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AIDS Care
Psychological and Socio-medical Aspects of AIDS/HIV
Volume 34, 2022 - Issue 4
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Research Article

Family Connections randomized controlled trial: assessing the feasibility and acceptability of an intervention with adolescents living with HIV and their caregivers in Ndola, Zambia

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Pages 459-468 | Received 22 Sep 2020, Accepted 09 Mar 2021, Published online: 25 Mar 2021

References

  • Alvarado, G., Skinner, M., Plaut, D., Moss, C., Kapungu, C., & Reavley, N. (2017). A systematic review of positive youth development programs in low-and middle-income countries. Youth Power Learning, Making Cents International.
  • Bandura, A. (1991). Social cognitive theory of self-regulation. Organizational Behavior and Human Decision Processes, 50(2), 248–287. https://doi.org/10.1016/0749-5978(91)90022-L
  • Bandura, A. (2001). Social cognitive theory: An agentic perspective. Annual Review of Psychology, 52(1), 1–26. https://doi.org/10.1146/annurev.psych.52.1.1
  • Bhana, A., McKay, M. M., Mellins, C., Petersen, I., & Bell, C. (2010). Family-based HIV prevention and intervention services for youth living in poverty-affected contexts: The CHAMP model of collaborative, evidence-informed programme development. Journal of the International AIDS Society, 13(Suppl 2), S8. https://doi.org/10.1186/1758-2652-13-S2-S8
  • Brown, L. K., Lourie, K. J., & Pao, M. (2000). Children and adolescents living with HIV and AIDS: A review. Journal of Child Psychology and Psychiatry, 41(1), 81–96. https://doi.org/10.1017/S0021963099004977
  • Denison, J., Banda, H., Dennis, A., Packer, C., Nyambe, N., Stalter, R., Mwansa, J., Katayamoyo, P., & McCarraher, D. (2015). “The sky is the limit”: Adhering to antiretroviral therapy and HIV self-management from the perspectives of adolescents living with HIV and their adult caregivers. Journal of the International AIDS Society, 18(1), 19358. https://doi.org/10.7448/IAS.18.1.19358
  • Denison, J., Packer, C., Stalter, R., Banda, H., Mercer, S., Nyambe, N., Katayamoyo, P., Mwansa, J., & McCarraher, D. (2018). Factors related to incomplete adherence to antiretroviral therapy among adolescents attending three HIV clinics in the Copperbelt, Zambia. AIDS and Behavior, 22(3), 996–1005. https://doi.org/10.1007/s10461-017-1944-x
  • Design for Health. Design for health: Glossary of design terms. Bill & Melinda Gates Foundation and USAID Center for Innovation and Impact. Retrieved January 12, 2021 from https://www.designforhealth.org/resources/glossary-of-design-terms
  • FHI360. (2013a). Adolescents living with HIV in Zambia: An examination of HIV care and treatment and family planning. Retrieved June 23, from https://www.fhi360.org/sites/default/files/media/documents/zambia-adolescents-living-hiv-integration-family-planning.pdf
  • FHI360. (2013b). Positive Connections: Leading information and support groups for adolescents living with HIV. Retrieved September 1, from https://www.fhi360.org/sites/default/files/media/documents/positive-connections-2013.pdf
  • Kalichman, S. C., Simbayi, L. C., Cloete, A., Mthembu, P. P., Mkhonta, R. N., & Ginindza, T. (2009). Measuring AIDS stigmas in people living with HIV/AIDS: The internalized AIDS-related stigma scale. AIDS Care, 21(1), 87–93. https://doi.org/10.1080/09540120802032627
  • Kirk, S., & Hinton, D. (2019). “I’m not what I used to be”: A qualitative study exploring how young people experience being diagnosed with a chronic illness. Child: Care, Health and Development, 45(2), 216–226. https://doi.org/10.1111/cch.12638
  • Lerner, R. M., Abo-Zena, M., Bebiroglu, N., Brittian, A., & Lynch, A. (2009). Positive youth development. In S. J. DiClemente R, R. Crosby, & J. Bass (Eds.), Adolescent health: Understanding and preventing risk behaviors (pp. 115–128). Wiley.
  • Lerner, R. M., Lerner, J. V., Almerigi, J., Theokas, C., Phelps, E., Naudeau, S., & Von Eye, A. (2006). Towards a new vision and vocabulary about adolescence: Theoretical, empirical, and applied bases of a “positive youth development” perspective. In L. Balter & C. S. Tamis-LeMonda (Eds.). Child psychology: A handbook of contemporary issues (pp. 445–469). Psychology Press.
  • Lightfoot, M. A., Kasirye, R., Comulada, W. S., & Rotheram-Borus, M. J. (2007). Efficacy of a culturally adapted intervention for youth living with HIV in Uganda. Prevention Science, 8(4), 271–273. https://doi.org/10.1007/s11121-007-0074-5
  • Lowenthal, E. D., Marukutira, T., Tshume, O., Chapman, J., Nachega, J. B., Anabwani, G., & Gross, R. (2015). Parental absence from clinic predicts human immunodeficiency virus treatment failure in adolescents. JAMA Pediatrics, 169(5), 498–500. https://doi.org/10.1001/jamapediatrics.2014.3785
  • MacPherson, P., Munthali, C., Ferguson, J., Armstrong, A., Kranzer, K., Ferrand, R. A., & Ross, D. A. (2015). Service delivery interventions to improve adolescents’ linkage, retention and adherence to antiretroviral therapy and HIV care. Tropical Medicine & International Health, 20(8), 1015–1032. https://doi.org/10.1111/tmi.12517
