Recovery and adaptation after traumatic brain injury in New Zealand: Longitudinal qualitative findings over the first two yearsFootnote^*

* On behalf of the TBI Experiences Research Group: Kathryn McPherson; Alice Theadom; Joanna Fadyl; Laura Wilkinson-Meyers; William Levack; Nicola Starkey; Nicola Kayes; Valery Feigin; Matire Harwood; Grant Christey. Supplemental data for this article can be accessed at https://doi.org/10.1080/09602011.2017.1364653

References

• Bidart, C. (2013). What does time imply? The contribution of longitudinal methods to the analysis of the life course. Time & Society, 22(2), 254–273. doi: 10.1177/0961463X12447493
   Web of Science ®Google Scholar
• Brown, D., Lyons, E., & Rose, D. (2006). Recovery from brain injury: Finding the missing bits of the puzzle. Brain Injury, 20(9), 937–946. doi: 10.1080/02699050600909821
   PubMed Web of Science ®Google Scholar
• Calman, L., Brunton, L., & Molassiotis, A. (2013). Developing longitudinal qualitative designs: Lessons learned and recommendations for health services research. BMC Medical Research Methodology, 13(14), 185. doi: 10.1186/1471-2288-13-14
   Web of Science ®Google Scholar
• Charmaz, K. (2006). Constructing grounded theory: A practical guide through qualitative analysis. Los Angeles: SAGE.
   Google Scholar
• Cormack, D., & Robson, C. (2010). Classification and output of multiple ethnicities: Issues for monitoring Māori health. Wellington: Te Rōpū Rangahau Hauora a Eru Pōmare.
   Google Scholar
• Couchman, G., McMahon, G., Kelly, A., & Ponsford, J. (2014). A new kind of normal: Qualitative accounts of multifamily group therapy for acquired brain injury. Neuropsychological Rehabilitation, 24(6), 809–832. doi: 10.1080/09602011.2014.912957
   PubMed Web of Science ®Google Scholar
• DeFina, P., Fellus, J., Polito, M. Z., Thompson, J. W. G., Moser, R. S., & DeLuca, J. (2009). The new neuroscience frontier: Promoting neuroplasticity and brain repair in traumatic brain injury. The Clinical Neuropsychologist, 23(8), 1391–1399. doi: 10.1080/13854040903058978
   PubMed Web of Science ®Google Scholar
• Doidge, N. (2007). The brain that changes itself. New York: Viking.
   Google Scholar
• Douglas, J. (2013). Conceptualizing self and maintaining social connection following severe traumatic brain injury. Brain Injury, 27(1), 60–74. doi: 10.3109/02699052.2012.722254
   PubMed Web of Science ®Google Scholar
• Fadyl, J. K., Channon, A., Theadom, A., & McPherson, K. M. (2017). Optimising qualitative longitudinal analysis: Insights from a study of traumatic brain injury recovery and adaptation. Nursing Inquiry, 24(2), e12170. doi: 10.1111/nin.12170
   Web of Science ®Google Scholar
• Feigin, V. L., Theadom, A., Barker-Collo, S., Starkey, N. J., McPherson, K., Kahan, M., … BIONIC Study Group. (2013). Incidence of traumatic brain injury in New Zealand: A population-based study. The Lancet Neurology, 12(1), 53–64. doi: 10.1016/S1474-4422(12)70262-4
   PubMed Web of Science ®Google Scholar
• Forster, A., Armstrong, J., Buckley, A., Sherry, J., Young, T., Foliaki, S., … McPherson, K. M. (2012). Encouraging family engagement in the rehabilitation process: A rehabilitation provider’s development of support strategies for family members of people with traumatic brain injury. Disability & Rehabilitation, 34(22), 1855–1862. doi: 10.3109/09638288.2012.670028
   PubMed Web of Science ®Google Scholar
• Gagnon, A., Lin, J., & Stergiou-Kita, M. (2016). Family members facilitating community re-integration and return to productivity following traumatic brain injury – motivations, roles and challenges. Disability & Rehabilitation, 38(5), 433–441. doi: 10.3109/09638288.2015.1044035
   PubMed Web of Science ®Google Scholar
• Gelech, J. M., & Desjardins, M. (2011). I am many: The reconstruction of self following acquired brain injury. Qualitative Health Research, 21(1), 62–74. doi: 10.1177/1049732310377454
   PubMed Web of Science ®Google Scholar
• Hibbard, M. R., Cantor, J., Charatz, H., Rosenthal, R., Ashman, T., Gundersen, N., … Gartner, A. (2002). Peer support in the community: Initial findings of a mentoring program for individuals with traumatic brain injury and their families. Journal of Head Trauma Rehabilitation, 17(2), 112–131. doi: 10.1097/00001199-200204000-00004
   PubMed Web of Science ®Google Scholar
• Knox, L., Douglas, J., & Bigby, C. (2016). “I won't be around forever”: Understanding the decision-making experiences of adults with severe TBI and their parents. Neuropsychological Rehabilitation, 26(2), 236–260. doi: 10.1080/09602011.2015.1019519
   PubMed Web of Science ®Google Scholar
• Kreutzer, J. S., Marwitz, J. H., Godwin, E. E., & Arango-Lasprilla, J. C. (2010). Practical approaches to effective family intervention after brain injury. Journal of Head Trauma Rehabilitation, 25(2), 113–120. doi: 10.1097/HTR.0b013e3181cf0712
