Publication Cover
AIDS Care
Psychological and Socio-medical Aspects of AIDS/HIV
Volume 28, 2016 - Issue 9
335
Views
9
CrossRef citations to date
0
Altmetric
Articles

Personal health records for people living with HIV: a review

, &
Pages 1181-1187 | Received 22 Oct 2015, Accepted 07 Feb 2016, Published online: 26 Feb 2016

References

  • Archer, N., Fevrier-Thomas, U., Lokker, C., McKibbon, K. A., & Straus, S. E. (2011). Personal health records: A scoping review. Journal of the American Medical Informatics Association, 18(4), 515–522. doi:10.1136/amiajnl-2011-000105
  • Bandura, A. (1986) Social foundations of thought and action: A social cognitive theory. Englewood Cliffs, NJ: Prentice Hall.
  • Barclay, T. R., Hinkin, C. H., Castellon, S. A., Mason, K. I., Reinhard, M. J., Marion, S. D., … Durvasula, R. S. (2007). Age-associated predictors of medication adherence in HIV-positive adults: Health beliefs, self-efficacy, and neurocognitive status. Health Psychology, 26(1), 40–49. doi:10.1037/0278-6133.26.1.40
  • Beer, L., & Skarbinski, J. (2014). Adherence to antiretroviral therapy among HIV-infected adults in the United States. AIDS Education and Prevention, 26(6), 521–537. doi:10.1521/aeap.2014.26.6.521
  • CDC. (2011a). HIV surveillance – United States, 1981–2008. Morbidity and Mortality Weekly Report, 60(21), 689–693.
  • CDC. (2011b). Vital signs: HIV prevention through care and treatment – United States. Morbidity and Mortality Weekly Report, 60(47), 1618–1623.
  • CMS. (2014). EHR incentive program. Retrieved November 29, 2014, from http://cms.gov/Regulations-and-Guidance/Legislation/EHRIncentivePrograms/index.html
  • Cohen, M. S., Smith, M. K., Muessig, K. E., Hallett, T. B., Powers, K. A., & Kashuba, A. D. (2013). Antiretroviral treatment of HIV-1 prevents transmission of HIV-1: Where do we go from here? Lancet, 382(9903), 1515–1524. doi:10.1016/S0140-6736(13)61998-4
  • Cooke, C. E., Lee, H. Y., & Xing, S. (2014). Adherence to antiretroviral therapy in managed care members in the United States: A retrospective claims analysis. Journal of Managed Care Pharmacy, 20(1), 86–92. doi: 10.18553/jmcp.2014.20.1.86
  • Crouch, P. C., Rose, C. D., Johnson, M., & Janson, S. L. (2015). A pilot study to evaluate the magnitude of association of the use of electronic personal health records with patient activation and empowerment in HIV-infected veterans. PeerJ, 3, e852. doi:10.7717/peerj.852
  • Dhanireddy, S., Walker, J., Reisch, L., Oster, N., Delbanco, T., & Elmore, J. G. (2014). The urban underserved: Attitudes towards gaining full access to electronic medical records. Health Expectations, 17(5), 724–732. doi:10.1111/j.1369-7625.2012.00799.x
  • Gao, X., Nau, D. P., Rosenbluth, S. A., Scott, V., & Woodward, C. (2000). The relationship of disease severity, health beliefs and medication adherence among HIV patients. AIDS Care, 12(4), 387–398. doi:10.1080/09540120050123783
  • Glanz, K., & Bishop, D. B. (2010). The role of behavioral science theory in development and implementation of public health interventions. Annual Review of Public Health, 31, 399–418. doi:10.1146/annurev.publhealth.012809.103604
  • Golin, C. E., Liu, H., Hays, R. D., Miller, L. G., Beck, C. K., Ickovics, J., … Wenger, N. S. (2002). A prospective study of predictors of adherence to combination antiretroviral medication. Journal of General Internal Medicine, 17(10), 756–765. doi: 10.1046/j.1525-1497.2002.11214.x
  • Gordon, P., Camhi, E., Hesse, R., Odlum, M., Schnall, R., Rodriguez, M., … Bakken, S. (2012). Processes and outcomes of developing a continuity of care document for use as a personal health record by people living with HIV/AIDS in New York City. International Journal of Medical Informatics, 81(10), e63–e73. doi:10.1016/j.ijmedinf.2012.06.004
