Virtual voices: examining social support exchanged through participant-generated and unmoderated content in a mobile intervention to improve HIV antiretroviral therapy adherence among GBMSM

References

• Abbasi Shavazi, M., Morowatisharifabad, M. A., Abbasi Shavazi, M. T., Mirzaei, M., & Mellat Ardekani, A. (2016). Online social support for patients with multiple sclerosis: A thematic analysis of messages posted to a virtual support community. International Journal of Community Based Nursing and Midwifery, 4(3), 188–198.
   PubMedGoogle Scholar
• Antiretroviral Therapy Cohort Collaboration. (2008). Life expectancy of individuals on combination antiretroviral therapy in high-income countries: A collaborative analysis of 14 cohort studies. The Lancet, 372(9635), 293–299. https://doi.org/10.1016/S0140-6736(08)61113-7
   PubMed Web of Science ®Google Scholar
• Boarts, J. M., Sledjeski, E. M., Bogart, L. M., & Delahanty, D. L. (2006). The differential impact of PTSD and depression on HIV disease markers and adherence to HAART in people living with HIV. AIDS and Behavior, 10(3), 253–261. https://doi.org/10.1007/s10461-006-9069-7
   PubMed Web of Science ®Google Scholar
• Bourne, A., & Weatherburn, P. (2017). Substance use among men who have sex with men: Patterns, motivations, impacts and intervention development need. Sexually Transmitted Infections, 93(5), 342–346. https://doi.org/10.1136/sextrans-2016-052674
   PubMed Web of Science ®Google Scholar
• Brandt, S. A., & Carmichael, C. L. (2020). Does online support matter? The relationship between online identity-related support, mattering, and well-being in sexual minority men. Computers in Human Behavior, 111. https://doi.org/10.1016/j.chb.2020.106429
   Google Scholar
• Broadhead, R. S., Heckathorn, D. D., Altice, F. L., Van Hulst, Y., Carbone, M., Friedland, G. H., O’Connor, P. G., & Selwyn, P. A. (2002). Increasing drug users’ adherence to HIV treatment: Results of a peer-driven intervention feasibility study. Social Science and Medicine, 55(2), 235–246. https://doi.org/10.1016/S0277-9536(01)00167-8
   PubMed Web of Science ®Google Scholar
• Burgoyne, R. W. (2005). Exploring direction of causation between social support and clinical outcome for HIV-positive adults in the context of highly active antiretroviral therapy. AIDS Care - Psychological and Socio-Medical Aspects of AIDS/HIV, 17(1), 111–124. https://doi.org/10.1080/09540120412331305179
   PubMed Web of Science ®Google Scholar
• Centers for Disease Control and Prevention. (2018). HIV surveillance report, 2018 (Updated) (Vol. 31). http://www.cdc.gov/hiv/library/reports/hiv-surveillance.html
   Google Scholar
• Cochran, S. D., & Mays, V. M. (2000). Relation between psychiatric syndromes and behaviorally defined sexual orientation in a sample of the US population. American Journal of Epidemiology, 151(5), 516–523. https://doi.org/10.1093/oxfordjournals.aje.a010238
   PubMed Web of Science ®Google Scholar
• Cochran, S. D., Sullivan, J. G., & Mays, V. M. (2003). Prevalence of mental disorders, psychological distress, and mental health services use among lesbian, gay, and bisexual adults in the United States. Journal of Consulting and Clinical Psychology, 71(1), 53–61. https://doi.org/10.1037/0022-006X.71.1.53
   PubMed Web of Science ®Google Scholar
