Personal narrative approaches in rehabilitation following traumatic brain injury: A synthesis of qualitative research

References

• Adler, J. M. (2012). Living into the story: Agency and coherence in a longitudinal study of narrative identity development and mental health over the course of psychotherapy. Journal of Personality and Social Psychology, 102(2), 367–389. doi: 10.1037/a0025289
   PubMed Web of Science ®Google Scholar
• Arksey, H., & O’Malley, L. (2005). Scoping studies: Towards a methodological framework. International Journal of Social Research Methodology, 8, 19–32. doi: 10.1080/1364557032000119616
   Google Scholar
• Baker, F., Kennelly, J., & Tamplin, J. (2005a). Adjusting to change through song: Themes in songs written by clients with traumatic brain injury. Brain Impairment, 6(3), 205–211. doi: 10.1375/brim.2005.6.3.205
   Google Scholar
• Baker, F., Kennelly, J., & Tamplin, J. (2005b). Themes in songs written by patients with traumatic brain injury: Differences across the lifespan. Australian Journal of Music Therapy, 16, 25–42.
   Google Scholar
• Baker, F., Kennelly, J., & Tamplin, J. (2005c). Themes within songs written by people with traumatic brain injury: Gender differences. Journal of Music Therapy, 42(2), 111–122. doi: 10.1093/jmt/42.2.111
   PubMed Web of Science ®Google Scholar
• Beadle, E. J., Ownsworth, T., Fleming, J., & Shum, D. H. K. (2016). The impact of traumatic brain injury on self-identity: A systematic review of the evidence for self-concept changes. Journal of Head Trauma Rehabilitation, 31(2), E12–E25. doi: 10.1097/HTR.0000000000000158
   PubMed Web of Science ®Google Scholar
• Biderman, D., Daniels-Zide, E., Reyes, A., & Marks, B. (2006). Ego-identity: Can it be reconstituted after a brain injury? Internation Journal of Psychology, 41(5), 355–361. doi: 10.1080/00207590500345963
   Web of Science ®Google Scholar
• Bowen, C., Yeates, G., & Palmer, S. (2010). A relational approach to rehabilitation: Thinking about relatiionships after brain injury. London: Karnac.
   Google Scholar
• Bryson-Campbell, M., Shaw, L., O'Brien, J., & Magalhaes, L. (2013). A scoping review on occupational and self identity after brain injury. Work, 44, 57–67.
   PubMedGoogle Scholar
• Bury, M. (1982). Chronic illness as biographical disruption. Sociology of Health & Illness, 4(2), 167–182. doi: 10.1111/1467-9566.ep11339939
   PubMedGoogle Scholar
• Charon, R. (2006). Narrative medicine: Honoring the stories of illness. New York: Oxford University Press.
   Google Scholar
• Cloute, K., Mitchell, K., & Yates, P. (2008). Traumatic brain injury and the construction of identity: A discursive approach. Neuropsychological Rehabilitation, 18(5/6), 651–670. doi: 10.1080/09602010701306989
   PubMed Web of Science ®Google Scholar
• Coetzer, R. (2008). Holistic neuro-rehabilitation in the community: Is identity a key issue? Neuropsychological Rehabilitation, 18(5-6), 766–783. doi: 10.1080/09602010701860266
   PubMed Web of Science ®Google Scholar
• Doering, B. K., Conrad, N., Rief, W., & Exner, C. (2011). Living with acquired brain injury: Self concept as mediating variable in the adjustment process. Neuropsychological Rehabilitation, 21(1), 42–63. doi: 10.1080/09602011.2010.525947
   PubMed Web of Science ®Google Scholar
• Doig, E., Fleming, J., Cornwell, P. L., & Kuipers, P. (2009). Qualitative exploration of a client-centered, goal-directed approach to community-based occupational therapy for adults with traumatic brain injury. American Journal of Occupational Therapy, 63(5), 559–568. doi: 10.5014/ajot.63.5.559
   PubMed Web of Science ®Google Scholar
• Douglas, J. (2013). Conceptualizing self and maintaining social connection following severe traumatic brain injury. Brain Injury, 27(1), 60–74. doi: 10.3109/02699052.2012.722254
   PubMed Web of Science ®Google Scholar
• Douglas, J., Drummond, M., Knox, L., & Mealings, M. (2015). Rethinking social-relational perspectives in rehabilitation: Traumatic brain injury as a case study. In K. McPherson, B. E. Gibson, & A. Leplege (Eds.), Rethinking rehabilitation theory (pp. 137–162). Boca Raton: CRC Press.
