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Original Articles

Outcome instruments in moderate-to-severe adult traumatic brain injury: recommendations for use in psychosocial research

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Pages 896-916 | Received 09 Mar 2017, Accepted 31 May 2017, Published online: 02 Jul 2017

References

  • Andelic, N., Arango-Lasprilla, J. C., Perrin, P. B., Sigurdardottir, S., Lu, J., Landa, L. O., … Roe, C. (2016). Modeling of community integration trajectories in the first five years after traumatic brain injury. Journal of Neurotrauma, 33, 95–100. doi: 10.1089/neu.2014.3844
  • Anderson, V. A., Catroppa, C., Haritou, F., Morse, S., Pentland, L., Rosenfeld, J., & Stargatt, R. (2001). Predictors of acute child and family outcome following traumatic brain injury in children. Pediatric Neurosurgery, 34, 138–148. doi: 10.1159/000056009
  • Anderson, V., Northam, E., Hendy, J. & Wrennall, J. (2001). Developmental neuropsychology: A clinical approach. Hove: Psychology Press.
  • Beck, A. T., Kovacs M., & Weissman A. (1979). Assessment of suicide intention: The Scale for Suicide Ideation. Journal of Consulting and Clinical Psychology, 47, 343–352. doi: 10.1037/0022-006X.47.2.343
  • Beck, A. T., Weissman, A., Lester, D., & Trexler, L. (1974). The measurement of pessimism: The hopelessness scale. Journal of Consulting and Clinical Psychology, 42, 861–865. doi: 10.1037/h0037562
  • Belanger, H. G., Curtiss, G., Demery, J. A., Lebowitz, B. K., & Vanderploeg, R. D. (2005). Factors moderating neuropsychological outcomes following mild traumatic brain injury: A meta-analysis. Journal of the International Neuropsychological Society, 11, 215–227. doi: 10.1017/S1355617705050277
  • Benton, A. L., & Hamsher, K. (1976). Multilingual Aphasia Examination manual. Iowa City: University of Iowa.
  • Bernabeu, M., Laxe, S., Lopez, R., Stucki, G., Ward, A., Barnes, M., … Zasler, N. (2009). Developing core sets for persons with traumatic brain injury based on the International Classification of Functioning, Disability, and Health. Neurorehabilitation and Neural Repair, 23, 464–467. doi: 10.1177/1545968308328725
  • Bickenbach, J., Cieza, A., Rauch, A., & Stucki, G. (Eds.). (2012). ICF core sets: Manual for clinical practice. Göttingen: Hogrefe Publishing.
  • Borgaro, S. R., & Prigatano, G. P. (2003). Modification of the patient competency rating scale for use on an acute neurorehabilitation unit: The PCRS-NR. Brain Injury, 17, 847–853. doi: 10.1080/0269905031000089350
  • Burgess, P. W., Alderman, N., Wilson, B. A., Evans, J. J., & Emslie, H. (1996). The dysexecutive questionnaire. Behavioural assessment of the dysexecutive syndrome. Bury St. Edmunds: Thames Valley Test Company.
  • Carroll, E., & Coetzer, R. (2011). Identity, grief and self-awareness after traumatic brain injury. Neuropsychological Rehabilitation, 21, 289–305. doi: 10.1080/09602011.2011.555972
  • Carter, R., & Lubinsky, J. (2015). Rehabilitation research: Principles and applications (5th ed.). St. Louis, MO: Elsevier.
  • Chervinsky, A. B., Ommaya, A. K., deJonge, M., Spector, J., Schwab, K., & Salazar, A. M. (1998). Motivation for traumatic brain injury rehabilitation questionnaire (MOT-Q): Reliability, factor analysis, and relationship to MMPI-2 variables. Archives of Clinical Neuropsychology, 13, 433–446. doi:10.1016/S0887-6177(97)00016-4 doi: 10.1093/arclin/13.5.433
  • Cicerone, K. D., Langenbahn, D. M., Braden, C., Malec, J. F., Kalmar, K., Fraas, M., … Bergquist, T. (2011). Evidence-based cognitive rehabilitation: Updated review of the literature from 2003 through 2008. Archives of Physical Medicine and Rehabilitation, 92, 519–530. doi: 10.1016/j.apmr.2010.11.015
  • Cieza, A., Brockow, T., Ewert, T., Amman, E., Kolleritis, B., Chatterji, S., … Stucki, G. (2002). Linking health-status measurements to the International Classification of Functioning, Disability and Health. Journal of Rehabilitation Medicine, 34, 205–210. doi: 10.1080/165019702760279189
  • Coelho, C. A., Ylvisaker, M., & Turkstra, L. S. (2005). Nonstandardized assessment approaches for individuals with traumatic brain injuries. Seminars in Speech and Language, 26, 223–241. doi:10.1055/s-2005-92210 doi: 10.1055/s-2005-922102
  • Coetzer, R., & Du Toit, P. L. (2001). HoNOS-ABI; a clinically useful outcome measure? Psychiatric Bulletin, 25, 421–422. doi: 10.1192/pb.25.11.421
  • Cullen, N., Chundamala, J., Bayley, M., & Jutai, J. (2007). The efficacy of acquired brain injury rehabilitation. Brain Injury, 21, 113–132. doi: 10.1080/02699050701201540
  • Davis, M. H. (1980). A multidimensional approach to individual differences in empathy. JSAS Catalog of Selected Documents in Psychology, 10, 85.
