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Original Articles

Relationship continuity and person-centred care: An exploratory mixed-methods investigation of spousal partners’ responses to the challenging care needs of those with acquired brain injury

ORCID Icon, , &
Pages 1169-1189 | Received 09 May 2018, Accepted 02 Jan 2019, Published online: 15 Jan 2019

References

  • Ballard, C., Corbett, A., Orrell, M., Williams, G., Moniz-Cook, E., Romeo, R., et al. (2018). Impact of person-centred care training and person-centred activities on quality of life, agitation, and antipsychotic use in people with dementia living in nursing homes: A cluster-randomised controlled trial. PLOS Medicine, 15(2), e1002500. doi: 10.1371/journal.pmed.1002500
  • Barbosa, A., Sousa, L., Nolan, M., & Figueiredo, D. (2015). Effects of person-centered care approaches to dementia care on staff: A systematic review. American Journal of Alzheimer’s Disease & Other Dementias, 30, 713–722.
  • Bodley-Scott, S. E. M., & Riley, G. A. (2015). How partners experience personality change after traumatic brain injury – its impact on their emotions and their relationship. Brain Impairment, 16, 205–220.
  • Bradbury, T. N., Fincham, F. D., & Beach, S. R. H. (2000). Research on the nature and determinants of marital satisfaction: A decade in review. Journal of Marriage and the Family, 62, 964–980.
  • Braine, M. E. (2011). The experience of living with a family member with challenging behavior post acquired brain injury. Journal of Neuroscience Nursing, 43, 156–164.
  • Brooker, D. (2004). What is person-centred care in dementia? Reviews in Clinical Gerontology, 13, 215–222.
  • Burridge, A. C., Williams, W. H., Yates, P. J., Harris, A., & Ward, C. (2007). Spousal relationship satisfaction following acquired brain injury: The role of insight and socio-emotional skill. Neuropsychological Rehabilitation, 17, 95–105.
  • Chesla, C., Martinson, I., & Muwaswes, M. (1994). Continuities and discontinuities in family members’ relationships with Alzheimer’s patients. Family Relations, 43, 3–9.
  • Epp, T. D. (2003, April). Person-centred dementia care: A vision to be refined. The Canadian Alzheimer Disease Review, 5(3), 14–18.
  • Faul, F., Erdfelder, E., Lang, A. G., & Buchner, A. (2007). G*power 3: A flexible statistical power analysis program for the social, behavioral, and biomedical sciences. Behavior Research Methods, 39, 175–191.
  • Fazio, S., Pace, D., Flinner, J., & Kallmyer, B. (2018). The fundamentals of person-centered care for individuals with dementia. The Gerontologist, 58(S1), S10–S19.
  • Fincham, F. D., Paleari, F. G., & Regalia, C. (2002). Forgiveness in marriage: The role of relationship quality, attributions, and empathy. Personal Relationships, 9, 27–37.
  • Flanagan, D. A. J. (1998). A retrospective analysis of expressed emotion (EE) and affective distress in a sample of relatives caring for traumatically brain-injured (TBI) family members. British Journal of Clinical Psychology, 37, 431–439.
  • Gill, C. J., Sander, A. M., Robins, N., Mazzei, D., & Struchen, M. A. (2011). Exploring experiences of intimacy from the viewpoint of individuals with traumatic brain injury and their partners. Journal of Head Trauma Rehabilitation, 26, 56–68.
  • Gosling, J., & Oddy, M. (1999). Rearranged marriages: Marital relationships after head injury. Brain Injury, 13, 785–796.
  • Hammond, F. M., Davis, C. S., Cook, J. R., Philbrick, P., & Hirsch, M. A. (2012). Relational dimension of irritability following traumatic brain injury: A qualitative analysis. Brain Injury, 26, 1287–1296.
  • Hammond, F. M., Davis, C. S., Whiteside, O. Y., Philbrick, P., & Hirsch, M. A. (2011). Marital adjustment and stability following traumatic brain injury: A pilot qualitative analysis of spouse perspectives. Journal of Head Trauma Rehabilitation, 26, 69–78.
  • James, I. A., & Stephenson, M. (2007). Behaviour that challenges us: The Newcastle support model. Journal of Dementia Care, 15, 19–21.