  • Heckman, B. D., Catz, S. L., Heckman, T. G., Miller, J. G., & Kalichman, S. C. (2004). Adherence to antiretroviral therapy in rural persons living with HIV disease in the United States. AIDS Care, 16(2), 219–230. doi:10.1080/09540120410001641066
  • Horvath, T., Azman, H., Kennedy, G. E., & Rutherford, G. W. (2012). Mobile phone text messaging for promoting adherence to antiretroviral therapy in patients with HIV infection. The Cochrane Database of Systematic Reviews, 3, CD009756. doi:10.1002/14651858.CD009756
  • Iyidogan, P., & Anderson, K. S. (2014). Current perspectives on HIV-1 antiretroviral drug resistance. Viruses, 6(10), 4095–4139. doi:10.3390/v6104095
  • Janz, N. K., & Becker, M. H. (1984). The Health Belief Model: A decade later. Health Education & Behavior, 11(1), 1–47. doi: 10.1177/109019818401100101
  • Kahn, J. S., Hilton, J. F., Van Nunnery, T., Leasure, S., Bryant, K. M., Hare, C. B., & Thom, D. H. (2010). Personal health records in a public hospital: Experience at the HIV/AIDS clinic at San Francisco General Hospital. Journal of the American Medical Informatics Association, 17(2), 224–228. doi:10.1136/jamia.2009.000315
  • Kates, J., Garfield, R., & Young, C. (2014). Assessing the impact of the affordable care act on health insurance coverage of people with HIV. Washington, DC: Kaiser Family Foundation.
  • Lester, R. T., Ritvo, P., Mills, E. J., Kariri, A., Karanja, S., Chung, M. H., … Plummer, F. A. (2010). Effects of a mobile phone short message service on antiretroviral treatment adherence in Kenya (WelTel Kenya1): A randomised trial. Lancet, 376(9755), 1838–1845. doi:10.1016/S0140-6736(10)61997-6
  • Levy, R. W., Rayner, C. R., Fairley, C. K., Kong, D. C., Mijch, A., Costello, K., … Group, M. A. (2004). Multidisciplinary HIV adherence intervention: A randomized study. AIDS Patient Care STDS, 18(12), 728–735. doi:10.1089/apc.2004.18.728
  • Luque, A. E., Corales, R., Fowler, R. J., DiMarco, J., van Keken, A., Winters, P., … Fiscella, K. (2013). Bridging the digital divide in HIV care: A pilot study of an iPod personal health record. Journal of the International Association of Providers of AIDS Care, 12(2), 117–121. doi:10.1177/1545109712457712
  • McInnes, D. K., Shimada, S. L., Rao, S. R., Quill, A., Duggal, M., Gifford, A. L., … Justice, A. C. (2013). Personal health record use and its association with antiretroviral adherence: Survey and medical record data from 1871 US veterans infected with HIV. AIDS and Behavior, 17(9), 3091–3100. doi:10.1007/s10461-012-0399-3
  • McInnes, D. K., Solomon, J. L., Shimada, S. L., Petrakis, B. A., Bokhour, B. G., Asch, S. M., … Gifford, A. L. (2013). Development and evaluation of an internet and personal health record training program for low-income patients with HIV or hepatitis C. Medical Care, 51(3 Suppl. 1), S62–S66. doi:10.1097/MLR.0b013e31827808bf
  • Mills, E., Wilson, K., Rachlis, B., Griffith, L., Wu, P., Guyatt, G., & Cooper, C. (2006). Barriers to participation in HIV drug trials: A systematic review. The Lancet Infectious Diseases, 6(1), 32–38. doi:10.1016/S1473-3099(05)70324-8
  • Odlum, M., Gordon, P., Camhi, E., Schnall, R., Teixeira, P., & Bakken, S. (2012). Perceptions of predisposing, enabling, and reinforcing factors influencing the use of a continuity of care document in special needs PLWH. Journal of Health Care for the Poor and Underserved, 23(4), 1457–1476. doi:10.1353/hpu.2012.0172
  • ONC. (2014). What is a personal health record? Retrieved December 1, 2014, from http://www.healthit.gov/providers-professionals/faqs/what-personal-health-record
  • Oster, N. V., Jackson, S. L., Dhanireddy, S., Mejilla, R., Ralston, J. D., Leveille, S., … Elmore, J. G. (2015). Patient access to online visit notes: Perceptions of doctors and patients at an urban HIV/AIDS Clinic. Journal of the International Association of Providers of AIDS Care, 14(4), 306–312. doi:10.1177/2325957414526783