• Cohen, M. S., Chen, Y. Q., McCauley, M., Gamble, T., Hosseinipour, M. C., Kumarasamy, N., Hakim, J. G., Kumwenda, J., Grinsztejn, B., Pilotto, J. H. S., Godbole, S. V., Chariyalertsak, S., Santos, B. R., Mayer, K. H., Hoffman, I. F., Eshleman, S. H., Piwowar-Manning, E., Cottle, L., Zhang, X. C., … Fleming, T. R. (2016). Antiretroviral therapy for the prevention of HIV-1 transmission. New England Journal of Medicine, 375(9), 830–839. https://doi.org/10.1056/NEJMoa1600693
   PubMed Web of Science ®Google Scholar
• Cohen, M. S., Chen, Y. Q., McCauley, M., Gamble, T., Hosseinipour, M. C., Kumarasamy, N., Hakim, J. G., Kumwenda, J., Grinsztejn, B., Pilotto, J. H. S., Godbole, S. V., Mehendale, S., Chariyalertsak, S., Santos, B. R., Mayer, K. H., Hoffman, I. F., Eshleman, S. H., Piwowar-Manning, E., Wang, L., … Fleming, T. R. (2011). Prevention of HIV-1 infection with early antiretroviral therapy. New England Journal of Medicine, 365(6), 493–505. https://doi.org/10.1056/NEJMoa1105243
   PubMed Web of Science ®Google Scholar
• Coulson, N. S., Buchanan, H., & Aubeeluck, A. (2007). Social support in cyberspace: A content analysis of communication within a huntington’s disease online support group. Patient Education and Counseling, 68(2), 173–178. https://doi.org/10.1016/j.pec.2007.06.002
   PubMed Web of Science ®Google Scholar
• Coursaris, C. K., & Liu, M. (2009). An analysis of social support exchanges in online HIV/AIDS self-help groups. Computers in Human Behavior, 25(4), 911–918. https://doi.org/10.1016/j.chb.2009.03.006
   Web of Science ®Google Scholar
• Deering, K. N., Shannon, K., Sinclair, H., Parsad, D., Gilbert, E., & Tyndall, M. W. (2009). Piloting a peer-driven intervention model to increase access and adherence to antiretroviral therapy and HIV care among street-entrenched HIV-positive women in vancouver. AIDS Patient Care and STDs, 23(8), 603–609. https://doi.org/10.1089/apc.2009.0022
   PubMed Web of Science ®Google Scholar
• Eichhorn, K. C. (2008). Soliciting and providing social support over the internet: An investigation of online eating disorder support groups. Journal of Computer-Mediated Communication, 14(1), 67–78. https://doi.org/10.1111/j.1083-6101.2008.01431.x
   Web of Science ®Google Scholar
• Flickinger, T. E., DeBolt, C., Waldman, A. L., Reynolds, G., Cohn, W. F., Beach, M. C., Ingersoll, K., & Dillingham, R. (2017). Social support in a virtual community: Analysis of a clinic-affiliated online support group for persons living with HIV/AIDS. AIDS and Behavior, 21(11), 3087–3099. https://doi.org/10.1007/s10461-016-1587-3
   PubMed Web of Science ®Google Scholar
• Friedman, M. R., Coulter, R. W. S., Silvestre, A. J., Stall, R., Teplin, L., Shoptaw, S., Surkan, P. J., & Plankey, M. W. (2017). Someone to count on: Social support as an effect modifier of viral load suppression in a prospective cohort study. AIDS Care - Psychological and Socio-Medical Aspects of AIDS/HIV, 29(4), 469–480. https://doi.org/10.1080/09540121.2016.1211614
   PubMed Web of Science ®Google Scholar
• Gardner, E. M., McLees, M. P., Steiner, J. F., Del Rio, C., & Burman, W. J. (2011). The spectrum of engagement in HIV care and its relevance to test-and-treat strategies for prevention of HIV infection. Clinical Infectious Diseases, 52(6), 793–800. https://doi.org/10.1093/cid/ciq243
   PubMed Web of Science ®Google Scholar
• George, S., Garth, B., Wohl, A. R., Galvan, F. H., Garland, W., & Myers, H. F. (2009). Sources and types of social support that influence engagement in HIV care among Latinos and African Americans. Journal of Health Care for the Poor and Underserved, 20(4), 1012–1035. https://doi.org/10.1353/hpu.0.0210
   PubMed Web of Science ®Google Scholar