  • Davis, M. H. (1983). Measuring individual differences in empathy: Evidence for a multidimensional approach. Journal of Personality and Social Psychology, 44, 113–126. doi: 10.1037/0022-3514.44.1.113
  • Diener, E., Emmons, R. A., Larsen, R. J., & Griffin, S. (1985). The satisfaction with life scale. Journal of Personality Assessment, 49, 71–75. doi: 10.1207/s15327752jpa4901_13
  • Douglas, J. M., O’Flaherty, C. A., & Snow, P.C. (2000). Measuring perception of communicative ability: The development and evaluation of the La Trobe Communication Questionnaire. Aphasiology, 14, 251–268. doi: 10.1080/026870300401469
  • Drummond, A. E. R., & Walker, M. F. (1994). The Nottingham Leisure Questionnaire for stroke patients. The British Journal of Occupational Therapy, 57, 414–418. doi: 10.1177/030802269405701102
  • Enderby, P. M., & Palmer, R. (2008). FDA-2: Frenchay Dysarthria Assessment: Examiner’s manual. Austin, TX: Pro-ed.
  • EUROQOL Group, E. (1990). EuroQol - a new facility for the measurement of health-related quality of life. Health Policy, 16, 199–208. doi: 10.1016/0168-8510(90)90421-9
  • Fichtenberg, N. L., Putnam, S. H., Mann, N. R., Zafonte, R. D., & Millard, A. E. (2001). Insomnia screening in postacute traumatic brain injury: Utility and validity of the Pittsburgh Sleep Quality Index. American Journal of Physical Medicine and Rehabilitation, 80, 339–345. http://www.editorialmanager.com/ajpmr/default.aspx doi: 10.1097/00002060-200105000-00003
  • Fitts, W. H., & Warren, W. L. (1997). Tennesse Self Concept Scale TSCS:2. Second edition manual (2nd ed.). Los Angeles: Western Psychological Services.
  • Fleming, J. M., Strong, J., & Ashton, R. (1996). Self-awareness of deficits in adults with traumatic brain injury: How best to measure? Brain Injury, 10, 1–16. doi: 10.1080/026990596124674
  • Forslund, M., Roe, C., Sigurdardottir, S., & Andelic, N. (2013). Predicting health-related quality of life 2 years after moderate-to-severe traumatic brain injury. Acta Neurologica Scandinavica, 128, 220–227. doi: 10.1111/ane.12130
  • Gavin, D. R., Ross, H. E., & Skinner, H. A. (1989). Diagnostic validity of the drug abuse screening test in the assessment of DSM-III drug disorders. British Journal of Addiction, 84, 301–307. doi: 10.1111/j.1360-0443.1989.tb03463.x
  • Hays, S. J., Niven, B., Godfrey, H., & Linscott, R. (2004). Clinical assessment of pragmatic language impairment: A generalisability study of older people with Alzheimer’s disease. Aphasiology, 18, 693–714. doi: 10.1080/02687030444000183
  • Honan, C. A., McDonald, S., Sufani, C., Hine, D. W., & Kumfor, F. (2016). The awareness of social inference test: Development of a shortened version for use in adults with acquired brain injury. The Clinical Neuropsychologist, 30, 243–264. doi: 10.1080/13854046.2015.1136691
  • Johns, M. W. (1991). A new method for measuring daytime sleepiness: the Epworth sleepiness scale. Sleep, 14, 540–545. doi: 10.1093/sleep/14.6.540
  • Kagan, A., Winckel, J., Black, S., Duchan, J. F., Simmons-Mackie, N., & Square, P. (2004). A set of observational measures for rating support and participation in conversation between adults with aphasia and their conversation partners. Topics in Stroke Rehabilitation, 11, 67–83. doi: 10.1310/cl3v-a94a-de5c-cvbe
  • Kaplan, E., Goodglass, H., Weintraub, S., & Segal, O. (1983). Boston naming test. Philadelphia: Lea & Febiger.
