Perspectives of patients with chronic pain about a pain science education video

References

• Agency for Clinical Innovation - Pain Management Network 2020 Understanding pain and what to do about it? https://www.healthtranslations.vic.gov.au/bhcv2/bhcht.nsf/PresentDetail?Open&s=Understanding_pain_and_what_to_do_about_it?_(video)
   Google Scholar
• Berg KM, Arnsten JH, Sacajiu G, Karasz A 2009 Providers’ experiences treating chronic pain among opioid-dependent drug users. Journal of General Internal Medicine 24(4): 482–488. doi:10.1007/s11606-009-0908-x.
   PubMed Web of Science ®Google Scholar
• Bergman AA, Matthias MS, Coffing JM, Krebs EE 2013 Contrasting tensions between patients and PCPs in chronic pain management: A qualitative study. Pain Medicine 14(11): 1689–1697. doi:10.1111/pme.12172.
   PubMed Web of Science ®Google Scholar
• Bode C, Taal E, Emons PA, Galetzka M, Rasker JJ, Van de Laar MA 2008 Limited results of group self-management education for rheumatoid arthritis patients and their partners: Explanations from the patient perspective. Clinical Rheumatology 27: 1523–1528. doi:10.1007/s10067-008-0961-6.
   PubMed Web of Science ®Google Scholar
• Bostick GP, Brown CA, Carroll LJ, Gross DP 2012 If they can put a man on the moon, they should be able to fix a neck injury: A mixed-method study characterizing and explaining pain beliefs about WAD. Disability and Rehabilitation 34(19): 1617–1632. doi:10.3109/09638288.2012.656791.
   PubMed Web of Science ®Google Scholar
• Brehm JW 1966 A theory of psychological reactance. New York, NY: Academic Press.
   Google Scholar
• Bunzli S, Smith A, Schutze R, O’Sullivan P 2015 Beliefs underlying pain-related fear and how they evolve: A qualitative investigation in people with chronic back pain and high pain-related fear. BMJ Open 5: e008847. doi:10.1136/bmjopen-2015-008847.
   PubMed Web of Science ®Google Scholar
• Chew-Graham C, May C 1999 Chronic low back pain in general practice: The challenge of the consultation. Family Practice 16(1): 46–49. doi:10.1093/fampra/16.1.46.
   PubMed Web of Science ®Google Scholar
• Creswell JW 1998 Qualitative inquiry and research design: Choosing among five traditions. Los Angeles, CA: Sage Publications, Inc.
   Google Scholar
• Crotty M 2003 The foundations of social research: Meaning and perspective in the research process. Thousand Oaks, CA: Sage Publications.
   Google Scholar
• Dahlhamer J, Lucas J, Zelaya C, Nahin R, Mackey S, DeBar L, Kerns R, Von Korff M, Porter L, Helmick C 2018 Prevalence of chronic pain and high-impact chronic pain among adults - United States, 2016. Morbidity and Mortality Weekly Report 67: 1001–1006. doi:10.15585/mmwr.mm6736a2.
   PubMed Web of Science ®Google Scholar
• De Ruddere L, Goubert L, Stevens M, Williams A, Crombez G 2013 Discounting pain in the absence of medical evidence is explained by negative evaluation of the patient. Pain 154(5): 669–676. doi:10.1016/j.pain.2012.12.018.
   PubMed Web of Science ®Google Scholar
• Dewar AL, Gregg K, White MI, Lander J 2009 Navigating the health care system: Perceptions of patients with chronic pain. Chronic Diseases in Canada 29: 162–168. doi:10.24095/hpcdp.29.4.03.
   PubMed Web of Science ®Google Scholar
• Dicicco-Bloom B, Crabtree BF 2006 The qualitative research interview. Medical Education 40(4): 314–321. doi:10.1111/j.1365-2929.2006.02418.x.
   PubMed Web of Science ®Google Scholar
• Dillard JP, Shen L 2005 On the nature of reactance and its role in persuasive health communication. Communication Monographs 72: 144–168. doi:10.1080/03637750500111815.
