Integrating stakeholder perspectives in outcome measurement

REFERENCES

• Bode , R. K. 2001 . Understanding Rasch measurement: Partial credit model and pivot anchoring . Journal of Applied Measurement , 2 : 78 – 95 .
   PubMedGoogle Scholar
• Brown , M. , Dijkers , M. P. J. M. , Gordon , W. A. , Ashman , T. , Charatz , H. and Cheng , Z. 2004 . Participation Objective, Participation Subjective: A measure of participation combining outsider and insider perspectives . Journal of Head Trauma Rehabilitation , 19 ( 6 ) : 459 – 481 .
   PubMed Web of Science ®Google Scholar
• Cella , D. , Gershon , R. , Lai , J. S. and Choi , S. 2007a . The future of outcomes measurement: Item banking, tailored short-forms, and computerized adaptive assessment . Quality of Life Research , 16 : 133 – 141 .
   PubMed Web of Science ®Google Scholar
• Cella , D. , Yount , S. Rothrock , N. 2007b . The Patient-Reported Outcomes Measurement Information System (PROMIS): Progress of an NIH Roadmap cooperative group during its first two years . Medical Care , 45 ( Suppl. 1 ) : S3 – S11 .
   PubMed Web of Science ®Google Scholar
• Clark , M. S. and Caudrey , D. J. 1983 . Evaluation of rehabilitation services: The use of goal attainment scaling . International Journal of Rehabilitation Medicine , 5 ( 1 ) : 41 – 45 .
   PubMedGoogle Scholar
• Dewalt , D. A. , Rothrock , N. , Yount , S. and Stone , A. A. 2007 . Evaluation of Item Candidates: The PROMIS Qualitative Item Review . Medical Care , 45 ( Suppl. 1 ) : S12 – S21 .
   PubMedGoogle Scholar
• Donabedian , A. 1966 . Evaluating quality of medical care . Milbank Memorial Fund Quarterly , 44 ( 3 ) : 166 – 203 .
   PubMedGoogle Scholar
• Duncan , P. W. and Velozo , C. A. 2007 . State-of-the-science on post-acute rehabilitation: Measurement and methodologies for assessing quality and establishing policy for post-acute care . Archives of Physical Medicine and Rehabilitation , 88 : 1482 – 1487 .
   PubMed Web of Science ®Google Scholar
• Gandek , B. , Sinclair , S. J. , Jette , A. M. and Ware , J. E. 2007 . Development and initial psychometric evaluation of the Participation Measure for Post-Acute Care (PM-PAC) . American Journal of Physical Medicine and Rehabilitation , 86 ( 1 ) : 57 – 71 .
   PubMed Web of Science ®Google Scholar
• Gray , D. B. , Hollingsworth , H. H. , Strak , S. L. and Morgan , K. A. 2006 . Participation Survey/Mobility: Psychometric properties of a measure of participation for people with mobility impairments and limitations . Archives of Physical Medicine and Rehabilitation , 87 : 189 – 197 .
   PubMed Web of Science ®Google Scholar
• Green , B. F. , Bock , R. D. and Humphreys , L. G. 1984 . Technical guidelines for assessing computerized adaptive tests . Journal of Educational Measurement , 21 : 347 – 360 .
   Web of Science ®Google Scholar
• Hammel , J. , Magasi , S. , Heinemann , A. , Whiteneck , G. , Bogner , J. and Rodriguez , E. 2008 . What does participation mean? An insider perspective from people with disabilities . Disability Rehabilitation , 30 ( 19 ) : 1445 – 1460 .
   PubMed Web of Science ®Google Scholar
• Heinemann , A. W. 2005 . Putting outcome measurement in context: A rehabilitation psychology perspective . Rehabilitation Psychology , 50 ( 1 ) : 6 – 14 .