   Google Scholar
• Fraas, M. R. (2015). Narrative medicine. Suggestions for clinicians to help their clients construct a new identity following acquired brain injury. Topics in Language Disorders, 35(3), 210–218. doi: 10.1097/TLD.0000000000000063
   Web of Science ®Google Scholar
• Fraas, M. R., & Calvert, M. (2007). Oral histories: Bridging misconceptions and reality in brain injury recovery. Disability & Rehabilitation, 29(18), 1449–1455. doi: 10.1080/09638280601102311
   PubMed Web of Science ®Google Scholar
• Fraas, M. R., & Calvert, M. (2009). The use of narratives to identify characteristics leading to a productive life following acquired brain injury. American Journal of Speech-Language Pathology, 18(4), 315–328. doi: 10.1044/1058-0360(2009/08-0008)
   PubMed Web of Science ®Google Scholar
• Freeman, A., Adams, M., & Ashworth, F. (2015). An exploration of the experience of self in the social world for men following traumatic brain injury. Neuropsychological Rehabilitation, 25(2), 189–215. doi: 10.1080/09602011.2014.917686
   PubMed Web of Science ®Google Scholar
• Gergen, M. M., & Gergen, K. J. (1985). The social constructivist movement in modern psychology. American Psychologist, 40(3), 266–275. doi: 10.1037/0003-066X.40.3.266
   Web of Science ®Google Scholar
• Gergen, M. M., & Gergen, K. J. (2014). The social construction of narrative accounts. In K. J. Gergen & M. M. Gergen (Eds.), Historical social psychology (pp. 173–189). Hove: Psychology Press.
   Google Scholar
• Glassman, L. R. (1991). Music therapy and bibliotherapy in the rehabilitation of traumatic brain injury: A case study. The Arts in Psychotherapy, 18(2), 149–156. doi:10.1016/0197-455628912990022-3 doi: 10.1016/0197-4556(91)90022-3
   Web of Science ®Google Scholar
• Gracey, F., Palmer, S., Rous, B., Psaila, K., Shaw, K., O’Dell, J., & Mohamed, S. (2008). “Feeling part of things”: Personal construction of self after brain injury. Neuropsychological Rehabilitation, 18(5-6), 627–650. doi: 10.1080/09602010802041238
   PubMed Web of Science ®Google Scholar
• Greenfield, B. (2011). Phenomenology as a philosophical orientation for understanding the transformative experience of disabling illness. Topics in Stroke Rehabilitation, 18(1), 35–39. doi: 10.1310/tsr1801-35
   PubMed Web of Science ®Google Scholar
• Hersh, D. (2015). “Hopeless, sorry, hopeless”: Co-constructing narratives of care with people who have aphasia post-stroke. Topics in Language Disorders, 35(3), 219–236. doi: 10.1097/tld.0000000000000060
   Web of Science ®Google Scholar
• Hinckley, J. J. (2006). Finding messages in bottles: Living successfully with stroke and aphasia. Topics in Stroke Rehabilitation, 13(1), 25–36. doi: 10.1310/FLJ3-04DQ-MG8W-89EU
   PubMed Web of Science ®Google Scholar
• Hinckley, J. J. (2015). Telling the story of stroke when it’s hard to talk. Topics in Language Disorders, 35(3), 258–266. doi: 10.1097/TLD.0000000000000066
   Web of Science ®Google Scholar
• Hogan, B. A. (1999). Narrative therapy in rehabilitation after brain injury: A case study. Neurorehabilitation, 13(1), 21–25.
