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AIDS Care
Psychological and Socio-medical Aspects of AIDS/HIV
Volume 25, 2013 - Issue 4
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ORIGINAL ARTICLES

Caregiver's HIV disclosure to children 12 years and under: A review and analysis of the evidence

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Pages 415-429 | Received 19 Jan 2012, Accepted 09 Jul 2012, Published online: 13 Aug 2012

References

  • Armistead , L. , Klein , K. and Forehand , R. 1995 . Parental physical illness and child functioning . Clinical Psychology Review , 15 ( 5 ) : 409 – 422 .
  • Armistead , L. , Tannenbaum , L. , Forehand , R. , Morse , E. and Morse , P. 2001 . Disclosing HIV status: Are mothers telling their children? . Journal of Pediatric Psychology , 26 ( 1 ) : 11 – 20 .
  • Asander , A.S. , Bjorkman , A. , Belfrage , E. and Faxelid , E. 2009 . HIV-infected African parents living in Stockholm, Sweden: Disclosure and planning for their children's future . Health & Social Work , 34 ( 2 ) : 107 – 115 .
  • Bauman , L.J. , Camacho , S. , Silver , E.J. , Hudis , J. and Draimin , B. 2002 . Behavioral problems in school-aged children of mothers with HIV/AIDS . Clinical Child Psychology and Psychiatry , 7 ( 1 ) : 39 – 54 .
  • Cluver , L. and Orkin , M. 2009 . Cumulative risk and AIDS-orphanhood – Interactions of stigma, bullying and poverty on child mental health in South Africa . Social Science and Medicine , 69 ( 8 ) : 1186 – 1193 .
  • De Baets , A.J. 2008 . Content analysis of WHO documents about HIV counselling and testing for infants, children and adolescents. World Health Organization internal scoping report , unpublished .
  • Delaney , R.O. , Serovich , J.M. and Lim , J.Y. 2008 . Reasons for and against maternal HIV disclosure to children and perceived child reaction . AIDS Care , 20 ( 7 ) : 876 – 880 .
  • Delaney , R.O. , Serovich , J.M. and Lim , J.Y. 2009 . Psychological differences between HIV-positive mothers who disclose to all, some, or none of their biological children . Journal of Marital and Family Therapy , 35 ( 2 ) : 175 – 180 .
  • Delva , W. , Vercoutere , A. , Loua , C. , Lamah , J. , Vansteelandt , S. , De Koker , P. and Annemans , L. 2009 . Psychological well-being and socio-economic hardship among AIDS orphans and other vulnerable children in Guinea . AIDS Care , 21 ( 12 ) : 1490 – 1498 .
  • DeMatteo , D. , Wells , L.M. , Goldie , R.S. and King , S.M. 2002 . The ‘family’ context of HIV: A need for comprehensive health and social policies . AIDS Care , 14 ( 2 ) : 261 – 268 .
  • Evans , M. , Cohen , C. , Shidlo , A. and Decaprariis , P.J. 1994 . Counselling HIV-negative children of parents with HIV disease – A structured protocol . AIDS Patient Care , 8 ( 1 ) : 16 – 19 .
  • Fang , F. , Li , X. , Stanton , B. , Hong , Y. , Zhang , L. , Zhao , G. and Lin , D. 2009 . Parental HIV/AIDS and psychosocial adjustment among rural Chinese children . Journal of Pediatric Psychology , 34 ( 10 ) : 1053 – 1062 .
  • Gelder , M.G. , Andreasen , N.C. , Lopez-Ibor , J.J. , & Geddes , J.R. . 2009 . The new Oxford textbook of psychiatry , 2nd ed . Oxford : Oxford University Press .
  • Higgins , J.P.T. and Green , S. 2008 . The Cochrane handbook for systematic reviews of interventions , West Sussex : Wiley Blackwell .
  • Ishikawa , N. , Pridmore , P. , Carr-Hill , R. and Chaimuangdee , K. 2010 . Breaking down the wall of silence around children affected by AIDS in Thailand to support their psychosocial health . AIDS Care , 22 ( 3 ) : 308 – 313 .
