“Make it more than a pill, make it an experience of health:” results from an open pilot intervention to retain young African American men who have sex with men in PrEP care

References

• Arnold, T., Brinkley-Rubinstein, L., Chan, P. A., Perez-Brumer, A., Bologna, E. S., Beauchamps, L., Johnson, K., Mena, L., & Nunn, A. (2017). Social, structural, behavioral and clinical factors influencing retention in pre-exposure prophylaxis (PrEP) care in Mississippi. PLOS ONE, 12(2), Article 2. https://doi.org/10.1371/journal.pone.0172354
   Web of Science ®Google Scholar
• Ayala, G. X., & Elder, J. P. (2011). Qualitative methods to ensure acceptability of behavioral and social interventions to the target population. Journal of Public Health Dentistry, 71, S69–S79. https://doi.org/10.1111/j.1752-7325.2011.00241.x
   PubMed Web of Science ®Google Scholar
• Bauermeister, J. A., Meanley, S., Pingel, E., Soler, J. H., & Harper, G. W. (2013). PrEP awareness and perceived barriers among single young men who have sex with men in the United States. Current HIV Research, 11(7), 520–527. https://doi.org/10.2174/1570162X12666140129100411
   PubMed Web of Science ®Google Scholar
• Biello, K. B., Psaros, C., Krakower, D. S., Marrow, E., Safren, S. A., Mimiaga, M. J., Hightow-Weidman, L., Sullivan, P., & Mayer, K. H. (2019). A pre-exposure prophylaxis adherence intervention (LifeSteps) for young men who have sex with men: Protocol for a pilot randomized controlled trial. JMIR Research Protocols, 8(1), e10661. https://doi.org/10.2196/10661
   PubMed Web of Science ®Google Scholar
• Bradley, H., Viall, A. H., Wortley, P. M., Dempsey, A., Hauck, H., & Skarbinski, J. (2015). Ryan White HIV/AIDS program assistance and HIV treatment outcomes. Clinical Infectious Diseases, 62(1), 90–98. https://doi.org/10.1093/cid/civ708
   PubMed Web of Science ®Google Scholar
• Centers for Disease Control and Prevention. (2018). Diagnoses of HIV Infection in the United States and Dependent Areas, 2017 (HIV Surveillance Report). Division of HIV/AIDS Prevention, National Center for HIV/AIDS, Viral Hepatitis, STD, and TB Prevention, Centers for Disease Control and Prevention, United States Department of Health and Human Services.
   Google Scholar
• Chan, P. A., Glynn, T. R., Oldenburg, C. E., Montgomery, M. C., Robinette, A. E., Almonte, A., Raifman, J., Mena, L., Patel, R., Mayer, K. H., Beauchamps, L. S., & Nunn, A. S. (2016). Implementation of preexposure prophylaxis for human immunodeficiency virus prevention among men who have sex with men at a New England sexually transmitted diseases clinic. Sexually Transmitted Diseases, 43(11), Article 11. https://doi.org/10.1097/OLQ.0000000000000514
   Web of Science ®Google Scholar
• Chan, P. A., Goedel, W. C., Nunn, A. S., Sowemimo-Coker, G., Galárraga, O., Prosperi, M., Patel, R., Mena, L., Montgomery, M. C., & Marshall, B. D. L. (2019). Potential impact of interventions to enhance retention in care during real-world HIV pre-exposure prophylaxis implementation. AIDS Patient Care and STDs, 33(10), 434–439. https://doi.org/10.1089/apc.2019.0064
   PubMed Web of Science ®Google Scholar
• Chan, P. A., Mena, L., Patel, R., Oldenburg, C. E., Beauchamps, L., Perez-Brumer, A. G., Parker, S., Mayer, K. H., Mimiaga, M. J., & Nunn, A. (2016). Retention in care outcomes for HIV pre-exposure prophylaxis implementation programmes among men who have sex with men in three US cities. Journal of the International AIDS Society, 19(1), 20903. https://doi.org/10.7448/IAS.19.1.20903