   Web of Science ®Google Scholar
• Dowell D, Haegerich TM, Chou R 2016 CDC guideline for prescribing opioids for chronic Pain—United States, 2016. JAMA 315(15): 1624–1645. doi:10.1001/jama.2016.1464.
   PubMed Web of Science ®Google Scholar
• Drabble L, Trocki KF, Salcedo B, Walker PC, Korcha RA 2016 Conducting qualitative interviews by telephone: Lessons learned from a study of alcohol use among sexual minority and heterosexual women. Qualitative Social Work 15: 118–133. doi:10.1177/1473325015585613.
   Web of Science ®Google Scholar
• Edlund S, Wurm M, Hollandare F, Linton S, Fruzzetti A, Tillfors M 2017 Pain patients’ experiences of validation and invalidation from physicians before and after multimodal pain rehabilitation: Associations with pain, negative affectivity, and treatment outcome. Scandinavian Journal of Pain 17(1): 77–86. doi:10.1016/j.sjpain.2017.07.007.
   PubMedGoogle Scholar
• Edmond SN, Keefe FJ 2015 Validating pain communication: Current state of the science. Pain 156: 215–219. doi:10.1097/01.j.pain.0000460301.18207.c2.
   PubMed Web of Science ®Google Scholar
• Esquibel AY, Borkan J 2014 Doctors and patients in pain: Conflict and collaboration in opioid prescription in primary care. Pain 155(12): 2575–2582. doi:10.1016/j.pain.2014.09.018.
   PubMed Web of Science ®Google Scholar
• Fontana A, Frey J 1994 The art of science. In: Denzin NK, Lincoln YS (Eds) The handbook of qualitative research, pp. 361–376. Thousand Oaks, CA: Sage Publications, Inc.
   Google Scholar
• Friedman AJ, Cosby R, Boyko S, Hatton-Bauer J, Turnbull G 2011 Effective teaching strategies and methods of delivery for patient education: A systematic review and practice guideline recommendations. Journal of Cancer Education 26: 12–21. doi:10.1007/s13187-010-0183-x.
   PubMed Web of Science ®Google Scholar
• Gallagher RM 2016 Advancing the pain agenda in the veteran population. Anesthesiology Clinics 34(2): 357–378. doi:10.1016/j.anclin.2016.01.003.
   PubMedGoogle Scholar
• Geneen LJ, Martin DJ, Adams N, Clarke C, Dunbar M, Jones D, McNamee P, Schofield P, Smith BH 2015 Effects of education to facilitate knowledge about chronic pain for adults: A systematic review with meta-analysis. Systematic Reviews 4: 132. doi:10.1186/s13643-015-0120-5.
   PubMed Web of Science ®Google Scholar
• Glenton C 2003 Chronic back pain sufferers—striving for the sick role. Social Science & Medicine 57(11): 2243–2252. doi:10.1016/S0277-9536(03)00130-8.
   PubMed Web of Science ®Google Scholar
• Greville-Harris M, Hempel R, Karl A, Dieppe P, Lynch T 2016 The power of invalidating communication: Receiving invalidating feedback predicts threat-related emotional. Physiological and Social Responses Journal of Social and Clinical Psychology 35: 471–493. doi:10.1521/jscp.2016.35.6.471.
   Web of Science ®Google Scholar
• Hansson KS, Fridlund B, Brunt D, Hansson B, Rask M 2011 The meaning of the experiences of persons with chronic pain in their encounters with the health service. Scandinavian Journal of Caring Sciences 25(3): 444–450. doi:10.1111/j.1471-6712.2010.00847.x.
   PubMed Web of Science ®Google Scholar
• Holloway I, Sofaer-Bennett B, Walker J 2007 The stigmatisation of people with chronic back pain. Disability and Rehabilitation 29: 1456–1464. doi:10.1080/09638280601107260.
   PubMed Web of Science ®Google Scholar
• Homma M, Ishikawa H, Kiuchi T 2018 Illness perceptions and negative responses from medical professionals in patients with fibromyalgia: Association with patient satisfaction and number of hospital visits. Patient Education and Counseling 101(3): 532–540. doi:10.1016/j.pec.2017.08.014.
