Disease disclosure, treatment adherence, and behavioural profile in a cohort of vertically acquired HIV-infected adolescents. NeuroCoRISpeS study

References

• American Academy of Pediatrics, Committee of Pediatrics AIDS. (1999). Disclosure of Illness status to children and adolescents with HIV Infection. Pediatrics, 1003, 164–166.
   Google Scholar
• Bachanas, P. J., Kullgren, K. A., Schwart, K. S., Lanier, B., Mc Daniel, J. S., Smith, J., & Nesheim, S. (2001). Predictors of psychological adjustment in school-age children infected with HIV. Journal of Pediatric Psychology, 26, 343–352. doi: 10.1093/jpepsy/26.6.343
   PubMed Web of Science ®Google Scholar
• Boon-Yashidi, V., Kottapat, U., Durier, Y., Plipat, N., Phongsamart, W., ChokephaibulKit, K., & Vanprapar, N. (2005). Diagnosis disclosure in HIV-infected Thai children. Journal of The Medical Association of Thailand, 88(8), S100–105.
   Google Scholar
• Cohen, J., Reddington, C., Jacobs, D., Meade, R., Picard, D., Singleton, K., … Hsu, H. W. (1997). School-related issues among HIV-infected children. Anales de Pediatría, 100, E8.
   Google Scholar
• Dodds, S., Blakley, T., Lizzotte, J. M., Friedman, L. B., Shaw, K., & Martinez, J. (2003). Retention, adherence, and compliance: Special needs of HIV-infected adolescent girls and young women. Journal of Adolescent Health, 33(Suppl. 2), 39–45. doi: 10.1016/S1054-139X(03)00157-5
   PubMed Web of Science ®Google Scholar
• Erikson, E. H. (1968). Identity youth and crisis. New York, NY: W.W. Norton.
   Google Scholar
• Forsyth, B. W. (2003). Psychological aspects of HIV infection in children. Child & Adolescent Psychiatric Clinics of North America, 12(3), 423–437. doi: 10.1016/S1056-4993(03)00023-3
   PubMed Web of Science ®Google Scholar
• García Navarro, C., García, I., Medín, G., Ramos Amador, J. T., Navarro-Gómez, M., Mellado-Peña, M. J., … Muñoz-Fernandez, A. (2014). Aspectos psicosociales en una cohorte de adolescentes con infección por el virus de inmunodeficiencia humana por transmisión vertical. NeuroCoRISpeS. Enfermedades Infecciosas Microbiología Clínica, 32(10), 631–637. doi:10.1016/j.eimc.2013.11.008
   Google Scholar
• Gómez-Beneyto, M., Nolasco, A., Moncho, J., Pereyra Zamora, P., Tamayo-Fonseca, N., Munarriz, M., … Girón, M. (2013). Psychometric behaviour of the strenghs and difficulties questionnaire (SDQ) in the Spanish national health survey 2006. BMC Psychiatry, 13(1), 95. doi: 10.1186/1471-244X-13-95
   PubMed Web of Science ®Google Scholar
• Goodman, R., Ford, T., Simmons, H., Gatward, R., & Meltzer, H. (2000). Using the Strengths and Difficulties Questionnaire (SDQ) to screen for child psychiatric disorders in a community sample. The British Journal of Psychiatry, 177, 534–539. doi: 10.1192/bjp.177.6.534
   PubMed Web of Science ®Google Scholar
• Goodman, R., & Scott, S. (1999). Comparing strengths and difficulties questionnaire and child behaviour checklist: Is small beautiful?. Journal of Abnormal Child Psychology, 27, 17–24. doi: 10.1023/A:1022658222914
   PubMed Web of Science ®Google Scholar