   PubMed Web of Science ®Google Scholar
• Chou, R., Evans, C., Hoverman, A., Sun, C., Dana, T., Bougatsos, C., Grusing, S., & Korthuis, P. T. (2019). Preexposure prophylaxis for the prevention of HIV infection: evidence report and systematic review for the US preventive services task force. JAMA, 321(22), 2214–2230. https://doi.org/10.1001/jama.2019.2591
   PubMed Web of Science ®Google Scholar
• Corneli, A., Wang, M., Agot, K., Ahmed, K., Lombaard, J., Van Damme, L., & FEM-PrEP Study Group. (2014). Perception of HIV risk and adherence to a daily, investigational pill for HIV prevention in FEM-PrEP. JAIDS Journal of Acquired Immune Deficiency Syndromes, 67(5), 555–563. https://doi.org/10.1097/QAI.0000000000000362
   PubMed Web of Science ®Google Scholar
• Coy, K. C., Hazen, R. J., Kirkham, H. S., Delpino, A., & Siegler, A. J. (2019). Persistence on HIV preexposure prophylaxis medication over a 2-year period among a national sample of 7148 PrEP users, United States, 2015 to 2017. Journal of the International AIDS Society, 22(2), e25252. https://doi.org/10.1002/jia2.25252
   PubMed Web of Science ®Google Scholar
• Daughtridge, G. W., Conyngham, S. C., Ramirez, N., & Koenig, H. C. (2015). I am men’s health: Generating adherence to HIV pre-exposure prophylaxis (PrEP) in young men of color who have sex with men. Journal of the International Association of Providers of AIDS Care (JIAPAC), 14(2), Article 2. https://doi.org/10.1177/2325957414555230
   Google Scholar
• Diepstra, K. L., Rhodes, A. G., Bono, R. S., Patel, S., Yerkes, L. E., & Kimmel, A. D. (2017). Comprehensive Ryan White assistance and human immunodeficiency virus clinical outcomes: Retention in care and viral suppression in a Medicaid nonexpansion state. Clinical Infectious Diseases, 65(4), 619–625. https://doi.org/10.1093/cid/cix380
   PubMed Web of Science ®Google Scholar
• Eisinger, R. W., & Fauci, A. S. (2018). Ending the HIV/AIDS pandemic. Emerging Infectious Diseases, 24(3), 413–416. https://doi.org/10.3201/eid2403.171797
   PubMed Web of Science ®Google Scholar
• Fauci, A. S., & Marston, H. D. (2015). Ending the HIV–AIDS pandemic — follow the science. New England Journal of Medicine, 373(23), 2197–2199. https://doi.org/10.1056/NEJMp1502020
   PubMed Web of Science ®Google Scholar
• Finlayson, T., Cha, S., Xia, M., Trujillo, L., Denson, D., Prejean, J., & Wejnert, C. (2019). Changes in HIV preexposure prophylaxis awareness and use among men who have sex with men — 20 urban areas, 2014 and 2017. Morbidity and Mortality Weekly Report (MMWR), 68, 597–603. https://doi.org/10.15585/mmwr.mm6827a1
   PubMed Web of Science ®Google Scholar
• Franks, J., Hirsch-Moverman, Y., Loquere, A. S., Amico, K. R., Grant, R. M., Dye, B. J., Rivera, Y., Gamboa, R., & Mannheimer, S. B. (2018). Sex, PrEP, and stigma: Experiences with HIV pre-exposure prophylaxis among New York City MSM participating in the HPTN 067/ADAPT study. AIDS and Behavior, 22(4), 1139–1149. https://doi.org/10.1007/s10461-017-1964-6
   PubMed Web of Science ®Google Scholar
• Glaser, B., & Strauss, A. (1967). The discovery of grounded theory: Strategies for qualitative research. Aldine.
