386
Views
2
CrossRef citations to date
0
Altmetric
Articles

Thinking without speaking: Neuropsychological testing with individuals who have communication impairments

ORCID Icon, , , &
Pages 1605-1619 | Received 25 Jan 2021, Accepted 20 Apr 2021, Published online: 12 May 2021

References

  • Adult Guardianship and Trusteeship Act, S.A. (2008). c.A-4.2.
  • Arroll, B. (2003). Screening for depression in primary care with two verbally asked questions: Cross sectional study. British Medical Journal, 327(7424), 1144–1146. https://doi.org/10.1136/bmj.327.7424.1144
  • AssistiveWare. (2020). What is AAC? https://www.assistiveware.com/learn-aac/what-is-aac
  • Cairncross, M., Peterson, A., Lazosky, A., Gofton, T., & Weijer, C. (2016). Assessing decision-making capacity in patients with communication impairments. Cambridge Quarterly of Healthcare Ethics, 25(4), 691–699. https://doi.org/10.1017/S0963180116000414
  • Carrington, S., & Birns, J. (2012). Establishing capacity in a patient with incomplete locked-in syndrome. Progress in Neurology and Psychiatry, 16, 18–20. https://doi.org/10.1002/pnp.257
  • Communication Disabilities Access Canada. (2021). Legislation in Canada. https://www.cdacanada.com/resources/accessible-canada-act/about/legislation-in-canada/
  • Diener, B. L., & Bischof-Rosario, J. A. (2004). Determining decision-making capacity in individuals with severe communication impairments after stroke: The role of augmentative-alternative communication (AAC). Topics in Stroke Rehabilitation, 11(1), 84–88. https://doi.org/10.1310/8XBY-3V4X-1QG9-YN5X
  • Dreer, L. E., DeVivo, M. J., Novack, T. A., Krzywanski, S., & Marson, D. M. (2008). Cognitive predictors of medical decision-making capacity in traumatic brain injury. Rehabilitation Psychology, 53(4), 486–497. https://doi.org/10.1037/a0013798
  • Folstein, M. F., Folstein, S. E., & McHugh, P. R. (1975). Mini-mental state: A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research, 12(3), 189–198. https://doi.org/10.1016/0022-3956(75)90026-6
  • Freedman, M., Stuss, D. T., & Gordon, M. D. (1991). Assessment of competency: The role of neurobehavioral deficits. Annals of Internal Medicine, 115(3), 203–208. https://doi.org/10.7326/0003-4819-115-3-203
  • Giacino, J. T., Katz, D. I., Schiff, N. D., Whyte, J., Ashman, E. J., Ashwal, S., Barbano, R., Hammond, F. M., Laureys, S., Ling, G. S. F., Nakase-Richardson, R., Seel, R. T., Yablon, S., Getchius, T. S. D., Gronseth, G. S., & Armstrong, M. J. (2018). Practice guideline update recommendations summary: Disorders of consciousness. Neurology, 91 450–460. https://doi.org/10.1212/WNL.0000000000005926
  • Graham, M., Weijer, C., Cruse, D., Fernandez-Espejo, D., Gofton, T., Gonzalez-Lara, L. E., Lazosky, A., Naci, L., Norton, L., Peterson, A., Speechley, K. N., Young, B., & Owen, A. M. (2015). An ethics of welfare for patients diagnosed as vegetative with covert awareness. AJOB Neuroscience, 6(2), 31–41. https://doi.org/10.1080/21507740.2015.1014072
  • Grisso, T., & Appelbaum, P. S. (1998). Assessing competence to consent to treatment: A guide for physicians and other health professionals. Oxford University Press.
  • Guger, C., Spataro, R., Allison, B. Z., Heilinger, A., Ortner, R., Cho, W., & La Bella, V. (2017). Complete locked-in and locked-in patients: Command following assessment and communication with vibro-tactile P300 and motor imagery brain-computer interface tools. Frontiers in Neuroscience, 11, 251. https://doi.org/10.3389/fnins.2017.00251
  • International Communication Project. (2014). Why is communication a basic human right? https://internationalcommunicationproject.com/profile/communication-basic-human-right/#:~:text=The%20place%20of%20%E2%80%9Ccommunication%E2%80%9D%20in,through%20any%20media%20and%20regardless
  • Iyer, V. J., Finch, D. G., & Kalu, C. O. (2018). Unlocking the locked-in syndrome: Capacity evaluation and a multidisciplinary approach to care. Psychiatric Annals, 48(9), 448–451. https://doi.org/10.3928/00485713-20180817-01
  • Kagan, A. (1998). Supported conversation for adults with aphasia: Methods and resources for training conversation partners. Aphasiology, 12(9), 816–830. https://doi.org/10.1080/02687039808249575
  • Kalmar, K., & Giacino, J. T. (2005). The JFK coma recovery scale – revised. Neuropsychological Rehabilitation, 15(3–4), 454–460. https://doi.org/10.1080/09602010443000425
