and their HIV-negative children . AIDS Patient Care and STDS , 19 ( 2 ), 100 – 109 . doi: 10.1089/apc.2005.19.100
   PubMed Web of Science ®Google Scholar
• Vira , R. 2004 . Cross-cultural study on HIV-positive Indian and American men on disclosure, perceived social support and psychological well-being: Implications for marriage and family therapists (Doctor of Philosophy) . Ohio State University , Mansfield .
   Google Scholar
• Waddell , E.N. and Messeri , P.A. 2006 . Social support, disclosure, and use of antiretroviral therapy . AIDS and Behavior , 10 : 263 – 272 .
   PubMed Web of Science ®Google Scholar
• Wiener , L.S. , Battles , H.B. and Heilman , N.E. 1998 . Factors associated with parents' decision to disclose their HIV diagnosis to their children . Child Welfare , 77 ( 2 ) : 115 – 135 .
   PubMed Web of Science ®Google Scholar
• World Health Organization . 2011 . Guideline on HIV disclosure counselling for children up to 12 years of age . Geneva : WHO .
   Google Scholar
• Woodring , L.A. , Cancelli , A.A. , Ponterotto , J.G. , & Keitel , M.A. 2005 . A qualitative investigation of adolescents’ experiences with parental HIV/AIDS . American Journal of Orthopsychiatry , 75 ( 4 ), 658 – 675 . 2005-13342-018 [pii] doi: 10.1037/0002-9432.75.4.658
   PubMed Web of Science ®Google Scholar
• Wouters , E. , Meulemans , H. , & VanRensburg , H.C. 2009 . Slow to share: Social capital and its role in public HIV disclosure among public sector ART patients in the Free State province of South Africa . AIDS Care , 21 ( 4 ), 411 – 421 . 909274129 [pii] doi: 10.1080/09540120802242077
   PubMed Web of Science ®Google Scholar
• Xu , T. , Wu , Z. , Rou , K. , Duan , S. and Wang , H. 2010 . Quality of life of children living in HIV/AIDS-affected families in rural areas in Yunnan, China . AIDS Care , 22 ( 3 ) : 390 – 396 .
   PubMed Web of Science ®Google Scholar
• Yoshioka , M.R. and Schustack , A. 2001 . Disclosure of HIV status: Cultural issues of Asian patients . AIDS Patient Care and STDs , 15 ( 2 ) : 77 – 82 .
   PubMed Web of Science ®Google Scholar
• Zea , M.C. , Reisen , C.A. , Poppen , P.J. , Bianchi , F.T. and Echeverry , J.J. 2007 . Predictors of disclosure of human immunovirus-positive serostatus among Latino gay men . Cultural Diversity and Ethnic Minority Psychology , 13 ( 4 ) : 304 – 312 .
   PubMed Web of Science ®Google Scholar