• Gosling, S. A., Burns, J., & Hirst, F. (2004). Children with HIV in the UK: A longitudinal study of adaptive and cognitive functioning. Clinical Child Psychology and Psychiatry, 9(1), 25–37. doi: 10.1177/1359104504039168
   Google Scholar
• Hammami, N., Nostlinger, C., Hoeree, T., Lefevre, P., Jonckheer, T., & Kolsteren, P. (2004). Integrating adherence to highly active antiretroviral therapy into childreńs daily lives: A qualitative study. Pediatrics, 114(5), e591–e597. doi: 10.1542/peds.2004-0085
   PubMed Web of Science ®Google Scholar
• Hosek, S. G., Harper, G. W., & Robinson, W. L. I. (2002). Identity development in adolescents living with HIV. Journal of Adolescent Health, 30(3), 161–168. doi: 10.1016/S1054-139X(01)00341-X
   PubMed Web of Science ®Google Scholar
• Koenig, L. J., Nesheim, S., & Abramowitz, S. (2011). Adolescents with perinatally acquired HIV: Emerging behavioural and health needs for long-term survivors. Current Opinion in Obstetrics and Gynecology, 23(5), 321–327. doi: 10.1097/GCO.0b013e32834a581b
   PubMed Web of Science ®Google Scholar
• Lam, P. K., Naar-King, S., & Wright, K. (2007). Social support and disclosure as predictors of mental health in HIV-positive youth. AIDS Patient Care and STDs, 21, 20–29. doi: 10.1089/apc.2006.005
   PubMed Web of Science ®Google Scholar
• Lester, P., Chesney, M., Cooke, M., Whalley, P., Perez, B., Petru, A., … Wara, D. (2002). Diagnosis disclosure to HIV-infected children: How parents decide when and what to tell. Clinical Child Psychology and Psychiatry, 7, 85–99. doi: 10.1177/1359104502007001007
   Google Scholar
• Marais, B. J., Rabie, H., & Cotton, M. F. (2011). TB and HIV in children – Advances in prevention and management. Paediatric Respiratory Reviews, 12(1), 39–45. doi: 10.1016/j.prrv.2010.09.002
   PubMed Web of Science ®Google Scholar
• Mellins, C. A., Tassiopoulos, K., Malee, K., Moscicki, A. B., Patton, D., Smith, R., … Van Dyke, R. (2011). Pediatric HIV/AIDS cohort study. Behavioural health risks in perinatally HIV-exposed youth: Co-occurrence of sexual and drug use behaviour, mental health problems, and nonadherence to antiretroviral treatment. AIDS Patient Care and STDs, 25(7), 413–422. doi: 10.1089/apc.2011.0025
   PubMed Web of Science ®Google Scholar
• Melvin, D., Krechevsky, D., Divac, A., Tacconelli, E., Miah, J., Giannakopoulou, C., … Byard, K. (2007). Parental reports of emotional and behavioural difficulties on the SDQ for school-age children with vertically acquired HIV infection living in London. Psychology, Health & Medicine, 12(1), 40–47. doi: 10.1080/13548500600731708
   PubMedGoogle Scholar
• Menon, A., Glazebrook, C., Campaign, N., & Ngoma, M. (2007). Mental health and disclosure of HIV status in Zambian adolescents with HIV infection. JAIDS Journal of Acquired Immune Deficiency Syndromes, 46(3), 349–354. doi: 10.1097/QAI.0b013e3181565df0
   PubMed Web of Science ®Google Scholar
• Metzer, H., Goodman, R., & Ford, T. (2000). Mental health of children and adolescents in Great Britain. London: Office for National Statistics.