   PubMed Web of Science ®Google Scholar
• Jim HS, Quinn GP, Gwede CK, Cases MG, Barata A, Cessna J, Christie J, Gonzalez L, Koskan A, Pidala J 2014 Patient education in allogeneic hematopoietic cell transplant: What patients wish they had known about quality of life. Bone Marrow Transplantation 49: 299–303. doi:10.1038/bmt.2013.158.
   PubMedGoogle Scholar
• King R, Robinson V, Elliott-Button HL, Watson JA, Ryan CG, Martin DJ 2018 Pain reconceptual-isation after pain neurophysiology education in adults with chronic low back pain: A qualitative study. Pain Research and Management 2018: 3745651. doi:10.1155/2018/3745651.
   PubMed Web of Science ®Google Scholar
• King R, Robinson V, Ryan CG, Martin DJ 2016 An exploration of the extent and nature of reconceptualisation of pain following pain neurophysiology education: A qualitative study of experiences of people with chronic musculoskeletal pain. Patient Education and Counseling 99(8): 1389–1393. doi:10.1016/j.pec.2016.03.008.
   PubMed Web of Science ®Google Scholar
• Lai YH, Guo SL, Keefe FJ, Tsai SL, Chien CC, Sung YC, Chen ML 2004 Effects of brief pain education on hospitalized cancer patients with moderate to severe pain. Supportive Care in Cancer 12: 645–652. doi:10.1007/s00520-004-0626-1.
   PubMed Web of Science ®Google Scholar
• Lambourne T, Minard LV, Deal H, Pitman J, Rolle M, Saulnier D, Houlihan J 2019 Optimizing patient education of oncology medications: A patient perspective. Journal of Cancer Education 34(5): 1024–1030. doi:10.1007/s13187-018-1406-9.
   PubMed Web of Science ®Google Scholar
• Linton SJ 2015 Intricacies of good communication in the context of pain: Does validation reinforce disclosure? Pain 156: 199–200. doi:10.1097/01.j.pain.0000460297.25831.67.
   PubMed Web of Science ®Google Scholar
• Louw A, Puentedura EJ, Zimney K, Cox T, Rico D 2017 The clinical implementation of pain neuroscience education: A survey study. Physiotherapy Theory and Practice 33(11): 869–879. doi:10.1080/09593985.2017.1359870.
   PubMed Web of Science ®Google Scholar
• Louw A, Zimney K, Puentedura EJ, Diener I 2016 The efficacy of pain neuroscience education on musculoskeletal pain: A systematic review of the literature. Physiotherapy Theory and Practice 32: 332–355. doi:10.1080/09593985.2016.1194646.
   PubMed Web of Science ®Google Scholar
• Malfliet A, Kregel J, Coppieters I, De Pauw R, Meeus M, Roussel N, Cagnie B, Danneels L, Nijs J 2018 Effect of pain neuroscience education combined with cognition-targeted motor control training on chronic spinal pain: A randomized clinical trial. JAMA Neurology 75(7): 808–817. doi:10.1001/jamaneurol.2018.0492.
   PubMed Web of Science ®Google Scholar
• Matthias MS, Miech EJ, Myers LJ, Sargent C, Bair MJ 2012 An expanded view of self-management: Patients’ perceptions of education and support in an intervention for chronic musculoskeletal pain. Pain Medicine 13: 1018–1028. doi:10.1111/j.1526-4637.2012.01433.x.
   PubMed Web of Science ®Google Scholar
• Matthias MS, Parpart AL, Nyland KA, Huffman MA, Stubbs DL, Sargent C, Bair MJ 2010 The patient–provider relationship in chronic pain care: Providers‘ perspectives. Pain Medicine 11(11): 1688–1697. doi:10.1111/j.1526-4637.2010.00980.x.
   PubMed Web of Science ®Google Scholar
• May L, Day R, Warren S, Warren S 2006 Perceptions of patient education in spinal cord injury rehabilitation. Disability and Rehabilitation 28: 1041–1049. doi:10.1080/09638280500494744.
   PubMed Web of Science ®Google Scholar
• Merriam SB 2009 Qualitative research: A guide to design and implementation. San Francisco, CA: Jossey Bass.