  • Kelly, G., Todd, J., Simpson, G., Kremer, P., & Martin, C. (2006). The Overt Behaviour Scale (OBS): A tool for measuring challenging behaviours following ABI in community settings. Brain Injury, 20, 307–319. doi: 10.1080/02699050500488074
  • Kersel, D. A., Marsh, N. V., Havill, J. H., & Sleigh, J. W. (2001). Psychosocial functioning during the year following severe traumatic brain injury. Brain Injury, 15, 683–696. doi:10.1080/02699050121088 doi: 10.1080/02699050010013662
  • Kertesz, A. (2007). Western aphasia battery-revised. New York: Pearson Assessment.
  • Krupp, L. B., LaRocca, N. G., Muir-Nash, J., & Steinberg, A. D. (1989). The fatigue severity scale. Application to patients with multiple sclerosis and systemic lupus erythematosus. Archives of Neurology, 46, 1121–1123. doi: 10.1001/archneur.1989.00520460115022
  • Law, M., Baptiste, S., Carswell, A., McColl, M., Polatajko, H., & Pollock, N. (2014). Canadian occupational performance measure (5th ed.). Toronto: CAOT Publications ACE.
  • Laxe, S., Tschiesner, U., Zasler, N., López-Blazquez, R., Tormos, J. M., & Bernabeu, M. (2012). What domains of the International Classification of Functioning, Disability and Health are covered by the most commonly used measurement instruments in traumatic brain injury research? Clinical Neurology and Neurosurgery, 114, 645–650. doi: 10.1016/j.clineuro.2011.12.038
  • Lezak, M. D., Howieson, D. B., Bigler, E. D., & Tranel, D. (2012). Neuropsychological assessment (5th ed.). New York, NY: Oxford University Press.
  • Lubben, J., & Gironda, M. (2004). Measuring social networks and assessing their benefits. In C. Phillipson, G. Allan, & D. Morgan (Eds.) Social networks and social exclusion: Sociological and policy perspectives (pp. 20–34). Keele: Ashgate.
  • MacDonald, S., & Johnson, C. J. (2005). Assessment of subtle cognitive-communication deficits following acquired brain injury: A normative study of the functional assessment of verbal reasoning and executive strategies (FAVRES). Brain Injury, 19, 895–902. doi: 10.1080/02699050400004294
  • Malec, J. F., & Lezak, M. D. (2008). Manual for the Mayo-Portland Adaptability Inventory (MPAI-4) for adults, children and adolescents. Retrieved from http://tbims.org/combi/mpai/manual.pdf
  • McCabe, P., Lippert, C., Weiser, M., Hilditch, M., Hartridge, C., & Villamere, J. (2007). Community reintegration following acquired brain injury. Brain Injury, 21, 231–257. doi: 10.1080/02699050701201631
  • McCauley, S. R., Wilde, E. A., Anderson, V. A., Bedell, G., Beers, S. R., Campbell, T. F., … Levin, H. S. (2012). Recommendations for the use of common outcome measures in pediatric traumatic brain injury research. Journal of Neurotrauma, 29, 678–705. doi: 10.1089/neu.2011.1838
  • McDonald, S., Anderson, V., Ponsford, J., Tate, R., Togher, L., Morgan, A., … Murdoch, B. (2012). Moving ahead: A new centre of research excellence in brain recovery, focusing on psychosocial reintegration following traumatic brain injury. Brain Impairment, 13, 256–270. doi: 10.1017/BrImp.2012.21
  • McDonald, S., Flanagan, S., Rollins, J., & Kinch, J. (2003). TASIT: A new clinical tool for assessing social perception after traumatic brain injury. Journal of Head Trauma Rehabilitation, 18, 219–238. http://journals.lww.com/headtraumarehab/pages/default.aspx doi: 10.1097/00001199-200305000-00001
  • McMillan, T. M., Weir, C. J., Ireland, A., & Stewart, E. (2013). The Glasgow Outcome at Discharge Scale: An inpatient assessment of disability after brain injury. Journal of neurotrauma, 30(11), 970–974. doi: 10.1089/neu.2012.2703
  • Mellick, D., Walker, N., Brooks, C., & Whiteneck, G. G. (1999). Incorporating the cognitive independence domain into CHART. Journal of Rehabilitation Outcome Measurment, 3, 12–21.