   Google Scholar
• Goedel, W. C., Mayer, K. H., Mimiaga, M. J., & Duncan, D. T. (2019). Considerable interest in pre-exposure prophylaxis uptake among men who have sex with men recruited from a popular geosocial-networking smartphone application in London. Global Public Health, 14(1), 112–121. https://doi.org/10.1080/17441692.2017.1391859
   PubMed Web of Science ®Google Scholar
• Hess, K. L., Hu, X., Lansky, A., Mermin, J., & Hall, H. I. (2017). Lifetime risk of a diagnosis of HIV infection in the United States. Annals of Epidemiology, 27(4), 238–243. https://doi.org/10.1016/j.annepidem.2017.02.003
   PubMed Web of Science ®Google Scholar
• Jenness, S. M., Knowlton, G., Smith, D. K., Marcus, J. L., Anderson, E. J., Siegler, A. J., Jones, J., Sullivan, P. S., & Enns, E. (2021). A decision analytics model to optimize investment in interventions targeting the HIV preexposure prophylaxis cascade of care. AIDS (London, England), 35(9), 1479–1489. https://doi.org/10.1097/QAD.0000000000002909
   PubMed Web of Science ®Google Scholar
• Kelly, J. A., Amirkhanian, Y. A., Walsh, J. L., Brown, K. D., Quinn, K. G., Petroll, A. E., Pearson, B. M., Rosado, A. N., & Ertl, T. (2020). Social network intervention to increase pre-exposure prophylaxis (PrEP) awareness, interest, and use among African American men who have sex with men. AIDS Care, 32(sup2), 40–46. https://doi.org/10.1080/09540121.2020.1739207
   PubMed Web of Science ®Google Scholar
• Khanna, A. S., Schneider, J. A., Collier, N., Ozik, J., R, I. S. S. E. M. A., Di Paola, A., Skwarka, A., Ramachandran, A., Webb, J., Brewer, R., Cunningham, W., Hilliard, C., Ramani, S., Fujimoto, K., & Harawa, N. (2019). A modeling framework to inform preexposure prophylaxis initiation and retention scale-up in the context of ‘getting to zero’ initiatives. AIDS (london, England), 33(12), 1911–1922. https://doi.org/10.1097/QAD.0000000000002290
   PubMed Web of Science ®Google Scholar
• Khosropour, C. M., Backus, K. V., Means, A. R., Beauchamps, L., Johnson, K., Golden, M. R., & Mena, L. (2020). A pharmacist-led, same-day, HIV pre-exposure prophylaxis initiation program to increase PrEP uptake and decrease time to PrEP initiation. AIDS Patient Care and STDs, 34(1), Article 1. https://doi.org/10.1089/apc.2019.0235
   Web of Science ®Google Scholar
• Marsh, K. J., & Rothenberger, M. (2019). A young black MSM on PrEP is lost to follow-up and acquires HIV infection: A case to call for improved strategies to support youth adherence and engagement in HIV prevention. Journal of the International Association of Providers of AIDS Care (JIAPAC), 18, 232595821985383. https://doi.org/10.1177/2325958219853834
   Google Scholar
• Mayer, K. H., Safren, S. A., Elsesser, S. A., Psaros, C., Tinsley, J. P., Marzinke, M., Clarke, W., Hendrix, C., Wade Taylor, S., Haberer, J., & Mimiaga, M. J. (2017). Optimizing Pre-exposure antiretroviral prophylaxis adherence in men who have sex with men: Results of a pilot randomized controlled trial of “life-steps for PrEP”. AIDS and Behavior, 21(5), Article 5. https://doi.org/10.1007/s10461-016-1606-4
   Web of Science ®Google Scholar
• Methods in Community-Based Participatory Research for Health | Wiley. (n.d.). Wiley.Com. Retrieved March 9, 2023, from https://www.wiley.com/en-us/Methods+in+Community+Based+Participatory+Research+for+Health-p-9780787980061
   Google Scholar
• Noble, H., & Mitchell, G. (2016). What is grounded theory? Evidence-Based Nursing, 19(2), 34–35. https://doi.org/10.1136/eb-2016-102306
   PubMedGoogle Scholar
• Oldenburg, C. E., Perez-Brumer, A., Hatzenbuehler, M. L., Krakower, D., Novak, D. S., Mimiaga, M. J., & Mayer, K. H. (2015). State-level structural sexual stigma and HIV prevention in a national online sample of HIV-uninfected MSM in the United States. AIDS (London, England), 29(7), 837–845. https://doi.org/10.1097/QAD.0000000000000622
   PubMed Web of Science ®Google Scholar