   Google Scholar
• Morlion B, Kempke S, Luyten P, Coppens E, Van Wambeke P 2011 Multidisciplinary pain education program (MPEP) for chronic pain patients: Preliminary evidence for effectiveness and mechanisms of change. Current Medical Research and Opinion 27: 1595–1601. doi:10.1185/03007995.2011.595779.
   PubMed Web of Science ®Google Scholar
• Moseley GL, Butler DS 2015 Fifteen years of explaining pain: The past, present, and future. Journal of Pain 16(9): 807–813. doi:10.1016/j.jpain.2015.05.005.
   PubMed Web of Science ®Google Scholar
• Nahin RL 2015 Estimates of pain prevalence and severity in adults: United States, 2012. Journal of Pain 16: 769–780. doi:10.1016/j.jpain.2015.05.002.
   PubMed Web of Science ®Google Scholar
• Nguyen RHN, Turner RM, Rydell SA, Maclehose RF, Harlow BL 2013 Perceived stereotyping and seeking care for chronic vulvar pain. Pain Medicine 14(10): 1461–1467. doi:10.1111/pme.12151.
   PubMed Web of Science ®Google Scholar
• Poland F, Spalding N, Gregory S, McCulloch J, Sargen K, Vicary P 2017 Developing patient education to enhance recovery after colorectal surgery through action research: A qualitative study. BMJ Open 7: e013498. doi:10.1136/bmjopen-2016-013498.
   PubMed Web of Science ®Google Scholar
• Rankin D, Cooke DD, Elliott J, Heller SR, Lawton J 2012 UK NIHR DAFNE Study Group 2012 supporting self-management after attending a structured education programme: A qualitative longitudinal investigation of type 1 diabetes patients’ experiences and views. BMC Public Health 12(1): 652. doi:10.1186/1471-2458-12-652.
   PubMedGoogle Scholar
• Rhodes LA, McPhillips-Tangum CA, Markham C, Klenk R 1999 The power of the visible: The meaning of diagnostic tests in chronic back pain. Social Science & Medicine 48: 1189–1203. doi:10.1016/S0277-9536(98)00418-3.
   PubMed Web of Science ®Google Scholar
• Robinson V, King R, Ryan CG, Martin DJ 2016 A qualitative exploration of people’s experiences of pain neurophysiological education for chronic pain: The importance of relevance for the individual. Manual Therapy 22: 56–61. doi:10.1016/j.math.2015.10.001.
   PubMed Web of Science ®Google Scholar
• Saunders B, Sim J, Kingstone T, Baker S, Waterfield J, Bartlam B, Burroughs H, Jinks C 2018 Saturation in qualitative research: Exploring its conceptualization and operationalization. Quality & Quantity 52: 1893–1907. doi:10.1007/s11135-017-0574-8.
   PubMed Web of Science ®Google Scholar
• Slade SC, Molloy E, Keating JL 2009 `Listen to me, tell me’: A qualitative study of partnership in care for people with non-specific chronic low back pain. Clinical Rehabilitation 23(3): 270–280. doi:10.1177/0269215508100468.
   PubMed Web of Science ®Google Scholar
• Slade SC, Molloy E, Keating JL 2012 The dilemma of diagnostic uncertainty when treating people with chronic low back pain: A qualitative study. Clinical Rehabilitation 26: 558–569. doi:10.1177/0269215511420179.
   PubMed Web of Science ®Google Scholar
• Smith F, Carlsson E, Kokkinakis D, Forsberg M, Kodeda K, Sawatzky R, Friberg F, Ohlen J 2014 Readability, suitability and comprehensibility in patient education materials for Swedish patients with colorectal cancer undergoing elective surgery: A mixed method design. Patient Education and Counseling 94(2): 202–209. doi:10.1016/j.pec.2013.10.009.
   PubMed Web of Science ®Google Scholar
• Steindl C, Jonas E, Sittenthaler S, Traut-Mattausch E, Greenberg J 2015 Understanding psychological Reactance. Zeitschrift für Psychologie 223(4): 205–214. doi:10.1027/2151-2604/a000222.
