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Original Articles

Assessing awareness in early-stage Alzheimer's disease: Development and piloting of the Memory Awareness Rating Scale

Pages 341-362 | Published online: 22 Oct 2010

References

  • Agnew , S. K. and Morris , R. G. 1998 . The heterogeneity of anosognosia for memory impairment in Alzheimer's disease: A review of the literature and a proposed model . Aging and Mental Health , 2 : 7 – 19 .
  • American Psychiatric Association . 1995 . Diagnostic and Statistical Manual of Mental Disorders , IV ed. , Washington, DC : American Psychiatric Association .
  • Anderson , S. W. and Tranel , D. 1989 . Awareness of disease states following cerebral infarction, dementia and head trauma: Standardised assessment . Clinical Neuropsychologist , 3 : 327 – 339 .
  • Arkin , S. and Mahendra , N. 2001 . Insight in Alzheimer's patients : Results of a longitudinal study using three assessment methods . American Journal of Alzheimer's Disease and Outer Dementias , 16 : 211 – 225 .
  • Auchus , A. P. , Goldstein , F. C. , Green , J. and Green , R. C. 1994 . Unawarenes s of cognitive impairments in Alzheimer's disease . Neuropsychiatry, Neuropsychology and Behavioral Neurology , 7 : 25 – 29 .
  • Babinski , M. J. 1914 . Contribution a l'etude des troubles mentaux dans l'hemiplegie organique cerebrale (anosognosie) . Revue Neurologique , 12 : 845 – 848 .
  • Burnham , M. 1999 . Effective group memory therapy for people with dementia . Signpost , 3 ( 4 ) : 2 – 4 .
  • Cavanaugh , J. C. 1986–7 . Age difference s in adults' self-reports of memory ability : It depend son how and what you ask . International Journal of Aging and Human Development , 24 : 271 – 277 .
  • Cavanaugh , J. C. 1989 . “ The importance of awareness in memory aging ” . In Everyday cognition in adulthood and late life , Edited by: Poon , L. W. , Rubin , D. C. and Wilson , B. A. Cambridge : Cambridge University Press .
  • Cheston , R. and Bender , M. 1999 . Understanding dementia: The man with the worried eyes , London : Jessica Kingsley Publishers .
  • Clare , L. 2000 . Cognitive rehabilitation in early-stage e Alzheimer's disease: Learning and the impact of awareness , Milton Keynes : The Open University . Unpublished PhD thesis
  • Clare , L. “ Assessment and intervention in Alzheimer's disease ” . In Handbook of memory disorders , Edited by: Baddeley , A. D. , Wilson , B. A. and Kopelman , M. D. Chichester, , UK : Wiley . in press-a
  • Clare , L. in press . Developing awareness about awareness in early-stage dementia . Dementia ,
  • Clare , L. in press . We'll fight it as long as we can: Coping with the onset of Alzheimer's disease . Aging and Mental Health ,
  • Clare , L. The construction of awareness in early-stage Alzheimer's disease: A review of concepts and models submitted-a
  • Clare , L. Awareness in early-stage Alzheimer's disease: A review of methods and evidence submitted-b
  • Clare , L. Managing threats to self: The construction of awareness in early-stage Alzheimer's disease submitted-c
  • Clare , L. , Wilson , B. A. , Emslie , H. , Tate , R. and Watson , P. 2000 . Adapting the Rivermead Behavioural Memory Test—Extended Version (RBMT-E) for people with restricted mobility . British Journal of Clinical Psychology , 39 : 363 – 369 .
  • Cohen , D. 1991 . The subjective experience of Alzheimer's disease: The anatomy of an illness as perceived by patients and families . American Journal of Alzheimer's Care and Related Disorders and Research , May/June : 6 – 11 .
  • Dalla Barba , G. , Parlato , V. , Lavarone , A. and Boiler , F. 1995 . Anosognosia, intrusions and ‘frontal’ functions in Alzheimer's disease and depression . Neuropsychologia , 33 : 247 – 259 .
  • De Bettignies , B. H. , Mahurin , R. K. and Pirozzolo , F. J. 1990 . Insight for impairment in independent living skills in Alzheimer's disease and multi-infarct dementia . Journal of Clinical and Experimental Neuropsychology , 12 : 355 – 363 .