• Hightow-Weidman, L., LeGrand, S., Choi, S. K., Egger, J., Hurt, C. B., & Muessig, K. E. (2017). Exploring the HIV continuum of care among young black MSM. PLoS ONE, 12(6), 1–20. https://doi.org/10.1371/journal.pone.0179688
   Web of Science ®Google Scholar
• Hightow-Weidman, L., Muessig, K., Knudtson, K., Srivatsa, M., Lawrence, E., LeGrand, S., Hotten, A., & Hosek, S. (2018). A gamified smartphone app to support engagement in care and medication adherence for HIV-positive young men who have sex with men (AllyQuest): Development and pilot study. JMIR Public Health and Surveillance, 4(2), e34. https://doi.org/10.2196/publichealth.8923
   PubMedGoogle Scholar
• HIV/AIDS Prevention Research Synthesis Project. (n.d.). Compendium of evidence-based interventions and best practices for HIV prevention. Retrieved July 2, 2020, from https://www.cdc.gov/hiv/research/interventionresearch/compendium/index.html
   Google Scholar
• Holtzman, C. W., Shea, J. A., Glanz, K., Jacobs, L. M., Gross, R., Hines, J., Mounzer, K., Samuel, R., Metlay, J. P., & Yehia, B. R. (2015). Mapping patient-identified barriers and facilitators to retention in HIV care and antiretroviral therapy adherence to Andersen’s behavioral model. AIDS Care - Psychological and Socio-Medical Aspects of AIDS/HIV, 27(7), 817–828. https://doi.org/10.1080/09540121.2015.1009362
   PubMed Web of Science ®Google Scholar
• Horvath, K. J., Amico, K. R., Erickson, D., Ecklund, A. M., Martinka, A., DeWitt, J., McLaughlin, J., & Parsons, J. T. (2018). Thrive with me: Protocol for a randomized controlled trial to test a peer support intervention to improve antiretroviral therapy adherence among men who have sex with men. JMIR Research Protocols, 7(5), e10182. https://doi.org/10.2196/10182
   PubMed Web of Science ®Google Scholar
• Horvath, K. J., Oakes, J. M., Rosser, B. R. S., Danilenko, G., Vezina, H., Amico, K. R., Michael Oakes, J., Simon Rosser, B. R., Rivet Amico, K., Williams, M. L., & Simoni, J. (2013). Feasibility, acceptability and preliminary efficacy of an online peer-to-peer social support ART adherence intervention. AIDS and Behavior, 17(6), 2031–2044. https://doi.org/10.1007/s10461-013-0469-1
   PubMed Web of Science ®Google Scholar
• House, J. S. (1981). Work stress and social support. Addison-Wesley Publishing Company, Inc.
   Google Scholar
• Indian, M., & Grieve, R. (2014). When Facebook is easier than face-to-face: Social support derived from Facebook in socially anxious individuals. Personality and Individual Differences, 59, 102–106. https://doi.org/10.1016/j.paid.2013.11.016
   Web of Science ®Google Scholar
• Jaiswal, J., Griffin-Tomas, M., Singer, S. N., & Lekas, H. M. (2018). Desire for patient-centered HIV care among inconsistently engaged racial and ethnic minority people living with HIV. Journal of the Association of Nurses in AIDS Care, 29(3), 426–438. https://doi.org/10.1016/j.jana.2018.01.001
   PubMed Web of Science ®Google Scholar
• Kalichman, S. C., Kalichman, M. O., & Cherry, C. (2017). Forget about forgetting: Structural barriers and severe non-adherence to antiretroviral therapy. AIDS Care - Psychological and Socio-Medical Aspects of AIDS/HIV, 29(4), 418–422. https://doi.org/10.1080/09540121.2016.1220478
   PubMed Web of Science ®Google Scholar
• Kelly, J. D., Hartman, C., Graham, J., Kallen, M. A., & Giordano, T. P. (2014). Social support as a predictor of early diagnosis, linkage, retention, and adherence to HIV care: Results from the steps study. Journal of the Association of Nurses in AIDS Care, 25(5), 405–413. https://doi.org/10.1016/j.jana.2013.12.002