• Patel, V. V., Ginsburg, Z., Golub, S. A., Horvath, K. J., Rios, N., Mayer, K. H., Kim, R. S., & Arnsten, J. H. (2018). Empowering With PrEP (E-PrEP), a peer-led social media-based intervention to facilitate HIV preexposure prophylaxis adoption among young black and latinx gay and bisexual men: Protocol for a cluster randomized controlled trial. JMIR Research Protocols, 7(8), e11375. https://doi.org/10.2196/11375
   PubMed Web of Science ®Google Scholar
• Pérez-Figueroa, R. E., Kapadia, F., Barton, S. C., Eddy, J. A., & Halkitis, P. N. (2015). Acceptability of PrEP uptake among racially/ethnically diverse young men who have sex with men: The P18 study. AIDS Education and Prevention, 27(2), 112–125. https://doi.org/10.1521/aeap.2015.27.2.112
   PubMed Web of Science ®Google Scholar
• Rosenberg, E. S., Purcell, D. W., Grey, J. A., Hankin-Wei, A., Hall, E., & Sullivan, P. S. (2018). Rates of prevalent and new HIV diagnoses by race and ethnicity among men who have sex with men, U.S. states, 2013-2014. Annals of Epidemiology, 28(12), 865–873. https://doi.org/10.1016/j.annepidem.2018.04.008
   PubMed Web of Science ®Google Scholar
• Rouffiac, A.-E., Whiteley, L., Brown, L., Mena, L., Craker, L., Healy, M., & Haubrick, K. (2020). A mobile intervention to improve uptake of pre-exposure prophylaxis for southern black men who have sex with men: Protocol for intervention development and pilot randomized controlled trial. JMIR Research Protocols, 9(2), e15781. https://doi.org/10.2196/15781
   PubMed Web of Science ®Google Scholar
• Safren, S. A., Otto, M. W., Worth, J. L., Salomon, E., Johnson, W., Mayer, K., & Boswell, S. (2001). Two strategies to increase adherence to HIV antiretroviral medication: Life-steps and medication monitoring. Behaviour Research and Therapy, 39(10), Article 10. https://doi.org/10.1016/S0005-7967(00)00091-7
   Web of Science ®Google Scholar
• Schneider, J. A., Young, L., Ramachandran, A., Michaels, S., Cohen, H., Robinson, I., Alon, L., Hill, B., Nakasone, S., Balenciaga, M., Motley, D., Bouris, A., Khanna, A., Ferreira, M., Valente, T., Schumm, P., & PrEP Chicago Network Intervention Team. (2021). A pragmatic randomized controlled trial to increase PrEP uptake for HIV prevention: 55-week results from PrEP Chicago. JAIDS Journal of Acquired Immune Deficiency Syndromes, 86(1), Article 1. https://doi.org/10.1097/QAI.0000000000002518
   Web of Science ®Google Scholar
• Teixeira da Silva, D., Bouris, A., Ramachandran, A., Blocker, O., Davis, B., Harris, J., Pyra, M., Rusie, L. K., Brewer, R., Pagkas-Bather, J., Hotton, A., Ridgway, J. P., McNulty, M., Bhatia, R., & Schneider, J. A. (2021). Embedding a linkage to preexposure prophylaxis care intervention in social network strategy and partner notification services: Results from a pilot randomized controlled trial. JAIDS Journal of Acquired Immune Deficiency Syndromes, 86(2), Article 2. https://doi.org/10.1097/QAI.0000000000002548
   Web of Science ®Google Scholar
• Weiser, J., Beer, L., Frazier, E. L., Patel, R., Dempsey, A., Hauck, H., & Skarbinski, J. (2015). Service delivery and patient outcomes in ryan white HIV/AIDS program–funded and –nonfunded health care facilities in the United States. JAMA Internal Medicine, 175(10), 1650–1659. https://doi.org/10.1001/jamainternmed.2015.4095
   PubMed Web of Science ®Google Scholar
• Wheeler, D. P., Fields, S. D., Beauchamp, G., Chen, Y. Q., Emel, L. M., Hightow-Weidman, L., Hucks-Ortiz, C., Kuo, I., Lucas, J., Magnus, M., Mayer, K. H., Nelson, L. E., Hendrix, C. W., Piwowar-Manning, E., Shoptaw, S., Watkins, P., Watson, C. C., & Wilton, L. (2019). Pre-exposure prophylaxis initiation and adherence among Black men who have sex with men (MSM) in three US cities: Results from the HPTN 073 study. Journal of the International AIDS Society, 22(2), e25223. https://doi.org/10.1002/jia2.25223
   PubMed Web of Science ®Google Scholar