  • de Wall , C. , Wilson , B. A. and Baddeley , A. D. 1994 . The Extended Rivermead Behavioural Memory Test: A measure of everyday memory performance in normal adults . Memory , 2 : 149 – 166 .
  • Dixon , R. A. 1989 . “ Questionnaire research on metamemory and aging: Issues of structure and function ” . In Everyday cognition in adulthood and late life , Edited by: Poon , L. W. , Rubin , D. C. and Wilson , B. A. Cambridge : Cambridge University Press .
  • Feehan , M. , Knight , R. G. and Partridge , F. M. 1993 . Cognitive complaint and test performance in elderly patients suffering depression or dementia . International Journal of Geriatric Psychiatry , 6 : 287 – 293 .
  • Feher , E. P. , Larrabee , G. J. and Crook , T. H. 1992 . Memory self-report in Alzheimer's disease . Journal of Clinical and Experimental Neuropsychology , 14 : 18
  • Feher , E. P. , Mahurin , R. K. , Inbody , S. B. , Crook , T. H. and Pirozzolo , F. J. 1991 . Anosognosia in Alzheimer's disease . Neuropsychiatry, Neuropsychology and Behavioral Neurology , 4 : 136 – 146 .
  • Folstein , M. F. , Folstein , S. E. and McHugh , P. R. 1975 . “Mini-mental state”: A practical method for grading the cognitive state of patients for the clinician . Journal of Psychiatric Research , 12 : 189 – 198 .
  • Freidenberg , D. L. , Huber , S. J. and Dreskin , M. 1990 . Loss of insight in Alzheimer's disease (Abstract) . Neurology , 40 : 240 Suppl 1
  • Green , J. , Goldstein , P. C. , Sirockman , B. E. and Green , R. C. 1993 . Variable awareness of deficits in Alzheimer's disease . Neuropsychiatry, Neuropsychology and Behavioral Neurology , 6 : 159 – 165 .
  • Herrmann , D. J. 1982 . Know thy memory: The use of questionnaires to assess and study memory . Psychological Bulletin , 92 : 434 – 452 .
  • Jorm , A. F. 1992 . “ Use of informants' reports to study memory changes in dementia ” . In Memory functioning in dementia , Edited by: Bäckman , L. Amsterdam : Elsevier Science .
  • Jorm , A. F. , Christensen , H. , Henderson , A. S. , Korten , A. E. , Mackinnon , A. J. and Scott , R. 1994 . Complaints of cognitive decline in the elderly: A comparison of reports by subjects and informants in a community survey . Psychological Medicine , 24 : 365 – 374 .
  • Kapur , N. and Pearson , D. 1983 . Memory symptoms and memory performance of neurological patients . British Journal of Psychology , 74 : 409 – 415 .
  • Kaszniak , A. W. and Christenson , G. D. 1995 . One-year longitudinal changes in the metamemory impairment of Alzheimer's disease (Abstract) . Journal of the International Neuropsychological Society , 1 : 145
  • Kaszniak , A. W. and Christenson , G. D. 1996 . “ Self-awareness of deficit in patients with Alzheimer's disease ” . In Towards a science of consciousness: The first Tucson discussions and debates , Edited by: Hameroff , S. R. , Kaszniak , A. W. and Scott , A. C. Cambridge, MA : MIT Press .
  • Keady , J. and Nolan , M. 1995a . IMMEL 2: Working to augment coping responses in early dementia . British Journal of Nursing , 4 : 377 – 380 .
  • Keady , J. and Nolan , M. 1995b . IMMEL: assessing coping responses in the early stages of dementia . British Journal of Nursing , 4 : 309 – 314 .
  • Keady , J. , Nolan , M. and Gilliard , J. 1995 . Listen to the voices of experience . Journal of Dementia Care , May/June : 15 – 17 .
  • Koltai , D. C. , Welsh-Bohmer , K. A. and Schmechel , D. E. 2001 . Influence of anosognosi a on treatment outcome among dementia patients [special issue: Cognitive Rehabilitation in Dementia] . Neuropsychological Rehabilitation , 11 : 455 – 475 .
  • Kotler-Cope , S. and Camp , C. J. 1995 . Anosognosia in Alzheimer's disease . Alzheimer Disease and Associated Disorders , 9 : 52 – 56 .
  • Larrabee , G. J. and Levin , H. S. 1986 . Memory self-ratings and objective test performance in a normal elderly sample . Journal of Clinical and Experimental Neuropsychology , 8 : 275 – 284 .
