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AIDS Care
Psychological and Socio-medical Aspects of AIDS/HIV
Volume 34, 2022 - Issue 9
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Research Article

Slipping through the cracks: a qualitative study to explore pathways of HIV care and treatment amongst hospitalised patients with advanced HIV in Kenya and the Democratic Republic of the Congo

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Pages 1179-1186 | Received 01 Apr 2021, Accepted 03 Aug 2021, Published online: 26 Aug 2021

References

  • Bird, P., Omar, M., Doku, V., Lund, C., Nsereko, J. R., & Mwanza, J. (2011). Increasing the priority of mental health in Africa: Findings from qualitative research in Ghana, South Africa, Uganda and Zambia. Health Policy and Planning, 26(5), 357–365. https://doi.org/10.1093/heapol/czq078
  • Bossard, C., Schramm, B., Wanjala, S., Jain, L., Mucinya, G., Opollo, V., Wiesner, L., Cutsem, G. V. A. N., Poulet, E., Szumillin, E., Ellman, T., & Maman, D. (2021). High prevalence of NRTI and NNRTI drug resistance among ART-experienced, hospitalized inpatients. JAIDS, 87(3), 883–888. https://doi.org/10.1097/QAI.0000000000002689
  • Bukenya, D., Wringe, A., Moshabela, M., Skovdal, M., Ssekubugu, R., Paparini, S., Renju, J., McLean, E., Bonnington, O., Wamoyi, J., & Seeley, J. (2017). Where are we now? A multicountry qualitative study to explore access to pre-antiretroviral care services: A precursor to antiretroviral therapy initiation. Sexually Transmitted Infections, 93(Suppl 3), e052970. https://doi.org/10.1136/sextrans-2016-052970
  • Burns, R., Borges, J., Blasco, P., Vandenbulcke, A., Mukui, I., Magalasi, D., Molfino, L., Manuel, R., Schramm, B., & Wringe, A. (2019). ‘I saw it as a second chance’: A qualitative exploration of experiences of treatment failure and regimen change among people living with HIV on second- and third-line antiretroviral therapy in Kenya, Malawi and Mozambique. Global Public Health, 14(8), 1112–1124. https://doi.org/10.1080/17441692.2018.1561921
  • Charmaz, K. (2014). Constructing grounded theory (2nd ed.). SAGE Publications.
  • Chihana, M. L., Huerga, H., Van Cutsem, G., Ellman, T., Goemaere, E., Wanjala, S., Masiku, C., Szumilin, E., Etard, J. F., Maman, D., & Davies, M. A. (2019). Distribution of advanced HIV disease from three high HIV prevalence settings in Sub-Saharan Africa: A secondary analysis data from three population-based cross-sectional surveys in Eshowe (South Africa), Ndhiwa (Kenya) and Chiradzulu (Malawi). Global Health Action, 12(1), 1679472. https://doi.org/10.1080/16549716.2019.1679472
  • Christofides, N., & Jewkes, R. (2010). Acceptability of universal screening for intimate partner violence in voluntary HIV testing and counseling services in South Africa and service implications. AIDS Care, 22(3), 279–285. https://doi.org/10.1080/09540120903193617
  • Chuah, F. L. H., Haldane, V. E., Cervero-Liceras, F., Ong, S. E., Sigfrid, L. A., Murphy, G., Watt, N., Balabanova, D., Hogarth, S., Maimaris, W., Otero, L., Buse, K., McKee, M., Piot, P., Perel, P., & Legido-Quigley, H. (2017). Interventions and approaches to integrating HIV and mental health services: A systematic review. Health Policy and Planning, 32(Suppl 4), iv27–iv47. https://doi.org/10.1093/heapol/czw169
  • Enane, L. A., Apondi, E., Toromo, J., Bosma, C., Ngeresa, A., Nyandiko, W., & Vreeman, R. C. (2020). “A problem shared is half solved” – a qualitative assessment of barriers and facilitators to adolescent retention in HIV care in western Kenya. AIDS Care, 32(1), 104–112. https://doi.org/10.1080/09540121.2019.1668530
  • Enane, L. A., Mokete, K., Joel, D., Daimari, R., Tshume, O., Anabwani, G., Mazhani, L., Steenhoff, A. P., & Lowenthal, E. D. (2018). “We did not know what was wrong”—barriers along the care cascade among hospitalized adolescents with HIV in Gaborone, Botswana. PLoS ONE, 13(4), e0195372. https://doi.org/10.1371/journal.pone.0195372
  • Gilbert, L., Raj, A., Hien, D., Stockman, J., Terlikbayeva, A., & Wyatt, G. (2015). Targeting the SAVA (substance abuse, violence, and AIDS) syndemic Among women and girls. JAIDS Journal of Acquired Immune Deficiency Syndromes, 69(Suppl 2(0 2)), S118–S127. https://doi.org/10.1097/QAI.0000000000000626
  • Green, J., & Thorogood, N. (2004). Qualitative methodology and health research. SAGE Publications Ltd.
