The VUKA family program: Piloting a family-based psychosocial intervention to promote health and mental health among HIV infected early adolescents in South Africa

References

• Abramowitz, S., Koenig, L. J., Chandwani, S., Orban, L., Stein, R., Lagrange, R., & Barnes, W. (2009). Characterizing social support: Global and specific social support experiences of HIV-infected youth. AIDS Patient Care and STDs, 23(5), 323–330. doi:10.1089/apc.2008.0194
   PubMed Web of Science ®Google Scholar
• Antle, B. J., Wells, L. M., Goldie, R. S., DeMatteo, D., & King, S. M. (2001). Challenges of parenting for families living with HIV/AIDS. Social Work, 46(2), 159–169. doi:10.1093/sw/46.2.159
   PubMed Web of Science ®Google Scholar
• Bacha, T., Pomeroy, E. C., & Gilbert, D. (1999). A psychoeducational group intervention for HIV-positive children: a pilot study. Health & Social Work, 24(4), 303–306. doi:10.1093/hsw/24.4.303
   PubMed Web of Science ®Google Scholar
• Bauermeister, J. A., Elkington, K. S., Robbins, R. N., Kang, E., & Mellins, C. A. (2011). A prospective study of the onset of sexual behavior and sexual risk in youth perinatally infected with HIV. Journal of Sex Research, 49(5), 413–422. doi:10.1080/00224499.2011.598248
   PubMed Web of Science ®Google Scholar
• Bell, C. C., Bhana, A., Petersen, I., McKay, M. M., Gibbons, R., Bannon, W., & Amatya, A. (2008). Building protective factors to offset sexually risky behaviors among black youths: A randomized control trial. Journal of the National Medical Association, 100(8), 1–9. Retrieved from http://www.nmanet.org/index.php?option=com_content&view=article&id=115&Itemid=151
   PubMedGoogle Scholar
• Bhana, A., McKay, M. M., Mellins, C., Petersen, I., & Bell, C. (2010). Family-based HIV prevention and intervention services for youth living in poverty-affected contexts: The CHAMP model of collaborative, evidence-informed programme development. Journal of the International AIDS Society, 13(Suppl. 2), S8. doi:10.1186/1758-2652-13-S2-S8
   PubMedGoogle Scholar
• Brackis-Cott, E., Kang, E., Dolezal, C., Abrams, E. J., & Mellins, C. A. (2009). Brief report: Language ability and school functioning of youth perinatally infected with HIV. Journal of Pediatric Health Care, 23(3), 158–164. doi:10.1016/j.pedhc.2008.02.005
   PubMed Web of Science ®Google Scholar
• Buchacz, K., Rogol, A. D., Lindsey, J. C., Wilson, C. M., Hughes, M. D., Seage, G. R.III., … Rogers, A. S. (2003). Delayed onset of pubertal development in children and adolescents with perinatally acquired HIV infection. Journal of Acquired Immune Deficiency Syndromes, 33(1), 56–65. doi:10.1097/00126334-200305010-00009
   PubMed Web of Science ®Google Scholar
• Cluver, L. D., Orkin, M., Gardner, F., & Boyes, M. E. (2012). Persisting mental health problems among AIDS-orphaned children in South Africa. Journal of Child Psychology and Psychiatry, 53(4), 363–370. doi:10.1111/j.1469-7610.2011.02459.x
   PubMed Web of Science ®Google Scholar
• Domek, G. J. (2010). Debunking common barriers to pediatric HIV disclosure. Journal of Tropical Pediatrics, 56(6), 440–442. doi:10.1093/tropej/fmq013
   PubMed Web of Science ®Google Scholar
• Donenberg, G. R., & Pao, M. (2005). Youths and HIV/AIDS: Psychiatry's role in a changing epidemic. Journal of the American Academy of Child and Adolescent Psychiatry, 44(8), 728–747. doi:10.1097/01.chi.0000166381.68392.02
   PubMed Web of Science ®Google Scholar
• Ellis, D. A., Naar-King, S., Cunningham, P. B., & Secord, E. (2006). Use of multisystemic therapy to improve antiretroviral adherence and health outcomes in HIV-infected pediatric patients: Evaluation of a pilot program. AIDS Patient Care and STDs, 20(2), 112–121. doi:10.1089/apc.2006.20.112
   PubMed Web of Science ®Google Scholar
• Fitts, W. H., & Warren, W. L. (1996). Tennessee self-concept scale ( 2nd ed.). Torrance, CA: Western Psychological Services.