   PubMed Web of Science ®Google Scholar
• Langlois, J. A., Rutland-Brown, W., & Wald, M. M. (2006). The epidemiology and impact of traumatic brain injury: A brief overview. Journal of Head Trauma Rehabilitation, 21(5), 375–378. doi: 10.1097/00001199-200609000-00001
   PubMed Web of Science ®Google Scholar
• Lefebvre, H., Cloutier, G., & Josée Levert, M. (2008). Perspectives of survivors of traumatic brain injury and their caregivers on long-term social integration. Brain Injury, 22(7–8), 535–543. doi: 10.1080/02699050802158243
   PubMed Web of Science ®Google Scholar
• Levack, W. M. M., Boland, P., Taylor, W. J., Siegert, R., Kayes, N., Fadyl, J., & McPherson, K. (2014). Establishing a person-centred framework of self-identity after traumatic brain injury: A grounded theory study to inform measure development. BMJ Open, 4, e004630. doi: 10.1136/bmjopen-2013-004630
   PubMed Web of Science ®Google Scholar
• Levack, W. M. M., Kayes, N. M., & Fadyl, J. K. (2010). Experience of recovery and outcome following traumatic brain injury: A metasynthesis of qualitative research. Disability & Rehabilitation, 32(12), 986–999. doi: 10.3109/09638281003775394
   PubMed Web of Science ®Google Scholar
• Levin, H. S. (2003). Neuroplasticity following non-penetrating traumatic brain injury. Brain Injury, 17(8), 665–674. doi: 10.1080/0269905031000107151
   PubMed Web of Science ®Google Scholar
• Malec, J. F., Hammond, F. M., Flanagan, S., Kean, J., Sander, A., Sherer, M., & Masel, B. E. (2013). Recommendations from the 2013 galveston brain injury conference for implementation of a chronic care model in brain injury. Journal of Head Trauma Rehabilitation, 28(6), 476–483. doi: 10.1097/HTR.0000000000000003
   PubMed Web of Science ®Google Scholar
• Martin, R., Levack, W. M. M., & Sinnott, A. (2015). Life goals and social identity in people with severe acquired brain injury: An interpretative phenomenological analysis. Disability & Rehabilitation, 37(14), 1234–1241. doi: 10.3109/09638288.2014.961653
   PubMed Web of Science ®Google Scholar
• McPherson, K., Fadyl, J., Theadom, A., Channon, A., Starkey, N., Levack, W. M. M., … Wilkinson-Meyers, L. (2017). Living life after traumatic brain injury: Phase 1 of a longitudinal qualitative study. Journal of Head Trauma Rehabilitation. doi: 10.1097/HTR.0000000000000321
   PubMed Web of Science ®Google Scholar
• Nichols, J. L., & Kosciulek, J. (2014). Social interactions of individuals with traumatic brain injury. Journal of Rehabilitation, 80(2), 21–29.
   Web of Science ®Google Scholar
• Patton, M. Q. (2002). Qualitative research and evaluation methods (3rd ed.). California: Sage publications.
   Google Scholar
• Ponsford, J., Downing, M. G., Olver, J., Ponsford, M., Acher, R., Carty, M., & Gershon, S. (2014). Longitudinal follow-up of patients with traumatic brain injury: Outcome at two, five, and ten years post-injury. Journal of Neurotrauma, 31(1), 64–77. doi: 10.1089/neu.2013.2997
   PubMed Web of Science ®Google Scholar
• Powell, T., Ekin-Wood, A., & Collin, C. (2007). Post-traumatic growth after head injury: A long-term follow-up. Brain Injury, 21(1), 31–38. doi: 10.1080/02699050601106245
   PubMed Web of Science ®Google Scholar
• Salas, C. E., Casassus, M., Rowlands, L., Pimm, S., & Flanagan, D. A. J. (2017). “Relating through sameness”: A qualitative study of friendship and social isolation in chronic traumatic brain injury. Neuropsychological Rehabilitation. doi: 10.1080/09602011.2016.1247730
   Web of Science ®Google Scholar
• Sveen, U., Soberg, H. L., & Ostensjo, S. (2016). Biographical disruption, adjustment and reconstruction of everyday occupations and work participation after mild traumatic brain injury. A focus group study. Disability & Rehabilitation, 38(23), 2296–2304. doi: 10.3109/09638288.2015.1129445
   PubMed Web of Science ®Google Scholar
• Theadom, A., Rowland, V., Levack, W. M. M., Starkey, N., Wilkinson-Meyers, L., McPherson, K., … V, F. (2016). Exploring the experience of sleep and fatigue in male and female adults over the 2 years following traumatic brain injury: A qualitative descriptive study. BMJ Open, 6(4), e010453. doi: 10.1136/bmjopen-2015-010453
   PubMed Web of Science ®Google Scholar
• Thomas, E. J., Levack, W. M. M., & Taylor, W. J. (2014). Self-reflective meaning-making in troubled times: Change in self-identity after traumatic brain injury. Qualitative Health Research, 24(8), 1033–1047. doi: 10.1177/1049732314542809
   PubMed Web of Science ®Google Scholar
• Thorne, S., Kirkham, S. R., & MacDonald-Emes, J. (1997). Interpretive description: A noncategorical qualitative alternative for developing nursing knowledge. Research in Nursing & Health, 20(2), 169–177. doi: 10.1002/(SICI)1098-240X(199704)20:2<169::AID-NUR9>3.0.CO;2-I
   PubMed Web of Science ®Google Scholar