   PubMed Web of Science ®Google Scholar
• Langebeek, N., Gisolf, E. H., Reiss, P., Vervoort, S. C., Hafsteinsdóttir, T. B., Richter, C., Sprangers, M. A., & Nieuwkerk, P. T. (2014). Predictors and correlates of adherence to combination antiretroviral therapy (ART) for chronic HIV infection: A meta-analysis. BMC Medicine, 12(1), 142. https://doi.org/10.1186/s12916-014-0142-1
   PubMed Web of Science ®Google Scholar
• Legrand, S., Muessig, K. E., Mcnulty, T., Soni, K., Knudtson, K., Lemann, A., Nwoko, N., & Hightow-weidman, L. B. (2016). Epic allies : development of a gaming app to improve antiretroviral therapy adherence among young HIV-positive men who have sex with men corresponding author. JMIR Serious Games, 4(1), e6. https://doi.org/10.2196/games.5687
   PubMed Web of Science ®Google Scholar
• McCoy, S. I., Strauss, R. P., MacDonald, P. D. M., Leone, P. A., Eron, J. J., & Miller, W. C. (2009). Social support and delays seeking care after HIV diagnosis, North Carolina, 2000-2006. AIDS Care - Psychological and Socio-Medical Aspects of AIDS/HIV, 21(9), 1148–1156. https://doi.org/10.1080/09540120902730021
   PubMed Web of Science ®Google Scholar
• Meshi, D., & Ellithorpe, M. E. (2021). Problematic social media use and social support received in real-life versus on social media: Associations with depression, anxiety and social isolation. Addictive Behaviors, 119. https://doi.org/10.1016/j.addbeh.2021.106949
   Google Scholar
• Mo, P. K., & Coulson, N. S. (2008). Exploring the communication of social support within virtual communities: A content analysis of messages posted to an online HIV/AIDS support group. CyberPsychology & Behavior, 11(3), 371–374. https://doi.org/10.1089/cpb.2007.0118
   PubMedGoogle Scholar
• Mugavero, M. J., Amico, K. R., Westfall, A. O., Crane, H. M., Zinski, A., Willig, J. H., Dombrowski, J. C., Norton, W. E., Raper, J. L., Kitahata, M. M., & Saag, M. S. (2012). Early retention in HIV care and viral load suppression: Implications for a test and treat approach to HIV prevention. JAIDS Journal of Acquired Immune Deficiency Syndromes, 59(1), 86–93. https://doi.org/10.1097/QAI.0b013e318236f7d2
   PubMed Web of Science ®Google Scholar
• Oetzel, J., Wilcox, B., Avila, M., Hill, R., Archiopoli, A., & Ginossar, T. (2015). Patient-provider interaction, patient satisfaction, and health outcomes: Testing explanatory models for people living with HIV/AIDS. AIDS Care - Psychological and Socio-Medical Aspects of AIDS/HIV, 27(8), 972–978. https://doi.org/10.1080/09540121.2015.1015478
   PubMed Web of Science ®Google Scholar
• Pearson, C. R., Micek, M. A., Simoni, J. M., Hoff, P. D., Matediana, E., Martin, D. P., & Gloyd, S. S. (2007). Randomized control trial of peer-delivered, modified directly observed therapy for HAART in Mozambique. JAIDS Journal of Acquired Immune Deficiency Syndromes, 46(2), 238–244. https://doi.org/10.1097/QAI.0b013e318153f7ba
   PubMed Web of Science ®Google Scholar
• Purcell, D. W., Johnson, C. H., Lansky, A., Prejean, J., Stein, R., Denning, P., Gau1, Z., Weinstock, H., Su, J., & Crepaz, N. (2012). Estimating the population size of men who have sex with men in the United States to obtain HIV and syphilis rates. The Open AIDS Journal, 6(Suppl 1:M6), 98–107. https://doi.org/10.2174/1874613601206010098
   PubMedGoogle Scholar