  • Jones , D.J. , Foster , S.E. , Zalot , A.A. , Chester , C. and King , A. 2007 . Knowledge of maternal HIV/AIDS and child adjustment: The moderating role of children's relationships with their mothers . AIDS & Behavior , 11 ( 3 ) : 409 – 420 .
  • Kalichman , S.C. , DiMarco , M. , Austin , J. , Luke , W. and DiFonzo , K. 2003 . Stress, social support, and HIV-status disclosure to family and friends among HIV-positive men and women . Journal of Behavioral Medicine , 26 ( 4 ) : 315 – 332 .
  • Kmita , G. and Baranska , M. 2004 . The process of disclosure of an HIV/AIDS problem in the family to children – An exploratory study . Medycyna Wieku Rozwojowego , 8 ( 3 Pt 1 ) : 623 – 640 .
  • Krauss , B. , Godfrey , C. , O'Day , J. and Freidin , E. 2006 . Hugging my uncle: The impact of a parent training on children's comfort interacting with persons with HIV . Journal of Pediatric Psychology , 31 ( 9 ) : 891 – 904 .
  • Lee , M.B. and Rotheram-Borus , M.J. 2002 . Parents’ disclosure of HIV to their children . AIDS , 16 ( 16 ) : 2201 – 2207 .
  • Letteney , S. 2006 . Mothers disclosure of maternal HIV status to children: Key psychosocial correlates . Journal of HIV/AIDS & Social Services , 5 ( 1 ) : 67 – 84 .
  • Li , X.M. , Barnett , D. and Fang , X.Y. 2009 . Lifetime incidences of traumatic events and mental health among children affected by HIV/AIDS in rural China . Journal of Clinical Child and Adolescent Psychology , 38 ( 5 ) : 731 – 744 .
  • Mbaye , N. , Rosenberg , A. , Diouf , S. , Diouf , M. , Ntumbanzondo , M. , Ndiour , A. and Hartwig , Kari A. 2009 . Providing comprehensive care to children living with human immunodeficiency virus in Senegal . Vulnerable Children and Youth Studies , 4 ( 4 ) : 353 – 360 .
  • Mellins , C.A. , Brackis-Cott , E. , Dolezal , C. , Richards , A. , Nicholas , S.W. and Abrams , E.J. 2002 . Patterns of status disclosure to perinatally HIV-infected children and subsequent mental health outcomes . Clinical Child Psychology and Psychiatry , 7 ( 1 ) : 101 – 114 .
  • Murphy , D.A. , Marelich , W.D. and Hoffman , D. 2002 . A longitudinal study of the impact on young children of maternal HIV serostatus disclosure . Clinical Child Psychology and Psychiatry , 7 ( 1 ) : 55 – 70 .
  • Murphy , D.A. , Roberts , K.J. and Hoffman , D. 2006 . Young children's reactions to mothers’ disclosure of maternal HIV+ serostatus . Journal of Child and Family Studies , 15 ( 1 ) : 39 – 56 .
  • Murphy , D.A. , Steers , W.N. and Dello Stritto , M.E. 2001 . Maternal disclosure of mothers’ HIV serostatus to their young children . Journal of Family Psychology , 15 ( 3 ) : 441 – 450 .
  • Nelms , T.P. and Zeigler , V.L. 2008 . A study to develop a disclosure to children intervention for HIV-infected women . Journal of the Association of Nurses in AIDS Care , 19 ( 6 ) : 461 – 469 .
  • Nostlinger , C. , Bartoli , G. , Gordillo , V. , Roberfroid , D. and Colebunders , R. 2006 . Children and adolescents living with HIV positive parents: Emotional and behavioural problems . Vulnerable Children and Youth Studies , 1 ( 1 ) : 29 – 43 .
  • Oberdorfer , P. , Puthanakit , T. , Louthrenoo , O. , Charnsil , C. , Sirisanthana , V. and Sirisanthana , T. 2006 . Disclosure of HIV/AIDS diagnosis to HIV-infected children in Thailand . Journal of Paediatrics & Child Health , 42 ( 5 ) : 283 – 288 .
  • Osborne , M.L. , Kistner , J.A. and Helgemo , B. 1993 . Developmental progression in children's knowledge of AIDS: Implications for education and attitudinal change . Journal of Pediatric Psychology , 18 ( 2 ) : 177 – 192 .