  • Larrabee , G. J. , West , R. L. and Crook , T. H. 1991 . The association of memory complaint with computer-simulated everyday memory performance . Journal of Clinical and Experimental Neuropsychology , 13 : 466 – 478 .
  • Loebel , J. P. , Dager , S. R. , Berg , G. and Hydes , T. S. 1990 . Fluency of speech and self-awareness of memory deficit in Alzheimer's disease . InternationaI Journal of Geriatric Psychiatry , 5 : 41 – 45 .
  • Lopez , O. L. , Becker , J. T. , Somsak , D. , Dew , M. A. and DeKosky , S. T. 1994 . Awareness of cognitive deficits and anosognosia in probable Alzheimer's disease . European Neurology , 34 : 277 – 282 .
  • Mangone , C. A. , Hier , D. B. , Gorelick , P. B. , Ganellen , R. J. , Langenberg , P. , Boarman , R. and Dollear , W. C. 1991 . Impaired insight in Alzheimer's disease . Journal of Geriatric Psychiatry and Neurology , 4 : 189 – 193 .
  • Marková , I. S. 1997 . Towards a structure of insight: A clinical and conceptual analysis , University of Glasgow . Unpublished MD thesis
  • Marková , I. S. and Berrios , G. in press . Insight into memory function . Psychiatry Research ,
  • McGlynn , S. M. and Kaszniak , A. W. 1991 . When metacognition fails: Impaired awareness of deficit in Alzheimer's disease . Journal of Cognitive Neuroscience , 3 : 183 – 189 .
  • McKhann , G. , Drachman , D. , Folstein , M. , Katzman , R. , Price , D. and Stadlan , E. M. 1984 . Clinical diagnosis of Alzheimer's disease: Report of the NINCDS-ADRDA Work Group under the auspices of Department of Health and Human Services task force on Alzheimer's disease . Neurology , 34 : 939 – 944 .
  • Michon , A. , Deweer , B. , Pillon , B. , Agid , Y. and Dubois , B. 1994 . Relation of anosognosia to frontal lobe dysfunction in Alzheimer's disease . Journal of Neurology, Neurosurgery and Psychiatry , 57 : 805 – 809 .
  • Migliorelli , R. , Teson , A. , Sabe , L. , Petracca , G. , Petracchi , M. , Leiguarda , R. and Starkstein , S. E. 1995 . Anosognosia in Alzheimer's disease: A study of associated factors . Journal of Neuropsychiatry and Clinical Neurosciences , 7 : 338 – 344 .
  • Ott , B. R. and Fogel , B. S. 1992 . Measurement of depression in dementia: Self vs clinician rating . International Journal of Geriatric Psychiatry , 7 : 899 – 904 .
  • Pearce , A. , Clare , L. and Pistrang , N. in press . Managing sense of self: Coping in the early stages of Alzheimer's disease . Dementia ,
  • Prigatano , G. P. 1999 . Principles of neuropsychological rehabilitation , New York : Oxford University Press .
  • Reed , B. R. , Jagust , W. J. and Coulter , L. 1993 . Anosognosia in Alzheimer's disease : Relationship to depression, cognitive function and cerebral perfusion . Journal of Clinical and Expérimental Neuropsychology , 15 : 231 – 244 .
  • Reed , B. R. , Seab , J. P. and Jagust , W. J. 1992 . Dementia severity, memory impairment, and awareness of memory loss in Alzheimer's disease . Journal of Clinical and Experimental Neuropsychology , 14 : 21
  • Sabat , S. 2001 . The experience of Alzheimer's disease: Life through a tangled veil , Oxford : Blackwell .
  • Schacter , D. L. 1989 . “ On the relation between memory and consciousness: Dissociable interactions and conscious experience ” . In Varieties of memory and consciousness: Essays in honour of Endel Tulving , Edited by: Roediger , H. L. III and Craik , F. I. M. Hillsdale, NJ : Lawrence Erlbaum Associates, Inc .
  • Seidenberg , M. , Taylor , M. A. and Haltiner , A. 1994 . Personality and self-report of cognitive functioning . Archives of Clinical Neuropsychology , 9 : 353 – 361 .
  • Seltzer , B. , Buswell , A. and Vasterling , J. 1993 . Awareness of deficit in Alzheimer's disease (AD): Association with psychiatric symptoms and other disease variables (Abstract) . Journal of Clinical and Experimental Neuropsychology , 15 : 30
  • Sevush , S. and Leve , N. 1993 . Denial of memory deficit in Alzheimer's disease . American Journal of Psychiatry , 150 : 748 – 751 .