  • Johnson, R. B., & Onwuegbuzie, A. J. (2004). Mixed methods research: A research paradigm whose time has come. Educational Researcher, 33, 14–26.
  • Kim, S. K., & Park, M. (2017). Effectiveness of person-centered care on people with dementia: A systematic review and meta-analysis. Clinical Interventions in Aging, 12, 381–397.
  • Kitwood, T. (1993). Towards a theory of dementia care: The interpersonal process. Ageing and Society, 13, 51–67.
  • Kitwood, T. (1997). Dementia reconsidered. The person comes first. Buckingham: Open University Press.
  • Kratz, A. L., Sander, A. M., Brickell, T. A., Lange, R. T., & Carlozzi, N. E. (2017). Traumatic brain injury caregivers: A qualitative analysis of spouse and parent perspectives on quality of life. Neuropsychological Rehabilitation, 27, 16–37.
  • Landis, J. R., & Koch, G. G. (1977). The measurement of observer agreement for categorical data. Biometrics, 33, 159–174.
  • Lewis, R. D. H. (1998). The impact of the marital relationship on the experience of caring for an elderly spouse with dementia. Ageing and Society, 18, 209–231.
  • Marsh, N. V., Kersel, D. A., Havill, J. H., & Sleigh, J. W. (1998). Caregiver burden at 1 year following severe traumatic brain injury. Brain Injury, 12, 1045–1059.
  • Martinez, T., Suarez-Alvarez, J., & Yanguas, J. (2016). Instruments for assessing person centered care in gerontology. Psicotherma, 28, 114–121.
  • Marwit, S. J., & Meuser, T. M. (2002). Development and initial validation of an inventory to assess grief in caregivers of persons with Alzheimer’s disease. The Gerontologist, 42, 751–765.
  • McCullough, M. E., Rachal, K. C., Sandage, S. J., Worthington, E. L., Wade Brown, S., & Hight, T. L. (1998). Interpersonal forgiving in close relationships: II. Theoretical elaboration and measurement. Journal of Personality and Social Psychology, 75, 1586–1603.
  • Murray, J., & Livingston, G. (1998). A qualitative study of adjustment to caring for an older spouse with psychiatric illness. Ageing and Society, 18, 659–671.
  • Regan, P. (2011). Close relationships. New York: Routledge.
  • Riley, G. A. (2007). Stress and depression in family carers following traumatic brain injury: The influence of beliefs about difficult behaviours. Clinical Rehabilitation, 21, 82–88.
  • Riley, G. A., Fisher, G., Hagger, B. F., Elliott, A., Le Serve, H., & Oyebode, J. R. (2013). The Birmingham relationship continuity measure: The development and evaluation of a measure of the perceived continuity of spousal relationships in dementia. International Psychogeriatrics, 25, 263–274.
  • Schofield, H. L., Murphy, B., Herrman, H. E., Bloch, S., & Singh, B. (1997). Family caregiving: Measurement of emotional well-being and various aspects of the caregiving role. Psychological Medicine, 27, 647–657.
  • Stratton, P. (1997). Attributional coding of interview data: Meeting the needs of long-haul passengers. In N. Hayes (Ed.), Doing qualitative analysis in psychology (pp. 115–142). Hove, East Sussex: Psychology Press.
  • Tam, S., McKay, A., Sloan, S., & Ponsford, J. (2015). The experience of challenging behaviours following severe TBI: A family perspective. Brain Injury, 29, 813–821.
  • Villa, D., & Riley, G. A. (2017). Partners’ experiences of relationship continuity in acquired brain injury. Cogent Psychology, 4, 1380891.
  • Walters, A. H., Oyebode, J. R., & Riley, G. A. (2010). The dynamics of continuity and discontinuity for women caring for a spouse with dementia. Dementia: The International Journal of Social Research and Practice, 9, 169–189.
  • Wood, R. L., Liossi, C., & Wood, L. (2005). The impact of head injury neurobehavioural sequelae on personal relationships: Preliminary findings. Brain Injury, 19, 845–851.
  • Yasmin, N., Keeble, H. S., & Riley, G. A. (submitted). The development and psychometric evaluation of the Birmingham Relationship Continuity Measure for Acquired Brain Injury.

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