   Web of Science ®Google Scholar
• Kaufman, S. (1988). Illness, biography, and the interpretation of self following a stroke. Journal of Aging Studies, 2(3), 217–227. doi: 10.1016/0890-4065(88)90002-3
   Web of Science ®Google Scholar
• Kielhofner, G. (2008). A model of human occupation: Theory and application. Baltimore: Lippincott Williams & Wilkins.
   Google Scholar
• Levac, D., Colquhoun, H., & O’Brien, K. K. (2010). Scoping studies: Advancing the methodology. Implementation Science, 5(1), 69. doi: 10.1186/1748-5908-5-69
   PubMed Web of Science ®Google Scholar
• Levack, W. M. M., Boland, P., Taylor, W. J., Siegert, R. J., Kayes, N. M., Fadyl, J. K., & McPherson, K. M. (2014). Establishing a person-centred framework of self-identity after traumatic brain injury: A grounded theory study to inform measure development. BMJ Open, 4, e004630. doi: 10.1136/bmjopen-2013-004630
   PubMed Web of Science ®Google Scholar
• Levack, W. M. M., Kayes, N. M., & Fadyl, J. K. (2010). Experience of recovery and outcome following traumatic brain injury: A metasynthesis of qualitative research. Disability and Rehabilitation, 32(12), 986–999. doi: 10.3109/09638281003775394
   PubMed Web of Science ®Google Scholar
• Levin, H. S., Shum, D. H. K., & Chan, R. C. K. (2014). Recent advances in traumatic brain injury research: introduction. In H. S. Levin, D. H. K. Shum, & R. C. K. Chan (Eds.), Understanding traumatic brain injury: Current research and future directions (pp. 1–3). New York: Oxford University Press.
   Google Scholar
• Lorenz, L. S. (2010). Visual metaphors of living with brain injury: Exploring and communicating lived experience with an invisible injury. Visual Studies, 25(3), 210–223. doi: 10.1080/1472586X.2010.523273
   Web of Science ®Google Scholar
• Lorenz, L. S. (2011). A way into empathy: A ‘case’ of photo-elicitation in illness research. Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine, 15(3), 259–275. doi: 10.1177/1363459310397976
   Web of Science ®Google Scholar
• McAdams, D. P. (2001). The psychology of life stories. Review of General Psychology, 5(2), 100–122. doi:10.1037/1089-2680.5.2.100.
   Google Scholar
• McPherson, K., Kayes, N. M., & Weatherall, M. (2009). A pilot study of self-regulation informed goal setting in people with traumatic brain injury. Clinical Rehabilitation, 23, 296–309. doi: 10.1177/0269215509102980
   PubMed Web of Science ®Google Scholar
• Morris, S. D. (2004). Re-building identity through narrative following traumatic brain injury. The Journal of Cognitive Rehabilitation, 22, 15–21.
   Google Scholar
• Nochi, M. (1998). ‘Loss of self’ in the narratives of people with traumatic brain injuries: A qualitative analysis. Social Science & Medicine, 46(7), 869–878. doi: 10.1016/S0277-9536(97)00211-6
   PubMed Web of Science ®Google Scholar
• Ownsworth, T. (2014). Self identity after brain injury. London and New York: Psychology Press.