  • Smith , J. A. 1996 . Beyond the divide between cognition and discourse: Using interpretative phenomenological analysis in health psychology . Psychology and Health , 11 : 261 – 271 .
  • Smith , J. A. , Jarman , M. and Osborn , M. 1997 . “ Interpretative phenomenological analysis and the psychology of health and illness ” . In Material discourses of health and illness , Edited by: Yaidley , L. London : Routledge .
  • Smith , J. A. , Osborn , M. and Jarman , M. 1999 . “ Doing interpretative phenomenological analysis ” . In Qualitative health psychology: Theories and methods , Edited by: Murray , M. and Chamberlain , K. 218 – 240 . London : Sage .
  • Starkstein , S. E. , Sabe , L. , Chemerinski , E. , Jason , L. and Leiguarda , R. 1996 . Two domains of anosognosi a in Alzheimer's disease . Journal of Neurology, Neurosurgery and Psychiatry , 61 : 485 – 490 .
  • Stuss , D. T. , Picton , T. W. and Alexander , M. P. “ Consciousness, self-awareness and the frontal lobes ” . In The frontal lobes andneuropsychiatric illness , Edited by: Salloway , S. , Malloy , P. and Duffy , J. Washington, DC : American Psychiatric Press . in press
  • Tierney , M. C. , Szalai , J. P. , Snow , W. G. and Fisher , R. H. 1996 . The prediction of Alzheimer disease . Archives of Neurology , 53 : 423 – 427 .
  • Vasterling , J. J. , Seltzer , B. , Foss , J. W. and Vanderbrook , V. 1995 . Unawareness of deficit in Alzheimer's disease: Domain-specific differences and disease correlates . Neuropsychiatry, Neuropsychology and Behavioral Neurology , 8 : 26 – 32 .
  • Vasteriing , J. J. , Seltzer , B. and Watrous , W. E. 1997 . Longitudinal assessment of deficit unawareness in Alzheimer's disease . Neuropsychiatry, Neuropsychology and Behavioral Neurology , 10 : 197 – 202 .
  • Verhey , F. R. J. , Rozendaal , N. , Ponds , R. W. H. M. and Jolles , J. 1993 . Dementia, awareness and depression . International Journal of Geriatric Psychiatry , 8 : 851 – 856 .
  • Wagner , M. T. , Spangenberg , K. B. , Bachman , D. L. and O'Connell , P. 1997 . Unawareness of cognitive deficit in Alzheimer disease and related dementias . Alzheimer Disease and Related Disorders , 11 : 125 – 131 .
  • Weinstein , E. A. 1991 . “ Anosognosia and denial of illness ” . In Awareness of deficit after brain injury: Clinical and theoretical issues , Edited by: Prigatano , G. P. and Schacter , D. L. New York : Oxford University Press .
  • Weinstein , E. A. , Friedland , R. P. and Wagner , E. E. 1994 . Denial/unawareness of impairment and symbolic behavior in Alzheimer's disease . Neuropsychiatry, Neuropsychology and Behavioral Neurology , 7 : 176 – 184 .
  • Wills , P. , Clare , L. , Shiel , A. and Wilson , B. A. 2000 . Assessing subtle impairments in the everyday memory performance of brain injured people: Exploring the potential of the Rivermead Behavioural Memory Test—Extended Version . Brain Injury , 14 : 693 – 704 .
  • Wilson , B. A. , Clare , L. , Cockbum , J. , Baddeley , A. D. , Tate , R. and Watson , P. 1999 . The Rivermead Behavioural Memory Test—Extended Version , Bury St Edmunds, , UK : Thames Valley Test Company .
  • Wilson , B. A. , Cockburn , J. and Baddeley , A. D. 1985 . The Rivermead Behavioural Memory Test , Bury St. Edmunds, , UK : Thames Valley Test Company .
  • Zanetti , O. , Vallotti , B. , Frisoni , G. B. , Geroldi , C. , Bianchetti , A. , Pasqualetti , P. and Trabucchi , M. 1999 . Insight in dementia: When does it occur? Evidence for a non-linear relationship between insight and cognitive status . Journal of Gerontology: Psychological Sciences , 54B : P100 – P106 .

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