  • Mburu, G., Hodgson, I., Teltschik, A., Ram, M., Haamujompa, C., Bajpai, D., & Mutali, B. (2013). Rights-based services for adolescents living with HIV: Adolescent self-efficacy and implications for health systems in Zambia. Reproductive Health Matters, 21(41), 176–185. https://doi.org/10.1016/S0968-8080(13)41701-9
  • McCarraher, D. R., Packer, C., Mercer, S., Dennis, A., Banda, H., Nyambe, N., Stalter, R. M., Mwansa, J. K., Katayamoyo, P., & Denison, J. A. (2018). Adolescents living with HIV in the Copperbelt province of Zambia: Their reproductive health needs and experiences. PLoS One, 13(6), e0197853. https://doi.org/10.1371/journal.pone.0197853
  • Monaghan, L. F., & Gabe, J. (2018). Managing stigma: Young people, asthma, and the politics of chronic illness. Qualitative Health Research, 29(13), 1877–1889. https://doi.org/10.1177/1049732318808521.
  • Pantelic, M., Steinert, J. I., Park, J., Mellors, S., & Murau, F. (2019). “Management of a spoiled identity”: Systematic review of interventions to address self-stigma among people living with and affected by HIV. BMJ Global Health, 4(2), e001285. https://doi.org/10.1136/bmjgh-2018-001285
  • Parker, L., Maman, S., Pettifor, A., Chalachala, J. L., Edmonds, A., Golin, C. E., Moracco, K., & Behets, F. (2013). Adaptation of a U.S. evidence-based positive prevention intervention for youth living with HIV/AIDS in Kinshasa, Democratic Republic of the Congo. Evaluation and Program Planning, 36(1), 124–135. https://doi.org/10.1016/j.evalprogplan.2012.09.002
  • Pequegnat, W., & Szapocznik, J. (2000). Working with families in the era of HIV/AIDS. Sage.
  • Pequegnat W, B. C. (2011). Family and HIV/AIDS: Cultural and contextual issues in prevention and treatment. Springer.
  • Perrino, T., González-Soldevilla, A., Pantin, H., & Szapocznik, J. (2000). The role of families in adolescent HIV prevention: A review. Clinical Child and Family Psychology Review, 3(2), 81–96. https://doi.org/10.1023/A:1009571518900
  • Poulsen, M. N., Vandenhoudt, H., Wyckoff, S. C., Obong’o, C. O., Ochura, J., Njika, G., Otwoma, N. J., & Miller, K. S. (2010). Cultural adaptation of a U.S. evidence-based parenting intervention for rural western Kenya: From parents matter! To families matter!. AIDS Education and Prevention, 22(4), 273–285. https://doi.org/10.1521/aeap.2010.22.4.273
  • Reif, L. K., Abrams, E. J., Arpadi, S., Elul, B., McNairy, M. L., Fitzgerald, D. W., & Kuhn, L. (2020). Interventions to improve antiretroviral therapy adherence among adolescents and youth in low-and middle-income countries: A systematic review 2015–2019. AIDS and Behavior, 1–14. https://doi.org/10.1007/s10461-020-02822-4
  • Richter, L., Beyrer, C., Kippax, S., & Heidari, S. (2010). Visioning services for children affected by HIV and AIDS through a family lens. BioMed Central.
  • Ridgeway, K., Dulli, L. S., Murray, K. R., Silverstein, H., Dal Santo, L., Olsen, P., de Mora, D. D., & McCarraher, D. R. (2018). Interventions to improve antiretroviral therapy adherence among adolescents in low-and middle-income countries: A systematic review of the literature. PLoS One, 13(1). https://doi.org/10.1371/journal.pone.0189770
  • Rongkavilit, C., Wang, B., Naar-King, S., Bunupuradah, T., Parsons, J. T., Panthong, A., Koken, J. A., Saengcharnchai, P., & Phanuphak, P. (2015). Motivational interviewing targeting risky sex in HIV-positive young Thai men who have sex with men. Archives of Sexual Behavior, 44(2), 329–340. https://doi.org/10.1007/s10508-014-0274-6
  • Rotheram-Borus, M. J., Swendeman, D., Lee, S.-J., Li, L., Amani, B., & Nartey, M. (2011). Interventions for families affected by HIV. Translational Behavioral Medicine, 1(2), 313–326. https://doi.org/10.1007/s13142-011-0043-1
  • Sengupta, S., Banks, B., Jonas, D., Miles, M. S., & Smith, G. C. (2011). HIV interventions to reduce HIV/AIDS stigma: A systematic review. AIDS and Behavior, 15(6), 1075–1087. https://doi.org/10.1007/s10461-010-9847-0
  • Tinsley, B. J., Lees, N. B., & Sumartojo, E. (2004). Child and adolescent HIV risk: Familial and cultural perspectives. Journal of Family Psychology, 18(1), 208. https://doi.org/10.1037/0893-3200.18.1.208
  • WHO. (2014). Health for the world’s adolescents: A second chance in the second decade. Retrieved June 23, from http://apps.who.int/adolescent/second-decade/section2/page5/adolescence-psychological-and-social-changes.html
  • Wicks, S., Berger, Z., & Camic, P. M. (2019). It’s how I am … it’s what I am … it’s a part of who I am: A narrative exploration of the impact of adolescent-onset chronic illness on identity formation in young people. Clinical Child Psychology and Psychiatry, 24(1), 40–52. https://doi.org/10.1177/1359104518818868
  • Willis, N., Milanzi, A., Mawodzeke, M., Dziwa, C., Armstrong, A., Yekeye, I., Mtshali, P., & James, V. (2019). Effectiveness of community adolescent treatment supporters (CATS) interventions in improving linkage and retention in care, adherence to ART and psychosocial well-being: A randomised trial among adolescents living with HIV in rural Zimbabwe. BMC Public Health, 19(1), 117. https://doi.org/10.1186/s12889-019-6447-4