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AIDS Care
Psychological and Socio-medical Aspects of AIDS/HIV
Volume 33, 2021 - Issue 4
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Articles

The Florida Cohort study: methodology, initial findings and lessons learned from a multisite cohort of people living with HIV in Florida

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Pages 516-524 | Received 16 Jul 2019, Accepted 11 Mar 2020, Published online: 03 Apr 2020

References

  • Algarin, A. B., Zhou, Z., Canidate, S., Gebru, N. M., Krieger, J. L., Neil, J. M., Cook, R. L., & Ibañez, G. E. (2020). PrEP awareness among people living with HIV in Florida: Florida Cohort study. AIDS Care, 1–6. doi: 10.1080/09540121.2020.1717421
  • Algarin, A. B., Zhou, Z., Cook, C. L., Cook, R. L., & Ibañez, G. E. (2019). Age, sex, race, ethnicity, Sexual Orientation: Intersectionality of Marginalized-Group Identities and Enacted HIV-related stigma Among people living with HIV in Florida. AIDS and Behavior, 23(11), 2992–3001. doi: 10.1007/s10461-019-02629-y
  • Amtmann, D., Cook, K. F., Jensen, M. P., Chen, W. H., Choi, S., Revicki, D., Cella, D., Rothrock, N., Keefe, F., Callahan, L., & Lai, J. S. (2010). Development of a PROMIS item bank to measure pain interference. Pain, 150(1), 173–182. doi: 10.1016/j.pain.2010.04.025
  • Bush, K., Kivlahan, D. R., McDonell, M. B., Fihn, S. D., & Bradley, K. A. (1998). The AUDIT alcohol consumption questions (AUDIT-C): an effective brief screening test for problem drinking. Archives of Internal Medicine, 158(16), 1789–1795. doi: 10.1001/archinte.158.16.1789
  • Buysse, D. J., Yu, L., Moul, D. E., Germain, A., Stover, A., Dodds, N. E., Johnston, K. L., Shablesky-Cade, M. A., & Pilkonis, P. A. (2010). Development and validation of patient-reported outcome measures for sleep disturbance and sleep-related impairments. Sleep, 33(6), 781–792. doi: 10.1093/sleep/33.6.781
  • Centers for Disease Control and Prevention (CDC). (2011). Vital signs: HIV prevention through care and treatment–United States. MMWR. Morbidity and Mortality Weekly Report, 60(47), 1618. https://www.cdc.gov/mmwr/preview/mmwrhtml/mm6047a4.htm.
  • Centers for Disease Control and Prevention (CDC). (2012). Vital signs: Binge drinking prevalence, frequency, and intensity among adults-United States, 2010. MMWR. Morbidity and Mortality Weekly Report, 61(1), 14.
  • Centers for Disease Control and Prevention (CDC). (2017). HIV in the United States by Geographic Distribution.. Retrieved March 11, 2018 from https://www.cdc.gov/hiv/statistics/overview/geographicdistribution.html
  • Centers for Disease Control and Prevention (CDC). (2019). HIV Surveillance Report, 2018. 30. Retrieved January 21, 2020 from https://www.cdc.gov/hiv/pdf/library/reports/surveillance/cdc-hiv-surveillance-report-2018-vol-30.pdf
  • Cleeland, C. S., & Ryan, K. M. (1994). Pain assessment: Global use of the Brief Pain Inventory. Annals, Academy of Medicine, Singapore, 23(2), 129–138.
  • Colasanti, J., Kelly, J., Pennisi, E., Hu, Y. J., Root, C., Hughes, D., del Rio, C., & Armstrong, W. S. (2016). Continuous retention and viral suppression provide further insights into the HIV care continuum compared to the cross-sectional HIV care cascade. Clinical Infectious Diseases, 62(5), 648–654. doi: 10.1093/cid/civ941
  • Conigliaro, J., Justice, A. C., Gordon, A. J., & Bryant, K. (2006). Role of alcohol in determining human immunodeficiency virus (HIV)-relevant outcomes: A conceptual model to guide the implementation of evidence-based interventions into practice.
