Publication Cover
Physiotherapy Theory and Practice
An International Journal of Physical Therapy
Volume 38, 2022 - Issue 9
394
Views
2
CrossRef citations to date
0
Altmetric
Qualitative Research Report

Rebuilding a tolerable life: narratives of women recovered from fibromyalgia

, PhD, PTORCID Icon, , EdD, MEd, MA, BSN, , PhD & , PhD, PT
Pages 1188-1197 | Received 14 Nov 2019, Accepted 06 Sep 2020, Published online: 07 Oct 2020

References

  • Aamland A, Malterud K, Werner EL 2014 Patients with persistent medically unexplained physical symptoms: A descriptive study from Norwegian general practice. BMC Family Practice 15:107. doi:10.1186/1471-2296-15-107.
  • Annadale E 2009 Women’s health and social change. New York: Routledge.
  • Bernardy K, Klose P, Busch AJ, Choy EH, Hauser W 2013 Cognitive behavioural therapies for fibromyalgia. Cochrane Database of Systematic Reviews 9:CD009796.
  • Branco JC, Bannwarth B, Failde I, Abello Carbonell J, Blotman F, Spaeth M, Saraiva F, Nacci F, Thomas E, Caubère J, et al. 2010 Prevalence of fibromyalgia: A survey in five European countries. Seminars in Arthritis Rheumatism 39:448–453. doi:10.1016/j.semarthrit.2008.12.003.
  • Briones-Vozmediano E 2017 The social construction of fibromyalgia as a health problem from the perspective of policies, professionals, and patients. Global Health Action 10:1275191. doi:10.1080/16549716.2017.1275191.
  • Briones-Vozmediano E, Vives-Cases C, Ronda-Pérez E, Gil-González D 2013 Patients’ and professionals’ views on managing fibromyalgia. Pain Research and Management 18:19–24. doi:10.1155/2013/742510.
  • Bury M 1982 Chronic illness as biographical disruption. Sociology of Health & Illness 4:168–195. doi:10.1111/1467-9566.ep11339939.
  • Charon R 2006 Narrative medicine. New York: Oxford University Press.
  • Chase SE 2005 Narrative Inquiry; Multiple Lenses, Approaches, Voices. Thousand Oaks: SAGE Publications.
  • Chinn S, Caldwell W, Gritsenko K 2016 Fibromyalgia pathogenesis and treatment options update. Current Pain and Headache Reports 20:25. doi:10.1007/s11916-016-0556-x.
  • Davidson L 2005 Recovery from severe mental illnesses: research evidence and implications for practice. Center for Psychiatric Rehabilitation, Sargent College of Health and Rehabilitation Sciences, Boston University. https://cpr.bu.edu/wp-content/uploads/2011/11/Preview-Recovery-from-Severe-Mental-Illnesses-Research-Evidence-and-Implications-for-Practice-Volume-1.pdf.
  • Dennis NL, Larkin M, Derbyshire SW 2013 ‘A giant mess’ - making sense of complexity in the accounts of people with fibromyalgia. British Journal of Health Psychology 18:763–781. doi:10.1111/bjhp.12020.
  • Fitzcharles MA, Ste-Marie PA, Goldenberg DL, Pereira JX, Abbey S, Choiniere M, Shir Y 2013 Canadian pain society and Canadian rheumatology association recommendations for rational care of persons with fibromyalgia: A summary report of 2012 Canadian guidelines for the diagnosis and management of fibromyalgia syndrome: Executive summary. Journal of Rheumatology 40:1388–1393. doi:10.3899/jrheum.130127.
  • Frank AW 1995 The wounded storyteller. Chicago, IL: University of Chicago Press.
  • Granges G, Zilko P, Littlejohn GO 1994 Fibromyalgia syndrome: Assessment of the severity of the condition 2 years after diagnosis. Journal of Rheumatology 21:523–529.
  • Grape HE, Solbrække KN, Kirkevold M, Mengshoel AM 2015 Staying healthy from fibromyalgia is ongoing hard work. Qualitative Health Research 25:679–688. doi:10.1177/1049732314557333.
  • Grape HE, Solbrække KN, Kirkevold M, Mengshoel AM 2017 Tiredness and fatigue during processes of illness and recovery: A qualitative study of women recovered from fibromyalgia syndrome. Physiotherapy Theory and Practice 33:31–40. doi:10.1080/09593985.2016.1247933.
  • Guillemin M, Heggen K 2009 Rapport and respect: Negotiating ethical relations between researcher and participant. Medicine, Health Care, and Philosophy 12:291–299. doi:10.1007/s11019-008-9165-8.
  • Holstein JA, Gubrium JF 1995 Qualitative research methods, volume 37. The active interview. Thousand Oaks, CA: Sage Publications.
  • Kleinman A 1988 The illness narratives: suffering, healing, and the human condition. New York: Basic Books.
  • Kvale S, Brinkmann S 2009 Interviews. Los Angeles, Calif.: Sage.
  • Lillrank A 2003 Back pain and the resolution of diagnostic uncertainty in illness narratives. Social Science & Medicine 57:1045–1054. doi:10.1016/S0277-9536(02)00479-3.
  • Löfgren M, Ekholm J, Öhman A 2006 ‘A constant struggle’: Successful strategies of women in work despite fibromyalgia. Disability and Rehabilitation 28:447–455. doi:10.1080/09638280500197891.
  • Maatz A, Wainwright M, Russell AJ, Macnaughton J, Yiannakou Y 2016 What’s ‘difficult’? A multi-stage qualitative analysis of secondary care specialists’ experiences with medically unexplained symptoms. Journal of Psychosomatic Research 90:1–9. doi:10.1016/j.jpsychores.2016.09.005.
