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Information-sharing in health and social care: Lessons from a socio-technical initiative

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References

  • Albertson, T. E., Murin, S., Sutter, M. E., & Chenoweth, J. A. (2017). The Salford lung study: a pioneering comparative effectiveness approach to COPD and asthma in clinical trials. Pragmatic and Observational Research, 8, 175. doi: 10.2147/POR.S144157
  • Argyris, C. (1999). On Organizational Learning. Wiley-Blackwell.
  • Baxter, G., & Sommerville, I. (2011). Socio-technical systems: from design methods to systems engineering. Interacting with Computers, 23(1), 4–17. doi: 10.1016/j.intcom.2010.07.003
  • Burn, J., Gerdes, A.-M., Macrae, F., Mecklin, J.-P., Moeslein, G., Olschwang, S., … Bishop, D. T. (2011). Long-term effect of aspirin on cancer risk in carriers of hereditary colorectal cancer: ananalysis from the CAPP2 randomised controlled trial. The Lancet, 378(9809), 2081–2087. doi: 10.1016/S0140-6736(11)61049-0
  • Burton, P. R., Murtagh, M. J., Boyd, A., Williams, J. B., Dove, E. S., Wallace, S. E., … Knoppers, B. M. (2015). Data safe havens in health research and healthcare. Bioinformatics, 31(20), 3241–3248. doi: 10.1093/bioinformatics/btv279
  • Callard, F., & Fitzgerald, D. (2016). Rethinking Interdisciplinarity Across the Social Sciences and Neurosciences. Palgrave Macmillan.
  • Carter, P., Laurie, G. T., & Dixon-Woods, M. (2015). The social licence for research: why care? Journal of Medical Ethics, medethics-2014-102374.
  • Elwyn, G., Frosch, D., Thomson, R., Joseph-Williams, N., Lloyd, A., Kinnersley, P., … Barry, M. (2012). Shared decision making: a model for clinical practice. Journal of General Internal Medicine, 27(10), 1361–1367. doi: 10.1007/s11606-012-2077-6
  • Friedman, C. P., Wong, A. K., & Blumenthal, D. (2010). Achieving a nationwide learning health system. Science Translational Medicine, 2(57), 57cm29–57cm29. doi: 10.1126/scitranslmed.3001456
  • Gopalakrishnan, S., & Ganeshkumar, P. (2013). Systematic reviews and meta-analysis: understanding the best evidence in primary healthcare. Journal of Family Medicine and Primary Care, 2(1), 9–14. doi: 10.4103/2249-4863.109934
  • Haux, R. (2010). Medical informatics: past, present, future. International Journal of Medical Informatics, 79(9), 599–610. doi: 10.1016/j.ijmedinf.2010.06.003
  • HIMSS Interoperability and HIE Business Case Workgroup. (2014). The Business Case for Interoperability and Health Information Exchange: Analysis and Recommendations. HIMSS.
  • Institute of Medicine. (2011). Digital Infrastructure for the Learning Health System. National Academies Press.
  • Jenkings, N., & Wilson, R. (2007). The challenge of electronic health records (EHRs) design and implementation: responses of health workers to drawing a ‘big and rich picture’ of a future EHR programme using animated tools. Journal of Innovation in Health Informatics, 15(2), 93–101. doi: 10.14236/jhi.v15i2.647
  • Kuperman, G. J. (2011). Health-information exchange: why are we doing it and what are we doing? Journal of the American Medical Informatics Association, 18(5), 678–682. doi: 10.1136/amiajnl-2010-000021
  • Lea, N. C., Nicholls, J., Dobbs, C., Nayha, S., James, C., John, A., … Dipak, K. (2016). Data safe havens and trust: toward a common understanding of trusted research platforms for governing secure and ethical health research. JMIR Medical Informatics, 4. doi: 10.2196/medinform.5571
  • McGinnis, J. M., Aisner, D., & Olsen, L. (2007). The Learning Healthcare System. National Academies Press.
  • McLoughlin, I. P., Maniatopoulos, G., Wilson, R., & Martin, M. (2012). Inside a digital experiment: co-producing telecare services for older people. Scandinavian Journal of Information Systems, 24(2), 3–26.
  • Murtagh, M. J., Minion, J. T., Turner, A., Wilson, R. C., Blell, M., Ochieng, C., … Burton, P. R. (2017). The ECOUTER methodology for stake holder engagement in translational research. BMC Medical Ethics, 18(1), 24. doi: 10.1186/s12910-017-0167-z
  • Robinson, P., & Simpson, L. (2003). e-Appraisal: A Guide for Primary Care. Radcliffe Publishing.
  • Safran, C., Bloomrosen, M., Hammond, W. E., Labkoff, S., Markel-Fox, S., Tang, P. C., & Detmer, D. E. (2007). Toward a national framework for the secondary use of health data. Journal of the American Medical Informatics Association, 14(1), 1–9. doi: 10.1197/jamia.M2273
  • Say, R., Murtagh, M., & Thomson, R. (2006). Patients’ preference for involvement in medical decision making: a narrative review. Patient Education and Counseling, 60(2), 102–114. doi: 10.1016/j.pec.2005.02.003
  • UK Home Office and Department for Education. (2016) Consultation Outcome: Reporting and acting on Child Abuse and Neglect. Government Consultation (www.gov.uk/government/consultations/reporting-and-acting-on-child-abuse-and-neglect).
  • Wen, B., van der Zouwen, M., Horlings, E., van der Meulen, B., & van Vierssen, W. (2015). Transitions in urban water management and patterns of international, interdisciplinary and intersectoral collaboration in urban water science. Environmental Innovation and Societal Transitions, 15, 123–139. doi: 10.1016/j.eist.2014.03.002
  • Wenger, E. (1998). Communities of Practice: Learning, Meaning and Identity. Cambridge University Press.
  • Wilson, R., Maniatopoulos, G., Martin, M., & McLoughlin, I. (2012). Innovating relationships: taking a co-productive approach to the shaping of telecare services for older people. Information, Communication and Society, 15(7), 1136–1163. doi: 10.1080/1369118X.2012.711845
  • Wilson, R. C., Butters, O. W., Clark, T., Minion, J., Turner, A., & Murtagh, M. J. (2016). Digital methodology to implement the ECOUTER engagement process. F1000Research, 5, 1307. doi: 10.12688/f1000research.8786.1

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