  • Cook, R. L., Zhou, Z., Kelso-Chichetto, N. E., Janelle, J., Morano, J. P., Somboonwit, C., Carter, W., Ibanez, G. E., Ennis, N., Cook, C. L., & Cohen, R. A. (2017). Alcohol consumption patterns and HIV viral suppression among persons receiving HIV care in Florida: An observational study. Addiction Science & Clinical Practice, 12(1), 22. doi: 10.1186/s13722-017-0090-0
  • Derouesne, C. D. J. M., Dealberto, M. J., Boyer, P., Lubin, S., Sauron, B., Piette, F., Kohler, F., & Alperovitch, A. (1993). Empirical evaluation of the ‘cognitive difficulties Scale’ for assessment of memory complaints in general practice: A study of 1628 cognitively normal subjects aged 45-75 years. International Journal of Geriatric Psychiatry, 8(7), 599–607. doi: 10.1002/gps.930080712
  • Dunne, E. M., Cook, R. L., & Ennis, N. (2019). Non-planning Impulsivity But Not Behavioral Impulsivity is associated with HIV medication Non-adherence. AIDS and Behavior, 23(5), 1297–1305. doi: 10.1007/s10461-018-2278-z
  • Florida Department of Health (FDOH). (2017). Epidemiological Profile, Florida: Continuum of HIV Care by County, 2016. Retrieved March 12, 2018 from http://www.floridahealth.gov/diseases-and-conditions/aids/surveillance/epi-profiles/Epi_Profile_Tables_Florida_2017_Locked.xlsx
  • Florida Department of Health (FDOH). (2018). Epidemiological Profile, Florida: Continuum of HIV Care by County, 2017. Retrieved March 12, 2018 from http://www.floridahealth.gov/diseases-and-conditions/aids/surveillance/epi-profiles/Epi_Profile_Tables_Florida_2018_Locked.xlsx
  • Gardner, E. M., McLees, M. P., Steiner, J. F., del Rio, C., & Burman, W. J. (2011). The spectrum of engagement in HIV care and its relevance to test-and-treat strategies for prevention of HIV infection. Clinical Infectious Diseases, 52(6), 793–800. doi: 10.1093/cid/ciq243
  • Gershon, R. C., Lai, J. S., Bode, R., Choi, S., Moy, C., Bleck, T., Miller, D., Peterman, A., & Cella, D. (2012). Neuro-QOL: Quality of life item banks for adults with neurological disorders: Item development and calibrations based upon clinical and general population testing. Quality of Life Research, 21(3), 475–486. doi: 10.1007/s11136-011-9958-8
  • Herek, G. M., Saha, S., & Burack, J. (2013). Stigma and psychological distress in people with HIV/AIDS. Basic and Applied Social Psychology, 35(1), 41–54. doi: 10.1080/01973533.2012.746606
  • Justice, A. C., Dombrowski, E., Conigliaro, J., Fultz, S. L., Gibson, D., Madenwald, T., Goulet, J., Simberkoff, M., Butt, A. A., Rimland, D., Rodriguez-Barradas, M. C., Gibert, C. L., Oursler, K. A. K., Brown, S., Leaf, D. A., Goetz, M. B., & Bryant, K. (2006). Veterans aging cohort study (VACS): overview and description. Medical Care, 44(8 Suppl 2), S13–S24. doi: 10.1097/01.mlr.0000223741.02074.66
  • Kiluk, B. D., Dreifuss, J. A., Weiss, R. D., Morgenstern, J., & Carroll, K. M. (2013). The short inventory of problems–revised (SIP-R): Psychometric properties within a large, diverse sample of substance use disorder treatment seekers. Psychology of Addictive Behaviors, 27(1), 307–314. doi: 10.1037/a0028445