   Google Scholar
• Misdrahi, D., Vila, G., Funk-Brentano, I., Tardieu, M., Blanche, S., & Mouren-Simeoni, M. C. (2011). DSM-IV mental disorders and neurological complications in children and adolescents with human immunodeficiency virus type 1 infection (HIV-1). European Psychiatry, 19(3), 182–184. doi: 10.1016/j.eurpsy.2003.06.009
   Web of Science ®Google Scholar
• Missmer, S. A., Zeegers, I., Rabie, H., Swanevelder, S., Edson, C., Cotton, M., & van Toorn, R. (2010). Attention deficit hyperactivity and oppositional defiance disorder in HIV-infected South African children. Journal of Tropical Pediatrics, 56(2), 97–102. doi: 10.1093/tropej/fmp072
   PubMed Web of Science ®Google Scholar
• Nachman, S., Chernoff, M., Williams, P., Hodge, J., Heston, J., & Gadow, K. D. (2012). Human immunodeficiency virus disease severity, psychiatric symptoms, and functional outcomes in perinatally infected youth. Archives of Pediatrics and Adolescent Medicine, 166(6), 528–535. doi: 10.1001/archpediatrics.2011.1785
   PubMed Web of Science ®Google Scholar
• Nicastro, E., Continisio, G. I., Storace, C., Bruzzese, E., Mango, C., Liguoro, I., … Officioso, A. (2013). Family group psychotherapy to support the disclosure of HIV status to children and adolescents. AIDS Patient Care and STDs, 27(6), 363–369. doi: 10.1089/apc.2012.0465
   PubMed Web of Science ®Google Scholar
• Nozyce, M. L., Lee, S. S., Wiznia, A., Nachman, S., Mofenson, L. M., Smith, M. E., … Pelton, S. (2006). A behavioral and cognitive profile of clinically stable HIV-infected children. Pediatrics, 117(3), 763–770. doi: 10.1542/peds.2005-0451
   PubMed Web of Science ®Google Scholar
• Pontali, E. (2005). Facilitating adherence to highly active antiretroviral therapy in children with HIV infection: What are the issues and what can be done? Pediatric Drugs, 7, 137–149. doi: 10.2165/00148581-200507030-00001
   PubMedGoogle Scholar
• Riekert, K., Wiener, L., & Battles, H. (1999). Prediction of psychological adjustment in school-age children infected with HIV. Children's Health Care, 28, 201–220. doi: 10.1207/s15326888chc2803_1
   Web of Science ®Google Scholar
• Rodríguez Carrion, J., & Traverso Blanco, C. I. (2012). Sexual behavior in adolescents aged 12 to 17 in Andalusia (Spain). Gaceta Sanitaria, 26, 519–524. doi: 10.1016/j.gaceta.2012.02.005
   PubMed Web of Science ®Google Scholar
• Sherman, B. F., Bonanno, G. A., Wiener, L. S., & Battles, H. B. (2000). When children tell their friends they have AIDS: Possible consequences for psychological well-being and disease progression. Psychosomatic Medicine, 62, 238–247. doi: 10.1097/00006842-200003000-00016
   PubMed Web of Science ®Google Scholar
• Smith, R., Chernoff, M., Williams, P. L., Malee, K. M., Sirois, P. A., Kammerer, B., … Pediatric HIV/AIDS Cohort Study (PHACS) Team. (2012). Impact of HIV severity on cognitive and adaptive functioning during childhood and adolescence. The Pediatric Infectious Disease Journal, 31(6), 592–598. doi: 10.1097/INF.0b013e318253844b
   PubMed Web of Science ®Google Scholar
• Souza, E., Santos, N., Valentini, S., Silva, G., & Falbo, A. (2010). Long-term follow-up outcomes of perinatally HIV-infected adolescents: Infection control but school failure. Journal of Tropical Pediatrics, 56(6), 421–426. doi: 10.1093/tropej/fmq008
   PubMed Web of Science ®Google Scholar
• Tuchman, L. K., Slap, G. B., & Britto, M. T. (2008). Transition to adult care: Experiences and expectations of adolescents with a chronic illness. Child: Care, Health and Development, 34(5), 557–563.
   PubMed Web of Science ®Google Scholar
• Veinot, T. C., Flicker, S. E., Skinner, H. A., McClelland, A., Saulnier, P., & Read, S. E. (2006). Supposed to make you better but it doesn't really: HIV-positive youths perceptions of HIV treatment. Journal of Adolescent Health, 38(3), 261–267. doi: 10.1016/j.jadohealth.2005.03.008
   PubMed Web of Science ®Google Scholar
• Wiener, L. S., & Battles, H. B. (2006). Untangling the web: A close look at diagnosis disclosure among HIV-infected adolescents. Journal of Adolescent Health, 38, 307–309. doi: 10.1016/j.jadohealth.2005.03.024
   PubMed Web of Science ®Google Scholar
• Wood, K., Chase, E., & Aggleton, P. (2006). Telling the truth is the best thing: Teenage orphans experiences of parental AIDS-related illness and bereavement in Zimbabwe. Social Science & Medicine, 63(7), 1923–1933. doi: 10.1016/j.socscimed.2006.04.027
   PubMed Web of Science ®Google Scholar