  • Macfarlane GJ, Kronisch C, Dean LE, Atzeni F, Häuser W, Fluß E, Choy E, Kosek E, Amris K, Branco J, et al. 2017 EULAR revised recommendations for the management of fibromyalgia. Annals of the Rheumatic Diseases 76:318–328. doi:10.1136/annrheumdis-2016-209724.
  • Macfarlane GJ, Thomas E, Papageorgiou AC, Schollum J, Croft PR, Silman AJ 1996 The natural history of chronic pain in the community: A better prognosis than in the clinic? Journal of Rheumatology 23:1617–1620.
  • Madden S, Sim J 2006 Creating meaning in fibromyalgia syndrome. Social Science & Medicine 63:2962–2973. doi:10.1016/j.socscimed.2006.06.020.
  • Malterud K, Siersma VD, Guassora AD 2016 Sample Size in qualitative interview studies: Guided by information power. Qualitative Health Research 26:1753–1760. doi:10.1177/1049732315617444.
  • Martinez-Lavin M 2007 Biology and therapy of fibromyalgia. Stress, the stress response system, and fibromyalgia. Arthritis Research & Therapy 9:216. doi:10.1186/ar2146.
  • Mattingly C 1998 Healing dramas and clinical plots: the narrative structure of experience. Cambridge: Cambridge University Press.
  • Mattingly C 2008 Stories that are ready to break. In: Hydén LC, Brockmeier J (Eds) Health, illness and culture: broken narratives (pp. 73–99). New York: Routledge.
  • Mattingly C, Garro LC 2000 Narrative and the cultural construction of illness and healing. Berkeley: University of California Press.
  • McMahon L, Murray C, Sanderson J, Daiches A 2012 “Governed by the pain”: narratives of fibromyalgia. Disability and Rehabilitation 34:1358–1366. doi:10.3109/09638288.2011.645114.
  • Mengshoel AM, Haugen M 2001 Health status in fibromyalgia - A follow-up study. Journal of Rheumatology 28:2085–2089.
  • Mengshoel AM, Heggen K 2004 Recovery from fibromyalgia - Previous patients’ own experiences. Disability and Rehabilitation 26:46–53. doi:10.1080/09638280410001645085.
  • Mengshoel AM, Sim J, Ahlsen B, Madden S 2018 Diagnostic experience of patients with fibromyalgia - A meta-ethnography. Chronic Illness 14:194–211. doi:10.1177/1742395317718035.
  • Neeck G, Crofford LJ 2000 Neuroendocrine perturbations in fibromyalgia and chronic fatigue syndrome. Rheumatic Disease Clinics of North America 26:989–1002. doi:10.1016/S0889-857X(05)70180-0.
  • Polkinghorne DE 1988 Narrative knowing and the human sciences. Albany: State University of New York Press.
  • Råheim M, Håland W 2006 Lived experience of chronic pain and fibromyalgia: women’s stories from daily life. Qualitative Health Research 16:741–761. doi:10.1177/1049732306288521.
  • Ralph RO, Corrigan PW 2005 Recovery in mental illness: broadening our understanding of wellness. Washington, DC: American Psychological Association.
  • Riessman CK 2008 Narrative methods for the human sciences. Los Angeles: Sage Publications.
  • Rodham K, Rance N, Blake D 2010 A qualitative exploration of carers’ and ‘patients’ experiences of fibromyalgia: one illness, different perspectives. Musculoskeletal Care 8:68–77. doi:10.1002/msc.167.
  • Sallinen M, Kukkurainen ML, Peltokallio L, Mikkelsson M 2010 Women’s narratives on experiences of work ability and functioning in fibromyalgia. Musculoskeletal Care 8:18–26. doi:10.1002/msc.162.
  • Sallinen M, Kukkurainen ML, Peltokallio L, Mikkelsson M, Anderberg UM 2012 Fatigue, worry, and fear-life events in the narratives of women with fibromyalgia. Health Care for Women International 33:473–494. doi:10.1080/07399332.2011.645967.
  • Sim J, Madden S 2008 Illness experience in fibromyalgia syndrome: A metasynthesis of qualitative studies. Social Science & Medicine 67:57–67. doi:10.1016/j.socscimed.2008.03.003.
  • Sviland R, Martinsen K, Råheim M 2014 To be held and to hold one’s own: Narratives of embodied transformation in the treatment of long lasting musculoskeletal problems. Medicine, Health Care, and Philosophy 17:609–624. doi:10.1007/s11019-014-9562-0.
  • Wentz K, Lindberg C, Halleberg L 2012 On parole: the natural history of recovery from fibromyalgia in women: A grounded theory study. Journal Pain Management 5:177–194.
  • Williams G 1984 The genesis of chronic illness: Narrative re-construction. Sociology of Health & Illness 6:175–200. doi:10.1111/1467-9566.ep10778250.
  • Wolfe F, Clauw DJ, Fitzcharles M, Goldenberg DL, Häuser W, Katz RL, Mease PJ, Russell AS, Russell IJ, Walitt B 2016 Revisions to the 2010/2011 fibromyalgia diagnostic criteria. Seminars in Arthritis and Rheumatism 46:319–329. doi:10.1016/j.semarthrit.2016.08.012.
  • Wolfe F, Smythe HA, Yunus MB, Bennett RM, Bombardier C, Goldenberg DL, Tugwell P, Campbell SM, Abeles M, Clark P, et al. 1990 The American college of rheumatology 1990 criteria for the classification of fibromyalgia. Report of the multicenter criteria committee. Arthritis and Rheumatism 33:160–172. doi:10.1002/art.1780330203.
  • Wuytack F, Miller P 2011 The lived experience of fibromyalgia in female patients, A phenomenological study. Chiropractic & Manual Therapies 19:22. doi:10.1186/2045-709X-19-22.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.