  • Heestermans, T., Browne, J. L., Aitken, S. C., Vervoort, S. C., & Klipstein-Grobusch, K. (2016). Determinants of adherence to antiretroviral therapy among HIV-positive adults in sub-Saharan Africa: A systematic review. BMJ Global Health, 1(4), e000125. https://doi.org/10.1136/bmjgh-2016-000125
  • Horter, S., Thabede, Z., Dlamini, V., Bernays, S., Stringer, B., Mazibuko, S., Dube, L., Rusch, B., & Jobanputra, K. (2017). “Life is so easy on ART, once you accept it”: acceptance, denial and linkage to HIV care in shiselweni, Swaziland. Social Science & Medicine, 176, 52–59. https://doi.org/10.1016/j.socscimed.2017.01.006
  • Kranzer, K., & Ford, N. (2011). Unstructured treatment interruption of antiretroviral therapy in clinical practice: A systematic review. Tropical Medicine and International Health, 16(10), 1297–313. https://doi.org/10.1111/j.1365-3156.2011.02828.x
  • Mall, S., Sorsdahl, K., Swartz, L., & Joska, J. (2012). “I understand just a little … ” perspectives of HIV/AIDS service providers in South Africa of providing mental health care for people living with HIV/AIDS. AIDS Care, 24(3), 319–323. https://doi.org/10.1080/09540121.2011.608790
  • McCoy, S. I., Miller, W. C., MacDonald, P. D. M., Hurt, C. B., Leone, P. A., Eron, J. J., & Strauss, R. P. (2009). Barriers and facilitators to HIV testing and linkage to primary care: Narratives of people with advanced HIV in the southeast. AIDS Care, 21(10), 1313–1320. https://doi.org/10.1080/09540120902803174
  • Merten, S., Kenter, E., McKenzie, O., Musheke, M., Ntalasha, H., & Martin-Hilber, A. (2010). Patient-reported barriers and drivers of adherence to antiretrovirals in sub-Saharan Africa: A meta-ethnography. Tropical Medicine and International Health, 15(Suppl. 1), 16–33. https://doi.org/10.1111/j.1365-3156.2010.02510.x
  • Mitchell, J., Wight, M., Van Heerden, A., & Rochat, T. J. (2016). Intimate partner violence, HIV, and mental health: A triple epidemic of global proportions. International Review of Psychiatry, 28(5), 452–463. https://doi.org/10.1080/09540261.2016.1217829
  • Musheke, M., Ntalasha, H., Gari, S., Mckenzie, O., Bond, V., Martin-Hilber, A., & Merten, S. (2013). A systematic review of qualitative findings on factors enabling and deterring uptake of HIV testing in Sub-Saharan Africa. BMC Public Health, 13, 220. https://doi.org/10.1186/1471-2458-13-220
  • Ndlovu, Z., Burton, R., Stewart, R., Bygrave, H., Roberts, T., Fajardo, E., Mataka, A., Szumilin, E., Kerschberger, B., Van Cutsem, G., & Ellman, T. (2020). Framework for the implementation of advanced HIV disease diagnostics in sub-Saharan Africa: Programmatic perspectives. The Lancet HIV, X(7), e514–e520. https://doi.org/10.1016/S2352-3018(20)30101-6
  • Nguyen, V.-K., Ako, C. Y., Niamba, P., Sylla, A., & Tiendrébéogo, I. (2007). Adherence as therapeutic citizenship: Impact of the history of access to antiretroviral drugs on adherence to treatment. Aids (london, England), 21(Suppl 5), S31–S35. https://doi.org/10.1097/01.aids.0000298100.48990.58
  • Osler, M., Hilderbrand, K., Goemaere, E., Ford, N., Smith, M., Meintjes, G., Kruger, J., Govender, N. P., & Boulle, A. (2018). The continuing burden of advanced HIV disease over 10 years of increasing antiretroviral therapy coverage in South Africa. Clinical Infectious Diseases, 66(suppl_2), S118–S125. https://doi.org/10.1093/cid/cix1140