  • Miller, I. W., Bishop, D. S., Epstein, N. B., & Keitner, G. I. (1985). The mcmaster family assessment device - reliability and validity. Journal of Marital and Family Therapy, 11, 345–356. doi: 10.1111/j.1752-0606.1985.tb00028.x
  • Oddy, M., Cattran, C., & Wood, R. (2008). The development of a measure of motivational changes following acquired brain injury. Journal of Clinical and Experimental Neuropsychology, 30, 568–575. doi: 10.1080/13803390701555598
  • Ponsford, J. (2003). Sexual changes associated with traumatic brain injury. Neuropsychological Rehabilitation, 13, 275–289. doi: 10.1080/09602010244000363
  • Ponsford, J. L., Downing, M. G., Olver, J., Ponsford, M., Acher, R., Carty, M., & Spitz, G. (2014). Longitudinal follow-up of patients with traumatic brain injury: Outcome at two, five, and ten years post-injury. Journal of Neurotrauma, 31, 64–77. doi: 10.1089/neu.2013.2997
  • Ponsford, J. L., Olver, J., Curran, C., & Ng, K. (1995). Prediction of employment status 2 years after traumatic brain injury. Brain Injury, 9, 11–20. doi: 10.3109/02699059509004566
  • Prigatano, G. P., Fordyce, D. J., Zeiner, H. K., Roueche, J. R., Pepping, M., & Wood, B. C. (1986). Neuropsychological rehabilitation after brain injury. Baltimore: John Hopkins University Press.
  • Rey, A. (1964). L’examen clinique en psychologie. Paris: Presses Universitaires de France.
  • Robinson, B. C. (1983). Validation of a Caregiver Strain Index. Journal of Gerontology, 38, 344–348. doi: 10.1093/geronj/38.3.344
  • Roebuck-Spencer, T., & Sherer, M. (2012). Moderate and severe traumatic brain injury. In G. J. Larrabee (Ed.), Forensic neuropsychology: A scientific approach (pp. 260–280). New York: Oxford University Press.
  • Rosenberg, M. (1965). Society and the adolescent self-image. Princeton, NJ: Princeton University Press.
  • Roth, R. M., Isquith, P. K., & Gioia, G. A. (2005). BRIEF-A: Behavior Rating Inventory of Executive Function--adult version: Professional manual. Lutz, FL: Psychological Assessment Resources.
  • Saunders, J. B., Aasland, O. G., Babor, T. F., Fuente, J. R., & Grant, M. (1993). Development of the alcohol use disorders identification test (AUDIT): WHO collaborative project on early detection of persons with harmful alcohol consumption-II. Addiction, 88, 791–804. doi: 10.1111/j.1360-0443.1993.tb02093.x
  • Schmidt, M. (1996). Rey auditory and verbal learning test: A handbook. Los Angeles: Western Psychological Services.
  • Sherbourne, C. D., & Stewart, A. L. (1991). The MOS social support survey. Social Science & Medicine, 32, 705–714. doi: 10.1016/0277-9536(91)90150-B
  • Shipley, W. C., Gruber, C. P., Martin, T. A., & Klein, A. M. (2009). Shipley-2 manual. Los Angeles, CA: Western Psychological Services.
  • Spanier G. B. (1976). Measuring dyadic adjustment: New scales for assessing the quality of marriage and similar dyads. Journal of Marriage and The Family, 38, 15–27. doi: 10.2307/350547
  • Spreen, O., & Strauss, E. A. (1998). Compendium of neuropsychological tests: Administration, norms and commentary (2nd ed.). New York: Oxford University Press.
  • Tate, R. L. (2004). Assessing support needs for people with traumatic brain injury: The care and needs scale (CANS). Brain Injury, 18, 445–460. doi: 10.1080/02699050310001641183
  • Tate, R. L. (2010). A compendium of tests, scales and questionnaires: The practitioner’s guide to measuring outcomes after acquired brain impairment. East Sussex: Psychology Press.
  • Tate, R. L. (2011). Manual for the Sydney Psychosocial Reintegration Scale verson 2 (SPRS-2). Sydney: Rehabilitation Studies Unit, University of Sydney.