   PubMed Web of Science ®Google Scholar
• Stenner P, Cross V, McCrum C, McGowan J, Defever E, Lloyd P, Poole R, Moore AP 2015 Self-management of chronic low back pain: Four viewpoints from patients and healthcare providers. Health Psychology Open 2: 2055102915615337. doi:10.1177/2055102915615337.
   Google Scholar
• Strauss A, Corbin J 1998 Basics of qualitative research: Techniques and procedures for developing grounded theory (2nd), Thousand Oaks, CA: Sage Publications, Inc.
   Google Scholar
• Sturges JE, Hanrahan KJ 2004 Comparing telephone and face-to-face qualitative interviewing: A research note. Qualitative Research 4(1): 107–118. doi:10.1177/1468794104041110.
   Google Scholar
• Tait RC, Chibnall JT, Kalauokalani D 2009 Provider judgments of patients in pain: Seeking symptom certainty. Pain Medicine 10: 11–34. doi:10.1111/j.1526-4637.2008.00527.x.
   PubMed Web of Science ®Google Scholar
• Taylor WP, Stern WR, Kubiszyn TW 1984 Predicting patientsʼ perceptions of response to treatment for low-back pain. Spine 9(3): 313–316. doi:10.1097/00007632-198404000-00017.
   PubMed Web of Science ®Google Scholar
• Theis SL, Johnson JH 1995 Strategies for teaching patients: A meta-analysis. Clinical Nurse Specialist 9: 100–120. doi:10.1097/00002800-199503000-00010.
   PubMedGoogle Scholar
• Upshur CC, Bacigalupe G, Luckmann R 2010 “They don’t want anything to do with you”: Patient views of primary care management of chronic pain. Pain Medicine 11(12): 1791–1798. doi:10.1111/j.1526-4637.2010.00960.x.
   PubMed Web of Science ®Google Scholar
• Van Oosterwijck J, Meeus M, Paul L, De Schryver M, Pascal A, Lambrecht L, Nijs J 2013 Pain physiology education improves health status and endogenous pain inhibition in fibromyalgia: A double-blind randomized controlled trial. Clinical Journal of Pain 29: 873–882. doi:10.1097/AJP.0b013e31827c7a7d.
   PubMed Web of Science ®Google Scholar
• Vogl S 2013 Telephone versus face-to-face interviews. Sociological Methodology 43(1): 133–177. doi:10.1177/0081175012465967.
   Web of Science ®Google Scholar
• Watson JA, Ryan CG, Atkinson G, Williamson P, Ellington D, Whittle R, Dixon J, Martin DJ 2021 Inter-individual differences in the responses to pain neuroscience education in adults with chronic musculoskeletal pain: A systematic review and meta-analysis of randomized controlled trials. Journal of Pain 22: 9–20. doi:10.1016/j.jpain.2020.03.006.
   PubMed Web of Science ®Google Scholar
• Watson JA, Ryan CG, Cooper L, Ellington D, Whittle R, Lavender M, Dixon J, Atkinson G, Cooper K, Martin DJ 2019 Pain neuroscience education for adults with chronic musculoskeletal pain: A mixed-methods systematic review and meta-analysis. Journal of Pain 20(10): 1140.e1–22. doi:10.1016/j.jpain.2019.02.011.
   PubMed Web of Science ®Google Scholar
• Weiner DK, Rudy TE 2002 Attitudinal barriers to effective treatment of persistent pain in nursing home residents. Journal of the American Geriatrics Society 50: 2035–2040. doi:10.1046/j.1532-5415.2002.50618.x.
   PubMed Web of Science ®Google Scholar
• Werner A, Malterud K 2003 It is hard work behaving as a credible patient: Encounters between women with chronic pain and their doctors. Social Science & Medicine 57(8): 1409–1419. doi:10.1016/S0277-9536(02)00520-8.
   PubMed Web of Science ®Google Scholar
• Wijma AJ, Speksnijder CM, Crom-Ottens AF, Knulst-Verlaan JM, Keizer D, Nijs J, van Wilgen CP 2018 What is important in transdisciplinary pain neuroscience education? A qualitative study. Disability and Rehabilitation 40: 2181–2191. doi:10.1080/09638288.2017.1327990.
   PubMed Web of Science ®Google Scholar