  • Ostrom , R.A. , Serovich , J.M. , Lim , J.Y. and Mason , T.L. 2006 . The role of stigma in reasons for HIV disclosure and non-disclosure to children . AIDS Care , 18 ( 1 ) : 60 – 65 .
  • Palin , F.L. , Armistead , L. , Clayton , A. , Ketchen , B. , Lindner , G. , Kokot-Louw , P. and Pauw , A. 2009 . Disclosure of maternal HIV-infection in South Africa: Description and relationship to child functioning . AIDS and Behavior , 13 ( 6 ) : 1241 – 1252 .
  • Pequegnat , W. , Bauman , L.J. and Bray , J.H. 2001 . Measurement of the role of families in prevention and adaptation to HIV/AIDS . AIDS and Behavior , 5 ( 1 ) : 1 – 19 .
  • Pequegnat , W. 2002 . Research issues with children infected and affected with HIV and their families . Clinical Child Psychology and Psychiatry , 7 ( 1 ) : 7 – 15 . The NIMH Consortium on Family and HIV/AIDS Research
  • Pequegnat , W. and Szapocznik , J. 2000 . “ The role of families in preventing and adapting to HIV/AIDS ” . In Working with families in the Era of HIV/AIDS , Edited by: Pequegnat , W. and Szapocznik , J. 3 – 26 . Thousand Oaks , CA : Sage .
  • Polisset , J. , Ametonou , F. , Arrive , E. , Aho , A. and Perez , F. 2009 . Correlates of adherence to antiretroviral therapy in HIV-infected children in Lom, Togo, West Africa . AIDS and Behavior , 13 ( 1 ) : 23 – 32 .
  • Rios , L.P. , Ye , C. and Thabane , L. 2010 . Association between framing of the research question using the PICOT format and reporting quality of randomized controlled trials . BMC Medical Research Methodology , 10 ( 11 ) : 1471 – 2288 .
  • Rotheram-Borus , M.J. , Flannery , D. , Rice , E. and Lester , P. 2005 . Families living with HIV . AIDS Care , 17 ( 8 ) : 978 – 987 .
  • Rotheram-Borus , M.J. , Lee , M. , Leonard , N. , Lin , Y. , Franzke , L. , Turner , E. and Gwadz , M. 2003 . Four-year behavioral outcomes of an intervention for parents living with HIV and their adolescent children . AIDS , 17 ( 8 ) : 1217 – 1225 .
  • Rwemisisi , J. , Wolff , B. , Coutinho , A. , Grosskurth , H. and Whitworth , J. 2008 . ‘What if they ask how I got it?’ Dilemmas of disclosing parental HIV status and testing children for HIV in Uganda . Health Policy Plan , 23 ( 1 ) : 36 – 42 .
  • Schenk , K.D. , Michaelis , A. , Sapiano , T.N. , Brown , L. and Weiss , E. 2010 . Improving the lives of vulnerable children: Implications of horizons research among orphans and other children affected by AIDS . Public Health Reports , 125 ( 2 ) : 325 – 336 .
  • Shaffer , A. , Jones , D.J. , Kotchick , B.A. and Forehand , R. 2001 . Telling the children: Disclosure of maternal HIV infection and its effects on child psychosocial adjustment . Journal of Child & Family Studies , 10 ( 3 ) : 301 – 313 .
  • Tompkins , T. 2007 . Disclosure of maternal HIV status to children: To tell or not to tell … That is the question . Journal of Child & Family Studies , 16 ( 6 ) : 773 – 788 .
  • United Nations Program on HIV/AIDS (UNAIDS) . 2010 . UNAIDS global report on the global AIDS epidemic ( UNAIDS/10.11E ∣ JC1958E). Geneva. Retrieved from http://www.unaids.org/en/media/unaids/contentassets/documents/unaidspublication/2010/20101123_globalreport_en.pdf .
  • Van der Heijden , I. and Swartz , S. 2010 . Bereavement, silence and culture within a peer-led HIV/AIDS prevention strategy for vulnerable children in South Africa . African Journal of AIDS Research , 9 ( 1 ) : 41 – 60 .
  • Wiener , L.S. , Battles , H.B. , Heilman , N. , Sigelman , C.K. and Pizzo , P.A. 1996 . Factors associated with disclosure of diagnosis to children with HIV/AIDS . Pediatric AIDS & HIV Infection , 7 ( 5 ) : 310 – 324 .

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