  • Tate, R. L., Broe, G. A., Cameron, I. D., Hodgkinson, A. E., & Soo, C. A. (2005). Pre-injury, injury and early post-injury predictors of long-term functional and psychosocial recovery after severe traumatic brain injury. Brain Impairment, 6, 75–89. doi: 10.1375/brim.2005.6.2.75
  • Tate, R. L., Godbee, K., & Sigmundsdottir, L. (2013). A systematic review of assessment tools for adults used in traumatic brain injury research and their relationship to the ICF. NeuroRehabilitation, 32, 729–750. doi: 10.3233/NRE-130898
  • Teasdale, G. M., Pettigrew, L. E. L., Wilson, J. T., Murray, G., & Jennett, B. (1998). Analyzing outcome of treatment of severe head injury: A review and update on advancing the use of the Glasgow Outcome Scale. Journal of Neurotrauma, 15, 587–597. doi: 10.1089/neu.1998.15.587
  • Tellez, N., Rio, J., Tintore, M., Nos, C., Galan, I., & Montalban, X. (2005). Does the Modified Fatigue Impact Scale offer a more comprehensive assessment of fatigue in MS? Multiple Sclerosis Journal, 11, 198–202. doi: 10.1191/1352458505ms1148oa
  • Tulsky, D. S., Kisala, P. A., Victorson, D., Carlozzi, N., Bushnik, T., Sherer, M., … Cella, D. (2016). TBI-QOL: Development and calibration of item banks to measure patient reported outcomes following traumatic brain injury. Journal of Head Trauma Rehabilitation, 31, 40–51. doi: 10.1097/HTR.0000000000000131
  • Wechsler, D. (2008). Wechsler Adult Intelligence Scale – Fourth edition. San Antonio, TX: The Psychological Corporation.
  • Wechsler, D., Holdnack, J. A., & Drozdick, L. W. (2009). Wechsler Memory Scale: Fourth edition. Technical and interpretive manual. San Antonio, TX: Pearson.
  • Weiss, D. S., & Marmar, C. R. (1996). The impact of event scale - revised. In J. Wilson & T. M. Keane (Eds.), Assessing psychological trauma and PTSD (pp. 399–411). New York: Guilford.
  • WHOQOL Group. (1998). The WHOQOL–100 and the WHO development of the World Health Organization WHOQOL–BREF quality of life assessment. Psychological Medicine, 28, 551–558. https://www.cambridge.org/core/journals/psychological-medicine doi: 10.1017/S0033291798006667
  • Whyte, J., & Hart, T. (2003). It’s more than a black box; it’sa Russian doll: defining rehabilitation treatments. American Journal of Physical Medicine & Rehabilitation, 82, 639–652. http://journals.lww.com/ajpmr/pages/default.aspx
  • Wilde, E. A., Whiteneck, G. G., Bogner, J., Bushnik, T., Cifu, D. X., Dikmen, S., … Malec, J. F. (2010). Recommendations for the use of common outcome measures in traumatic brain injury research. Archives of Physical Medicine and Rehabilitation, 91, 1650–1660. doi: 10.1016/j.apmr.2010.06.033
  • World Health Organisation. (2001). International classification of functioning, disability and health. Geneva: World Health Organisation.
  • World Health Organisation. (2004). WHODAS II–Training manual: A guide to administration. Geneva: World Health Organisation.
  • World Health Organization. (2013). How to use the ICF: A practical manual for using the International Classification of Functioning, Disability and Health (ICF). Exposure draft for comment. Geneva: World Health Organisation.
  • Yeates, K. O., Swift, E., Taylor, H. G., Wade, S. L., Drotar, D., Stancin, T., & Minich, N. (2004). Short- and long-term social outcomes following pediatric traumatic brain injury. Journal of the International Neuropsychological Society, 10, 412–426. doi: 10.1017/S1355617704103093
  • Yeates, K. O., Taylor, H. G., Wade, S. L., Drotar, D., Stancin, T., & Minich, N. (2002). A prospective study of short-and long-term neuropsychological outcomes after traumatic brain injury in children. Neuropsychology, 16, 514–523. doi: 10.1037/0894-4105.16.4.514
  • Zigmond, A. S., & Snaith, R. P. (1983). The hospital anxiety and depression scale. Acta Psychiatrica Scandinavica, 67, 361–370. doi: 10.1111/j.1600-0447.1983.tb09716.x

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