   Google Scholar
• Ownsworth, T., & Haslam, C. (2016). Impact of rehabilitation on self-concept following traumatic brain injury: An exploratory systematic review of intervention methodology and efficacy. Neuropsychological Rehabilitation, 26(1), 1–35. doi: 10.1080/09602011.2014.977924
   PubMed Web of Science ®Google Scholar
• Pennebaker, J. W. (2000). Telling stories: The health benefits of narrative. Literature and Medicine, 19(1), 3–18. doi: 10.1353/lm.2000.0011
   PubMed Web of Science ®Google Scholar
• Pham, M. T., Rajic, A., Greig, J. D., Sargeant, J. M., Papadopoulos, A., & McEwan, S. A. (2014). A scoping review of scoping reviews: Advancing the approach and enhancing consistency. Research Synthesis Methods, 5, 371–385. doi: 10.1002/jrsm.1123
   PubMed Web of Science ®Google Scholar
• Pinhasi-Vittorio, L. (2007). The role of written language in the rehabilitation process of brain injury and aphasia: The memory of the movement in the reacquisition of language. Topics in Stroke Rehabilitation, 14(1), 115–122. doi: 10.1310/tsr1401-115
   PubMed Web of Science ®Google Scholar
• Pinhasi-Vittorio, L. (2008). Poetry and prose in the self-perception of one man who lives with brain injury and aphasia. Topics in Stroke Rehabilitation, 15(3), 288–294. doi: 10.1310/tsr1503-288
   PubMed Web of Science ®Google Scholar
• Ponsford, J., Sloan, S., & Snow, P. (2013). Traumatic brain injury: Rehabilitation for everyday adaptive living. Hove: Psychology Press.
   Google Scholar
• Port, A., Wilmott, C., & Charlton, J. (2002). Self-awareness following traumatic brain injury and implications for rehabilitation. Brain Injury, 16, 277–289. doi: 10.1080/02699050110103274
   PubMed Web of Science ®Google Scholar
• Prigatano, G. P. (2011). The importance of the patient’s subjective experience in stroke rehabilitation. Topics in Stroke Rehabilitation, 18(1), 30–34. doi: 10.1310/tsr1801-30
   PubMed Web of Science ®Google Scholar
• Schonberger, M., Humle, F., & Teasdale, T. W. (2006). Subjective outcome of brain injury rehabilitation in relation to the therapeutic working alliance, client compliance and awareness. Brain Injury, 20(12), 1271–1282. doi: 10.1080/02699050601049395
   PubMed Web of Science ®Google Scholar
• Tamplin, J. (2006). Song collage technique: A new approach to songwriting. Nordic Journal of Music Therapy, 15(2), 177–190. doi: 10.1080/08098130609478164
   Google Scholar
• Tamplin, J., Baker, F., Macdonald, R. A. R., Roddy, C., & Rickard, N. (2015). A theoretical framework and therapeutic songwriting protocol to promote integration of self-concept in people with acquired neurological injuries. Nordic Journal of Music Therapy, 25(2), 111–133. doi: 10.1080/08098131.2015.1011208
   Web of Science ®Google Scholar
• Thomas, J., & Harden, A. (2008). Methods for the thematic synthesis of qualitative research in systematic reviews. BMC Medical Research Methodology, 8, 22. doi: 10.1186/1471-2288-8-45
   PubMed Web of Science ®Google Scholar
• Townsend, E. A., & Polatajko, H. J. (2007). Enabling occupation II: Advancing an occupational therapy vision for health, well-being and justice through occupation. Ottawa: CAOT Publications ACE.
   Google Scholar
• Tyerman, A., & Humphrey, M. (1984). Changes in self-concept following severe head injury. International Journal of Rehabilitation Research, 7, 11–24. doi: 10.1097/00004356-198403000-00002
   PubMed Web of Science ®Google Scholar
• Wilson, B., Gracey, F., Evans, J., & Bateman, A. (2009). Neuropsychological rehabilitation: Theory, models, therapy and outcome. Cambridge: Cambridge University Press.
   Google Scholar
• Ylvisaker, M. (2006). Self-coachng: A context-sensitive, person-centred approach to social communication after traumatic brain injury. Brain Impairment, 7(3), 246–258. doi: 10.1375/brim.7.3.246
   Google Scholar
• Ylvisaker, M., & Feeney, T. (2000). Reconstruction of identity after brain injury. Brain Impairment, 1(1), 12–28. doi: 10.1375/brim.1.1.12
   Google Scholar
• Ylvisaker, M., McPherson, K., Kayes, N. M., & Pellett, E. (2008). Metaphoric identity mapping: Facilitating goal setting and engagement in rehabilitation after traumatic brain injury. Neuropsychological Rehabilitation, 18(5/6), 713–741. doi: 10.1080/09602010802201832
   PubMed Web of Science ®Google Scholar