  • Maiser, S., Kabir, A., Sabsevitz, D., & Peltier, W. (2016). Locked-in syndrome: Case report and discussion of decisional capacity. Journal of Pain and Symptom Management, 51(4), 789–793. https://doi.org/10.1016/j.jpainsymman.2015.10.021
  • Marino, S., Corallo, F., Allone, C., Formica, C., Alagna, A., Todaro, A., Pollicino, P., Rifici, C., & Sessa, E. (2018). Clinical and neurocognitive outcome evaluationIn locked-in syndrome. Biomedical Journal of Scientific & Technical Research, 12(1), 8999–9002. https://doi.org/10.26717/BJSTR.2018.12.002204
  • McCormick, M., Bose, A., & Marinis, T. (2017). Decision-making capacity in aphasia: SLT’s contribution in England. Aphasiology, 31(11), 1344–1358. https://doi.org/10.1080/02687038.2017.1355441
  • Mendez, M. F., Ala, T., & Underwood, K. L. (1992). Development of scoring criteria for the clock drawing task in Alzheimer’s disease. Journal of the American Geriatrics Society, 40(11), 1095–1099. https://doi.org/10.1111/j.1532-5415.1992.tb01796.x
  • Nasreddine, Z. S., Phillips, N. A., Bédirian, V., Charbonneau, S., Whitehead, V., Collin, I., Cummings, J. L., & Chertkow, H. (2005). The Montreal Cognitive Assessment, MoCA: A brief screening tool for mild cognitive impairment. Journal of the American Geriatrics Society, 53(4), 695–699. https://doi.org/10.1111/j.1532-5415.2005.53221.x
  • Pachet, A., Allan, L., & Erskine, L. (2012). Assessment of fluctuating decision-making capacity in individuals with communication barriers: A case study. Topics in Stroke Rehabilitation, 19(1), 75–85. https://doi.org/10.1310/tsr1901-75
  • Palmer, B. W., & Harmell, A. L. (2016). Assessment of healthcare decision-making capacity. Archives of Clinical Neuropsychology, 31(6), 530–540. https://doi.org/10.1093/arclin/acw051
  • Peterson, A. (2019). Should neuroscience inform judgements of decision-making capacity? Neuroethics, 12(2), 133–151. https://doi.org/10.1007/s12152-018-9369-4
  • Peterson, A., Naci, L., Weijer, C., Cruse, D., Fernández-Espejo, D., Graham, M., & Owen, A. M. (2013). Assessing decision-making capacity in the behaviorally nonresponsive patient with residual covert awareness. AJOB Neuroscience, 4(4), 3–14. https://doi.org/10.1080/21507740.2013.821189
  • Rousseau, M.-C., Baumstarck, K., Alessandrini, M., Blandin, V., Billette de Villemeur T., & & Auquier, P. (2015). Quality of life in patients with locked-in syndrome: Evolution over a 6-year period. Orphanet Journal of Rare Diseases, 10(1), 88. https://doi.org/10.1186/s13023-015-0304-z
  • Schnakers, C., Majerus, S., Goldman, S., Boly, M., Van Eeckhout, P., Gay, S., Pellas, F., Bartsch, V., Peigneux, P., Moonen, G., & Laureys, S. (2008). Cognitive function in the locked-in syndrome. Journal of Neurology, 255(3), 323–330. https://doi.org/10.1007/s00415-008-0544-0
  • Scholten, M., & Vollmann, J. (2018). Feelings and desires are not the same as treatment preferences: Why the health care decision-making framework applied to adolescents should not be applied to persons in the minimally conscious state. AJOB Neuroscience, 9(1), 69–71. https://doi.org/10.1080/21507740.2018.1428239
  • Smith, E., & Delargy, M. (2005). Locked-in syndrome. BMJ, 330(7488), 406–409. https://doi.org/10.1136/bmj.330.7488.406
  • Thibaut, A., Bodien, Y. G., Laureys, S., & Giacino, J. T. (2020). Minimally conscious state “plus”: diagnostic criteria and relation to functional recovery. Journal of Neurology, 267(5), 1245–1254. https://doi.org/10.1007/s00415-019-09628-y
  • Wasserman, J. A., & Navin, M. C. (2018). Capacity for preferences: Respecting patients with compromised decision-making. Hastings Center Report, 48(3), 31–39. https://doi.org/10.1002/hast.853
  • Wilson, F. C., Harpur, J., & McConnell, N. (2007). Vegetative and minimally conscious state(s) survey: Attitudes of clinical neuropsychologists and speech and language therapists. Disability and Rehabilitation, 29(22), 1751–1756. https://doi.org/10.1080/09638280601118432
  • Wright, M. S., Kraft, C., Ulrich, M. R., & Fins, J. J. (2018). Disorders of consciousness, agency, and health care decision making: Lessons from a developmental model. AJOB Neuroscience, 9(1), 56–64. https://doi.org/10.1080/21507740.2018.1425755

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.