   Web of Science ®Google Scholar
• Heinemann , A. W. and Bode , R. K. Paper presented at the 2nd International Outcomes Measurement Conference . May 1998 , Chicago, IL. Item banking and pivot anchoring: A neurologic example ,
   Google Scholar
• Institute of Medicine: Committee on Quality of Health Care in America . 2001 . Crossing the Quality Chasm: A New Health System for the 21st Century , Washington, DC : National Academy Press .
   Google Scholar
• Johnston , M. V. , Wood , K. D. and Fiedler , R. 2003 . Characteristics of effective and efficient rehabilitation programs . Archives of Physical Medicine and Rehabilitation , 84 : 410 – 418 .
   PubMed Web of Science ®Google Scholar
• Kane , R. L. 2007 . Assessing the effectiveness of post-acute care rehabilitation . Archives of Physical Medicine and Rehabilitation , 88 : 1500 – 1504 .
   PubMed Web of Science ®Google Scholar
• Law , M. 2002 . Evidence-Based Rehabilitation: A Guide to Practice , Edited by: Law , M. Thorofare, NJ : Slack Inc .
   Google Scholar
• Magasi , S. , Hammel , J. , Heinemann , A. W. , Whiteneck , G. G. and Bogner , J. 2009 . Participation: Multiple rehabilitation stakeholder constructions, priorities and comparisons Manuscript submitted for publication
   Google Scholar
• Mallinson , T. , Bode , R. , Bateman , J. and Heinemann , A. W. Paper presented at Academy Health Annual Conference . June 2008 , Washington, DC. Comparing PAC Functional Assessment Tools: A Rasch Measurement Model Approach ,
   Google Scholar
• McHorney , C. A. 2003 . Ten recommendations for advancing patient-centered outcomes measurement for older persons . Annals of Internal Medicine , 139 : 403 – 409 .
   PubMed Web of Science ®Google Scholar
• McHorney , C. A. and Cohen , A. S. 2000 . Equating health status measures with Item Response Theory: Illustrations with functional status items . Medical Care , 38 ( Suppl. 9 ) : 1143 – 1159 .
   Web of Science ®Google Scholar
• Merriam , S. B. 1998 . Case Study Research in Education: A Qualitative Approach , San Francisco, CA : Jossey-Bass .
   Google Scholar
• Ottenbacher , K. J. , Smith , P. M. , Linn , R. T. , Ostir , G. V. and Granger , C. V. 2004 . Trends in length of stay, living situation, functional outcome, and mortality following medical rehabilitation . Journal of the American Medical Association , 292 ( 14 ) : 1687 – 1695 .
   PubMed Web of Science ®Google Scholar
• Stineman , M. G. 1995 . Case-mix measurement in medical rehabilitation . Archives of Physical Medicine and Rehabilitation , 76 : 1163 – 1170 .
   PubMed Web of Science ®Google Scholar
• Sudman , S. , Bradburn , N. and Schwartz , N. 1996 . Thinking about Answers: The Application of Cognitive Processes to Survey Methodology , San Francisco, CA : Jossey-Bass .
   Google Scholar
• US Department of Health and Human Services, Food and Drug Administration, Center for Drug Evaluation and Research, Center for Biologics Evaluation, & Research Center for Devices and Radiological Health. (2006). Guidance for Industry: Patient-Reported Outcome Measures: Use in Medical Product Development to Support Labeling Claims. Draft Guidance
   Google Scholar
• Wilkerson , D. , Shen , D. and Duchaime , M. 1998 . “ Performance indicators for rehabilitation programs ” . Tucson, AZ : Commission on Accreditation of Rehabilitation Facilities . (Version 1.1)
   Google Scholar
• Willis , G. B. 2005 . Cognitive Interviewing: A Tool for Improving Questionnaire Design , Thousand Oaks, CA : Sage Publications .
   Google Scholar
• World Health Organization . 2001 . International Classification of Functioning, Disability, and Health , Geneva : WHO .
   Google Scholar