  • Pop-Eleches, C., Thirumurthy, H., Habyarimana, J. P., Zivin, J. G., Goldstein, M. P., de Walque, D., … Bangsberg, D. R. (2011). Mobile phone technologies improve adherence to antiretroviral treatment in a resource-limited setting: A randomized controlled trial of text message reminders. Aids, 25(6), 825–834. doi:10.1097/QAD.0b013e32834380c1
  • Ralston, J. D., Silverberg, M. J., Grothaus, L., Leyden, W. A., Ross, T., Stewart, C., … Catz, S. L. (2013). Use of web-based shared medical records among patients with HIV. American Journal of Managed Care, 19(4), e114–124.
  • Reynolds, N. R., Testa, M. A., Marc, L. G., Chesney, M. A., Neidig, J. L., Smith, S. R., … Vella, S. (2004). Factors influencing medication adherence beliefs and self-efficacy in persons naive to antiretroviral therapy: A multicenter, cross-sectional study. AIDS and Behavior, 8(2), 141–150. doi:10.1023/B:AIBE.0000030245.52406.bb
  • Roblin, D. W., Houston, T. K., Allison, J. J., Joski, P. J., & Becker, E. R. (2009). Disparities in use of a personal health record in a managed care organization. Journal of the American Medical Informatics Association, 16(5), 683–689. doi:10.1197/jamia.M3169
  • Saberi, P., Catz, S. L., Leyden, W. A., Stewart, C., Ralston, J. D., Horberg, M. A., … Silverberg, M. J. (2015). Antiretroviral therapy adherence and use of an electronic shared medical record among people living with HIV. AIDS and Behavior, 19(Suppl. 2), 177–185. doi:10.1007/s10461-014-0982-x
  • Saberi, P., & Johnson, M. O. (2011). Technology-based self-care methods of improving antiretroviral adherence: A systematic review. PLoS One, 6(11), e27533. doi:10.1371/journal.pone.0027533
  • Safren, S. A., Hendriksen, E. S., Desousa, N., Boswell, S. L., & Mayer, K. H. (2003). Use of an on-line pager system to increase adherence to antiretroviral medications. AIDS Care, 15(6), 787–793. doi:10.1080/09540120310001618630
  • Saha, S., Jacobs, E. A., Moore, R. D., & Beach, M. C. (2010). Trust in physicians and racial disparities in HIV care. AIDS Patient Care and STDs, 24(7), 415–420. doi:10.1089/apc.2009.0288
  • Schneider, J., Kaplan, S. H., Greenfield, S., Li, W., & Wilson, I. B. (2004). Better physician–patient relationships are associated with higher reported adherence to antiretroviral therapy in patients with HIV infection. Journal of General Internal Medicine, 19(11), 1096–1103. doi:10.1111/j.1525-1497.2004.30418.x
  • Thompson, M. A., Mugavero, M. J., Amico, K. R., Cargill, V. A., Chang, L. W., Gross, R., … Nachega, J. B. (2012). Guidelines for improving entry into and retention in care and antiretroviral adherence for persons with HIV: Evidence-based recommendations from an International Association of Physicians in AIDS Care panel. Annals of Internal Medicine, 156(11), 817–833, W-284, W-285, W-286, W-287, W-288, W-289, W-290, W-291, W-292, W-293, W-294. doi:10.7326/0003-4819-156-11-201206050-00419
  • Wicks, P., Massagli, M., Frost, J., Brownstein, C., Okun, S., Vaughan, T., … Heywood, J. (2010). Sharing health data for better outcomes on PatientsLikeMe. Journal of Medical Internet Research, 12(2), e19. doi:10.2196/jmir.1549
  • Yamin, C. K., Emani, S., Williams, D. H., Lipsitz, S. R., Karson, A. S., Wald, J. S., & Bates, D. W. (2011). The digital divide in adoption and use of a personal health record. Archives of Internal Medicine, 171(6), 568–574. doi:10.1001/archinternmed.2011.34
  • Zolopa, A., Andersen, J., Powderly, W., Sanchez, A., Sanne, I., Suckow, C., … Komarow, L. (2009). Early antiretroviral therapy reduces AIDS progression/death in individuals with acute opportunistic infections: A multicenter randomized strategy trial. PLoS One, 4(5), e5575. doi:10.1371/journal.pone.0005575

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.