  • Kimerling, R., Trafton, J. A., & Nguyen, B. (2006). Validation of a brief screen for post-traumatic stress disorder with substance use disorder patients. Addictive Behaviors, 31(11), 2074–2079. doi: 10.1016/j.addbeh.2006.02.008
  • Kroenke, K., Spitzer, R. L., & Williams, J. B. (2001). The PHQ-9: Validity of a brief depression severity measure. Journal of General Internal Medicine, 16(9), 606–613. doi: 10.1046/j.1525-1497.2001.016009606.x
  • Lahiri, K., Rettig-Ewen, V., Böhm, M., & Laufs, U. (2007). Perceived psychosocial stress and cardiovascular risk factors in obese and non-obese patients. Clinical Research in Cardiology, 96(6), 365–374. doi: 10.1007/s00392-007-0512-1
  • Lau, B., Gange, S. J., & Moore, R. D. (2007). Interval and clinical cohort studies: Epidemiological issues. AIDS Research and Human Retroviruses, 23(6), 769–776. doi: 10.1089/aid.2006.0171
  • Lucero, R. J., Frimpong, J. A., Fehlberg, E. A., Bjarnadottir, R. I., Weaver, M. T., Cook, C., Modave, F., Rathore, M. H., Morano, J. P., Ibanez, G., & Cook, R. L. (2017). The relationship between individual characteristics and interest in using a mobile phone app for HIV self-management: Observational cohort study of people living with HIV. JMIR MHealth and UHealth, 5(7), e100. doi: 10.2196/mhealth.7853
  • Maddox, L., & Poschman, K. (2015). The continuum of HIV Care Florida, 2014. Retrieved March 3, 2018 from http://www.floridahealth.gov/diseases-and-conditions/aids/surveillance/_documents/hiv-aids-slide-sets/2014/florida-continuumofhivcare-2014b.pdf
  • Mannes, Z. L., Bryant, V. E., Burrell, L. E., Lu, H., Ferguson, E. G., Zhou, Z., Cook, R. L., & Ennis, N. (2019). The prevalence and patterns of substance use by birth cohort among HIV-positive adults in Florida. Aging & Mental Health, 23(4), 515–523. doi: 10.1080/13607863.2018.1430740
  • Mannes, Z. L., Burrell, L. E., Ferguson II, E. G., Zhou, Z., Lu, H., Somboonwit, C., Cook, R. L., & Ennis, N. (2018a). The association of therapeutic versus recreational marijuana use and antiretroviral adherence among adults living with HIV in Florida. Patient Preference and Adherence, 12, 1363–1372. doi: 10.2147/PPA.S167826
  • Mannes, Z. L., Ferguson, E. G., Burrell, L. E., Cook, R. L., & Ennis, N. (2018). Brief report: The association between recreational versus therapeutic marijuana use on hazardous alcohol consumption and alcohol-associated behavioral consequences among adults living with HIV in Florida. Harm Reduction Journal, 15(1), 61. doi: 10.1186/s12954-018-0266-2
  • Mannes, Z. L., Hearn, L. E., Zhou, Z., Janelle, J. W., Cook, R. L., & Ennis, N. (2019a). The association between symptoms of generalized anxiety disorder and appointment adherence, overnight hospitalization, and emergency department/urgent care visits among adults living with HIV enrolled in care. Journal of Behavioral Medicine, 42(2), 330–341. doi: 10.1007/s10865-018-9988-6
  • Miller, W. R. (1995). The Drinker Inventory of Consequences (DrInC): An instrument for assessing adverse consequences of alcohol abuse: Test manual (No. 95). US Department of Health and Human Services, Public Health Service, National Institutes of Health, National Institute on Alcohol Abuse and Alcoholism.