   Google Scholar
• Goodman, R. (1997). The strengths and difficulties questionnaire: A research note. Journal of Child Psychology and Psychiatry, 38(5), 581–586. doi:10.1111/j.1469-7610.1997.tb01545.x
   PubMed Web of Science ®Google Scholar
• Haberer, J. E., Kahane, J., Kigozi, I., Emenyonu, N., Hunt, P., Martin, J., & Bangsberg, D. R. (2010). Real-time adherence monitoring for HIV antiretroviral therapy. AIDS and Behavior, 14(6), 1340–1346. doi:10.1007/s10461-010-9799-4
   PubMed Web of Science ®Google Scholar
• Havens, J. F., & Mellins, C. A. (2008). Psychiatric aspects of HIV/AIDS in childhood and adolescence. In M. Rutter & E. Taylor (Eds.), Child and adolescent psychiatry: Modern approaches (5th ed.) (pp. 945–955). Oxford: Blackwell.
   Google Scholar
• Heymann, J., & Kidman, R. (2009). HIV/AIDS, declining family resources and the community safety net. AIDS Care, 21(Suppl. 1), 34–42. doi:10.1080/09540120902927593
   PubMed Web of Science ®Google Scholar
• Kovacs, M. (1981). Rating scales to assess depression in school-aged children. Acta Paedopsychiatrica, 46(5–6), 305–315. Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/7025571
   PubMedGoogle Scholar
• Ledlie, S. W. (2001). The psychosocial issues of children with perinatally acquired HIV disease becoming adolescents: A growing challenge for providers. AIDS Patient Care and STDs, 15(5), 231–236. doi:10.1089/10872910152050748
   PubMed Web of Science ®Google Scholar
• Levy, S. R., Lampman, C., Handler, A., Flay, B. R., & Weeks, K. (1993). Young adolescent attitudes toward sex and substance use: Implications for AIDS prevention. AIDS Education and Prevention, 5(4), 340–351. Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/8297713
   PubMed Web of Science ®Google Scholar
• McKay, M., & Paikoff, R. (Eds.). (2007). Community collaborative partnerships: The foundation for HIV prevention research efforts in the United States and internationally. West Hazleton, PA: Haworth Press.
   Google Scholar
• McKay, M. M., Chasse, K. T., Paikoff, R., McKinney, L.D., Baptiste, D., Coleman, D., … Bell, C. C. (2004). Family-level impact of the CHAMP family program: A community collaborative effort to support urban families and reduce youth HIV risk exposure. Family Process, 43(1), 79–93. doi:10.1111/j.1545-5300.2004.04301007.x
   PubMed Web of Science ®Google Scholar
• Mellins, C., Brackis-Cott, E., Dolezal, C., Abrams, E., Wiznia, A., Bamji, M., … Mckay, M. (2006). Predictors of non-adherence in perinatally HIV-infected youths. Paper presented at the NIMH/IAPAC International Conference on HIV Treatment and Adherence, Jersey City, NJ.
   Google Scholar
• Mellins, C. A., Brackis-Cott, E., Dolezal, C., & Abrams, E. J. (2004). The role of psychosocial and family factors in adherence to antiretroviral treatment in human immunodeficiency virus-infected children. The Pediatric Infectious Disease Journal, 23(11), 1035–1041. doi:10.1097/01.inf.0000143646.15240.ac
   PubMed Web of Science ®Google Scholar
• Mellins, C. A., Elkington, K. S., Bauermeister, J. A., Brackis-Cott, E., Dolezal, C., McKay, M., … Abrams, E. J. (2009). Sexual and drug use behavior in perinatally HIV-infected youth: Mental health and family influences. Journal of the American Academy of Child and Adolescent Psychiatry, 48(8), 810–819. doi:10.1097/CHI.0b013e3181a81346
   PubMed Web of Science ®Google Scholar
• Mellins, C. A., Elkington, K. S., Leu, C. S., Santamaria, E. K., Dolezal, C., Wiznia, A., … Abrams, E. J. (2012). Prevalence and change in psychiatric disorders among perinatally HIV-infected and HIV-exposed youth. AIDS Care, 24, 953–962. doi:10.1080/09540121.2012.668174
   PubMed Web of Science ®Google Scholar
• Mellins, C. A., Tassiopoulos, K., Malee, K., Moscicki, A. B., Patton, D., Smith, R., … Seage, G. R. (2011). Behavioral health risks in perinatally HIV-exposed youth: Co-occurrence of sexual and drug use behavior, mental health problems, and nonadherence to antiretroviral treatment. AIDS Patient Care and STDs, 25(7), 413–422. doi:10.1089/apc.2011.0025