• Rains, S. A., Akers, C., Pavlich, C. A., Tsetsi, E., & Appelbaum, M. (2019). Examining the quality of social support messages produced face-to-face and in computer-mediated communication: The effects of hyperpersonal communication. Communication Monographs, 86(3), 271–291. https://doi.org/10.1080/03637751.2019.1595076/FORMAT/EPUB
   Web of Science ®Google Scholar
• Roberts, K. J. (2002). Physician-patient relationships, patient satisfaction, and antiretroviral medication adherence among HIV-infected adults attending a public health clinic. AIDS Patient Care and STDs, 16(1), 43–50. https://doi.org/10.1089/108729102753429398
   PubMed Web of Science ®Google Scholar
• Sanchez, T. H., Zlotorzynska, M., Sineath, R. C., Kahle, E., Tregear, S., & Sullivan, P. S. (2018). National trends in sexual behavior, substance use and HIV testing among United States men who have sex with men recruited online, 2013 through 2017. AIDS and Behavior, 22(8), 2413–2425. https://doi.org/10.1007/s10461-018-2168-4
   PubMed Web of Science ®Google Scholar
• Schneider, J., Kaplan, S. H., Greenfield, S., Li, W., & Wilson, I. B. (2004). Better physician-patient relationships are associated with higher reported adherence to antiretroviral therapy in patients with HIV infection. Journal of General Internal Medicine, 19(11), 1096–1103. https://doi.org/10.1111/j.1525-1497.2004.30418.x/full
   PubMed Web of Science ®Google Scholar
• Sherbourne, C. D., & Stewart, A. L. (1991). The MOS social support survey. Social Science & Medicine, 32(6), 705–714. https://doi.org/10.1016/0277-9536(91)90150-B
   PubMed Web of Science ®Google Scholar
• Simoni, J. M., Amico, K. R., Pearson, C. R., & Malow, R. (2008). Strategies for promoting adherence to antiretroviral therapy: A review of the literature. Current Infectious Disease Reports, 10(6), 515–521. https://doi.org/10.1007/s11908-008-0083-y
   PubMedGoogle Scholar
• Simoni, J. M., Huh, D., Frick, P. A., Pearson, C. R., Andrasik, M. P., Dunbar, P. J., & Hooton, T. M. (2009). Peer support and pager messaging to promote antiretroviral modifying therapy in Seattle: A randomized controlled trial. JAIDS Journal of Acquired Immune Deficiency Syndromes, 52(4), 465–473. https://doi.org/10.1097/QAI.0b013e3181b9300c
   PubMed Web of Science ®Google Scholar
• Singh, S., Mitsch, A., & Wu, B. (2017). HIV care outcomes among men who have sex with men with diagnosed HIV infection — United States, 2015. MMWR. Morbidity and Mortality Weekly Report, 66(37), 969–974. https://doi.org/10.15585/mmwr.mm6637a2
   PubMed Web of Science ®Google Scholar
• Tanis, M. (2008). Health-related on-line forums: What’s the big attraction? Journal of Health Communication, 13(7), 698–714. https://doi.org/10.1080/10810730802415316
   PubMed Web of Science ®Google Scholar
• Thompson, M. A., Mugavero, M. J., Amico, K. R., & Cargill, V. A. (2012). Guidelines for improving entry into and retention in care and antiretroviral adherence for persons with HIV: Evidence-based recommendations from an international association of physicians in AIDS Care panel. Annals of Internal Medicine, 156(11), 817–833. https://doi.org/10.7326/0003-4819-156-11-201206050-00419
   PubMed Web of Science ®Google Scholar
• White House Office of National AIDS Policy. (2015). National HIV/AIDS strategy for the United States: Updated to 2020. Washington: White House.
   Google Scholar
• Woodward, E. N., & Pantalone, D. W. (2012). The role of social support and negative affect in medication adherence for HIV-infected men who have sex with men. Journal of the Association of Nurses in AIDS Care, 23(5), 388–396. https://doi.org/10.1016/j.jana.2011.09.004
   PubMed Web of Science ®Google Scholar