  • Ousley, J., Niyibizi, A. A., Wanjala, S., Vandenbulcke, A., Kirubi, B., Omwoyo, W., Price, J., Salumu, L., Szumilin, E., Spiers, S., Van Cutsem, G., Mashako, M., Mangana, F., Moudarichirou, R., Harrison, R., Kalwangila, T., Lumowo, G., Lambert, V., & Maman, D. (2018). High proportions of patients with advanced HIV Are antiretroviral therapy experienced: Hospitalization outcomes from 2 Sub-Saharan African sites. Clinical Infectious Diseases, 66(suppl_2), S126–S131. https://doi.org/10.1093/cid/ciy103
  • Paparini, S., & Rhodes, T. (2016). The biopolitics of engagement and the HIV cascade of care: A synthesis of the literature on patient citizenship and antiretroviral therapy. Critical Public Health, 26(5), 501–517. https://doi.org/10.1080/09581596.2016.1140127
  • Rao, K. C., Enriquez, M., Gantt, T. C., Gerkovich, M. M., Bonham, A. J., Griffin, R. G., & Bamberger, D. M. (2013). Nonengagement in HIV care. Journal of the International Association of Providers of AIDS Care (JIAPAC), 12(3), 178–184. https://doi.org/10.1177/2325957412472058
  • Russell, S., Namukwaya, S., Zalwango, F., & Seeley, J. (2016). The framing and fashioning of therapeutic citizenship among people living with HIV taking antiretroviral therapy in Uganda. Qualitative Health Research, 26(11), 1447–58. https://doi.org/10.1177/1049732315597654
  • Skovdal, M., Ssekubugu, R., Nyamukapa, C., Seeley, J., Renju, J., Wamoyi, J., Moshabela, M., Ondenge, K., Wringe, A., Gregson, S., & Zaba, B. (2019). The rebellious man: Next-of-kin accounts of the death of a male relative on antiretroviral therapy in sub-Saharan Africa. Global Public Health, 14(9), 1252–1263. https://doi.org/10.1080/17441692.2019.1571092
  • Skovdal, M., Wringe, A., Seeley, J., Renju, J., Paparini, S., Wamoyi, J., Moshabela, M., Ddaaki, W., Nyamukapa, C., Ondenge, K., Bernays, S., & Bonnington, O. (2017). Using theories of practice to understand HIV-positive persons varied engagement with HIV services: A qualitative study in six Sub-Saharan African countries. Sexually Transmitted Infections, 93(Suppl 3), e052977. https://doi.org/10.1136/sextrans-2016-052977
  • Tarimo, E. a. M., Kohi, T. W., Outwater, A., & Blystad, A. (2009). Gender roles and informal care for patients With AIDS. Journal of Transcultural Nursing, 20(1), 61–68. https://doi.org/10.1177/1043659608325843
  • UNAIDS. (2019). Global HIV and AIDS statistics, World AIDS Day 2019 fact sheet. UNAIDS.
  • Venables, E., Casteels, I., Sumbi, E. M., & Goemaere, E. (2019). “Even if she’s really sick at home, she will pretend that everything is fine”: Delays in seeking care and treatment for advanced HIV disease in Kinshasa, Democratic Republic of Congo. PLoS ONE, 14(2), e0211619. https://doi.org/10.1371/journal.pone.0211619
  • Whyte, S. R., Whyte, M. A., Meinert, L., & Twebaze, J. (2013). Therapeutic clientship: Belonging in Uganda’s projectified landscape of AIDS care. In J. Biehl & A. Petryna (Eds.), When people come first: Critical studies in Global health (pp. 140–165 ). Princeton Scholarship Online. https://doi.org/10.1515/9781400846801-008
  • Wringe, A., Moshabela, M., Nyamukapa, C., Bukenya, D., Ondenge, K., Ddaaki, W., Wamoyi, J., Seeley, J., Church, K., Zaba, B., Hosegood, V., Bonnington, O., Skovdal, M., & Renju, J. (2017). HIV testing experiences and their implications for patient engagement with HIV care and treatment on the eve of ‘test and treat’: Findings from a multicountry qualitative study. Sexually Transmitted Infections, 93(Suppl 3), e052969. https://doi.org/10.1136/sextrans-2016-052969
  • Wringe, A., Renju, J., Seeley, J., Moshabela, M., & Skovdal, M. (2017). Bottlenecks to HIV care and treatment in sub-Saharan Africa: A multi-country qualitative study. Sexually Transmitted Infections, 93(Suppl 3), e053172. https://doi.org/10.1136/sextrans-2017-053172