   PubMed Web of Science ®Google Scholar
• Mills, E. J., Nachega, J. B., Bangsberg, D. R., Singh, S., Rachlis, B., Wu, P., … Cooper, C. (2006). Adherence to HAART: A systematic review of developed and developing nation patient-reported barriers and facilitators. PLOS Medicine, 3(11), e438. doi:10.1371/journal.pmed.0030438
   PubMed Web of Science ®Google Scholar
• Nozyce, M. L., Lee, S. S., Wiznia, A., Nachman, S., Mofenson, L. M., Smith, M. E., … Pelton, S. (2006). A behavioral and cognitive profile of clinically stable HIV-infected children. Pediatrics, 117(3), 763–770. doi:10.1542/peds.2005-0451
   PubMed Web of Science ®Google Scholar
• Petersen, I., Bhana, A., Myeza, N., Alicea, S., John, S., Holst, H., … Mellins, C. (2010). Psychosocial challenges and protective influences for socio-emotional coping of HIV + adolescents in South Africa: A qualitative investigation. AIDS Care, 22, 970–978. doi:10.1080/09540121003623693
   PubMed Web of Science ®Google Scholar
• Petersen, I., Mason, A., Bhana, A., Bell, C. C., & McKay, M. (2006). Mediating social representations using a cartoon narrative in the context of HIV/AIDS: The AmaQhawe Family Project in South Africa. Journal of Health Psychology, 11(2), 197–208. doi:10.1177/1359105306061180
   PubMed Web of Science ®Google Scholar
• Pillay, Y., & Baron, P. (2011, November). The implementation of PHC re-engineering in South Africa. Retrieved from http://www.phasa.org.za/articles/the-implementation-of-phc-re-engineering-in-southafrica.html
   Google Scholar
• Preciago, J., & Henry, M. (1997). Linguistic Barriers in health education and services. In J. G. Garcia & M. C. Zea (Eds.), Psychological interventions and research with Latino populations (pp. 235–254). Boston, MA: Allyn and Bacon.
   Google Scholar
• Reisner, S. L., Mimiaga, M. J., Skeer, M., Perkovich, B., Johnson, C. V., & Safren, S. A. (2009). A review of HIV antiretroviral adherence and intervention studies among HIV–infected youth. Topics in HIV Medicine, 17(1), 14–25. Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/19270345
   PubMedGoogle Scholar
• Republic of South Africa. (2010). Country Progress Report on the Declaration of Commitment on HIV/AIDS. Retrieved from http://data.unaids.org/pub/Report/2010/southafrica_2010_country_progress_report_en.pdf
   Google Scholar
• Rogers, A. S., Miller, S., Murphy, D. A., Tanney, M., & Fortune, T. (2001). The TREAT (Therapeutic Regimens Enhancing Adherence in Teens) program: Theory and preliminary results. Journal of Adolescent Health29(3 Suppl 1), 30–38. doi:10.1016/S1054-139X(01)00289-0
   Google Scholar
• Sutcliff, C. G., van Dijk, J. H., Bolton, C., Persaud, D., & Moss, W. J. (2008). Effectiveness of antiretroviral therapy among HIV-infected children in sub-Saharan Africa. Lancet Infectious Diseases, 8, 477–489. doi:10.1016/S1473-3099(08)70180-4
   PubMed Web of Science ®Google Scholar
• Tanzer, N. K., & Sim, C. Q. E. (1999). Adapting instruments for use in multiple languages and cultures: A review of the ITC Guidelines for Test Adaptations. European Journal of Psychological Assessment, 15(3), 258–269. doi:10.1027//1015-5759.15.3.258
   Web of Science ®Google Scholar
• Usitalo, A., Leister, E., Tassiopoulos, K., Allison, S., Malee, K., Mellins, C., … Seage, G. (2010). Relationship between viral load and behavioral measures of medication adherence among youth with HIV. Paper presented at the Pediatric Academic Society, Vancouver, BC.
   Google Scholar
• Westbrook, L. E., Bauman, L. J., & Shinnar, S. (1992). Applying stigma theory to epilepsy: A test of a conceptual model. Journal of Pediatric Psychology, 17(5), 633–649. doi:10.1093/jpepsy/17.5.633
   PubMed Web of Science ®Google Scholar
• Youth in Mind. (2012). The CORC-YouthinMind outcomes measures database. Retrieved from http://www.corc.uk.net/resources/implementation-support/databases-templates-and-info-to-send-to-corc/youth-in-mind/
   Google Scholar