  • Pilkonis, P. A., Choi, S. W., Reise, S. P., Stover, A. M., Riley, W. T., Cella, D., & Cooperative Group, P. R. O. M. I. S. (2011). Item banks for measuring emotional distress from the Patient-reported outcomes Measurement information system (PROMIS®): depression, anxiety, and anger. Assessment, 18(3), 263–283. doi: 10.1177/1073191111411667
  • Pilkonis, P. A., Yu, L., Colditz, J., Dodds, N., Johnston, K. L., Maihoefer, C., Stover, A. M., Daley, D. C., & McCarty, D. (2013). Item banks for alcohol use from the Patient-reported outcomes Measurement information system (PROMIS®): Use, consequences, and expectancies. Drug and Alcohol Dependence, 130(1-3), 167–177. doi: 10.1016/j.drugalcdep.2012.11.002
  • Russell, D. W. (1996). UCLA Loneliness Scale (Version 3): Reliability, validity, and factor structure. Journal of Personality Assessment, 66(1), 20–40. doi: 10.1207/s15327752jpa6601_2
  • Sharpe, J. D., Zhou, Z., Escobar-Viera, C. G., Morano, J. P., Lucero, R. J., Ibañez, G. E., Hart, M., Cook, C. L., & Cook, R. L. (2018). Interest in using mobile technology to help self-manage alcohol use among persons living with the human immunodeficiency virus: A Florida Cohort cross-sectional study. Substance Abuse, 39(1), 77–82. doi: 10.1080/08897077.2017.1356793
  • Shelbourne, C. D., & Stewart, A. L. (1991). The MOS social support survey. Social Science & Medicine, 32(6), 705–714. doi:10.1016/0277-9536(91)90150-B.
  • Spitzer, R. L., Kroenke, K., Williams, J. B., & Löwe, B. (2006). A brief measure for assessing generalized anxiety disorder: The GAD-7. Archives of Internal Medicine, 166(10), 1092–1097. doi: 10.1001/archinte.166.10.1092
  • Steinberg, L., Sharp, C., Stanford, M. S., & Tharp, A. T. (2013). New tricks for an old measure: The development of the Barratt Impulsiveness Scale–Brief (BIS-Brief). Psychological Assessment, 25(1), 216–226. doi: 10.1037/a0030550
  • Vagenas, P., Azar, M. M., Copenhaver, M. M., Springer, S. A., Molina, P. E., & Altice, F. L. (2015). The impact of alcohol use and related disorders on the HIV continuum of care: A systematic review. Current HIV/AIDS Reports, 12(4), 421–436. doi: 10.1007/s11904-015-0285-5
  • Wang, Y., Fridberg, D. J., Leeman, R. F., Cook, R. L., & Porges, E. C. (2019). Wrist-worn alcohol biosensors: Strengths, limitations, and future directions. Alcohol, 81, 83–92. doi: 10.1016/j.alcohol.2018.08.013
  • Ware, J. E. K. M., Kosinski, M., Dewey, J. S., & Gandek, B. (2001). How to score and interpret single-item health status measures: a manual for users of the SF-8 health survey.
  • Wijayabahu, A. T., Zhou, Z., Cook, R. L., Brumback, B., Ennis, N., & Yaghjyan, L. (2019). Healthy behavioral choices and cancer screening in persons living with HIV/AIDS are different by sex and years since HIV diagnosis. Cancer Causes & Control, 30(3), 281–290. doi: 10.1007/s10552-019-1135-3
  • Wilson, I. B., Fowler, F. J., Cosenza, C. A., Michaud, J., Bentkover, J., Rana, A., Kogelman, L., & Rogers, W. H. (2014). Cognitive and field testing of a new set of medication adherence self-report items for HIV care. AIDS and Behavior, 18(12), 2349–2358. doi: 10.1007/s10461-013-0610-1
  • Xu, Y., Chen, X., Zhou, Z., Morano, J., & Cook, R. L. (2019). The interaction between detectable plasma viral load and increased body mass index on hypertension among persons living with HIV. AIDS Care, 1–6. doi: 10.1080/09540121.2019.1668521

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