References
- Collins , HM and Evans , R . 2002 . The third wave of science studies: studies of expertise and experience . Social studies of science , 32 ( 2 ) : 235 – 296 .
- Cragg Ross Dawson . 2000 . Public perceptions of the collection of human biological samples , 1 – 134 . London : Wellcome Trust/MRC .
- Glaser , BG . 1965 . The constant comparative method of qualitative analysis . Social problems , 12 ( 4 ) : 436 – 445 .
- Haddow , G and Cunningham-Burley , S . “ Tokens of trust or token trust? The case of population genetic data collections. ” . In Trust, health and illness , Edited by: Greene , A , Brownlie , J and Howson , A . London : Routledge . forthcoming
- Hapgood , R , Shickle , D and Kent , A . 2001 . Consultation with primary care health professionals on issues relating to the recruitment of patients to a DNA collection study . A report prepared for the Wellcome Trust and the Medical Research Council . 2001 , London.
- Hapgood , R , McCabe , C and Shickle , D . 2004 . Public preferences for participation in a large DNA cohort study: a discrete choice experiment. , ScHARR; Sheffield Health Economics Group .
- Irwin , A and Wynne , B . 1996 . Misunderstanding science? The public reconstruction of science and technology , Cambridge : Cambridge University Press .
- Kaye , J and Martin , P . 2000 . Safeguards for research using large scale DNA collections . British medical journal , 321 : 1146 – 1149 .
- Kerr , A , Cunningham-Burley , S and Amos , A . 1998 . The new genetics and health: mobilizing lay expertise . Public Understanding , 7 : 41 – 60 .
- Kerr , A , Cunningham-Burley , S and Tutton , R . 2007 . Shifting subject positions: experts and lay people in public dialogue . Social studies of science , 37 ( 3 ) : 385 – 411 .
- Korts , K , Weldon , S and Guomundsdottir , ML . 2004 . Genetic databases and public attitudes: a comparison of Iceland, Estonia and the UK . TRAMES , 8 ( 1/2 ) : 131 – 149 .
- Laurie , G . 2002 . Genetic privacy: A challenge of medico-legal norms , Cambridge : Cambridge University Press .
- Levitt , M and Weldon , S . 2005 . A well placed trust? Public perceptions of the governance of DNA databases . Critical public health , 15 ( 4 ) : 311 – 321 .
- Martin , P . 2001 . Genetic governance: the risks, oversight and regulation of genetic databases in the UK . New genetics and society , 20 ( 2 ) : 157 – 183 .
- Mollering , G . 2001 . The nature of trust: from Georg Simmel to a theory of expectation, interpretation and suspension . Sociology , 35 ( 2 ) : 403 – 420 .
- Opinion Leader Research Consultation . 2003 . Summary of the UK Biobank Consultation on the Ethics and Governance Framework . Available online at: http://www.ukbiobank.ac.uk/docs/public-stakeholder-olr-report.doc
- People Science and Policy Ltd. 2002 . Biobank UK: A Question of Trust: A consultation exploring and addressing questions of public trust . A report prepared for the Medical Research Council and the Wellcome Trust . 2002 , London. pp. 1 – 46 .
- People Science and Policy Ltd. 2003a . UK Biobank Consultation on the Ethical and Governance Framework . A report prepared the Medical Research Council adn the Wellcome Trust . 2003a , London. pp. 1 – 57 .
- People Science and Policy Ltd. 2003b . UK Biobank: A consultation with nurses in general practice and research . A report prepared the Medical Research Council adn the Wellcome Trust . 2003b , London. pp. 1 – 35 .
- Rose , H . 2001 . The Commodification of Bioinformation: The Icelandic Health Sector Database , London : The Wellcome Trust .
- Science and Society . 2000 . By the Select Committee appointed to consider Science and Technology, ed . 23 February
- Stranger , M , Chalmers , D and Nicol , D . 2005 . Capital, trust and consultation: databanks and regulation in Australia . Critical public health , 15 ( 4 ) : 349 – 358 .
- Tutton , R and Corrigan , O . 2004 . Genetic databases: Socio-ethical issues in the collection and use of DNA , London : Routledge .
- UK Biobank Consultation with Industry . 2003 . London : ABPI Office .
- UK Biobank Ethics Consultation Workshop . 2002 . MRC/Wellcome Trust .
- Wakeford , T and Hale , F . 2004 . Generation Scotland: Towards participatory models of consultation , 1 – 15 . Newcastle : University of Newcastle, Policy Ethics and Life Sciences Research Institute (PEALS) .
- Wallace , H . 2003 . UK Biobank: Good for Public Health: Open Democracy
- Wilsdon , J and Willis , R . 2004 . See-through science: Why public engagement needs to move upstream , London : HenDI Systems .